Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Dearest Marty, Thank you for sharing. You brought tears to my eyes. It is so difficult to feel so helpless, I know. Your girlfriend sounds like a special spirit indeed...as, I'm sure, are you. Words are just not enough... Eternal blessings to you both. Lynnette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Amen. God Bless You, Marty. Alan " MartyWho <martywho@...> " <martywho@...> wrote:Hello everyone. Some of you may remember having conversations with me over the last year and a half. My girlfriend was diagnosed with A rare form of Ewing's Sarcoma and chose to follow her doctor's advice using the usual methods of chemo etc. She passed away at the age of 26 in the hospital on Friday more from congestive heart failure than anything else. The doctors admitted the chemo agents damaged her heart. Just a week before they sent her home to " recover " from what they we calling pneumonia. I didn't think she should be released, sicne they just finished draining gallons of fluid from her, never gave her any intravenous nutrition even though she wasn't eating, didn't want to give her an enema when she was constipated for several days. Before they released her, they gave her a one more dose of a different chemo that has no track record for her cancer. After having her home for only a couple of days and watching her retain fluids and have no strength to lift her own body at all, it became obvious that she has heart failure, not pneumonia. We took her back to the hospital where they informed us that her heart was working on 15% and 90% of her liver was replaced by tumor! She died a few days later. never complained, worked 50 hour weeks at her store well into December, many people never even knew she had cancer. In December, she was still singing Italian operas at her recitals! I did everything I could to explain the effects and damage and danger of chemo but she trusted her doctors and was concerned about insurance not covering the options I wanted to explore. At the end she died a horrifying death but she was surrounded by her friends and family the entire time. While we were trying to tell her it was OK to go, she later explained that she appreciated what we were trying to do, but that she didn't want to die, that it was all bullshit and unfair, and that she won't leave willfully. I just wanted to thak all of you who offed advice to me. It help greatly and was a source of support for me. I know that she wouldn't have made it this long if I didn't follow your advice and the advice of great minds like Ralph Moss. My life will never be the same and my distrust for doctors is only rivaled by lawyers and insurance people and politicians. God bless all of you and I pray you all have the strength to make good decisions. Sincerely, Marty Deering Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi Marty, I remember you from this list. I am so sorry about your girlfriend. I hope you have the time and space to care for yourself after all you have been through with her. She was one of the lucky ones to have someone like yourself there for her. To continue to be there for her even though you knew in your bones that her decisions were not the ones you would have her make, is a true act of love. Her story is so tragic. And she sounds like such a determined person...what a strong spirit she must have had. You have my deepest sympathies, > Hello everyone. Some of you may remember having conversations with me > over the last year and a half. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Marty, Marty...what a shame! You have been such a beacon of light for this group. How tragic it is that you are never " a prophet in your own home town. " Know that you tried and that her soul just wasn't ready for your message. Give to others in her memory. It works. I know. Bill Quote Link to comment Share on other sites More sharing options...
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