Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Hi, Sorry to hear your not feeling well. But I would say the first thing you need to do is find another ONC. I refused chemo 2x and my Onc didn't send me away. I wasn't wanting to keep seeing him, because I couldn't afford him with no insurance, But he never sent me away. Also I have had only one PET scan and that was ordered by my general practitioner. I had NEVER HEARD OF THIS TEST BEFORE HE SENT ME TO GET ONE. There are other tests that can be used for followup as well. Talk to your GP and see what they can do to assist you. What my DR always tell me is that there are to help me, so let them Know what my needs are. I wish you well. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 Hi S You can read several inspiring stories on this page: http://www.mandalavillage.org/lec/tamahi/testimony.htm The products are called Tamahi Minerals more information: www.mandalavillage.org/lec/ [ ] Hodgkin's Disease > I am 25 yrs. old with stage 2 of H.D. I have been doing Dr. Shulze's > Incurables Program for about 2 months now with not much results. I > need support now because I am starting to lose hope and becoming > very doubtful. I also went to go see my oncologist for a PET scan to > see if the program was working but he refused stating that I no > longer was his patient since I refused chemo. I don't know what to > do! Please HELP! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 H ave you had a big emotional upset within the past year or two? If so, it bears looking in to. See Dr. Hamer's New Medicine. I think it's the answer to the cuse of some cancers.Contact at vgammill@... It's a free clinic (alternative) in Solana Beach, Calif. (No. of San Diego) Loren [ ] Hodgkin's Disease > I am 25 yrs. old with stage 2 of H.D. I have been doing Dr. Shulze's > Incurables Program for about 2 months now with not much results. I > need support now because I am starting to lose hope and becoming > very doubtful. I also went to go see my oncologist for a PET scan to > see if the program was working but he refused stating that I no > longer was his patient since I refused chemo. I don't know what to > do! Please HELP! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 It is usually a very good idea to use naltrexone with any lymphoproliferative disease. If aggressive then metenkephlin can be added. This can be used transdermally. Check below for several simple options. VG ***************************************************** From files: When my teenage daughter Helen was hospitalized with " terminal " (stage 4B) Hodgkin's disease in 1974, I put her on 40 grains of vitamin C per day (526 mg/lb.). Her doctors were aghast: " You'll kill her! " " Nonsense! " I replied. She recovered quickly, and 24 years later is in vibrant good health. (For more about Helen, see page 7.)........................If vitamin C is used in large amounts, most experts suggest that buffered vitamin C (sodium ascorbate) should be used rather than ascorbic acid, since the acid form may be too acidic in multi-gram doses. Sodium ascorbate powder (1 level tsp. equals 4 grams) may be purchased inexpensively by the pound or the kilogram from the Wholesale Nutrition Company (1-800-325-2664) or from Bronson (1-800-610-4848). ****************************************** Both Epstein Bar virus and Helicobacter Pylori have been associated with the various lymphomas. It is usually a good idea to have yourself tested for their presence and treat accordingly: Tunis Med 2000 Aug-Sep;78(8-9):484-93 Gastric MALT lymphoma. A clinico-pathological study of 65 cases. Relationship to Helicobacter pylori. Ben Rejeb A, Kchir N, Bouali MR, Ebdelli N, Fsili R, Khediri F, Ben Ayedo F, Zitouna MM, Ben Mami N, Kacem M, Filali A, Ben Ammar A Department of Pathology, Rabta Hospital. We report 65 cases of MALT gastric lymphomas. HP was looked for with Giemsa and Whartin Starry stains. Immunohistochemistry was done with PAP method. Anti-HP treatment was used in 9 cases. 38 were of low grade of malignancy, 23 were high grade, 4 were high grade with a low grade component. The mean age was 51.5 years, the sex ratio 1.5. Epigastric pain was the most frequent feature (87.7% of cases). Endoscopically, low grade lymphomas presented as unique or multiple ulcerations (55.3% of cases) with antral localisation (52.6% of cases). 60% of our patients were stage IE, of which 61% had low grade lymphoma, 18% were at stage II2E, 10% at stage III and 10% at stage IV. From 23 operated patients, 29% had early lymphoma which was low grade malignant in 71.5% of cases, and 71% had lymphomas which were widely spread beyond the submucosa. HP was found in 63% of cases. Histologic regression of two early lymphomas of low grade malignancy was achieved after HP eradication. Gut 2001 Mar;48(3):297-303 Predictive factors for regression of gastric MALT lymphoma after anti-Helicobacter pylori treatment. Ruskone-Fourmestraux A, Lavergne A, Aegerter PH, Megraud F, Palazzo L, de Mascarel A, Molina T, Rambaud JC Department of Gastroenterology, Hotel-Dieu, AP-HP, Paris, France. BACKGROUND AND AIMS: Discrepant remission rates (41-100%) have been reported for patients with localised low grade gastric mucosa associated lymphoid tissue (MALT) lymphoma after eradication of Helicobacter pylori. The aim of this study was to explain these discrepancies and to determine the predictive factors of gastric lymphoma regression after anti- H pylori treatment. PATIENTS AND METHODS: Forty six consecutive patients with localised gastric MALT lymphoma (Ann Arbor stages I(E) and II(E)) were prospectively enrolled. All had gastric endoscopic ultrasonography and H pylori status assessment (histology, culture, polymerase chain reaction, and serology). After anti-H pylori treatment, patients were re-examined every four months. RESULTS: Histological regression of the lymphoma was complete in 19/44 patients (43%) (two lost to follow up). Median follow up time for these 19 responders was 35 months (range 10-47). No regression was noted in the 10 H pylori negative patients. Among the 34 H pylori positive patients, the H pylori eradication rate was 100%; complete regression rate of the lymphoma increased from 56% (19/34) to 79% (19/24) when there was no nodal involvement at endoscopic ultrasonography. There was a significant difference between the response of the lymphoma restricted to the mucosa and other more deep seated lesions (p<0.006). However, using multivariate analysis, the only predictive factor of regression was the absence of nodal involvement (p<0.0001). CONCLUSION: In H pylori positive patients with localised gastric MALT lymphoma, carefully evaluated and treated without any lymph node involvement assessed by endoscopic ultrasonography, complete remission of lymphoma was reached in 79% of cases. ************************************ The regimen of flax seed oil and cottage cheese has shown much benefit with many lymphoma patients. The cottage cheese is high in cystine which is reduced to cysteine. It seems most of the provocative research is published overseas. Int J Cancer 1998 Feb 9;75(4):620-5 Apoptosis in Burkitt lymphoma cells is prevented by promotion of cysteine uptake. Falk MH, Meier T, Issels RD, Brielmeier M, Scheffer B, Bornkamm GW. Institute of Clinical Molecular Biology and Tumour Genetics, GSF-National Research Center for Environment and Health, Munich, Germany. Burkitt lymphoma (BL) cells are highly sensitive to suboptimal growth conditions and undergo apoptosis when seeded at reduced serum concentration or low cell density. Irradiated fibroblasts can protect BL cells from apoptosis induced by lowering the serum concentration or cell density through secretion of a survival- and proliferation-promoting activity which is soluble and labile. Murine B cells have a restricted uptake capacity for cystine and require cysteine for proliferation, which can be supplied efficiently by feeder cells. Therefore, we have studied the role of cysteine and other compounds with free thiol groups for survival and proliferation of BL cells. Cysteine, when added alone, exerted strong toxicity on BL cells. This toxicity could be counteracted by the addition of catalase, pyruvate or bathocuproine disulfonate (BCS), all of which interfere with the production of hydrogen peroxide. Inhibition of the toxicity of cysteine was necessary to unravel the survival- and growth-promoting activity of cysteine at low cell density. Alpha-thioglycerol, beta-mercaptoethanol and dithiothreitol had similar toxic activity in the absence of catalase, pyruvate and BCS and, through stimulation of cysteine uptake and glutathione synthesis, displayed a similar survival- and growth-promoting activity in the presence of the protective agents. The survival- and proliferation-inducing activity of thiol compounds in the presence of catalase, pyruvate and BCS was not associated with induction of BCL-2 or BAX. Cysteine/cystine uptake and the intra/cellular glutathione level are thus important parameters, determining the susceptibility vs. resistance of BL cells to apoptosis. I hope this helps. If you still have questions are need or are considering more complex therapies then please contact me. You might also contact Dr. Burzhynski in Houston re antineoplastons for HD. A physician in New York told me that they had success with their use in lymphomas, but then were forced to shut down the research. There are new forms of antineoplastons available that might be worth checking out. http://natural-oncology.org [ ] Hodgkin's Disease > > > > I am 25 yrs. old with stage 2 of H.D. I have been doing Dr. Shulze's > > Incurables Program for about 2 months now with not much results. I > > need support now because I am starting to lose hope and becoming > > very doubtful. I also went to go see my oncologist for a PET scan to > > see if the program was working but he refused stating that I no > > longer was his patient since I refused chemo. I don't know what to > > do! Please HELP! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2003 Report Share Posted November 4, 2003 Hi, I have Breast cancer for the 3rd time. This time it has metastasized to the skin over where I HAD A MASTECTOMY (in 2002 - when I had it for the second time). It was actually my general partitioner who discovered the 2nd recurrence this past June, 2003. I am doing well and the canmcer seems to be under control now. I am on Taxol 3 weeks on and 1 week rest. Thank you for asking about my situation. I appreciate your concern. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2004 Report Share Posted October 5, 2004 Leonard, You really got my attention with the post below. I have B-Cell Lymphoma which in Non-Hodgkin Lymphoma are Focillar Lymphoma in July 2004 I have been around the block as one would say since I have been into this nutrition thing for 30 or 40 years. Thought that I had CFS or Lyme and have taken the supplements recommended on the Lists and been tested for Lyme since I remember a tick bite when I was 15 years old.. Also was on the Cancer protocol 30 years ago, got his book one answer to cancer and took the supplements. Didn't think that anyone could feel as bad as I did without having a terminal illness. Took supplements according to my type. Read Dr. Gerson's book thirty years ago. Took coffee enemas, the works, without feeling better and took loads of supplements just to keep my head about water so to speak. Found out that I had Sarciodosis about the same time that I had Lymphoma. My 1,25-D report was extremely high. The sun has always made me tired even as a teenager. So have found out that is the reason for my constant daily headaches for 40 years and fatigue. Finally found a Dr. to let me have antibiotics because it is caused by bacteria. On it is called Marshall Protocal. Leonard even though I am on the above programs plus others. I am currently on the cottage cheese/flaxseed, Cesium, Essential Oxygen plus and part of the Gerson, Ambrotose and Barley Grass, Naltrexone, Enzymes recommended by and coffee enemas. You seen so knowledgeable about things that I need your help. My Lymphoma is progressing and going to another Oncologist tomorrow and hoping to stay on the Watch & Wait while I stay on these programs. Have a bad rash and hope it isn't lymphoma but afraid that it is. Was wondering about taking the Rituximal? I am also taking grandulars. Found a lymph grandular that I take and was taking B-Cell grandular which has Bone Marrow, Spleen, Liver and ascorbic acid, should I stop taking this, don't want to make my cancer worse. Am thinking about taking a T-Cell grandular, which has Thymus, Lymph and ascorbic acid both of these are taken from animals in New Zealand. What do you think? Please give me some feed back. Thanks, H. Message: 8 Date: Thu, 30 Sep 2004 22:56:44 -0400 From: " Leonard " <leonardleonard1@...> Subject: Re: Hodgkins Dear Tammie, From: " Tammie Forbes " <tforbes6@...> > I was diagnosed with Hodgkin's Disease last month. I'm sorry to hear that. > Someone told me not to eat any sugar absolutely, particularly w/lymphoma > wheat It's not NECESSARILY bad, but non-whole wheat's bad, and nonsprouted wheat's high-glycemic and has a lot of gluten, which many people have problems with. I'd limit myself to sprouted wheat (Ezekiel & Manna bread). > or dairy products Cottage cheese ( & butter) contains butyrates/butyric acid, which are effective w/lymphoma, all the more reason to consume flaxseed oil & cottage cheese (FSO/CC). Also, w/lymphoma, it's not necessarily as important to avoid fat & meat, but I'd always avoid Omega 6 fat. > Also, is there another way to get rid of Hodgkins Disease other than chemo? Yes, there are effective alt. therapies for Hodgkins. I don't know how their success rates compare w/chemo. Unless I was prepared to do a very intensive alt. treatment regimen, I would get chemo, at least low-dose or IPT. However, I think it's a difficult and very personal decision. > what is the best type of chemo? If I was doing chemo (for Hodgkins) would do vincristine or bleomycin, because I believe they do the least damage to the immune system. If I did chemo, I'd also do alt. therapies simultaneously. I believe the following are amongst the most effective alt. therapies for lymphomas Kelley- PANCREATIC ENZYME therapy-- large amounts of high-quality enzymes on empty stomach (under medical guidance. BioImmune.com IV-vit. C-based protocol. Contact them for a practitioner near you. HOXSEY FORMULA (available at health food stores) FSO/CC juicing (particularly ASPARAGUS, CARROT, & BEET juices) grape leaf pectin (MCP) do intense parasite, fungal, & viral cleanse and liver flush/detox Lymphoma's reportedly viral-based, so take antiviral supplements. " Epstein Bar virus and Helicobacter Pylori have been associated with the various lymphomas..good idea to have yourself tested for their presence and treat accordingly " Gammill, 11/03 " Naltrexone [prescription drug] 3 mg/day seems to stop any lymphoproliferative disease. It takes about 4-6 months though. " (Gammill 10/00). " very good idea to use naltrexone with any lymphoproliferative disease. If aggressive then metenkephlin can be added.transdermally " (Gammill, 11/03) " immunotherap[ies].that stimulate the B-lymphocytes are potentially disastrous with certain lymphomas. The ones that support T-lymphocytes can be very helpful " " when you have a b-cell lymphoma. The last thing you want to do is to stimulate b-cells--which many substances normally given will do, for instance, Echinacea " Best wishes, Leonard Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Sorry, to hear about your illness. I also went through it and know what it is like. Unfortunatly for me alt. methods did not work and had to resort to conventional therapies. I did over come it (THANK GOD)! At work I came across this web site. It might work you never know. The web site is www.whatamiracle.info/hp/ --- HelenW8262@... wrote: > > Leonard, > You really got my attention with the post below. I > have B-Cell Lymphoma which in Non-Hodgkin Lymphoma > are Focillar Lymphoma in July 2004 > I have been around the block as one would say since > I have been into this nutrition thing for 30 or 40 > years. Thought that I had CFS or Lyme and have taken > the supplements recommended on the Lists and been > tested for Lyme since I remember a tick bite when I > was 15 years old.. Also was on the Cancer > protocol 30 years ago, got his book one answer to > cancer and took the supplements. Didn't think that > anyone could feel as bad as I did without having a > terminal illness. Took supplements according to my > type. Read Dr. Gerson's book thirty years ago. Took > coffee enemas, the works, without feeling better and > took loads of supplements just to keep my head about > water so to speak. > > Found out that I had Sarciodosis about the same time > that I had Lymphoma. My 1,25-D report was extremely > high. The sun has always made me tired even as a > teenager. So have found out that is the reason for > my constant daily headaches for 40 years and > fatigue. Finally found a Dr. to let me have > antibiotics because it is caused by bacteria. On > it is called Marshall Protocal. > > Leonard even though I am on the above programs plus > others. I am currently on the cottage > cheese/flaxseed, Cesium, Essential Oxygen plus and > part of the Gerson, Ambrotose and Barley Grass, > Naltrexone, Enzymes recommended by and coffee > enemas. You seen so knowledgeable about things that > I need your help. My Lymphoma is progressing and > going to another Oncologist tomorrow and hoping to > stay on the Watch & Wait while I stay on these > programs. Have a bad rash and hope it isn't lymphoma > but afraid that it is. Was wondering about taking > the Rituximal? > > I am also taking grandulars. Found a lymph > grandular that I take and was taking B-Cell > grandular which has Bone Marrow, Spleen, Liver and > ascorbic acid, should I stop taking this, don't want > to make my cancer worse. Am thinking about taking a > T-Cell grandular, which has Thymus, Lymph and > ascorbic acid both of these are taken from animals > in New Zealand. What do you think? > > Please give me some feed back. > Thanks, > > H. > Message: 8 > Date: Thu, 30 Sep 2004 22:56:44 -0400 > From: " Leonard " <leonardleonard1@...> > Subject: Re: Hodgkins > > Dear Tammie, > From: " Tammie Forbes " <tforbes6@...> > > I was diagnosed with Hodgkin's Disease last month. > I'm sorry to hear that. > > > Someone told me not to eat any sugar > absolutely, particularly w/lymphoma > > > wheat > It's not NECESSARILY bad, but non-whole wheat's bad, > and nonsprouted > wheat's high-glycemic and has a lot of gluten, which > many people have > problems with. I'd limit myself to sprouted wheat > (Ezekiel & Manna > bread). > > > or dairy products > Cottage cheese ( & butter) contains butyrates/butyric > acid, which are > effective w/lymphoma, all the more reason to consume > flaxseed oil & > cottage cheese (FSO/CC). Also, w/lymphoma, it's not > necessarily as > important to avoid fat & meat, but I'd always avoid > Omega 6 fat. > > > Also, is there another way to get rid of Hodgkins > Disease other than > chemo? > Yes, there are effective alt. therapies for > Hodgkins. I don't know how > their success rates compare w/chemo. Unless I was > prepared to do a > very intensive alt. treatment regimen, I would get > chemo, at least > low-dose or IPT. However, I think it's a difficult > and very personal > decision. > > > what is the best type of chemo? > If I was doing chemo (for Hodgkins) would do > vincristine or bleomycin, > because I believe they do the least damage to the > immune system. If I > did chemo, I'd also do alt. therapies > simultaneously. > > I believe the following are amongst the most > effective alt. therapies > for lymphomas > > Kelley- PANCREATIC ENZYME therapy-- large > amounts of > high-quality enzymes on empty stomach (under medical > guidance. > > BioImmune.com IV-vit. C-based protocol. Contact them > for a > practitioner near you. > > HOXSEY FORMULA (available at health food stores) > FSO/CC > juicing (particularly ASPARAGUS, CARROT, & BEET > juices) > grape leaf > pectin (MCP) > do intense parasite, fungal, & viral cleanse and > liver flush/detox > Lymphoma's reportedly viral-based, so take antiviral > supplements. > " Epstein Bar virus and Helicobacter Pylori have been > associated with > the > various lymphomas..good idea to have yourself tested > for > their presence and treat accordingly " Gammill, 11/03 > > " Naltrexone [prescription drug] 3 mg/day seems to > stop any > lymphoproliferative disease. It takes about 4-6 > months though. " > (Gammill 10/00). > " very good idea to use naltrexone with any > lymphoproliferative > disease. If aggressive then metenkephlin can be > added.transdermally " > (Gammill, 11/03) > > " immunotherap[ies].that stimulate the B-lymphocytes > are potentially > disastrous with certain lymphomas. The ones that > support > T-lymphocytes can be very helpful " > " when you have a b-cell lymphoma. The last thing you > want to do is to > stimulate b-cells--which many substances normally > given will do, for > instance, Echinacea " > > Best wishes, > Leonard > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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