Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Hello to all, 's birthday is Sept. 11th. She will be 8 years old. She had her party this weekend and had a wonderful time. has a Diffuse Intrinsic Pontine Glioma. Time passes so quickly, I cherish everyday! will have another PET scan this week. This will let us know if the tumor is continuing to die. That would be a Wonderful birthday present!! She is still on the Decadron but we are down to 6 mg. She is currently not experiencing any symptoms from her tumor. Although she continues with the side effects of the Decadron. Hopefully in a couple of weeks she will be completely off the steroids and she will begin to return to her old self. Thank you all for caring about , it means alot to us. I'll update again with the results of her PET scan. Please pray for good news. With Hope!! Quote Link to comment Share on other sites More sharing options...
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