Amy; Re: Rash - 3 emails.

[Guest guest]

Amy - Responses below - 3 of your emails.

Dave.

-----------

Posted by: " Amy " rnanjnc@... rnanjnc

Date: Thu Jun 5, 2008 5:18 am ((PDT))

[...]

>No funds for a trip and I live in TN. I've never bought anything

overseas but can look into it. Thanks!

Ok, it looks like you have a path forward with ALA, but if you need to look

into DMPS, then you can ask the list if there is anyone in or near TN. I

understand that finances are an issue, but it may be that one initial

investment would be enough to get your on your way.

>>Ok, so it sounds like you can get it down. Why then do you say

>>that it can't

>>be done? What did you do? Can you use an eye dropper with a

>>little juice mixed with the DMSA?

>During the first couple of rounds he wasn't sleeping through the

>night. Now he does. He still drinks from a bottle too. He's a

>fighter, awake and in his sleep. I didn't care if he did wake up and

>didn't go back to sleep. That's the schedule I was use too, never

>sleeping. It didn't matter how many times I tried to shove the bottle

>or the dropper in his mouth he would keep rolling over to go back to

>sleep. If I used the dropper he would spit it back out.

Ok, it's hard. I wonder, could you make a little behavioral reward system for

him? Is there anything that he particularly likes? Open your mouth for this

dropper, I'll give you ... X?

>>Ok, it sounds scary. Seizures I know very little about, but I have

>>seen that

>>there are people doing 1 or 2mg DMSA or ALA for children (some

>>adults start

>>with 6mg). How much were you using? How much does he weigh?

>We were using DMSA then and it was 12.5mg's. He weigh's around 42lbs,

>give or take. He's been stuck at that weight for 2 years now.

Ok, if the seizure like symptoms are a worry, then consider lowering the dose.

What you are giving now is actually a reasonable size dose - weight for

weight, it's more than I can handle as an adult. My weight equivalent dose is

5mg, and I'm progressing fine.

>Thanks

>Amy

------------

Posted by: " Amy " rnanjnc@... rnanjnc

Date: Thu Jun 5, 2008 8:13 am ((PDT))

>While trying the 8 hour dosing with ALA, Colby developed a small rash

>on his back.

>During the first round of 8 hour dosing we saw this same rash but

>thought he scraped his back. It's small and round, beside his spine.

>Trying the every 8 hours again, after the first dose of 25mg's, within

>the hour he got the same rash, in the same spot. I'm assuming it's

>either the ALA or the higher mg's that caused this. It was after the

>first dose.

>Has anyone had any problems with a single rash like this? I've added it

>to the Photo's under Colby.

I've had trouble with a rash that appears right in the center of my chest, on

the sternum. It only happens when I use ALA, and it's clearly an outbreak of

some kind of fungal infection. I use coconut oil after showers, and it helps

to control it.

I don't find it's presence surprising, since mercury accumulates predominantly

in various organs, including liver, kidney, heart, brain, and _skin_. So, I

just try to take care of myself, brushing the skin in the shower, and sweating

a little if I can.

>Thanks,

>Amy

----------------

Posted by: " Amy " rnanjnc@... rnanjnc

Date: Thu Jun 5, 2008 8:51 am ((PDT))

>Thanks, I was thinking it could be detox too but would it happen that

>fast. An hour after the first dose.

That does sound fast. I'm not sure what it is.

>Colby doesn't sweat much. He can run all day and never sweats.

See AI p.49. It looks to me like he needs some thiamine to decrease the

sensitivity of the relevant acetylcholine receptors, and some acetylcholine

precursors, like lecithin.

Ask the list if anyone has used this method to help their children sweat.

>Ouch!! Blisters! Colby's was kind of dry looking and flaky. I don't

>know if it was itchy because he always keeps his hands in his pull-up

>anyways!

Thanks Again,

----------------

[Guest guest]

Posted by: " Amy " rnanjnc@... rnanjnc

Date: Sat Jun 7, 2008 7:44 pm ((PDT))

Thanks Dave!

> > Ok, it's hard. I wonder, could you make a little behavioral reward

system for

> > him? Is there anything that he particularly likes? Open your

mouth for this

> > dropper, I'll give you ... X?

>Great idea but he doesn't understand rewards. Even if he did

understand, I don't think it would help because he's so dang stubborn.

Wouldn't be anything like his mother, would he?

(Would have to be, or else you wouldn't be surviving!

Well, let's see. There must be _something_ he likes, something that you could

give him right away. How does he communicate what he wants? Are you able to

work with him at all on communicating, you do this, I'll give you that? Is he

verbal at all? Do you use PECS? My guess is that underneath all this, he's

not a dumb kid. If you figure out how to work with him (I know that's the hard

part), he's going to begin to pick something up.

But anyway, from your previous emails, it does sound like you might be able to

work with him for one night, perhaps once or twice a week. The hope is, with a

little chelation, your ability to work with him might begin to improve.

> > Ok, if the seizure like symptoms are a worry, then consider

lowering the dose.

> > What you are giving now is actually a reasonable size dose -

weight for

> > weight, it's more than I can handle as an adult. My weight

equivalent dose is

> > 5mg, and I'm progressing fine.

>I'll try a lower dose next time.

> I've had trouble with a rash that appears right in the center of

my chest, on

> > the sternum. It only happens when I use ALA, and it's clearly an

outbreak of

> > some kind of fungal infection. I use coconut oil after showers,

and it helps

> > to control it.

>I do have coconut oil. I'll try putting some on it.

> > See AI p.49. It looks to me like he needs some thiamine to

decrease the

> > sensitivity of the relevant acetylcholine receptors, and some

acetylcholine

> > precursors, like lecithin.

>He already gets thiamine. What would be a good upper dose for a 42lb

>child?

Let's see ... it's a vitamin B, so basically (except in rare cases and except

for B6) you can give a lot and it won't hurt. Where to start ... I have to

look this up. Ok, in AI, p.165, for adults he suggests 100-500mg might help.

So, divide this by 3 for a 42 pounder, and you get 30-150mg. Start with 50,

maybe.

>Thanks Dave!!

Well - let's see if it works.

Dave.