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RE: Multiple Myeloma (2)

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Off-Label Prescribing goes on. Thalidomide has not been approved for use with MM

and causes many neurological side effects. It is used for leprosy. As I

remember, thalidomide reduces the building of new blood vessels. MM is a

disease of certain cells in the bone marrow.

There are better things available. Others members that have a lot of experience

will in time offer help.

My sister had MM. She mucked around with a GP for months with a pain in her

thigh and hip area. He did nothing but waste valuable time without making a

diagnosis. A chiropractor sent her for x-rays and found a " lesion " the size of a

goose egg in her left femur. The chiropractor sent the information and called

her GP who continued to waste time.

She was diagnosed in 2002, several weeks after her left femur broke and dropped

her to the floor. The surgeon in Pittsburgh, that put in the rod from her hip

to her knee, and after full body bone scans, told her she did not have cancer.

We took her home in a few days. When she began having pains running down her leg

(which came on directly after being forced to do ten backlifts within a week of

her surgery) I took her for an x-ray of her foot and ankle, which was swollen.

There were no broken bones.

The pains continued to get worse. We loaded her with morphine and into the car

and took her to another hospital where they took scans of her spine and promptly

said, " you have MM " . Then she had to wait for an appointment with a radiologist.

He gave her three months.

Because of her death sentence, we looked for alternatives. She acquired cesium

to remove the bulk of the cancer cells. Along with dietary changes and

supplements she healed and began to walk and drive again. She enjoyed a normal

life for several years.

I am relating this story because MM may be controlled but the damage that it

reeks on the skeletal system is devastating. My sister ended up collapsing

several vertebrae when lifting or pushing a rock in her flower garden. She gave

up at that point, and died within a few months, in 2005.

Rebuilding Bone: When her femur broke, I found a doctor at Wisconsin University,

Madison, who had come up with a Vitamin D derivative (which is called 2 MD) that

had no side effects and rebuilt vertebrae 25 % in about six months. He ran the

safety phase which it passed with flying colors and then sold out to Pfizer for

the other phase testing. Pfizer has not released any information on the phase

two testing which should have been finished long ago. was running

the tests. I had tried to get some 2 MD on a compassionate use basis, for my

sister, but was not successful. I suggest that she would probably be alive and

well today if I had been able to acquire 2 MD to repair her bones.

" Bizphosphonates " with their many detrimental side effects and no bone

rebuilding capabilities, are a big money item with most big pharmies, so

therefore the 2MD, used in healing doses, could archive the bizphosphonates.

With the healing potential of this vitamin D derivative, 2MD would potentially

be used on a declining basis as the bone density improves.

Medications that actually heal conditions are a pharmie's nightmare. They would

not be " annuity-like " profit producing items, and could only be profitable if

given in very low doses that might continue to be needed for the lifetime of the

patient. Or, perhaps, it's good effects could be controlled or limited by

combining with cholesterol lowering drugs which contribute to osteoporosis.

The cesiumtherapy group site contains files and links as well as messages

containing helpful information for alkalizing the body. Someplace I read that

nothing can be claimed as a cure unless it is a drug. Cesium is not a drug.

Dottie

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very interesting dottie!

quite a horror story at the beginning too.....not unknown,have heard several

similar

for mm.

would like to know more effective cesium cases.

the D3 derivative looks stowed away on the shelf.

the bisphosphonates have drawbacks but do keep the bones together,mm specialists

just do not see the number of fractures as progressive course of disease now

compared to years before the bisphos. drugs.

thal is well established - has progeny now.....revlimid etc

thal has certainly dramatically change things for me in 32 days......no

" internet

bright hope/promise comes anywhere near.

m-spike drops 45 down to 14 & IgA from 63 down to 13.7 yet i feel the same way

about big pharma.......vincent calls it NASDEC MEDICINE

thal is approved in australia for mm

it just depends if it works - some mylomics don't respond to it.

perripheral neuropathy is the major thing....but nothing compared top myeloma.

constipation and bloating and feeling like sleepwalking during the day

are a drag.

i take breaks of 2-3 days and let the normal rhythms wssert themselves.

must zzzzzz

joe

Dottie wrote:

Off-Label Prescribing goes on. Thalidomide has not been approved for use with

MM

and causes many neurological side effects. It is used for leprosy. As I

remember,

thalidomide reduces the building of new blood vessels. MM is a disease of

certain

cells in the bone marrow.

>There are better things available. Others members that have a lot of experience

will

in time offer help. ................................

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