Re: DMSA /Once a great group...

March 30, 2008

>

> ----- Original Message -----

> From:

>

> I am hoping someone can answer this for a discussion I had with

someone today.

> I know someone who is chelating their child on the 3 times per

day dan protocol.I told her that I am doing the dmsa every four hours

at a lower dose am under the impression that the dmsa stays in your

body only 3-4 hours and thats why you dose sooner and lower.Her take

on it is if you do a higher dose it stays in their body longer and

you can go 8 hours.

> This didn't really make any sense to me and I want to respond to

her.

>

> ====>The half life of Dmsa is 4 hours, no matter how much you

give. The truth is that *some* kids can take the every 8 hour dosing

and a lot more can't without redistribution symptoms. Since it's

impossible to tell which one your child is without experimenting and

causing damage, the safest way to give Dmsa is every 4 hours.

>

> If you use her reasoning I should be able to take 8 Advil and

have them last for 24 hours, it doesn't work that way.

>

> Dan! dosing is 8 hours but we get a lot of parents' here whose

child got worse on that dose timing. Again, not all do, but I'd

rather be safe and experimenting with a kid is not my idea of fun.

>

Actually the the half life of DMSA is 48 hours per the FDA

(http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

DMSA blood levels peak between 3-4 hours.

I talked and exchanged emails with many " experts " including Andy way

back in 2000 when we set out to " SHElate " (I didn't even know how to

pronounce it). I choose eight hour dosing believing it was effective

and safe. I still believe that. Andy even asked if he could present

our story of recovery until he learned we recovered our son following

the old DAN! Mercury Detox Protocol.

Years ago, this was once a great group where information from

differing points of view could be freely exchanged and a parent

didn't have to hear he or she was putting their child in danger or

being criticized for doing something that doesn't conform

to " majority thinking " . I rarely post here anymore for this very

reason as frankly it's just not worth the trouble. How many old

timers like me do likewise? Where is the founder Lynn Redwood? How

many chelation veterans with gobs of experience or who, like me, have

actually recovered their child and don't want to push against the

tide? It's not our loss folks.

All this shit is an experiment.

Charlie

March 30, 2008

I apologize myself if your feeling bullyied in any way. I

certainly personally did not mean anything towards you in that way.

Nor did I mean to make you feel that way. I personally felt that you

were attacking my information as though I must not know anything

either. Which was unfair, since you have not followed on this group in

a long while. so you are not familiar with any of my previous postings

or my experiences or education. Just as I am not familiar with yours.

I too have talked with Andy, he reviewed my children's hair test and

told me to chelate them at 1/8-1/2 mg of dmsa/ala every four hours for

at least three years. I took his advice because it makes scientific

sense.

Andy has changed his protocol since the old days to the four hours for

reasons he believes are justifiable. So this is what many of us are

doing now, because it's what is working better for many children and

adults who don't tolerate the 8 hour protocol or those who wish not to

gamble with redistribution. It also does say in Amalgam Illness to use

it every 4 hours. Andy learned that reducing the redistribution was

important to reducing side effects and damage. According to Andy the

half life if 4 hours. A chemist would know more than an organization

that is financially manipulated like the FDA is. Clearly they approved

these vaccines in the first place.

Personally, I don't believe anything the FDA says. No offense, but

they are the same jerks who said to put those crappy mercury laden

vaccines in my kids in the first place. So they have no clout to me.

Most of them are officials who sit on the boards of very rich

pharmaceutical companies. So they are paid to say many things.

I am not saying what you used to help your child is wrong. At that

time it's what you had to use, it's what was available. It was state

of the art in 2000. Nothing wrong with that. But if someone has

improved upon something since then, it makes sense to look at that. If

you have large group of people saying that it works better this

way..then it also makes sense to consider that.

I do think it's wonderful that your child is better. Things have

changed since 2000 with Andy's protocol. I guess this is where our

difference of knowledge lay. Mine is recent research in the past five

years. Through the experiences of the group and through Andy's

continued research..we have learned that reducing the times of

redistribution is important. Personally with chelating myself, I have

clearly felt the importance of this.

We would not in any way turn away that mother if she or anyone else

chose to use 8 hours..we just let them know the facts first. They can

try it..usually we find they repost with problems and want to know why

their child is sick or not doing well. Then they decide to do the four

hours. We don't beat them up for that. I have seen it many times in

the past three years on this board. Since we get so many people who

join up in crisis saying " OMG my kid is doing 250mg of dmsa every 8

hour and they are sick..what do I do? "

We try to head it off at the pass so to speak..so another child does

not have to get worse. You'll have to forgive me for trying to do that

for another child. It is my only passion..to help others..Not to

condemn them in anyway. There are people here using Transdermal, and

different dosing and different timing. That's their choice. Again,

usually they end up with Andy's protocol. But I help them as well with

things like yeast protocols or vitamin dosing. I don't try to talk

them out of what they are doing.

Where is Lyn..I think running SafeMinds right now. She does on

occasion visit us.

There are many others here doing things one may consider " not with the

majority " such as infared saunas, Stem cells stuff,

Immunoglobulin...etc. Ultimately it's there choice. We don't chase

them off for it.

So again, sorry if we or I made you feel " unwelcome " . Not at all my

plan..I just believe in defending myself when called out. Which is

what you did..you called me out. So nothing personal..we use Andy's

protocol. Almost everyone on this board knows I do and that I support

it and will provide information about it, and I also look things up

for people in his books if they don't own them. I interpret hair tests

for them, and point them towards useful research or sites they may

need. I don't take any of this lightly.. please know that. I don't

give people information that I have not double checked myself to be

from reputable sources.

I would not tell someone to do something to their child that I was not

willing to do to my own. I have not in fact ever advised them to do

something that we have not tried ourselves. I have taken dmsa myself

and I have taken it more than 4 hours apart..and I personally felt the

symptoms of redistribution..so regardless of what the FDA says..this

stuff doesn't last that long. I really don't wish to argue with you

about it any longer. Keep in mind things change in 8 years...

So again, I do apologize. I was prompted to defend myself for

something I posted to someone else. No hard feelings...agree to disagree.

-

> Actually the the half life of DMSA is 48 hours per the FDA

> (http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

>

> DMSA blood levels peak between 3-4 hours.

>

> I talked and exchanged emails with many " experts " including Andy way

> back in 2000 when we set out to " SHElate " (I didn't even know how to

> pronounce it). I choose eight hour dosing believing it was effective

> and safe. I still believe that. Andy even asked if he could present

> our story of recovery until he learned we recovered our son following

> the old DAN! Mercury Detox Protocol.

>

> Years ago, this was once a great group where information from

> differing points of view could be freely exchanged and a parent

> didn't have to hear he or she was putting their child in danger or

> being criticized for doing something that doesn't conform

> to " majority thinking " . I rarely post here anymore for this very

> reason as frankly it's just not worth the trouble. How many old

> timers like me do likewise? Where is the founder Lynn Redwood? How

> many chelation veterans with gobs of experience or who, like me, have

> actually recovered their child and don't want to push against the

> tide? It's not our loss folks.

>

> All this shit is an experiment.

>

> Charlie

>

March 30, 2008

[ ] re: DMSA /Once a great group...

How many old

timers like me do likewise? Where is the founder Lynn Redwood? How

many chelation veterans with gobs of experience or who, like me, have

actually recovered their child and don't want to push against the

tide?

====>Everything I'm going to say here, applies to me as well. Just because

someone chelated their child successfully (we did also, low/frequent dosing)

doesn't make them an expert. Children are highly individual and the 50 mgs of

Dmsa you used every 8 hours at best would have landed ours in the hospital or

worse.

NOONE should breathe a sigh of relief or pat themselves on the back until

their child has passed puberty which I assume your child has. Hormones have a

way of arranging neurons and if there is any mercury hanging around there are

likely to be unpleasant consequences. If your boy has not passed puberty, please

report back when he has, as I plan to do.

It's not our loss folks.

====>It isn't going to hurt anyone if they give their child low frequent

dosing of chelators every 3 to 4 hours, that is just not true for the 8 hour

dosing, it most certainly would have hurt ours. I know, I spent 9 months

perusing the boards and keeping my mouth shut just observing what parents were

doing and keeping track of the results they were reporting. I never asked for

reports.

What I found was the result of what I observed. And that is that some kids can

take the 8 hour dosing and do fine and LOT don't, and then they end up here on

this board with their child worse than they were in the beginning.

All this shit is an experiment.

====>I believe the original study done by Amy Holmes where she reported 75% of

children improved with chelation used the 3/4 hour dosing of Dmsa/Ala, right?

Charlie

March 30, 2008

> All this shit is an experiment.

>

> Charlie

>

There's an old saying that " aviation rules are written in the blood of

dead aviators " .

March 31, 2008

Charlie,

I appreciate your input and hope you stay on this site to provide

more. I signed up for this site believing it was about mercury (and

other metal) detoxification and was suprised to hear it is about

Andy's protocol and other protocols are " bashed " .

Jada, You are very hyped up about Charlie's response and I think it

is very inappropriate to " bully " people into not sharing their

experiences by posting a 50 sentance post to discredit his. You say

that this is your area of study but never say what your study is.

Further, as an attorney (who is about to start DAN chelation), I

strongly suggest that parents chelate under the supervision of a

medical doctor. Not a chemist and certainly not a book. There is NO

malpractice suits against a chemist or other non-medical professional

so there is certainly no " duty of care " owed.

Personally, I would rather put my money on a doctor who, if

mistreats, is going to be out his medical license and hundreds of

thousands of dollars rather than a book.

Just my opinion and please do not waste my time, your time or the

other parents on this board's time by " bashing " my opinion. If you

don't want to SHARE opinions go read your books by yourself.

Phyllis

> >

> > ----- Original Message -----

> > From:

> >

> > I am hoping someone can answer this for a discussion I had with

> someone today.

> > I know someone who is chelating their child on the 3 times per

> day dan protocol.I told her that I am doing the dmsa every four

hours

> at a lower dose am under the impression that the dmsa stays in your

> body only 3-4 hours and thats why you dose sooner and lower.Her

take

> on it is if you do a higher dose it stays in their body longer and

> you can go 8 hours.

> > This didn't really make any sense to me and I want to respond

to

> her.

> >

> > ====>The half life of Dmsa is 4 hours, no matter how much you

> give. The truth is that *some* kids can take the every 8 hour

dosing

> and a lot more can't without redistribution symptoms. Since it's

> impossible to tell which one your child is without experimenting

and

> causing damage, the safest way to give Dmsa is every 4 hours.

> >

> > If you use her reasoning I should be able to take 8 Advil and

> have them last for 24 hours, it doesn't work that way.

> >

> > Dan! dosing is 8 hours but we get a lot of parents' here whose

> child got worse on that dose timing. Again, not all do, but I'd

> rather be safe and experimenting with a kid is not my idea of fun.

> >

>

> Actually the the half life of DMSA is 48 hours per the FDA

> (http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

>

> DMSA blood levels peak between 3-4 hours.

>

> I talked and exchanged emails with many " experts " including Andy

way

> back in 2000 when we set out to " SHElate " (I didn't even know how

to

> pronounce it). I choose eight hour dosing believing it was

effective

> and safe. I still believe that. Andy even asked if he could present

> our story of recovery until he learned we recovered our son

following

> the old DAN! Mercury Detox Protocol.

>

> Years ago, this was once a great group where information from

> differing points of view could be freely exchanged and a parent

> didn't have to hear he or she was putting their child in danger or

> being criticized for doing something that doesn't conform

> to " majority thinking " . I rarely post here anymore for this very

> reason as frankly it's just not worth the trouble. How many old

> timers like me do likewise? Where is the founder Lynn Redwood? How

> many chelation veterans with gobs of experience or who, like me,

have

> actually recovered their child and don't want to push against the

> tide? It's not our loss folks.

>

> All this shit is an experiment.

>

> Charlie

>

March 31, 2008

I wasn't bullied and no apology needed.

It's the whole atmosphere that A-M has become. Nearly a week doesn't go

by I stop in to read the posts. Anyone with any other ideas or

suggestions outside of Andy's protocol are usually quickly criticized.

I have been a fan of Andy's for a very long time and most of what he

has said has been right on the money. My whole point is that some of

you zealots need to take it down a notch so you can get input

from " free thinkers " or maybe the name of this group needs to be

changed to the Andy-Mercury Group.

" Follow the man who seeks the truth and run from the man who has found

it. " - Vaclav Havel

Charlie

March 31, 2008

----- Original Message -----

From: Phyllis Colace

I appreciate your input and hope you stay on this site to provide

more. I signed up for this site believing it was about mercury (and

other metal) detoxification and was suprised to hear it is about

Andy's protocol and other protocols are " bashed " .

====>If warning other parents' about the possible bad side effects of

high/infrequent protocols is bashing, then we're probably guilty. I just don't

want to remain quiet about what has been reported by other parents' on this and

other boards and the adults who have chelated and have someone's kid get hurt.

Maybe others' think that would be kind, I disagree.

Jada, You are very hyped up about Charlie's response and I think it

is very inappropriate to " bully " people into not sharing their

experiences by posting a 50 sentance post to discredit his. You say

that this is your area of study but never say what your study is.

Further, as an attorney (who is about to start DAN chelation), I

strongly suggest that parents chelate under the supervision of a

medical doctor.

====>You might want to go to chelatingkids 2 group, every single treatment

under the sun is being done under the guidance of a dr but I'll warn you that I

have lost my breakfast more than a couple of times reading about kids losing

their speech or banging their heads against the wall as a result of the dan!

dosing and treatment. Don't take my word for it, please, nothing is as good as

reading there yourself.

Personally, I would rather put my money on a doctor who, if

mistreats, is going to be out his medical license and hundreds of

thousands of dollars rather than a book.

====>Interesting, I don't know if any Dan! drs have been sued. We have seen

two dans! and I don't remember signing anything saying we couldn't sue. But

suing would be the very last thing on my mind if our kid got worse. They might

be out a medical license and money, you're out a kid, doesn't seem like a fair

exchange.

If you don't want to SHARE opinions go read your books by yourself.

===>You know I thought people WERE sharing their opinions, am I wrong? And

this statement above is the closest thing I have seen to an unkind remark that

is designed to shut down the communication.

I wish you the best Phyllis, please feel free to come back after you have

chelated for a year or so and share your experiences.

Phyllis

> >

> > ----- Original Message -----

> > From:

> >

> > I am hoping someone can answer this for a discussion I had with

> someone today.

> > I know someone who is chelating their child on the 3 times per

> day dan protocol.I told her that I am doing the dmsa every four

hours

> at a lower dose am under the impression that the dmsa stays in your

> body only 3-4 hours and thats why you dose sooner and lower.Her

take

> on it is if you do a higher dose it stays in their body longer and

> you can go 8 hours.

> > This didn't really make any sense to me and I want to respond

to

> her.

> >

> > ====>The half life of Dmsa is 4 hours, no matter how much you

> give. The truth is that *some* kids can take the every 8 hour

dosing

> and a lot more can't without redistribution symptoms. Since it's

> impossible to tell which one your child is without experimenting

and

> causing damage, the safest way to give Dmsa is every 4 hours.

> >

> > If you use her reasoning I should be able to take 8 Advil and

> have them last for 24 hours, it doesn't work that way.

> >

> > Dan! dosing is 8 hours but we get a lot of parents' here whose

> child got worse on that dose timing. Again, not all do, but I'd

> rather be safe and experimenting with a kid is not my idea of fun.

> >

>

> Actually the the half life of DMSA is 48 hours per the FDA

> (http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

>

> DMSA blood levels peak between 3-4 hours.

>

> I talked and exchanged emails with many " experts " including Andy

way

> back in 2000 when we set out to " SHElate " (I didn't even know how

to

> pronounce it). I choose eight hour dosing believing it was

effective

> and safe. I still believe that. Andy even asked if he could present

> our story of recovery until he learned we recovered our son

following

> the old DAN! Mercury Detox Protocol.

>

> Years ago, this was once a great group where information from

> differing points of view could be freely exchanged and a parent

> didn't have to hear he or she was putting their child in danger or

> being criticized for doing something that doesn't conform

> to " majority thinking " . I rarely post here anymore for this very

> reason as frankly it's just not worth the trouble. How many old

> timers like me do likewise? Where is the founder Lynn Redwood? How

> many chelation veterans with gobs of experience or who, like me,

have

> actually recovered their child and don't want to push against the

> tide? It's not our loss folks.

>

> All this shit is an experiment.

>

> Charlie

>

March 31, 2008

Maybe people just have a genuine concern that someone else might be

headed down the wrong path?

People can get angry about it all they like, just because someone tells

them something they don't want to hear. The end result is people won't

bother trying to help other people.

In the end most people will believe what they want to believe, and a lot

of people need to learn the hard way. That's a shame for their kids,

but what can an outsider do?

And as for " Doctors " and " experts " , I'm sure glad this guy isn't guiding

my daughters recovery program:

" The usefulness of chelation therapy in treating autism is... is nil "

Dr Jay Berkelhammer

President Elect

American Academy of Paediatrics

Cheers

Charlie Hoover wrote:

>

> I wasn't bullied and no apology needed.

>

> It's the whole atmosphere that A-M has become. Nearly a week doesn't go

> by I stop in to read the posts. Anyone with any other ideas or

> suggestions outside of Andy's protocol are usually quickly criticized.

> I have been a fan of Andy's for a very long time and most of what he

> has said has been right on the money. My whole point is that some of

> you zealots need to take it down a notch so you can get input

> from " free thinkers " or maybe the name of this group needs to be

> changed to the Andy-Mercury Group.

>

> " Follow the man who seeks the truth and run from the man who has found

> it. " - Vaclav Havel

>

> Charlie

>

March 31, 2008

YES! It is.

Pam

>

> All this shit is an experiment.

>

> Charlie

>

March 31, 2008

, Jumping all over someone for telling there stories is does

not allow for the free sharing of information. I should go to

chelatingkids group. Is it on ? I am looking for a site that has

a variety of views and opinions which is why I signed up for this

one. Having only one protocol to compare to just isn't helpful to me

since it is not the protocol that I am following currently. Call me

unkind all you want I didn't post a 50 sentance post jumping down

someone's back. I actually was interested in Charlie's experience and

wonder how many that are using that protocol left this site and no

longer have a wide range of ideas. By the way, don't tell me when to

come back and when I should feel free. This is the WORLD WIDE web and

I shall visit the site I please. If you don't like my presence, you

can feel free to ignore it or leave yourself but don't tell me what

to do. Can't handle the heat, you know what they say.

> > >

> > > ----- Original Message -----

> > > From:

> > >

> > > I am hoping someone can answer this for a discussion I had

with

> > someone today.

> > > I know someone who is chelating their child on the 3 times

per

> > day dan protocol.I told her that I am doing the dmsa every four

> hours

> > at a lower dose am under the impression that the dmsa stays in

your

> > body only 3-4 hours and thats why you dose sooner and lower.Her

> take

> > on it is if you do a higher dose it stays in their body longer

and

> > you can go 8 hours.

> > > This didn't really make any sense to me and I want to respond

> to

> > her.

> > >

> > > ====>The half life of Dmsa is 4 hours, no matter how much you

> > give. The truth is that *some* kids can take the every 8 hour

> dosing

> > and a lot more can't without redistribution symptoms. Since

it's

> > impossible to tell which one your child is without

experimenting

> and

> > causing damage, the safest way to give Dmsa is every 4 hours.

> > >

> > > If you use her reasoning I should be able to take 8 Advil and

> > have them last for 24 hours, it doesn't work that way.

> > >

> > > Dan! dosing is 8 hours but we get a lot of parents' here

whose

> > child got worse on that dose timing. Again, not all do, but I'd

> > rather be safe and experimenting with a kid is not my idea of

fun.

> > >

> >

> > Actually the the half life of DMSA is 48 hours per the FDA

> > (http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

> >

> > DMSA blood levels peak between 3-4 hours.

> >

> > I talked and exchanged emails with many " experts " including

Andy

> way

> > back in 2000 when we set out to " SHElate " (I didn't even know

how

> to

> > pronounce it). I choose eight hour dosing believing it was

> effective

> > and safe. I still believe that. Andy even asked if he could

present

> > our story of recovery until he learned we recovered our son

> following

> > the old DAN! Mercury Detox Protocol.

> >

> > Years ago, this was once a great group where information from

> > differing points of view could be freely exchanged and a parent

> > didn't have to hear he or she was putting their child in danger

or

> > being criticized for doing something that doesn't conform

> > to " majority thinking " . I rarely post here anymore for this

very

> > reason as frankly it's just not worth the trouble. How many old

> > timers like me do likewise? Where is the founder Lynn Redwood?

How

> > many chelation veterans with gobs of experience or who, like

me,

> have

> > actually recovered their child and don't want to push against

the

> > tide? It's not our loss folks.

> >

> > All this shit is an experiment.

> >

> > Charlie

> >

>

March 31, 2008

----- Original Message -----

From: Phyllis Colace

, Jumping all over someone for telling there stories is does

not allow for the free sharing of information. I should go to

chelatingkids group. Is it on ?

====>Yes, it's on , but you won't find this protocol there, you aren't

allowed to mention Andy Cutler on the chelatingkids2 list, it's a violation of

their rules and you'd get kicked off. So not exactly the free sharing of

information....but does present you with a variety of views/protocols.

Again a warning, reading about what the Dan! drs were doing made me distrust

Dan! drs completely.

I am looking for a site that has

a variety of views and opinions which is why I signed up for this

one. Having only one protocol to compare to just isn't helpful to me

since it is not the protocol that I am following currently.

====>I wholeheartedly agree with this, I think everyone should investigate

everything. And that is what we did. On here and chelatingkids2 and on the adult

list so that I could get a good idea of what the various protocols were and what

the results were.

Call me

unkind all you want

====>I didn't call you unkind, Phyllis, I said your statement was unkind, a

subtle difference but I don't know you well enough to know if you are unkind.

I still wish you a very good outcome with whatever you choose.

> > >

> > > ----- Original Message -----

> > > From:

> > >

> > > I am hoping someone can answer this for a discussion I had

with

> > someone today.

> > > I know someone who is chelating their child on the 3 times

per

> > day dan protocol.I told her that I am doing the dmsa every four

> hours

> > at a lower dose am under the impression that the dmsa stays in

your

> > body only 3-4 hours and thats why you dose sooner and lower.Her

> take

> > on it is if you do a higher dose it stays in their body longer

and

> > you can go 8 hours.

> > > This didn't really make any sense to me and I want to respond

> to

> > her.

> > >

> > > ====>The half life of Dmsa is 4 hours, no matter how much you

> > give. The truth is that *some* kids can take the every 8 hour

> dosing

> > and a lot more can't without redistribution symptoms. Since

it's

> > impossible to tell which one your child is without

experimenting

> and

> > causing damage, the safest way to give Dmsa is every 4 hours.

> > >

> > > If you use her reasoning I should be able to take 8 Advil and

> > have them last for 24 hours, it doesn't work that way.

> > >

> > > Dan! dosing is 8 hours but we get a lot of parents' here

whose

> > child got worse on that dose timing. Again, not all do, but I'd

> > rather be safe and experimenting with a kid is not my idea of

fun.

> > >

> >

> > Actually the the half life of DMSA is 48 hours per the FDA

> > (http://www.fda.gov/cder/foi/label/2007/019998s013lbl.pdf).

> >

> > DMSA blood levels peak between 3-4 hours.

> >

> > I talked and exchanged emails with many " experts " including

Andy

> way

> > back in 2000 when we set out to " SHElate " (I didn't even know

how

> to

> > pronounce it). I choose eight hour dosing believing it was

> effective

> > and safe. I still believe that. Andy even asked if he could

present

> > our story of recovery until he learned we recovered our son

> following

> > the old DAN! Mercury Detox Protocol.

> >

> > Years ago, this was once a great group where information from

> > differing points of view could be freely exchanged and a parent

> > didn't have to hear he or she was putting their child in danger

or

> > being criticized for doing something that doesn't conform

> > to " majority thinking " . I rarely post here anymore for this

very

> > reason as frankly it's just not worth the trouble. How many old

> > timers like me do likewise? Where is the founder Lynn Redwood?

How

> > many chelation veterans with gobs of experience or who, like

me,

> have

> > actually recovered their child and don't want to push against

the

> > tide? It's not our loss folks.

> >

> > All this shit is an experiment.

> >

> > Charlie

> >

>

March 31, 2008

> Years ago, this was once a great group where information from

> differing points of view could be freely exchanged and a parent

> didn't have to hear he or she was putting their child in danger or

> being criticized for doing something that doesn't conform

> to " majority thinking " . I rarely post here anymore for this very

> reason as frankly it's just not worth the trouble. How many old

> timers like me do likewise? Where is the founder Lynn Redwood? How

> many chelation veterans with gobs of experience or who, like me, have

> actually recovered their child and don't want to push against the

> tide? It's not our loss folks.

My son is 100% biomedically recovered. No more diet restrictions, no

more yeast overgrowth, no more supps required.

No more autism.

He is, however, still developmentally delayed, because he has a Kanner

dx and was autistic from a HepB vax at birth, had a LOT of medical

issues to resolve, and never had any development whatsoever until age

4. He has a lot of ground to catch up. He is 12yo now, and is doing

first grade work.

I chelated my four kids [and myself] with ALA 3x per day. I have no

problem posting this on this message board, altho to reduce the number

of replies, I usually write " Note: this is not the protocol usually

recommended on this forum. "

I am not afraid to post this info, I don't care what other people

think about me. This is probably one of my autistic " benefits " that I

have not lost with my own chelation. Every time I post this

information, I will sometimes receive 1-2 public replies from others

who are not afraid to mention it online. I also receive quite a

number of private emails asking for more information. I always

mention " some kids do not do well with this protocol, and require ALA

every 3 hours " . This is what I honestly believe. Every child is

different, and every parent has the right to make his/her own

decisions without accusations.

Most of the people who contact me by private email, do try the 3x per

day protocol, and most of them have good success with it. So it is

definitely an option, but again not for all kids.

I do understand that you consider it " not worth it " to post here tho,

because I stopped posting on non-biomedical boards, for just this

reason. Not worth my time and aggravation, especially considering the

volume of work I do every day on the internet. I only have 24 hours

each day LOL

Do you post on CK2? I can't post there because I recovered my son

without a doctor, and having a doctor is required to post there. Some

of us are not able to have a doctor [no doctor, even DANs, would

accept my son as a patient, because of his Kanner dx], so we recover

our kids by ourselves. There is probably a good reason for that

requirement, altho on a bad day I consider it elitist, especially

since many people simply can't afford a doctor. But presumably this

is why there are several message boards available, so people can use

the one/s that suit their own personalities and circumstances best.

This board has been VERY beneficial for my son's recovery, altho yes,

you are right, I have to have thick skin sometimes because of the

" zealots " . There are zealots on pretty much every message board [two

of which I moderate LOL], and some of them have good reason to be

zealots, so I can respect that. But I agree, many times it does come

off like you describe, which I think is wrong, and unfair to other

parents.

People can accuse and flame me all they want, but I recovered a

severely autistic Kanner child without a doctor [or a school district,

I homeschool], what words can possibly harm me?

Congrats on your child's recovery, and your willingness to share it.

Dana

March 31, 2008

I have found this list and many others IMPERATIVE in my child's recovery.

I think coming online and announcing you are going to sue a doctor for

hundreds of thousands of dollars speaks volumes. I'm sure a DAN doesn't have

the insurance coverage to fulfill that unbelievably and frivolous lawsuit. If

you are going into something with the expectation of failure or disaster, I'm

sure you are going to find exactly that.

" Recovery " has many meanings to many parents. For some, it means that their

child has found speech and can go out in public for the first time. For others

it means there are no tell tale signs of a spectrum disorder. I participate in

many forums so I can become informed and fully understood what I was undertaking

prior to beginning anything with my child. In the end it was absolutely to his

benefit. And saved me a lot of unnecessary anxiety and many sleepless nights.

If it is any parents/adults intention to begin any

medical/biomedical/nutritional intervention without taking the time to get all

the appropriate information, I have no doubt there will be an unexpected

outcome. I have sat on many other lists and seen parents report horrible

regressions with their children and yet others talk of the many hundreds of

bottles of unnecessary supplements and chemicals they purchased that did more

harm or no good whatsoever.

If it's your intention to sue someone, then obviously you won't be successful

on an internet forum, unless it's your intention to set a precedent for the very

first internet medical malpractice suit. And in all honesty I can't imagine

you're going to have much success finding someone to treat you if they get wind

of your thinking.

If you truly want to recover there are many ways to do that.

Opening your mind is usually the first step.

Cathi

danasview <danasview@...> wrote: