Re: LDN Update 6 days

[Guest guest]

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________________________________________________________ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

I didn't know that LDN comes in tablet form??? I thought only capsules????

In a message dated 5/28/2008 8:05:27 P.M. Eastern Daylight Time, tonetteformico@... writes:

Hi all,

Tonight will be my fourth night on LDN. (1.5 mg) First night was fine, no problems sleeping. Second night and last night I had twilight sleep. When I would wake completely I wasn't really sure if I'd been sleeping or not. Strange dreams too. Kinda cool, not scary. Just really vivid.

My MS symptoms have returned with a vengeance. My left hand isn't working at all and my walking is terrible. I'm also having headaches but I'm going to stick with it. I'm also taking 5-htp so hopefully that'll help.

I got my LDN from Bel Mar Pharmacy in Lakewood, Colorado. My new doc always uses them. I got a 3 month supply for $40 and they shipped for free. The pills they make come in 3 mg but they're scored so I can cut them in half. I should be on 3 mg in a week or so then hopefully to the max soon after.

Thank you everyone for all the great info and advice.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexone Date: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

[Guest guest]

really should check it out .... I think it's best to use the pharmacys that are reccomended ONLY.

In a message dated 5/28/2008 8:16:45 P.M. Eastern Daylight Time, tonetteformico@... writes:

I thought the same thing but they say that's the way they compound it.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food. Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

[Guest guest]

Hi all,

Tonight will be my fourth night on LDN. (1.5 mg) First night was fine, no problems sleeping. Second night and last night I had twilight sleep. When I would wake completely I wasn't really sure if I'd been sleeping or not. Strange dreams too. Kinda cool, not scary. Just really vivid.

My MS symptoms have returned with a vengeance. My left hand isn't working at all and my walking is terrible. I'm also having headaches but I'm going to stick with it. I'm also taking 5-htp so hopefully that'll help.

I got my LDN from Bel Mar Pharmacy in Lakewood, Colorado. My new doc always uses them. I got a 3 month supply for $40 and they shipped for free. The pills they make come in 3 mg but they're scored so I can cut them in half. I should be on 3 mg in a week or so then hopefully to the max soon after.

Thank you everyone for all the great info and advice.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletha@...>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexone Date: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

>>My MS symptoms have returned with a vengeance.<< Before or after starting on LDN? I lost your initial email...please update us. Bob CTonette Formico <tonetteformico@...> wrote: Hi all, Tonight will be my fourth night on LDN. (1.5 mg) First night

was fine, no problems sleeping. Second night and last night I had twilight sleep. When I would wake completely I wasn't really sure if I'd been sleeping or not. Strange dreams too. Kinda cool, not scary. Just really vivid. My MS symptoms have returned with a vengeance. My left hand isn't working at all and my walking is terrible. I'm also having headaches but I'm going to stick with it. I'm also taking 5-htp so hopefully that'll help. I got my LDN from Bel Mar Pharmacy in Lakewood, Colorado. My new doc always uses them. I got a 3 month supply for $40 and they shipped for free. The pills they make come in 3 mg but they're scored so I can cut them in half. I should be on 3 mg in a week or so then hopefully to the max soon after. Thank you everyone for all the great info and advice.Take Care,TonetteSPMS Since 1996---

On Wed, 5/28/08, Aletha Wittmann <Aletharedshift> wrote: From: Aletha Wittmann <Aletharedshift>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexone Date: Wednesday, May 28, 2008, 8:00 PM Ho long does the script last for (at $45). Is it for a month or more? I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them). All my best Aletha [low dose naltrexone] LDN Update 6 days Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill. It seemed like no matter how sleepy I was – I still had not slept since starting. I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!! The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!! SeaLady ____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Hi Bob,

My symptoms have gotten really bad since starting the LDN. I was kind of shocked that I've gotten so bad so fast but I'm hanging in there. I understand this can happen. It's scary but I'm trying to look at the big picture.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

I thought the same thing but they say that's the way they compound it.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.

[Guest guest]

Tonette, This has got to make us wonder - There certainly is some evidence of worsening of MS symptoms, but I can't remember if this was seen in some of the early trials. My crackpot theories of the day are: 1. Were you about to have an exacerbation about the time you started LDN, and this just made it worse? 2. Is there something else (like allergy to a filler) that is causing symptoms? 3. Are there different responses based on the stage of MS? From my own experience - the freind (SPMS) who I talked into trying this was about 2 months past an exacerbation, and had just finished Tysabri a few months before that, and was on no other MS meds except a Baclofen pump at the lowest setting. LDN response positive in 2 days, and at 2+ weeks incereased strength and vitality. No dreams. So there MUST be a trigger somewhere. Good luck to you

for improvement. Bob CTonette Formico <tonetteformico@...> wrote: Hi Bob, My symptoms have gotten really bad since starting the LDN. I was kind of shocked that I've gotten so bad so fast but I'm hanging in there. I understand this can happen. It's scary but I'm trying to look at the big

picture.Take Care,TonetteSPMS Since 1996 From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM Ho long does the script last for (at $45). Is it for a month or more? I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them). All my best Aletha [low dose naltrexone] LDN Update 6 days Well I seem to be having a few

problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill. It seemed like no matter how sleepy I was – I still had not slept since starting. I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!! The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!! SeaLady ____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Hi,

I stopped taking Betaseron on the last day of April. I've been feeling kind of strange for the last two weeks. I just started taking 5-htp and for the most part cut out my anti-depressants. Maybe a combo of these things? Too many changes?

I did ask the pharmacy what filler they use and was told they used the one that was on the list as being the best. Can't remember the name now. Brain fart.

I am concerned though. When I replied about my LDN being in tablet form and that it's scored so I can cut it, someone replied that they thought that wasn't a good thing

My pharmacy says they're verified and my doc says their really good. She also takes LDN from them. Any thoughts??Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Tablets require a number of excipients in order to

hold

their shape, and immune compromised people just should

not expose themselves to some of these chemicals, even

if they don't know of a specific reaction, the

chances are

too high they'll have one.

Jaco

--- Tonette Formico <tonetteformico@...> wrote:

> Hi,

> I stopped taking Betaseron on the last day of

> April. & nbsp; I've been feeling kind of strange for

> the last two weeks. & nbsp; I just started taking

> 5-htp and for the most part cut out my

> anti-depressants. & nbsp; Maybe a combo of these

> things? & nbsp; Too & nbsp; many changes?

> I did ask the pharmacy what filler they use and was

> told they used the one that was on the list as being

> the best. & nbsp; Can't remember the name now. & nbsp;

> Brain fart.

> I am concerned though. & nbsp; When I replied about my

> LDN being in tablet form and that it's scored so I

> can cut it, someone replied that they thought that

> wasn't a good thing

> My pharmacy says they're verified and my doc says

> their really good. & nbsp; She also takes LDN from

> them. & nbsp; Any thoughts??

>

> Take Care,

> Tonette

>

> SPMS Since 1996

>

>

>

> From: Aletha Wittmann & lt;Aletharedshift (DOT) com & gt;

> Subject: Re: [low dose naltrexone] LDN Update 6 days

> low dose naltrexone

> Date: Wednesday, May 28, 2008, 8:00 PM

>

>

>

>

>

> Ho long does the script last for (at $45). Is it for

> a month or more?

> & nbsp;

> I think Skips is closer to $22/month. & nbsp; That

> does not include shipping. & nbsp; And I am not

> absolutely sure of the exact pricing (best to ask

> them)..

> & nbsp;

> All my best

> Aletha

>

> [low dose naltrexone] LDN Update 6 days

>

>

>

>

>

> Well I seem to be having a few problems – especially

> with sleep – last night I took a whole halcion and I

> also didn’t take the LDN until bedtime with the

> sleeping pill.

>

> It seemed like no matter how sleepy I was – I still

> had not slept since starting.

>

> I have also experienced some headaches which I never

> get – but they seem to be dissipating – the

> incredible irritability Sunday might have just been

> my lack of sleep – I hope!!! & nbsp; Lol

>

> I am on 3.0 for this month, Endro said he would

> renew for 4.5 depending on how I did……I think the

> soft tissue muscular pain is definitely

> better. & nbsp; I did yardwork for a good deal of the

> day on Monday and I wasn’t having anywhere near the

> pain I usually do!!

>

> The compounding pharmacy here locally charged me

> 45.00 to fill my script – does that sound about

> right?? & nbsp; I am hoping to fight with the

> insurance company if it seems to work, but won’t

> hold my breath!!

>

=== message truncated ===

[Guest guest]

Tonette,

If I were you I would check with them again because I got this off their website (Belmar Pharmacy can dispense LDN in either immediate release tablets or capsules). I've never heard of them making LDN in Tablet form although they are on the LDN Compounding Pharmacy list. The filler that is used most is Avicel. I'd feel safer taking the capsule rather then the tablet.

Hugs & Blessings,

Crystal

LDN_Users Group Owner

Diagnosed November 2004 with Secondary Progressive MS, Transverse Myelitis and an Advocate for LDN!! 2 years & 8 months on LDN with Skip's Pharmacy.....

Crystal's MS,TM & LDN Website

Crystal's LDN Gift Shop

Crystal's LDN Support Group

Skip's Compounding Pharmacy

LDN Website

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

This DEFINITELY does not sound right !!! I think you are taking 50 mg pills. Naltrexone is distributed in 50 mg pills or similar and also in bulk as powder form. Don't have a PDR at hand or I would look it up. 50 mg is for drug addicts only. it would probably make all your symptoms worse. That's why you need a listed compounding pharmacy. I know several pharmacists that are soooo arrogant they just don't do the homework. They are supposed to smash up the pills and load small capsules. The granules are so small they need a filler for the capsule. Or if with powder, they can mix with sterile water (I think) and form a liquid (tastes horrible). I think someone is experimenting with a gel or creme for trans-dermal use also. Get it from Skips. This guy is apparently the #1 expert at this. Or other listed Pharmacies on the ldn site. Let's see if i can find a pic of 50

mg pills and send it to you. Bob CTonette Formico <tonetteformico@...> wrote: Hi, I stopped taking Betaseron on the last day of April. I've been feeling kind of strange for the last two weeks. I just started taking 5-htp and for the most part cut out my anti-depressants. Maybe a combo of these

things? Too many changes? I did ask the pharmacy what filler they use and was told they used the one that was on the list as being the best. Can't remember the name now. Brain fart. I am concerned though. When I replied about my LDN being in tablet form and that it's scored so I can cut it, someone replied that they thought that wasn't a good thing My pharmacy says they're verified and my doc says their really good. She also takes LDN from them. Any thoughts??Take Care,TonetteSPMS Since 1996 From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM Ho long does the script last for (at $45). Is it for a month or more? I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them). All my best Aletha [low dose naltrexone] LDN Update 6 days Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill. It seemed like no matter how sleepy I was – I still had not slept since starting. I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol I am on 3.0 for this month, Endro said he would renew for 4.5

depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!! The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!! SeaLady ____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

I did see that they are on the list and was told that they do use Avicel. I did e-mail them to ask why tablets, not capsules. I'll let you know what they say.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Thanks, I appreciate the help. Bel Mar Pharmacy www.belmarpharmacy.com is on the site list. When I called they said the use Avicel as their filler. I'm really scared now and don't know what to do.. Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

HERE IS HOW TABLETS ARE SUPPLIED - 50MG ONLY Is this what you have? How is Naltrexone Supplied Naltrexone Hydrochloride Tablets, USP 50 mg are available as a yellow film coated capsule-shaped tablet with a convex surface, debossed with a number“50” and a full bisect in between the 5 and 0 on one side and“1170” on the other side. Tonette Formico <tonetteformico@...> wrote: I did see that they are on the list and was told that they do use Avicel. I did e-mail them to ask why tablets, not capsules. I'll let you know what they say.Take Care,TonetteSPMS Since 1996 From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM Ho long does the script last for (at $45). Is it for a month or more? I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best Aletha [low dose naltrexone] LDN Update 6 days Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill. It seemed like no matter how sleepy I was – I still had not slept since starting. I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!!

Lol I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!! The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady ____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Usually avicel is used as a filler in capsules, but

for tablets

it just doesn't hold a shape. They'd need some other

things

to make it all stick together.

This doesn't sound right.

Jaco

--- Tonette Formico <tonetteformico@...> wrote:

> Thanks, I appreciate the help. & nbsp; Bel Mar

> Pharmacy www.belmarpharmacy.com & nbsp;is on the site

> list. & nbsp;When I called they said the use

> Avicel & nbsp;as their filler. & nbsp; I'm really scared

> now and don't know what to do.. & nbsp;

>

> Take Care,

> Tonette

>

> SPMS Since 1996

>

>

>

>

>

>

>

>

>

> Hi all,

> Tonight will be my & nbsp;fourth night on & nbsp;LDN.

> (1.5 mg) & nbsp; First night was fine, no problems

> sleeping. & nbsp; Second night and last night I had

> twilight sleep. & nbsp; When I would wake completely I

> wasn't really sure if I'd been sleeping or

> not. & nbsp; Strange dreams too. & nbsp; Kinda cool, not

> scary. & nbsp; Just really vivid. & nbsp;

> My MS symptoms have returned with a

> vengeance. & nbsp; & nbsp;My left hand isn't working at

> all and my walking is terrible. & nbsp; I'm also

> having headaches but I'm going to stick with

> it. & nbsp; I'm also taking 5-htp so hopefully that'll

> help.

> I got my LDN from Bel Mar Pharmacy in Lakewood,

> Colorado. & nbsp; My new doc always uses them. & nbsp; I

> got a 3 month supply for $40 and they shipped for

> free. & nbsp; The pills they make come in 3 mg but

> they're scored so I can cut them in half. & nbsp; I

> should be on 3 mg in a week or so then hopefully to

> the max soon after.

> Thank you everyone for all the great info and

> advice.

>

> Take Care,

> Tonette

>

> SPMS Since 1996

>

> --- On Wed, 5/28/08, Aletha Wittmann

> & lt;Aletharedshift (DOT)

=== message truncated ===

[Guest guest]

Last year someone reported getting tablets as well.

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Jaco, You got me to thinking also. This pharmacy DOES apparenty supply LDN in pill form but I think it would be difficult to maintain accurate dose levels across a scored pill from a compounding pharmacy. Are they using the powder and mixing it with other components for shape and stability? I don't know enough about it, but something sounds odd to me also. I thought your comment about all the components needed to make the pills seemed logical - maybe she is allergic to something? This will be interesting and very important to find out what is going on. regards, Bob C J Berliner <jaco.b@...> wrote: Usually avicel is used as a filler in capsules, butfor tabletsit just doesn't hold a shape. They'd need some otherthingsto make it all stick together. This doesn't sound right.Jaco--- Tonette Formico <tonetteformico > wrote:> Thanks, I appreciate the help. & nbsp; Bel Mar> Pharmacy www.belmarpharmacy.com & nbsp;is on the site> list. & nbsp;When I called they said the use> Avicel & nbsp;as their filler. & nbsp; I'm really scared> now and don't know what to do.. & nbsp; > > Take Care,> Tonette> > SPMS Since 1996> > > > > > > > > > Hi all,> Tonight will be my & nbsp;fourth night on & nbsp;LDN.> (1.5 mg) & nbsp; First night was fine, no

problems> sleeping. & nbsp; Second night and last night I had> twilight sleep. & nbsp; When I would wake completely I> wasn't really sure if I'd been sleeping or> not. & nbsp; Strange dreams too. & nbsp; Kinda cool, not> scary. & nbsp; Just really vivid. & nbsp; > My MS symptoms have returned with a> vengeance. & nbsp; & nbsp;My left hand isn't working at> all and my walking is terrible. & nbsp; I'm also> having headaches but I'm going to stick with> it. & nbsp; I'm also taking 5-htp so hopefully that'll> help.> I got my LDN from Bel Mar Pharmacy in Lakewood,> Colorado. & nbsp; My new doc always uses them. & nbsp; I> got a 3 month supply for $40 and they shipped for> free. & nbsp; The pills they make come in 3 mg but> they're scored so I can cut them in half. & nbsp; I> should be on 3 mg in a week or so then hopefully

to> the max soon after.> Thank you everyone for all the great info and> advice.> > Take Care,> Tonette> > SPMS Since 1996> > --- On Wed, 5/28/08, Aletha Wittmann> & lt;Aletharedshift (DOT) === message truncated ===

[Guest guest]

Let me double check on the tablets. My doctor last week scripted me 5 tablets of 50 mg

each, at no cost for whatever reason. The tab is scored in the middle. I split it and mixed it

in filtered water according to directions. Dissolved it and shook it well at each dosage. I got a large dropper and throw my head back and shove the tip back of the throat just short of the gag reflex point and squirt and wash on down with water. BTW the filler is...not coming thru... as in dairy. Anything wrong with this system?? There is one compounding pharmacy here but a bunch of air headed young girls working front. I quit using that place. Also I don't use credit cards so online is pretty much out. Increasing 1/2 mg a nite. Sleep may be a little off , but then it usually is.

Cotton

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

No virus found in this incoming message.Checked by AVG. Version: 7.5.524 / Virus Database: 269.24.0/1462 - Release Date: 5/23/2008 7:20 AM

[Guest guest]

Hi,

I tried to take a picture but it wouldn't turn out.

No, this tablet is perfectly round, white, exactly the same on both sides with no numbers or markings of any kind except for being scored down the middle. It's a little smaller than a low dose aspirin and about half as thick. Pretty small. The outside rim is very slightly raised and kind of rough looking. When I first saw them the looked molded to me..

I will call the pharmacy tomorrow and ask if there's a binding agent to keep them in pill form and if so, what it is. I'll let you know what they say.

I'm, like all of you who have responded, very concerned. What I'll most likely do is, when I see the doctor on the 2nd, get another prescription and go through Skip's.Thanks so much!Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

It does sound like they compounded this now. But at what dose? 1.5mg??? And why scored? I have not seen anyone on .75 mg on the list in my brief time here, so what would be the point in scoring? Maybe in the mfg process is possible. But I' would agree to consider the all the binding agents as in Jaco's post. Please keep us updated and good luck Bob CTonette Formico <tonetteformico@...> wrote: Hi, I tried to take a picture but it wouldn't turn out. No, this tablet is perfectly round, white, exactly the same on both sides with no numbers or markings of any kind except for being scored down the middle. It's a little smaller than a low dose aspirin and about half as thick. Pretty small. The outside rim is very slightly raised and kind of rough looking. When I first saw them the looked molded to me.. I will call the pharmacy tomorrow and ask if there's a binding agent to keep them in pill form and if so, what it is. I'll let you know what they say. I'm, like all of you who have responded, very concerned. What I'll most likely do is, when I see the doctor on the 2nd, get another prescription and go through Skip's.Thanks so much!Take

Care,TonetteSPMS Since 1996 From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM Ho long does the script last for (at $45). Is it for a month or more? I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them). All my best Aletha

[low dose naltrexone] LDN Update 6 days Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill. It seemed like no matter how sleepy I was – I still had not slept since starting. I

have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!! The compounding pharmacy

here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!! SeaLady ____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

Hi again,

The tablets are 3 mg. My doc wanted me on 1.5 mg for a couple of weeks, that's why I cut them in half.

I'll keep you updated and again, thanks so much.Take Care,TonetteSPMS Since 1996

From: Aletha Wittmann <Aletharedshift (DOT) com>Subject: Re: [low dose naltrexone] LDN Update 6 dayslow dose naltrexoneDate: Wednesday, May 28, 2008, 8:00 PM

Ho long does the script last for (at $45). Is it for a month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

[low dose naltrexone] LDN Update 6 days

Well I seem to be having a few problems – especially with sleep – last night I took a whole halcion and I also didn’t take the LDN until bedtime with the sleeping pill.

It seemed like no matter how sleepy I was – I still had not slept since starting.

I have also experienced some headaches which I never get – but they seem to be dissipating – the incredible irritability Sunday might have just been my lack of sleep – I hope!!! Lol

I am on 3.0 for this month, Endro said he would renew for 4.5 depending on how I did……I think the soft tissue muscular pain is definitely better. I did yardwork for a good deal of the day on Monday and I wasn’t having anywhere near the pain I usually do!!

The compounding pharmacy here locally charged me 45.00 to fill my script – does that sound about right?? I am hoping to fight with the insurance company if it seems to work, but won’t hold my breath!!

SeaLady

____________ _________ _________ _________ _________ _________ ___ Dreaming of getting away? Click here for an island experience in Hawaii.

[Guest guest]

-Hey Bob,

I agreed with you on the single malt, but must respectfully disagree

on this :-)

I, too, have ordered LDN from Belmar Pharmacy in Lakewood, CO, and can

assure you that it is NOT the 50 mg tablet. I have some of those, too,

from Costco. This is smaller, a neat little compressed & scored

tablet, not coated like the 50 mg, and it dissolves very rapidly in

water, starts dissolving instantly. They compound it from pure

naltrexone powder and a filler, and have developed a proces that they

much prefer to the capsules. It works just as well for me as the

50mg/50ml solution at my dose of 4.5mg. So not to worry.

Perhaps Belmar should be added to the list of approved pharmacies. If

anyone has doubts about them, I'd suggest you take a look at their

website. You might also call and talk with one of their pharmacists.

They really do seem to know what they are doing, and they apparently

do enough of it so they can sell LDN at $40.00 for 90 tablets.

Confession: I got my bottles mixed up one night last week. No, I had

not had any Scotch! I accidentally took a 50 mg tab instead of the 4.5

mg, and had no ill effects, except for a little depression the next

day. I take LDN primarily for fibromyalgia, and have no idea what 50

mg would do to someone with another disorder. But I don't think it

would be necessary to panic, call the poison center, or make a dash

for the nearest ER. I report this, not to make myself look stupid, (I

have a lot more ways to do that) but to reassure others who might make

the same mistake.

I won't, however, make a habit of it. It only took one time to get me

to install safegaurds against making the same error again!

K.

-- In low dose naltrexone , ROBERT CASTANARO

<castanaro@...> wrote:

>

> This DEFINITELY does not sound right !!! I think you are taking 50

mg pills. Naltrexone is distributed in 50 mg pills or similar and

also in bulk as powder form. Don't have a PDR at hand or I would look

it up. 50 mg is for drug addicts only. it would probably make all

your symptoms worse.

> That's why you need a listed compounding pharmacy. I know several

pharmacists that are soooo arrogant they just don't do the homework.

They are supposed to smash up the pills and load small capsules. The

granules are so small they need a filler for the capsule. Or if with

powder, they can mix with sterile water (I think) and form a liquid

(tastes horrible). I think someone is experimenting with a gel or

creme for trans-dermal use also.

> Get it from Skips. This guy is apparently the #1 expert at this.

Or other listed Pharmacies on the ldn site.

> Let's see if i can find a pic of 50 mg pills and send it to you.

> Bob C

>

> Tonette Formico <tonetteformico@...> wrote:

> Hi,

> My pharmacy says they're verified and my doc says their really

good. She also takes LDN from them. Any thoughts??

>

[Guest guest]

That is good to know - i was definitely speculating here - and should put to rest the issue, with the only possible exception the binding agents. Thanks for jumping in and setting me straight on that. It just sounded sooooo unusual that one always has to suspect some potential for error. In my work I always look for what can go wrong and try to eliminate the variables. I am thrilled to hear about someone using this primarily for fibro, maybe you can share your pre and post ldn conditions. I'd love to pass it on to a few people!Best, Bob Cfloradelvalles <floradelvalles@...> wrote: -Hey Bob,I agreed with you on the single malt, but must respectfully disagreeon this :-)I, too, have ordered LDN from Belmar Pharmacy in Lakewood, CO, and canassure you that it is NOT the 50 mg tablet. I have some of those, too,from Costco. This is smaller, a neat little compressed & scoredtablet, not coated like the 50 mg, and it dissolves very rapidly inwater, starts dissolving instantly. They compound it from purenaltrexone powder and a filler, and have developed a proces that theymuch prefer to the capsules. It works just as well for me as the50mg/50ml solution at my dose of 4.5mg. So not to worry.Perhaps Belmar should be added to the list of approved pharmacies. Ifanyone has doubts about them, I'd suggest you take a look at theirwebsite. You might also call and talk with one of their

pharmacists.They really do seem to know what they are doing, and they apparentlydo enough of it so they can sell LDN at $40.00 for 90 tablets.Confession: I got my bottles mixed up one night last week. No, I hadnot had any Scotch! I accidentally took a 50 mg tab instead of the 4.5mg, and had no ill effects, except for a little depression the nextday. I take LDN primarily for fibromyalgia, and have no idea what 50mg would do to someone with another disorder. But I don't think itwould be necessary to panic, call the poison center, or make a dashfor the nearest ER. I report this, not to make myself look stupid, (Ihave a lot more ways to do that) but to reassure others who might makethe same mistake. I won't, however, make a habit of it. It only took one time to get meto install safegaurds against making the same error again!K.-- In low dose naltrexone , ROBERT CASTANARO<castanaro@...> wrote:>> This DEFINITELY does not sound right !!! I think you are taking 50mg pills. Naltrexone is distributed in 50 mg pills or similar andalso in bulk as powder form. Don't have a PDR at hand or I would lookit up. 50 mg is for drug addicts only. it would probably make allyour symptoms worse.> That's why you need a listed compounding pharmacy. I know severalpharmacists that are soooo arrogant they just don't do the homework. They are supposed to smash up the pills and load small capsules. Thegranules are so small they need a filler for the capsule. Or if withpowder, they can mix with sterile water (I think) and form a liquid(tastes horrible). I think someone is experimenting with a gel orcreme for trans-dermal use also.> Get it from Skips. This guy is apparently

the #1 expert at this.Or other listed Pharmacies on the ldn site.> Let's see if i can find a pic of 50 mg pills and send it to you.> Bob C> > Tonette Formico <tonetteformico@...> wrote:> Hi,> My pharmacy says they're verified and my doc says their reallygood. She also takes LDN from them. Any thoughts??>

[Guest guest]

Yes that is for a month..

Ho long does the script last for (at $45). Is it for a

month or more?

I think Skips is closer to $22/month. That does not include shipping. And I am

not absolutely sure of the exact pricing (best to ask them).

All my best

Aletha

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