Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 - It makes perfect sense to me. I'm right there with you. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 - One more thing. Since you are a nurse, I would love to hear your perspective on the mtx. Exactly what is it that concerns you so much? I know the general side effects, and I know it's commonly used and frequently effective. I'm experiencing this same (irrational?) fear of putting my daughter on this drug. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 Diane, My daughter Jenna (7 years) was initially put on mtx, she had a terrible reaction to it, she swelled up, she had a rash all over her body, not from the jra, a different rash, and also she was very irritable, bad mood swings, they took her off it immediately and started her on a different steriod, that one she had no problem with, so watch for any side effects, Jenna's didn't start the next day it took 2 days to come out. Just a bit of info. Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2000 Report Share Posted November 2, 2000 My daughter takes the mtx and she's doing fine on it. In the beginning she had the mouth sores and even lost her hair, but no more sores and hair grew back. For the mouth sores her dr gave her benadryl/mylanta mixed together and it worked. Been on it now a year. So it works differently for everyone. Ywellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2000 Report Share Posted November 5, 2000 In a message dated 11/02/2000 8:06:22 PM Pacific Standard Time, sweetpea200001@... writes: > My daughter takes the mtx and she's doing fine on it. In the beginning she > had the mouth sores and even lost her hair, but no more sores and hair grew > back. For s hair loss the dr gave her Wellcovin. Seems to be working Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 i haVE NOTICED A FEW MEMBERS TALK ABOUT HAIR LOSS WITH MTX, DO YOU MEAN THINNING OR FULL BLOWN HAIR LOSS AS A CHEMO PATIENT WOULD HAVE??just curious, Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 In a message dated 11/05/2000 8:17:33 PM Pacific Standard Time, sweetpea200001@... writes: > What is wellcolvin? and how is it used? > Ywellen A tablet that takes to help with the hair loss she is suffering from Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Jana, My daughter lost just about all her hair. She wore hats alot, but this does not happen to all kids on mtx. So don't even get to worried because a friend of mines child didn't lose not even a string of hair. Think postive ok. Ywellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Thanks I will see if the dr. will give me some wellcolvin for my daughter. ywellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Jane has always had more than normal hair loss,but it does seem worse now that she is on te MTX Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hi Trish, I have a friend in Newcastle (I live in Maitland) who has Stage 2 Bowel cancer as well and his wife constantly worries as he is doing alternate only. Would you be willing to talk to her on the phone? She asked me to try to find some alternate support people so your case sounds like it could be helpful. If you would like to give me your phone number you could email it to me direct [at ilt404 @ ] Would really appreciate it. Thanks Toni --- trish mann wrote: Greetings to all from Downunder, My thoughts and prayers are with you all. I have just gotten over stage 2 bowel cancer last November but I still have lots of incidences of intermittent pain in that area and all over. I would say daily. My lymph nodes were clear so no chemo. A blood test for CEA last week was normal.Lymphocytes were normal too. Are there any other tests to see if I have cancer elsewhere? I have heard of a PET scan - my GP is not aware of this test. Do I have to go to an oncologist to get this PET scan? Also are there any good diet sites for post bowel cancer and what extra vitamin supplements would anyone suggest I take ? Kind regards Trish, Sydney, Australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 toni, Did you get my emails? Trish From: " Toni s " Sent: Wednesday, March 01, 2006 > Hi Trish, I have a friend in Newcastle (I live in Maitland) who has Stage 2 Bowel cancer as well and his wife constantly worries as he is doing alternate only. Would you be willing to talk to her on the phone? She asked me to try to find some alternate support people so your case sounds like it could be helpful. If you would like to give me your phone number you could email it to me direct [at ilt404 @.au ] Would really appreciate it. Thanks Toni > > --- trish mann wrote: > Greetings to all from Downunder, My thoughts and prayers are with you all. I have just gotten over stage 2 bowel cancer last November but I still have lots of incidences of intermittent pain in that area and all over. I would say daily. My lymph nodes were clear so no chemo. > A blood test for CEA last week was normal.Lymphocytes were normal too. Are there any other tests to see if I have cancer elsewhere? > I have heard of a PET scan - my GP is not aware of this test. Do I have to go to an oncologist to get this PET scan? > Also are there any good diet sites for post bowel cancer and what extra vitamin supplements would anyone suggest I take ? > Kind regards Trish, Sydney, Australia > Quote Link to comment Share on other sites More sharing options...
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