Guest guest Posted July 26, 1999 Report Share Posted July 26, 1999 Subject: Boosting Children's Immune System? What does anyone do to boost their unvaccinated child's immune system? If an unvaccinated child is exposed to these diseases and will get them, and the lifelong immunity that is desired, what can we do to lessen the degree? Is there some componet of their diets or our daily life that is beneficial or critical? Just looking for everyone's opinions, I don't even know where to start researching this one... Have any sites or books you'd recommend I look into? TIA . - I've started the book " Super Immunity for Kids " and despite this doc's suggestion to immunize I've found it helpful. He has suggested using flax seed (and flax seed oil) as one way to boost immunity. He also talks about other minerals that are generally low in the traditional American diet (zinc, etc.). I think vitamin c is also very important. Hope this helps! Sherri Vaccinationsonelist wrote: > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 1999 Report Share Posted August 12, 1999 By the way, before someone throws me to the wolves, I just want to let any gay people on this list (or gay-positive people who just want to stay appraised of gay/CFIDS issues) know that I run a private list for gay, lesbian, bisexual and transgendered people with CFIDS. And there is a new chat forming on AOL for the same. And also - I believe this whole encounter to be exceptional. I have never - in running a gay, lesbian, bi, trans chat for two years (which ended some time ago) - received anything but wholehearted support and encouragement from the CFIDS community, which I feel is, in general, a group of wonderful, strong, compassionate people. So, believe me when I say that, while I know my posts came across as angry, I was responding to a specific set of circumstances. And I want nothing but healing for everyone here. G/L/B/T people can e-mail me privately about the list, if they want. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 1999 Report Share Posted September 11, 1999 Roxanne, From the beginning of joining this group I have gotten messages in digest form. It is the only way I can manage the huge amount of messages. The part I like is that many times my digest has 25 messages but only shows up as 1 message on my incoming mail. When I feel overwhelmed, I can look through the RE: of every message and only read the ones of interest or I can delete the entire thing. It is sure a time saver for me. My advice is to try it and see. You can always go back to getting them individually. I believe that if I had to receive them individually, I would have dropped out long ago. Take care, a AIH/Fatty Liver [ ] Digest Number 315 > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2000 Report Share Posted March 3, 2000 Greetings--- I would like to likewise, add a major congratulations to my brother and sister in law (Darin and Amy Lee) on the birth of my niece Amber Rose. I'd also like to add this tagline. The next time you're at the convention, wondering if those doctors will ever get done talking about the genetic advances that they're making, remember this: Without those advances, many couples such as myself and my wife, and Darin and Amy, and many others, would never have the courage to reenter the procreative waters due to fears of birth troubles and genetic defects. Let's hear it for the doctors that brought us a double dominance test. Thanks again! Ernie Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 << I was in the healthfood store today and saw a new (to me) version of stevia that was made with FOS, which are *good for you* and help develop the appropriate intestinal flora. It comes in packets.>> i use these, they are great!! *jami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2000 Report Share Posted April 3, 2000 Jami: is there an address or phone # on it so we could call? Thanks! Mogdrmom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 Message: 3 Date: Sat, 22 Apr 2000 09:00:09 -0700 From: " Debbie Metzger " <metzgerpk@...> Subject: Re: Debbie's request: to Moran >Do you have more details as to how the test >is done, and what it is supposed to be measuring? What are they treating? >And, excuse ignorance, what are UBI treatments?>> Moran >UBI is Ultraviolet Blood Irradiation. They used this intervenous treatment >to cure polio in the thirties and for bacteria, viral infections, etc. The >concept is to put oxygen into the blood, and that cancer can't live in the >presence of oxygen. I am non the worst for using this treatment as far as >my general health goes. But my CA15-3 (blood cancer marker) went up 5 >points instead of going down. >So now they are going to be doing another intervenous treatment, once a week >for 10 weeks, that involves putting 75 grams of Vit. C, along with other >minerals & vitamins, in me. It takes 4 -5 hours to do this process. They >got this protocol from a cancer center in Washington (I can't remember the >name.) This is not a test, but a treatment for cancer. >I have a question for you: what good are cancer markers for breast, etc.? >Do you think that they are invalid of showing what is going on in the ?patient? How do you know if you are cancer free? >Debbie The Ca15-3 is a quite valid tumour marker that is often positive in metastatic breast cancer. If the cancer responds to treatment this will normally be shown in the titre. I'd rather not comment otherwise, except to say that if your tumour is estrogen receptor positive a variety of hormonal measures eg tamoxifen can give quite prolonged remissions. From what you describe I suspect it will probably not be, but it would be worth finding this out as another option to explore. If the local recurrences ( mentioned in your other post) become a problem, I would encourage you to consider some radiotherapy, despite any misgivings you have. It will often clean them up like magic in relatively small dosages. Moran Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Dear All: Reading all the discussions about problems with treatment, I have not seen anything specific about the blood counts. EVERYONE's blood counts drop when on therapy. Some more rapidly than others, and some lower than others. Unless there are other problems, the usual course is to either stop the meds for a week, check the counts, and see if the body rebounds. If it does, (and these will still probably be below normal), then the rationale method is to stay with the same dose of interferon, and work with a lower dose of ribaviran. After another week, blood tests are repeated, and if there is not a major decline, the ribaviran dose is slowly increased, with continuing blood work weekly. Some people have cleared the virus with as low as 400mg of ribaviran a day, and others 600mg. If people are being taken off just because certain of their levels of blood counts has decreased, are being short changed. One of the major levels that should be looked at, as a reference point, is the " absolute neutrophils " . So long as this level stays above 700-750, dosages are adjusted, and other levels are watched, but, patients still receive therapy. The fact that the RBCs may fall to 2-3 is a normal side effect, and seen almost always. If it falls below 1, then there is some concern. A person being anemic, because of their hematocrit and hemoglobin are low, is also an expected effect. As long as the WBC, or white count, stays above 1-3, it needs to be watched, but, again, it is not a reason to stop treatment. What I am getting at, is that many people are shorted treatment, because their provider does not understand some of the " normals " that are frequently seen during therapy. If someone who was not on this, or similar therapy has these lab levels, the first thing would be to find out why. But, because of chemotherapy for cancer, AIDs, and other aggressive therapies, it has been shown that people can continue their treatment unless their levels fall to dangerously low levels. Also, while taking the interferon, and the ribaviran, it can be similar to having an outside " space suit " that works to protect you from many other " routine " illnesses. So, while your body may not be working as hard as desired, or, what is " normal " , it also has some outside help. This is why I always recommend that any HCV patient see someone who is interested, and staying current with therapies. If they stick to the " cook book " approach, the one who loses is the patient, because everyone is different, and n ot everyone will respond the same. The answer to avoid problems is to understand how low someone's levels can go before they run into trouble. With treatment like these, what were " normal " are no longer true, and anyone who sticks to the old levels is being screwed. This was clearly shown over the last 10 years with AID's treatment, and in the last 2-4 years in HCV therapy. For your own sake, learn as much as you can, and participate in your care and decisions made about treatment. This is not a time to worry about your provider's feelings. This is a time to be " selfish " and make sure you are an educated patient and consumer. Otherwise, the one who loses will be YOU. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2000 Report Share Posted October 8, 2000 Dear All: Reading all the discussions about problems with treatment, I have not seen anything specific about the blood counts. EVERYONE's blood counts drop when on therapy. Some more rapidly than others, and some lower than others. Unless there are other problems, the usual course is to either stop the meds for a week, check the counts, and see if the body rebounds. If it does, (and these will still probably be below normal), then the rationale method is to stay with the same dose of interferon, and work with a lower dose of ribaviran. After another week, blood tests are repeated, and if there is not a major decline, the ribaviran dose is slowly increased, with continuing blood work weekly. Some people have cleared the virus with as low as 400mg of ribaviran a day, and others 600mg. If people are being taken off just because certain of their levels of blood counts has decreased, are being short changed. One of the major levels that should be looked at, as a reference point, is the " absolute neutrophils " . So long as this level stays above 700-750, dosages are adjusted, and other levels are watched, but, patients still receive therapy. The fact that the RBCs may fall to 2-3 is a normal side effect, and seen almost always. If it falls below 1, then there is some concern. A person being anemic, because of their hematocrit and hemoglobin are low, is also an expected effect. As long as the WBC, or white count, stays above 1-3, it needs to be watched, but, again, it is not a reason to stop treatment. What I am getting at, is that many people are shorted treatment, because their provider does not understand some of the " normals " that are frequently seen during therapy. If someone who was not on this, or similar therapy has these lab levels, the first thing would be to find out why. But, because of chemotherapy for cancer, AIDs, and other aggressive therapies, it has been shown that people can continue their treatment unless their levels fall to dangerously low levels. Also, while taking the interferon, and the ribaviran, it can be similar to having an outside " space suit " that works to protect you from many other " routine " illnesses. So, while your body may not be working as hard as desired, or, what is " normal " , it also has some outside help. This is why I always recommend that any HCV patient see someone who is interested, and staying current with therapies. If they stick to the " cook book " approach, the one who loses is the patient, because everyone is different, and n ot everyone will respond the same. The answer to avoid problems is to understand how low someone's levels can go before they run into trouble. With treatment like these, what were " normal " are no longer true, and anyone who sticks to the old levels is being screwed. This was clearly shown over the last 10 years with AID's treatment, and in the last 2-4 years in HCV therapy. For your own sake, learn as much as you can, and participate in your care and decisions made about treatment. This is not a time to worry about your provider's feelings. This is a time to be " selfish " and make sure you are an educated patient and consumer. Otherwise, the one who loses will be YOU. Marty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Marty, You are Soo right. In fact, I fought to remain on treatment. The Dr. feels, though that to continue just interfuron without ribavirin is like doing monotherapy. Therefore, asked me to stop everyting till the results of endoscopy and colonoscopy. Made sense to me, although I did tell the doctor that " I still have the perscriptions, I can fill them if I want " Felt good to " be in charge " When you talk about RBC going down to 1 and 2, is this the same as Hemaglobin? If so, then my hemaglobin of 8 is NOTHING! Thanks for your smarts!! Lora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Lora, RBC (red blood cell count) and hemoglobin are two different things. When hemoglobin falls to 8 it is recommended to stop ribavirin. Another reason your doctor probably had you stop the interferon also is because it may either be the cause of your low platelets, or making whatever the problem is worse. If it is found that you cannot tolerate the ribavirin at all, and the problem with your platelets is resolved, then you might consider waiting for a pegylated interferon. It, without the ribavirin, has about the same chance of working as the regular interferon does when used with ribavirin. Good luck with the tests. Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2000 Report Share Posted October 9, 2000 Lora, RBC (red blood cell count) and hemoglobin are two different things. When hemoglobin falls to 8 it is recommended to stop ribavirin. Another reason your doctor probably had you stop the interferon also is because it may either be the cause of your low platelets, or making whatever the problem is worse. If it is found that you cannot tolerate the ribavirin at all, and the problem with your platelets is resolved, then you might consider waiting for a pegylated interferon. It, without the ribavirin, has about the same chance of working as the regular interferon does when used with ribavirin. Good luck with the tests. Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Dear : The " side-effects " of sodium thyroxine [similar to synthroid] are as follows: anginal pain, cardiac arrhythmias, palpitations, cramps in skeletal muscles, tachycardia, diarrhea, reastlessness, excitability, headaches, flushing, sweating, excessibe weight loss, muscular weakness, vomiting, tremors and insomnia. These effects are attributed to...excessive dosage. However, its almost impossible to obtain the " right dosage " as everyone is so different. First of all...all drugs have mild to serious side effects. Some are fatal. Second...thyroid dysfunction does not require any drugs at all. Anyone can evaluate their own thyroid function by simply taking underarm temperature for several mornings before arising. It should read 98.6 or 37 degrees depending upon the scale used. Thyroid dysfunction will generally reveal a low temperature, say 96.5 to 97.5. If you also have the symptoms..fatigue, PMS, cold hands and feet, weight gain,poor memory and concentration, dry skin, decreased immunity, tendency to cyst formation...breast or ovarian, uterine fibroids, etc., then... Low temperature + positive symptoms = thyroid dysfunction. Blood tests are too inaccurate to utilize intelligently. Should one highly suspect thyroid dysfunction, meaning hypothyroidism, Hashimotos, hyperthyroid, even Graves Disease, then the best solution is to access www.thyrodine.com and learn how the Thyroid Regeneration protocol will allow anyone to restore full thyroid function, naturally, with or without an adviser. One other important factor of drugs is this..if one takes synthroid or any other synthetic hormone [which are never the " same " as the natural body product...or they couldn't be patented], when the body perceives that there is an outside source of hormone, it shuts down its normal production due to simple feedback. The gland then tends to atrophy, to shrink and become non-functional. The Thyroid Regeneration protocol removes any auto-immune dysfunction and supplies the raw materials so that the thyroid produces its own natural thyroxin. It restores thyroid function back to normal. Not only are there no side effects to the TRP but general health is greatly enhanced. The lawsuit against synthroid was instituted due to severe side-effects from taking this drug among a lot of people. I'm not certain if there may have been some deaths as well. best wishes, Earl Synthroid lawsuit > > Hi, I thought I had read somewhere that the Synthroid lawsuit had been > settled and that people would be receiving checks if they had filed their > claim. But I have not heard anything since then, and I certainly haven't > received a check. Has anyone else heard anything? Joy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 Hi, Would you mind educating us about the synthroid lawsuit? Why was it filed? What harm does synthroid do? Thanks so much! > Message: 1 > Date: Wed, 11 Oct 2000 17:08:11 -0700 > From: " Cain, Joy " <jcain@...> > Subject: Synthroid lawsuit > > Hi, I thought I had read somewhere that the Synthroid lawsuit had been > settled and that people would be receiving checks if they had filed their > claim. But I have not heard anything since then, and I certainly haven't > received a check. Has anyone else heard anything? Joy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2003 Report Share Posted January 28, 2003 Hi Y'all, I will be at the next south end soup night and will bring a friend who is interested in meeting other bandsters. See ya Monday. Nora AGB 9/12/00 Dr. Rumbaut 330/150/140 (the last 10 pounds are a bitch)! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2005 Report Share Posted August 18, 2005 Hey, I am back from my first fill. I went to Dr. Dobson in Grand Prairie, Texas. Everyone at his clinic is very freindly and makes you feel comfortable. The only thing I felt was the first stick, which was the anesthetic, after that nothing, and it was just a little stick. First he added 1 cc. Looked at it with the floriscope and not much restriction at all. Dr. Dobson said I did not have much at all when I came in. He then added 0.6 cc and looked again. Good restriction this time, but.....I could not see anything flowing through, Dr. Dobson said that it was pretty tight and it may get tighter the next day and I would probably be on clear liquids for 4-5 days. I thought of whatTracie went through and asked the Doc what he thought, after all he is the expert, and he recomended backing off 0.2ccs. So we did. I think I have pretty good restriction although all I have had since then is clear liquids. Tomorrow I can go to mushies according to the Doc. I was down 21 lbs at my fill yesterday and down 23 1/2 today. MAry Ruth, I am glad to hear you got moved. Yes, the humidity is terrible in North Texas and Oklahoma. I moved here 17 years ago and still cannot get used to it. Marie 57 years old 5"9 1/2 250-226 1/2-160 here I come........ wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 Hi, Marie, glad to hear your experience went well, and you were thinking about me at the time of your fill. According to the docs I should have 1.75 cc , 1. was already in there, I am very glad he took a bit out. I called yesterday to see if I could go ahead and get a little taking out, and they wanted another 150.00 to do it, and since I dont have that right now, the nurse gave me suggestions on eating and stuff until the band loosens up. Hope it works, they have also prescribed Nexium for me, told me that alot of lap band patients have to take it, because of the heartburn and indegestion I have been having since my fill. Hope it works, and lets us know how your fill goes. Tracie B. 248/225 Re: Digest Number 315 Hey, I am back from my first fill. I went to Dr. Dobson in Grand Prairie, Texas. Everyone at his clinic is very freindly and makes you feel comfortable. The only thing I felt was the first stick, which was the anesthetic, after that nothing, and it was just a little stick. First he added 1 cc. Looked at it with the floriscope and not much restriction at all. Dr. Dobson said I did not have much at all when I came in. He then added 0.6 cc and looked again. Good restriction this time, but.....I could not see anything flowing through, Dr. Dobson said that it was pretty tight and it may get tighter the next day and I would probably be on clear liquids for 4-5 days. I thought of whatTracie went through and asked the Doc what he thought, after all he is the expert, and he recomended backing off 0.2ccs. So we did. I think I have pretty good restriction although all I have had since then is clear liquids. Tomorrow I can go to mushies according to the Doc. I was down 21 lbs at my fill yesterday and down 23 1/2 today. MAry Ruth, I am glad to hear you got moved. Yes, the humidity is terrible in North Texas and Oklahoma. I moved here 17 years ago and still cannot get used to it. Marie 57 years old 5"9 1/2 250-226 1/2-160 here I come........ wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 , Yes I couldn't beleive it another 150 to take some out, they explained that because there prices are so cheap that when the doc has to poke you you have to pay to see him, I guess this is considered an office visit charge. but anyways, I was a little disappointed but it helped make up my confused mind of what to do. They said I could take two bites every hour if I needed to, she also said some people with the band can only ever eat soft food and nothing else, I kept saying the soft food syndrome and both her and Dr. P were like what is the "soft food syndrome" but anyways, I have been doing alot better by just eating two to three bites at a time, it is just so darn hard to only take 2 or 3 bites and quit. ANyways, hey does anyone else ever get the hiccups or hiccup this seems to happen to me I think when the food passes through my stoma, i seem to hiccup around the same time everytime I eat something. About the nexium that was 35.00 alone with insurance but at least I didn't have to pay a doc's visit to get the prescription. I think I am doing better. They said the hurting was me trying to eat to much and my pouch not being big enough, so now it is 2 or 3 bites at a time. Tracie B. but I gained 1/2 lb since Monday. ugh....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2005 Report Share Posted August 19, 2005 I can’t believe they wanted to charge you again!  I thought they give you some time! Did she explain this? That is so wrong. What did she tell you about eating? M. 3/1/05 280/207.5/160 http://www.tracyslapband.com From: [mailto: ] On Behalf Of tkbartek@... Sent: Friday, August 19, 2005 1:17 PM Subject: Re: Digest Number 315 Hi, Marie, glad to hear your experience went well, and you were thinking about me at the time of your fill. According to the docs I should have 1.75 cc , 1. was already in there, I am very glad he took a bit out. I called yesterday to see if I could go ahead and get a little taking out, and they wanted another 150.00 to do it, and since I dont have that right now, the nurse gave me suggestions on eating and stuff until the band loosens up. Hope it works, they have also prescribed Nexium for me, told me that alot of lap band patients have to take it, because of the heartburn and indegestion I have been having since my fill. Hope it works, and lets us know how your fill goes. Tracie B. 248/225 Re: Digest Number 315 Hey, I am back from my first fill. I went to Dr. Dobson in Grand Prairie, Texas. Everyone at his clinic is very freindly and makes you feel comfortable. The only thing I felt was the first stick, which was the anesthetic, after that nothing, and it was just a little stick. First he added 1 cc. Looked at it with the floriscope and not much restriction at all. Dr. Dobson said I did not have much at all when I came in. He then added 0.6 cc and looked again. Good restriction this time, but.....I could not see anything flowing through, Dr. Dobson said that it was pretty tight and it may get tighter the next day and I would probably be on clear liquids for 4-5 days. I thought of whatTracie went through and asked the Doc what he thought, after all he is the expert, and he recomended backing off 0.2ccs. So we did. I think I have pretty good restriction although all I have had since then is clear liquids. Tomorrow I can go to mushies according to the Doc. I was down 21 lbs at my fill yesterday and down 23 1/2 today. MAry Ruth, I am glad to hear you got moved. Yes, the humidity is terrible in North Texas and Oklahoma. I moved here 17 years ago and still cannot get used to it. Marie 57 years old 5 " 9 1/2 250-226 1/2-160 here I come........ wrote: Quote Link to comment Share on other sites More sharing options...
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