Guest guest Posted August 14, 2008 Report Share Posted August 14, 2008 Hi, y093666's posting has made me sit up and take notice. As I have mentioned before, my 19-yr-old daughter started LDN in May, 2008 after having tried Betaferon, Copaxone and too much solumedrol. She has progressively climbed to 4.5mg, and seems to me to have more energy (altho she disagrees). On the negative side, she has had a progressive " pins & needles " sensation starting in her right foot which has climbed up her leg and to her torso, as well as a complete lack of sensation in her left foot. She feels awful. This community has kindly written back suggesting patience, Neurontin, vitamin D, diet modifications. About 1 month ago, daughter started getting a non-itchy rash on her face which we thought was simply irritation from new boyfriend's beard;) Dermatologist consulted " thinks " that the rash is fungal. He gave her an anti-fungal cream and although the rash is much better after one week, it is certainly far from cleared up. The weather is extremely hot and humid...ideal for yeast. I'm wondering if this " fungal " eruption could indicate some more profound yeast stuff and perhaps explain why my daughter feels she is getting so much worse on LDN. We live in Japan. Daughter was diagnosed with MS here in 1/2005. Blood was sent to some lab in the US for Lyme testing but I have no idea what kind of test was used...result was negative. We are quite alone in all this as we don't really have a PCP here in Tokyo who can help us. In Boston, where my daughter is a student, her PCP is the university health center and her MS neurologist fired her when she asked for LDN. She got the LDN from a phone consultation doctor who was kind enough to write the prescription, but there is certainly no relationship. Daughter's diet is quite good here in Japan. Although she does eat some wheat and dairy, she does not eat much of either but does eat a lot of fresh fruit and veg. Diet in Boston is unfortunately much more the standard American diet. Daughter goes back to Boston in 10 days. I have no idea what to do next. Find another dermatologist, a lyme specialist, a new neurologist, a helpful PCP? I would appreciate any advice you may have. thanks for all your support, > > > > > Hello--everyone- I saw the informal post recently on Dr. McCandless protocol for candida. AFter doing Nystatin for many months and a strict candida diet for 5 months...I found found my neuro symptoms improved but continue and fungal skin infecton on back has spread really badly on my back this summer. My alternatively minded GP supports me fully in everything I've done and now suggests I may have systemic yeast problem and wants to go with diflucan. He now agreees that the fungal infection on my back with coincided with neuro symptoms which began 2 years ago (brain fog, shaking, twitching, optic neuropathy), may indeed be related... (DX FMS 10 years ago, Optic neurits 2 years ago with bad neuro > symptoms, postive IGENEX test for Lyme, negative for MS, positive > full acid for yeast , LDN 1 year at 2.25 MG--) Quote Link to comment Share on other sites More sharing options...
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