Re: Info on sleep disturbances please

[Guest guest]

For me, disturbed sleep caused me to stop taking LDN twice. I just could not

sleep at all & eventually

had to start on 1mg per night & slowly work up to 3mg. Now I'm @ 3mg & take

melatonnin an hour before bed with something called kali-phos & I sleep ok.

[Guest guest]

Splitting a capsule is NOT an accurate measure anyway. The amount of naltrexone in the capsule is only about the size of a few grains of sand, so splitting it will either give you all naltrexone or all filler.

If she needs to ramp up, the best thing to do is ask the dr for a new script for the lower dose.

HTH

Arlene

--------- Re: [low dose naltrexone] Info on sleep disturbances please>> ,>> On some people get sleep disturbances and mostly it's just vivid dreams.> I had them for 2 or 3 nights when I started and wish they'd come back as> I enjoyed them!!>> >> Hudson wrote:>>>> I'm just concerned as I live by myself. Are the sleep disturbances>> usually horrible in nature or just vivid dreams?>> I'm not scared (LOL) I just don't want to wake up firing my pistol at>> some imaginary monsters or something.>> Are you generally exhausted the following day? And this should go on>> for what two weeks? I'm just not real clear>> On what to expect but I guess I'll find out because I know I can trust>> Skip's Pharmacy. Any comments would be>> greatly ap

preciat ed.>>>> >>> ------------------------------------>>

[Guest guest]

Hi,

sleep disturbances:

Haven't had these kind of sleepdisturbances, mine was exactly opposite to this childs,

but I have read that this could last for the first week at it's best. Melatonin may help getting her tired. Discuss this with her doc. Other needs to take ldn in the morning to avoid

problems like this, but I would suggest to wait and see. LDN is said to work best when

taken at night to work better towards the endorphine production.

Good luck!

Ingrid

Re: [low dose naltrexone] Info on sleep disturbances please>> ,>> On some people get sleep disturbances and mostly it's just vivid dreams.> I had them for 2 or 3 nights when I started and wish they'd come back as> I enjoyed them!!>> >> Hudson wrote:>>>> I'm just concerned as I live by

myself. Are the sleep disturbances>> usually horrible in nature or just vivid dreams?>> I'm not scared (LOL) I just don't want to wake up firing my pistol at>> some imaginary monsters or something.>> Are you generally exhausted the following day? And this should go on>> for what two weeks? I'm just not real clear>> On what to expect but I guess I'll find out because I know I can trust>> Skip's Pharmacy. Any comments would be>> greatly appreciated.>>>> >>> ------------------------------------>>

[Guest guest]

- I have not read that LDN should ever be taken in the morning. If

one chooses to do this, they can of course, at their own risk and,

shouldn't for the long term. If, for MS, disease progression isn't

stopped, don't blame LDN.

-- In low dose naltrexone , Gunn Dybfest

<gunn.ingrid@...> wrote:

>

> Hi,

> sleep disturbances:

> Haven't had these kind of sleepdisturbances, mine was exactly

opposite to this childs,

> but I have read that this could last for the first week at it's

best. Melatonin may help getting her tired. Discuss this with her

doc. Other needs to take ldn in the morning to avoid

> problems like this, but I would suggest to wait and see. LDN is

said to work best when

> taken at night to work better towards the endorphine production.

> Good luck!

>  

>

>  Ingrid

>

>

>

> Re: [low dose naltrexone] Info on sleep disturbances please

> >

> > ,

> >

> > On some people get sleep disturbances and mostly it's just vivid

dreams.

> > I had them for 2 or 3 nights when I started and wish they'd come

back as

> > I enjoyed them!!

> >

> >

> >

> > Hudson wrote:

> >>

> >> I'm just concerned as I live by myself. Are the sleep

disturbances

> >> usually horrible in nature or just vivid dreams?

> >> I'm not scared (LOL) I just don't want to wake up firing my

pistol at

> >> some imaginary monsters or something.

> >> Are you generally exhausted the following day? And this should

go on

> >> for what two weeks? I'm just not real clear

> >> On what to expect but I guess I'll find out because I know I can

trust

> >> Skip's Pharmacy. Any comments would be

> >> greatly appreciated.

> >>

> >>

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

There have been some discussions about taking ldn in the morning in this forum. Some of the users have actually posted in here that they do so, and they claim that ldn is working anyway. Elaine , the author of the book that they soon start to sell at amazon, wrote in an article where she has interviewed some of the researchers at Penn State University that it seems that ldn works not even when taking it in the morning, but also the researchers have found that the dose could vary between 0.l to 10.0 mg each day, depending on the persons metabolism and reactions to ldn.

I don't want to mislead anyone by telling them to take ldn in the mornings instead of the nights, and I use to say that it seems that MS'ers are better by taking them at nights. (But this is the MS'ers we know from this forum, maybe other takes the pills in the mornings...and succeed as far as we know)... We have to be careful when advising people, I have got mails from people being warned that ldn does nothing if they take more than 4.5 mg or take it in the morning. We have to admit that we can't support anyone by being too sure, everyone is different, we react to treatment in different ways, and it's better trying to take ldn in the morning instead of giving it up when the sleep disturbances almost kills us.

As I wrote in another post; advicing people to take ldn at night is the first step. If time/melatonin/other meds/kali-phos(a homeopathic remedy)wont help against sleep disturbances, - then try to change to morning dosages. Size of dosage: the most used dose is 3.0 or 4.5. The optimal has been and still is: 4.5 mg. But if ldn don't work at 4.5 mg for some, try a bigger dose. It's suggested to try up to 10.0 mg. Why give it up when it does nothing to you at the usual dosages? What is the alternative? For me it would be: go back to medicines that might give me cancer as a worse case scenario. I will rather both try ldn in the mornings and if necessary - bigger doses when I am flaring. I use 6.0 mg when flaring together with small doses of prednisone. It helps me getting rid of flares that usually lasts from 3-6 months, only taking 1 month by such a protocol.

Kindest regards

Ingrid

Re: [low dose naltrexone] Info on sleep disturbances please> >> > ,> >> > On some people get sleep disturbances and mostly it's just vivid dreams.> > I had them for 2 or 3 nights when I started and wish they'd come back as> > I enjoyed them!!> >> > > >> > Hudson wrote:> >>> >> I'm just concerned as I live by myself. Are the sleep disturbances> >> usually horrible in nature or just vivid dreams?> >> I'm not scared (LOL) I just don't want to wake up firing my pistol at> >> some imaginary monsters or something.> >> Are you generally

exhausted the following day? And this should go on> >> for what two weeks? I'm just not real clear> >> On what to expect but I guess I'll find out because I know I can trust> >> Skip's Pharmacy. Any comments would be> >> greatly appreciated.> >>> >> > >> >> > ------------------------------------> >> >

[Guest guest]

I agree. Every person is different. Even with so called " label

Medicines and foods " , we all react differently.

Doctors (not LDN ones!) make the mistake of thinking one dosage fits

all, it's just easier for them but it is not true.

Tweeking LDN to your body reaction is the best way to go.

Re: [low dose naltrexone] Re: Info on sleep disturbances please

There have been some discussions about taking ldn in the

morning in this forum. Some of the users have actually posted in here

that they do so, and they claim that ldn is working anyway. Elaine

, the author of the book that they soon start to sell at amazon,

wrote in an article where she has interviewed some of the researchers

at Penn State University that it seems that ldn works not even when

taking it in the morning, but also the researchers have found that the

dose could vary between 0.l to 10.0 mg each day, depending on

the persons metabolism and reactions to ldn. 

 

I don't want to mislead anyone by telling them to take ldn in the

mornings instead of the nights, and I use to say that it seems that

MS'ers are better by taking them at nights. (But this is the20MS'ers we

know from this forum, maybe other takes the pills in the mornings...and

succeed as far as we know)... We have to be careful when advising

people, I have got mails from people being warned that ldn does nothing

if they take more than 4.5 mg or take it in the morning. We have to

admit that we can't support anyone by being too sure, everyone is

different, we react to treatment in different ways, and it's better

trying to take ldn in the morning instead of giving it up when the

sleep disturbances almost kills us. 

 

As I wrote in another post; advicing people to take ldn at night is the

first step. If time/melatonin/other meds/kali-phos(a homeopathic

remedy)wont help against sleep disturbances, - then try to change to

morning dosages. Size of dosage: the most used dose is 3.0 or 4.5. The

optimal has been and still is: 4.5 mg. But if ldn don't work at 4.5 mg

for some, try a bigger dose. It's suggested to try up to 10.0 mg. Why

give it up when it does nothing to you at the usual dosages? What is

the alternative? For me it would be: go back to medicines that might

give me cancer as a worse case scenario. I will rather both try ldn in

the mornings and if necessary - bigger doses when I am flaring. I use

6.0 mg when flaring together with small doses of prednisone. It helps

me getting rid of flares that usually lasts from 3-6 months, only

taking201 month by such a protocol.

 

Kindest regards

Ingrid

Re: [low dose naltrexone] Info on sleep disturbances please

> >

> > ,

> >

> > On some people get sleep disturbances and mostly it's just vivid

dreams.

> > I had them for 2 or 3 nights when I started and wish they'd come

back as

> > I enjoyed them!!

> >

> >

> >

> > Hudson wrote:

> >>

> >> I'm just concerned as I live by myself. Are the sleep

disturbances

> >> usually horrible in nature or just vivid dreams?

> >> I'm not scared (LOL) I just don't want to wake up firing my

pistol at

> >> some imaginary monsters or something.

> >> Are you generally

exhausted the following day? And this should

go on

> >> for what two weeks? I'm just not real clear

> >> On what to expect but I guess I'll find out because I know I can

trust

> >> Skip's Pharmacy. Any comments would be

> >> greatly appreciated.

> >>

> >>

> >

> >

> > ------------------------------------

> >

> >

[Guest guest]

Every single person I know online that has Multiple Sclerosis and

uses LDN not one has been successful taking LDN in the morning. NOT

ONE. Dr. Bihari's protocol for MS is to take LDN between the hours of

9PM and 3AM. The optimal adult dosage is 4.5mgs which is what Dr.

Bihari strived for. If you have MS and decide to take LDN during

hours and at dosages other than advised do so at your own risk and

don't blame LDN for not working.

Art

--

> > >>

> > >> I'm just concerned as I live by myself. Are the sleep

> disturbances

> > >> usually horrible in nature or just vivid dreams?

> > >> I'm not scared (LOL) I just don't want to wake up firing my

> pistol at

> > >> some imaginary monsters or something.

> > >> Are you generally exhausted the following day? And this should

> go on

> > >> for what two weeks? I'm just not real clear

> > >> On what to expect but I guess I'll find out because I know I

can

> trust

> > >> Skip's Pharmacy. Any comments would be

> > >> greatly appreciated.

> > >>

> > >>

> > >

> > >

> > > ------------------------------------

> > >

> > >

[Guest guest]

I have only known of one with MS that is supposedly succeeding with

taking LDN in AM, BUT that person has Relapsing/Remitting MS. I have

witnessed absolutely no one with the more chronic progressive forms of

MS succeed at halting MS disease progression by taking LDN outside the

Bihari protocol, including myself.

For MS'ers, dosages over 4.5mg for a prolonged period of time could

cause disease worsening.

We MS'ers have to remember that the disease model used in lab animals

is a very poor model of our disease. The model that is used is a

likeness to MS but not really MS. We always see the MS model

responding to treatments but when the new treatment is taken to

humans, it either fails or does not perform as well in humans as it

did in the lab animals. Dr. Bihari's practice with LDN for MS

involved humans, not the lousy mouse model of near MS. We so

desperately need clinical trials of LDN for those with chronic forms

of MS done in humans and to measure endophin production of AM compared

to PM dosing and to see which dosing time will halt chronic forms of

MS disease progression. This sort of trial needs to be no less than

two and a half years long to determine this.

It is up to the person taking LDN to choose what dosing time they want

to use but like Art said,if you take it outide the Bihari protocol and

you continue to get worse, don't blame LDN until you have taken the

LDN for 1 year following Bihari's protocol. For the Bihari LDN

protocol visit http://www.ldninfo.org

---------

> >

> > There have been some discussions about taking ldn in the morning

in

> this forum. Some of the users have actually posted in here that they

> do so, and they claim that ldn is working anyway. Elaine , the

> author of the book that they soon start to sell at amazon, wrote in

> an article where she has interviewed some of the researchers at Penn

> State University that it seems that ldn works not even when taking

it

> in the morning, but also the researchers have found that the dose

> c

4a6

ould vary between 0.l to 10.0 mg each day, depending on the persons

> metabolism and reactions to ldn.

> >

> > I don't want to mislead anyone by telling them to take ldn in the

> mornings instead of the nights, and I use to say that it seems that

> MS'ers are better by taking them at nights. (But this is the MS'ers

> we know from this forum, maybe other takes the pills in the

> mornings...and succeed as far as we know).... We have to be careful

> when advising people, I have got mails from people being warned that

> ldn does nothing if they take more than 4.5 mg or take it in the

> morning. We have to admit that we can't support anyone by being

> too sure, everyone is different, we react to treatment in different

> ways, and it's better trying to take ldn in the morning instead of

> giving it up when the sleep disturbances almost kills us.

> >

> > As I wrote in another post; advicing people to take ldn at night

is

> the first step. If time/melatonin/other meds/kali-phos(a homeopathic

> remedy)wont help against sleep disturbances, - then try to change to

> morning dosages. Size of dosage:

566

the most used dose is 3.0 or 4.5.

> The optimal has been and still is: 4.5 mg. But if ldn don't work at

> 4.5 mg for some, try a bigger dose. It's suggested to try up to 10.0

> mg. Why give it up when it does nothing to you at the usual dosages?

> What is the alternative? For me it would be: go back to medicines

> that might give me cancer as a worse case scenario. I will rather

> both try ldn in the mornings and if necessary - bigger doses when I

> am flaring. I use 6.0 mg when flaring together with small doses of

> prednisone. It helps me getting rid of flares that usually lasts

from

> 3-6 months, only taking 1 month by such a protocol.

> >

> > Kindest regards

> > Ingrid

> >

[Guest guest]

Hi , I’m no expert that is for sure, but I have

to refute what you said when it comes to LDN in the morning for NON-MS users………

I can only speak for myself and those of us that take

in the morning for thyroid and Fibro, CFS, BEV and joint pain.

I have severe hip joint pain, soft tissue/muscle pain

and Fibro and LDN has been INCREDIBLE!!!! I’ve been on it since June and

simply CANNOT believe the pain relief I am experiencing!!!.

But not surprising considering the major sleep problems

I have had all my life – it did in deed bother me sleep wise.

I did go back twice now to trying to take at night for

2 weeks each time, but with no relief – and 2 weeks with almost no sleep

is my limit.

If LDN could help even more by taking at night……….well

it truly is a miracle as far as I am concerned, again speaking for myself,

people on here don’t like that M word – but when you are a person

who could not even lie on her left side for more than 30 seconds……..and

now sleep/lay on that side for hours if not all night – well that is

pretty much a miracle to me!!!

Not to mention I had a fall injured my right shoulder,

had to have surgery and have not been able to lie on my right side since july

22nd much………… I just can’t imagine how

I would have coped had I not found LDN in June and been able to start lying on

the left side……..it just boggles my mind as to the compounded pain

and misery I would have been in since I don’t sleep on my back or

stomach.

To my way of thinking……….getting

benefit using it in the morning is way better than no benefit at all……..again

for those who are taking for other reasons such as MS etc – I am making

no comment, as I have NO experience with it.

SeaLady

- I have not read that LDN should ever be taken in the

morning. If

one chooses to do this, they can of course, at their own risk and,

shouldn't for the long term. If, for MS, disease progression isn't

stopped, don't blame LDN.

____________________________________________________________

Are you Catholic and single? Click Here.

[Guest guest]

KC,

Let me clarify. I was talking about people with MS.

>

> Hi , I'm no expert that is for sure, but I have to refute what

you said

> when it comes to LDN in the morning for NON-MS users...

>

>

>

> I can only speak for myself and those of us that take in the

morning for

> thyroid and Fibro, CFS, BEV and joint pain.

>

>

>

> I have severe hip joint pain, soft tissue/muscle pain and Fibro and

LDN has

> been INCREDIBLE!!!! I've been on it since June and simply CANNOT

believe

> the pain relief I am experiencing!!!.

>

>

>

> But not surprising considering the major sleep problems I have had

all my

> life - it did in deed bother me sleep wise.

>

>

>

> I did go back twice now to trying to take at night for 2 weeks each

time,

> but with no relief - and 2 weeks with almost no sleep is my limit.

>

>

>

> If LDN could help even more by taking at night....well it truly is

a miracle

> as far as I am concerned, again speaking for myself, people on here

don't

> like that M word - but when you are a person who could not even lie

on her

> left side for more than 30 seconds....and now sleep/lay on that

side for

> hours if not all night - well that is pretty much a miracle to me!!!

>

>

>

> Not to mention I had a fall injured my right shoulder, had to have

surgery

> and have not been able to lie on my right side since july 22nd

much.... I

> just can't imagine how I would have coped had I not found LDN in

June and

> been able to start lying on the left side....it just boggles my

mind as to

> the compounded pain and misery I would have been in since I don't

sleep on

> my back or stomach.

>

>

>

> To my way of thinking....getting benefit using it in the morning is

way

> better than no benefit at all....again for those who are taking for

other

> reasons such as MS etc - I am making no comment, as I have NO

experience

> with it.

>

>

>

> SeaLady

>

> - I have not read that LDN should ever be taken in the morning. If

> one chooses to do this, they can of course, at their own risk and,

> shouldn't for the long term. If, for MS, disease progression isn't

> stopped, don't blame LDN.

>

> ____________________________________________________________

> Are you Catholic and single? Click Here.

>

http://thirdpartyoffers.juno.com/TGL2141/fc/Ioyw6i3oGxtvIYuNq4170YbdeX

cydNx206NqGRfQqTpDjewMC1OFG7/

>

[Guest guest]

My initial answer was to the person that was worried about a child and Crohns. She gets LDN in the evening, and can't sleep. I adviced her ....read the answer, and another person tuned in and was warning the mother for changing to day time use of ldn. This is not ment to be a discussion whether it's right or to take ldn in the morning for MS'ser. Anyway, to clarify, I have already in the text below written that MS's does best by taking it at night. Ingrid

[low dose naltrexone] Re: Info on sleep disturbances pleaseEvery single person I know online that has Multiple Sclerosis and uses LDN not one has been successful taking LDN in the morning. NOT ONE. Dr. Bihari's protocol for MS is to take LDN between the hours of 9PM and 3AM. The optimal adult dosage is 4.5mgs which is what Dr. Bihari strived for. If you have MS and decide to take LDN during hours and at dosages other than advised do so at your own risk and don't blame LDN for not working.Art--> > >>> > >> I'm just concerned as I live by myself. Are the

sleep > disturbances> > >> usually horrible in nature or just vivid dreams?> > >> I'm not scared (LOL) I just don't want to wake up firing my > pistol at> > >> some imaginary monsters or something.> > >> Are you generally exhausted the following day? And this should > go on> > >> for what two weeks? I'm just not real clear> > >> On what to expect but I guess I'll find out because I know I can > trust> > >> Skip's Pharmacy. Any comments would be> > >> greatly appreciated.> > >>> > >> > > >> > >> > > ------------------------------------> > >> > >

[Guest guest]

And it should be noted that ONE person with R/R MS who " supposedly

succeeded " with AM LDN dosing was one of the few people banned from

this group for spreading lies, harassing members and using vulgar

and obscene language. A real trouble-making nuisance. This person

slandered Dr. Bihari, Dr. McCandless, Skip and Cyndi Lenz, and

yours truly. Not a very credible witness.

If taking LDN during times other than recommended works for you then

I am happy for you, but I will continue to push the

Bihari Protocol, 9PM - 3AM, for new users and especially if the

person has multiple sclerosis. The consequences are much too serious

to fool around with.

I know all too well.

Art

--

> I have only known of one with MS that is supposedly succeeding with

> taking LDN in AM, BUT that person has Relapsing/Remitting MS. I

have

> witnessed absolutely no one with the more chronic progressive forms

of

> MS succeed at halting MS disease progression by taking LDN outside

the

> Bihari protocol, including myself.

>

> For MS'ers, dosages over 4.5mg for a prolonged period of time could

> cause disease worsening.

>

> We MS'ers have to remember that the disease model used in lab

animals

> is a very poor model of our disease. The model that is used is a

> likeness to MS but not really MS. We always see the MS model

> responding to treatments but when the new treatment is taken to

> humans, it either fails or does not perform as well in humans as it

> did in the lab animals. Dr. Bihari's practice with LDN for MS

> involved humans, not the lousy mouse model of near MS. We so

> desperately need clinical trials of LDN for those with chronic

forms

> of MS done in humans and to measure endophin production of AM

compared

> to PM dosing and to see which dosing time will halt chronic forms

of

> MS disease progression. This sort of trial needs to be no less

than

> two and a half years long to determine this.

>

> It is up to the person taking LDN to choose what dosing time they

want

> to use but like Art said,if you take it outide the Bihari protocol

and

> you continue to get worse, don't blame LDN until you have taken the

> LDN for 1 year following Bihari's protocol. For the Bihari LDN

> protocol visit http://www.ldninfo.org

>

>

[Guest guest]

You are so right.Many thanks for that input.I listen to what you have to say all the time.Your emails are so important to me. Clare.

[low dose naltrexone] Re: Info on sleep disturbances please

And it should be noted that ONE person with R/R MS who "supposedly succeeded" with AM LDN dosing was one of the few people banned from this group for spreading lies, harassing members and using vulgar and obscene language. A real trouble-making nuisance. This person slandered Dr. Bihari, Dr. McCandless, Skip and Cyndi Lenz, and yours truly. Not a very credible witness. If taking LDN during times other than recommended works for you then I am happy for you, but I will continue to push the Bihari Protocol, 9PM - 3AM, for new users and especially if the person has multiple sclerosis. The consequences are much too serious to fool around with.I know all too well. Art-- > I have only known of one with MS that is supposedly succeeding with > taking LDN in AM, BUT that person has Relapsing/Remitting MS. I have > witnessed absolutely no one with the more chronic progressive forms of > MS succeed at halting MS disease progression by taking LDN outside the > Bihari protocol, including myself.> > For MS'ers, dosages over 4.5mg for a prolonged period of time could > cause disease worsening. > > We MS'ers have to remember that the disease model used in lab animals > is a very poor model of our disease. The model that is used is a > likeness to MS but not really MS. We always see the MS model > responding to treatments but when the new treatment is taken to > humans, it either fails or does not perform as well in humans as it > did in the lab animals. Dr. Bihari's practice with LDN for MS > involved humans, not the lousy mouse model of near MS. We so > desperately need clinical trials of LDN for those with chronic forms > of MS done in humans and to measure endophin production of AM compared > to PM dosing and to see which dosing time will halt chronic forms of > MS disease progression. This sort of trial needs to be no less than > two and a half years long to determine this.> > It is up to the person taking LDN to choose what dosing time they want > to use but like Art said,if you take it outide the Bihari protocol and > you continue to get worse, don't blame LDN until you have taken the > LDN for 1 year following Bihari's protocol. For the Bihari LDN > protocol visit http://www.ldninfo.org> >

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