Guest guest Posted September 1, 2006 Report Share Posted September 1, 2006 Hello to all, We just got home from 's MRI. has a Diffuse Intrinsic Pontine Glioma. We do not have the official report yet. The radiologist was nice enough to stay late and review her scan with us. The overall size of 's tumor has not changed. The edema seen on the previous scan is now gone. Although she is still on a high dose of steroids. The smaller enhancing circle contained within the overall tumor, now enhances less. This smaller circle (on her PET scan) showed it contained necrotic components, dead cells. This circle previously measured 2.4 cm and now measures 3.0 cm. The radiologist indicated we need to see what her next PET scan shows but he feels due to 's lack of symptoms, the overall tumor staying the same size and the smaller circle containing necrotic components this is probably not tumor growth more likely the tumor breaking down. I sure hope he is right! I have a feeling we are heading in the right direction. We still have a very long road ahead of us. We need to find a balance between breaking down the tumor and controlling the swelling, hopefully without steroids. We will do whatever it takes to rid her body of this tumor. We have to be very thankful, journey with this tumor has been difficult but mild compared to some of the children we know with the same tumor. I ask that you continue to pray for and please remember all the children who are fighting this horrible tumor or any other illness. WITH HOPE & PRAYERS!! mother of www.aliciahopefund.com Quote Link to comment Share on other sites More sharing options...
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