Guest guest Posted February 20, 2002 Report Share Posted February 20, 2002 Hi, About five years ago a Joan stopped at our home and wanted a cancer tape she had heard we were making. She wanted it for her brother Wayne. Wayne had cancer in his chest and head and was in quite serious condition. He was not expected to make it very long. He began using the flax oil with cottage cheese and three or four months later the doctor found no evidence of cancer. This stayed that way for a year and a half or so. The doctor wanted to give him chemo so it wouldn't return but found no real excuse. Incidentally, last year I saw his initial dignosis and the doctor had written, " This kind of cancer does not respond well to chemo. Anyway, Wayne did not like cottage cheese, and he was better so he quit that. He would leave a bottle of oil in his mother's fridge [He lived alone] and when he saw her, usually each evening, he just took a swig and put the bottle back. Dr. Budwig says that without the sulfur based protein, it can have the " opposite effect " . The next checkup showed evidence of cancer redeveloping. The doctor told him that the Flax Oil hadn't helped and that he should get back on the chemo. He had great faith in the doctor and got back on the chemo and it has been down hill ever since. When the redevelopment of the cancer was evident, he was devastated. How could that happer? He had taken all that chemo and expected to be cured. His mother had cancer develop in a lung about three years ago and part of a lung was removed. She didn't see any need for anything else, such as FO/CC. After some months it seemed to be evident elsewhere. She used the FO/CC to some extent but not nearly enough. She followed her doctor's directions and took some chemo. As things gradually got worse she lived with it and took some FO/CC but again not consistently and enough. Tonight I recieved the message from Joan that I have pasted in below: WAYNE IS VERY SICK AND IN LOTS OF PAIN TODDAY. Spent Monday at the Dr. in UT. and then in Chattanooga, on tuesday. They want to keep h im free from as much pain as possible. JUst call out to God for him and all of us. Moma is in lots of pain, a.lso. Both were scheduled to start chemo tomorrow. God has and I know always wil hear our prayers, He has ansewered many times. `Remember Jody and and and the custody case trial tommorrow. aND SO MANY MORE SICK, AND HURTING. I just can't beleive or accept that it is time for Wayne. I don't give up or quit , easily. Love, Joan Cliff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , Most of the learning to hear with CI occurs outside the CI center. Re: Wayne > > > > > > It's been interesting to read about newly hooked up CI/sighted people > > learning to visually associate words and environmental sounds. I was slow > to > > learn to understand environmental sounds and words with the CI because > with > > my blindness I did not have the visual cues to speechread and identify > sound > > sources. In discouragement and frustration I requested auditory training > > similar to what children received; . I did not get this training and it > was > > a slow, painful process trying to adapt to the CI. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , You're right. The question of how I would interpret sounds with a CI without the help of visual clues crossed my mind many many times. I'm hoping that my friends and family can help me through this process. We'll see. First, I have to go through my evaluation. <smile> Re: Wayne > > > > > > It's been interesting to read about newly hooked up CI/sighted people > > learning to visually associate words and environmental sounds. I was slow > to > > learn to understand environmental sounds and words with the CI because > with > > my blindness I did not have the visual cues to speechread and identify > sound > > sources. In discouragement and frustration I requested auditory training > > similar to what children received; . I did not get this training and it > was > > a slow, painful process trying to adapt to the CI. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 , You can very easily plan to learn new sounds by having someone turn things on and off and cue you when you are outside and hearing " strange " sounds. But you have memory dont you? You be surprised at what you recognize. *---* *---* *---* *---* *---* The best defense against logic is stupidity. -- & Gimlet (Guide Dawggie) Portland, Oregon N24C 3G 8/2000 Hookup rlclark77@... http://home.comcast.net/~rlclark77/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2004 Report Share Posted May 20, 2004 dear , Thanks for answering my queries. I am looking forward to the day when I will have my CI evaluation, and I am actively pursuing the idea. Though it might seem negative, I would like to know the worst scenario for a DI wearer? Will the CI incision cause meningitis? How long do you have to wear the head wrapping? Will I be able to use my other hearing while the incision is healing? What do they do on the day of hookup? Is it as simple as the clinician just turning it on? I know these are rather silly questions, but I am totally blind and can't lipread. Thank you Sincerely, Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Larry: Some researchers apparently were able to regenerate the hearing hair cells in some birds so maybe someday they'll be able how to figure out how to do it with humans. Hal Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Larry, Some people have answered your good questions. Is this sufficient or is there more info you would like? Re: Wayne > dear , > Thanks for answering my queries. I am looking forward to the day when I > will have my CI evaluation, and I am actively pursuing the idea. Though it > might seem negative, I would like to know the worst scenario for a DI > wearer? Will the CI incision cause meningitis? How long do you have to wear > the head wrapping? Will I be able to use my other hearing while the incision > is healing? What do they do on the day of hookup? Is it as simple as the > clinician just turning it on? > I know these are rather silly questions, but I am totally blind and > can't lipread. Thank you > > Sincerely, > > Larry > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Larry, That's a good question! <smile> A tactile interpreter is a sign language interpreter who works with the deaf-blind (usually someone who is totally blind or who cannot see well enough to read visual sign) and is trained in the use of tactile (or hand over hand) sign. The distinction between a sign language interpreter and a tactile interpreter is an important one because not all interpreters are comfortable with or trained in the use of tactile sign. Re: Wayne , I am very sorry to be so stupid but what is a tactile interpreter? Larry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2004 Report Share Posted September 16, 2004 > Wayne is one example of a person who had 25 pounds of waste inside at the time of his death. I thought it was 60 pounds but I found this when I looked on the net. The part about Elvis makes it sounds like he had candida though. http://www.snopes.com/toxins/fecal.htm Claim: Wayne's autopsy revealed 40 pounds of impacted fecal matter lodged in his colon. Status: False. " No autopsy was performed on Wayne when he succumbed to cancer in 1979. The medical examiner's office had no reason to hold an autopsy since Wayne had obviously died from natural causes, and hospital pathologists had little to learn by requesting the autopsy of a cancer patient who had already undergone several major surgeries " " This claim is largely true about Elvis Presley (in concept if not in actual quantity), but not for the reasons we're led to believe. According to an account based on the report by the four doctors who performed the post-mortem examination of the entertainer. The colon is approximately five to seven feet in length in a person Elvis's size and should have been about two inches in diameter . . . however, Elvis's colon was at least three and a half inches in diameter in some places and as large as four and half to five inches in diameter in others . . . [T]he megacolon was jam-packed from the base of the descending colon all the way up and halfway across the transverse colon. It was filled with white, chalklike fecal material. " " It is possible for fecal matter to become impacted and lodge in the digestive system. In most cases, the colon tissues eventually stretch so that stool can push its way around the impacted matter and be evacuated. If this condition continues too long, however, the colon can stretch to the point that its nerves are no longer capable of receiving signals effectively, and the afflicted person loses voluntary control over the contraction of his bowel muscles and becomes incontinent. " Bruce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Wayne, Welcome to our group where you will get to meet very knowledgeable people who can answer just about anything. Grace edward branson <waneman69@...> wrote: This is my first time posting, just wanting to kinda get the feel of this group,I am a member of two other groups and am starting to leard more and more about this disease,Havn't had any seizuers for awhile,but am trying to read past messages as well,thanks for everything that I have received ovr the past few days,if something comes across and you cannot read.I have problems with my left hand due to strokes and that is when my seizures started.any input that uou may have will be greattly appreciated,wayne Quote Link to comment Share on other sites More sharing options...
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