Re: Need advise on chelation - I'm so sad.

[Guest guest]

,

I am sorry to read this. Yes, it s overwhelming to have a child who needs

you 24/7. Have you tried Andy's protocol of just ALA?

Hang in there.

Leo

..

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217768/stime=1198785981/nc1=4763764/nc2=5008807/nc3=4836032>

[Guest guest]

" according to the doctor " is part of the

problem.

Many of us on this list have choosen

to be the captain of our children's

health care. We don't do " according

to the doctor. " We do " according to

our own judgment. "

--- kellymac92 <cs-mom@...> wrote:

> My 3 year old's French Porphyrin Test showed mercury

> and lead levels

> off the charts - higher than the doctor had ever

> seen. I don't

> really understand how they could be so high when

> there are so many

> other kids that the doctor has seen that are worse

> off than he is.

>

> We did an oral dmsa challenge him and it didn't pull

> > enough to justify doing it full time according to

> the doctor. Now

> > he wants us to do an edta/dmps suppository

> challenge and is really

> > pushing for edta dmps iv treatment. His main

> issues are lack of

> > language, some lining up, no pretend play, and

> freaking out in the

> car

> > when I stop sometimes. I'm honestly afraid to try

> either one for

> fear of making

> > him worse, but I'm also at my wits end and don't

> know how much

> longer

> > I can go on with him the way he is. It is so

> depressing to see his

> 13 month old cousin pass him up. I just feel like

> dying. I'm

> pregnant to top things off,

> > and something's gotta change before I'm having to

> deal with a

> newborn

> > baby and an autistic 3 year old who demands every

> ounce of my time

> and

> > energy. I can't go on like this. I've got to try

> something. I'm

> just looking for experiences both good and bad with

> both

> > of these chelators. (dmps/edta supp. or iv)

> M.

>

>

>

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[Guest guest]

Leo,

I've never heard of it. Where do I find it?

Kellly

>

> ,

>

> I am sorry to read this. Yes, it s overwhelming to have a child

who needs

> you 24/7. Have you tried Andy's protocol of just ALA?

>

> Hang in there.

>

> Leo

>

>

>

> .

>

>

> <http://geo./serv?

s=97359714/grpId=416807/grpspId=1705061616/msgId=

> 217768/stime=1198785981/nc1=4763764/nc2=5008807/nc3=4836032>

>

>

>

>

>

[Guest guest]

Andy's chelation protocol using Alpha Lipoic Acid (ALA) is found in the

files, when you first sign in.

Andy is also here in this group; you can ask him and other questions, you

are not able to find already answered in the files.

It took me a while to get to this info.

Here is the link:

http://home.earthlink.net/~moriam/ANDY_INDEX.html#supplements

Scroll down and read THOURGH EVRYHTING; so you can soon gain confidence and

do things yourself for your child.

Good luck and I hope that helps.

Leo

[Guest guest]

Cheers on that!

Dani

>

> > My 3 year old's French Porphyrin Test showed mercury

> > and lead levels

> > off the charts - higher than the doctor had ever

> > seen. I don't

> > really understand how they could be so high when

> > there are so many

> > other kids that the doctor has seen that are worse

> > off than he is.

> >

> > We did an oral dmsa challenge him and it didn't pull

> > > enough to justify doing it full time according to

> > the doctor. Now

> > > he wants us to do an edta/dmps suppository

> > challenge and is really

> > > pushing for edta dmps iv treatment. His main

> > issues are lack of

> > > language, some lining up, no pretend play, and

> > freaking out in the

> > car

> > > when I stop sometimes. I'm honestly afraid to try

> > either one for

> > fear of making

> > > him worse, but I'm also at my wits end and don't

> > know how much

> > longer

> > > I can go on with him the way he is. It is so

> > depressing to see his

> > 13 month old cousin pass him up. I just feel like

> > dying. I'm

> > pregnant to top things off,

> > > and something's gotta change before I'm having to

> > deal with a

> > newborn

> > > baby and an autistic 3 year old who demands every

> > ounce of my time

> > and

> > > energy. I can't go on like this. I've got to try

> > something. I'm

> > just looking for experiences both good and bad with

> > both

> > > of these chelators. (dmps/edta supp. or iv)

> > M.

> >

> >

> >

>

>

>

>

________________________________________________________________________________\

____

> Looking for last minute shopping deals?

> Find them fast with Search. http://tools.search./newsearch/

category.php?category=shopping

>

[Guest guest]

I know because I have asked the same question on here. Do not use

the EDTA on a mercury toxic person, it will make them more sick. I

believe DMSA will chelate lead and mercury. Those challenge tests

are also not good because they are usually a high dose of a chelator

and there is more risk with IV, he recommends the oral. Read more

about Andy's protocol in the files section, starting low and slow.

HTH.

>

> My 3 year old's French Porphyrin Test showed mercury and lead

levels

> off the charts - higher than the doctor had ever seen. I don't

> really understand how they could be so high when there are so many

> other kids that the doctor has seen that are worse off than he is.

>

> We did an oral dmsa challenge him and it didn't pull

> > enough to justify doing it full time according to the doctor. Now

> > he wants us to do an edta/dmps suppository challenge and is really

> > pushing for edta dmps iv treatment. His main issues are lack of

> > language, some lining up, no pretend play, and freaking out in

the

> car

> > when I stop sometimes. I'm honestly afraid to try either one for

> fear of making

> > him worse, but I'm also at my wits end and don't know how much

> longer

> > I can go on with him the way he is. It is so depressing to see

his

> 13 month old cousin pass him up. I just feel like dying. I'm

> pregnant to top things off,

> > and something's gotta change before I'm having to deal with a

> newborn

> > baby and an autistic 3 year old who demands every ounce of my

time

> and

> > energy. I can't go on like this. I've got to try something. I'm

> just looking for experiences both good and bad with both

> > of these chelators. (dmps/edta supp. or iv)

> M.

>

[Guest guest]

>

> My 3 year old's French Porphyrin Test showed mercury and lead levels

> off the charts - higher than the doctor had ever seen. I don't

> really understand how they could be so high when there are so many

> other kids that the doctor has seen that are worse off than he is.

>

This test is an indication of whether or not the child has mercury and

lead in his body. It doesn't give a quantitative measurement of how

much metals are in his body. It is not reasonable to compare one

person's test with another and say that one is more toxic than the

other. All it is is an indication that appropriate chelation will

likely help, which is good news.

Please study Andy's protocol and consider chelating this child with

Andy's protocol. Chances are he will get much better and possibly

recover, just like many other kids have recovered with chelation using

Andy's protocol.

> We did an oral dmsa challenge him

Please don't do any more oral challenges. The challenge dose of

chelator moves too much metal at once, and will hurt him. The results

are not informative. You already know that he is a candidate for a

trial of chelation.

and it didn't pull

> > enough to justify doing it full time according to the doctor.

Now

> > he wants us to do an edta/dmps suppository challenge and is really

> > pushing for edta dmps iv treatment.

Please don't do anything that this doctor suggests. All of the above

treatments will hurt your child significantly.

There is lots of material in the FAQ, files, and links sections of

this group, and Andy's two books that will help you to understand

appropriate chelation.

J

His main issues are lack of

> > language, some lining up, no pretend play, and freaking out in the

> car

> > when I stop sometimes. I'm honestly afraid to try either one for

> fear of making

> > him worse, but I'm also at my wits end and don't know how much

> longer

> > I can go on with him the way he is. It is so depressing to see his

> 13 month old cousin pass him up. I just feel like dying. I'm

> pregnant to top things off,

> > and something's gotta change before I'm having to deal with a

> newborn

> > baby and an autistic 3 year old who demands every ounce of my time

> and

> > energy. I can't go on like this. I've got to try something. I'm

> just looking for experiences both good and bad with both

> > of these chelators. (dmps/edta supp. or iv)

> M.

>

[Guest guest]

,

We've done 3 urine metals test over a few years now. They have not

shown anything significant. My daughter[23yrs now] had 'mod toxiciy'

on the urine prophyrins testing - trouble with lead, arsenic and

mercury. We've been chelating awhile using Cutler's protocol. She's

had many improvements. They include being able to feel her hands and

feet[loss of peripheral neuropathy], being able to feel

discomfort/pain, improved thyroid function, pupils that react much

more normally, decrease in visual and auditory sensitivity[she could

not stand the stimulus of places like the school lunch room, malls

ect and would often be close to seizures from the exposure],

disappearance of periodic, ithchy rashes etc. We're not done yet and

she has a way to go. I, too, was afraid to begin. She had been

through so much and I did not want to cause her more distress.

But.....I'm so glad I took the plunge! You are fortunate to have come

upon these interventions with a young child. My lead and mercury

toxic grandson was about 3 when his mother, my oldest daughter,

began interventions with him. He was way behind on all vaccinations

[thank heavens!] because he was sick all the time. She stopped all

vaccines and began a supplement program for him. She used the Cutler

protocol for chelating[1/4mg per kg of dmsa] - did not bother with

any urine tests for toxic output. He also had speech therapy[he was

verbal but not understandable]. She enrolled him in lots of YMCA

classes for motor improvement. He began K with no one the wiser. He's

a second grader[almost 8yrs now] - funny, social, smart etc and

totally indistinguishable from his peers - except grandma thinks he's

soooo much cuter! The only residual he has is periodic trouble with

strep which exhibits as OCD and clears readily with antibiotics.

Fortunately, he was a quick responder. She also has a child 23 mos

younger. He's 6 now, unvaccinated and the healthiest of our 5

grandchildren. Please look through the files, ask lots of questions

and do what you need to for your dear child. Love him today as he is

but do NOT accept the proposition that he will always be ill. You can

help him! You aren't thinking of vaccinating this new little one are

you?

>

> My 3 year old's French Porphyrin Test showed mercury and lead

levels

> off the charts - higher than the doctor had ever seen. I don't

> really understand how they could be so high when there are so many

> other kids that the doctor has seen that are worse off than he is.

>

> We did an oral dmsa challenge him and it didn't pull

> > enough to justify doing it full time according to the doctor. Now

> > he wants us to do an edta/dmps suppository challenge and is really

> > pushing for edta dmps iv treatment. His main issues are lack of

> > language, some lining up, no pretend play, and freaking out in

the

> car

> > when I stop sometimes. I'm honestly afraid to try either one for

> fear of making

> > him worse, but I'm also at my wits end and don't know how much

> longer

> > I can go on with him the way he is. It is so depressing to see

his

> 13 month old cousin pass him up. I just feel like dying. I'm

> pregnant to top things off,

> > and something's gotta change before I'm having to deal with a

> newborn

> > baby and an autistic 3 year old who demands every ounce of my

time

> and

> > energy. I can't go on like this. I've got to try something. I'm

> just looking for experiences both good and bad with both

> > of these chelators. (dmps/edta supp. or iv)

> M.

>

[Guest guest]

,

Thanks for the advice, and NO WAY am I vaccinating the next one.

I've learned my lesson.

kelly

> >

> > My 3 year old's French Porphyrin Test showed mercury and lead

> levels

> > off the charts - higher than the doctor had ever seen. I don't

> > really understand how they could be so high when there are so

many

> > other kids that the doctor has seen that are worse off than he

is.

> >

> > We did an oral dmsa challenge him and it didn't pull

> > > enough to justify doing it full time according to the doctor.

Now

> > > he wants us to do an edta/dmps suppository challenge and is

really

> > > pushing for edta dmps iv treatment. His main issues are lack of

> > > language, some lining up, no pretend play, and freaking out in

> the

> > car

> > > when I stop sometimes. I'm honestly afraid to try either one

for

> > fear of making

> > > him worse, but I'm also at my wits end and don't know how much

> > longer

> > > I can go on with him the way he is. It is so depressing to see

> his

> > 13 month old cousin pass him up. I just feel like dying. I'm

> > pregnant to top things off,

> > > and something's gotta change before I'm having to deal with a

> > newborn

> > > baby and an autistic 3 year old who demands every ounce of my

> time

> > and

> > > energy. I can't go on like this. I've got to try something.

I'm

> > just looking for experiences both good and bad with both

> > > of these chelators. (dmps/edta supp. or iv)

> > M.

> >

>

[Guest guest]

((((((((((( I CHEER THIS COMMENT BY MARTIN!!!!!! ))))))))))))

Cowen <mlcowen@...> wrote: " according to the doctor " is

part of the

problem.

Many of us on this list have choosen

to be the captain of our children's

health care. We don't do " according

to the doctor. " We do " according to

our own judgment. "

--- kellymac92 <cs-mom@...> wrote:

> My 3 year old's French Porphyrin Test showed mercury

> and lead levels

> off the charts - higher than the doctor had ever

> seen. I don't

> really understand how they could be so high when

> there are so many

> other kids that the doctor has seen that are worse

> off than he is.

>

> We did an oral dmsa challenge him and it didn't pull

> > enough to justify doing it full time according to

> the doctor. Now

> > he wants us to do an edta/dmps suppository

> challenge and is really

> > pushing for edta dmps iv treatment. His main

> issues are lack of

> > language, some lining up, no pretend play, and

> freaking out in the

> car

> > when I stop sometimes. I'm honestly afraid to try

> either one for

> fear of making

> > him worse, but I'm also at my wits end and don't

> know how much

> longer

> > I can go on with him the way he is. It is so

> depressing to see his

> 13 month old cousin pass him up. I just feel like

> dying. I'm

> pregnant to top things off,

> > and something's gotta change before I'm having to

> deal with a

> newborn

> > baby and an autistic 3 year old who demands every

> ounce of my time

> and

> > energy. I can't go on like this. I've got to try

> something. I'm

> just looking for experiences both good and bad with

> both

> > of these chelators. (dmps/edta supp. or iv)

> M.

>

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Search.

http://tools.search./newsearch/category.php?category=shopping

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[Guest guest]

> I can't go on like this. I've got to try something. I'm

> just looking for experiences both good and bad with both

> > of these chelators. (dmps/edta supp. or iv)

> M.

,

Things aren't really bad yet.

Go ask any doctor incompetent enough to be offering you a choice between

suppositories

and iv's what to do and you might get to find out what really bad is.

Remember, your kid TURNED autistic because you believed a doctor when he told

you the

vaccines were a good idea. You should learn from that experience and start

making your

own informed decisions.

Andy