Re: I love this group

January 18, 2002

In a message dated 1/18/02 4:42:36 PM Pacific Standard Time, liss6484@... writes:

my liver is doing great, but my blood sugar is low. My doc says that's why i'm still fatigued. Does anyone know what I can eat to fix this?

This sounds tricky. Did your doctor give you any suggestions on the blood sugar level? I don't think that's why you're still fatigued, but I'm not a doctor.

Harper

January 19, 2002

Elissa,

You obviously know better than your Dr. you have AIH and he/she doesn't. I doubt there is one person here who will tell you otherwise and we all have it! Have fun with your filming. Eat alot of carbs & esp bananas with your low Blood sugar, many small meals with a protien inc.keep stuff like pnut butter (if you can tolerate it) or a peice of cheese while you are filming & fuel your tired body with more than caffeine.

Again, have fun

Patty

-----Original Message-----From: Elissa [mailto:liss6484@...]Sent: Friday, January 18, 2002 7:40 PM Subject: [ ] i love this group

I love this group! Everyone is so caring and helpful. I got my blood test results back yesterday, and my liver is doing great, but my blood sugar is low. My doc says that's why i'm still fatigued. Does anyone know what I can eat to fix this? I also think i'm still tired because of the aih itself, but my doc never says that's a possibility. I'm filming a movie this weekend for my friend's production class and i am extremely tired. we will not be getting much sleep and i am wired on caffeine! i hope i can make it through today and tomorrow!! yall are the only ones that can understand my tiredness!!! thanks for listening.

Elissaliss6484@...

September 16, 2005

Hi Adam

There is a simple saying in life you can take the horse to the water but you

cant get that horse to drink.

Now as much as what I love a good fight (i live on an island and for weeks on

end I really speak to no one) you have got to realize which battles you will win

and which ones you will lose.

Dont waste your energy on people who are not interested. Rather help people who

really want to hear what you have to say. You could save their livies.

now dont get me wrong I live on an island where everybody thinks I am mad doing

cancer treatments alternatively. So yes some of these guys are really arrogant

and need to come down a step or two but hey you cant have everybody on your

side. imagine how boring life would be.

Go Adam Go lol lol

Enjoy the battle

regards, Odette- all on your side.

Adam wrote:

.... I encounter so much hostility when I post anything non-conformist outside of

this group in more traditional groups....

September 16, 2005

I know how you feel! I was in several breast cancer survivor groups where I was

heavily critisized for not taking tamoxifen and stopping chemo. Then when I

turned up stage IV, they said that was why and it turned out I was the only

stage IV in this particular group and none of them wanted to hear or even think

about being stage IV and they were actually mean to me!

C

Adam wrote:

I encounter so much hostility when I post anything non-conformist outside of

this group in more traditional groups. ........

September 16, 2005

Don't let them get you down, Adam. They spent a lot of money to be that way!

I tried to offer an alternative emergency room procedure for stroke patients and

caught the wrath that went with not being a traditional FDA approved entity.

Unfortunately, stepping on their toes with what I figure to be logic doesn't

work and is unwelcomed. but the only thing they can do is block my address to

shut me up. Hang in there..

best of luck

Roy

Adam wrote:

...I encounter so much hostility when I post anything non-conformist outside of

this group in more traditional groups. ..........

September 17, 2005

Adam,

I love this group too-

If you are not getting or learning anything from a group why belong? I

suggest you quit groups where you cannot speak your piece.

There are some groups that have guidelines as to what they will let you

post- like the flax oil groups. This is ok, they are allowed to have whatever

focus they want. I still have learned a lot from them. There are groups that

have a poor-me victim consciousness. That is OK for them, I have left those

groups as that is not where I am.

What I dont like is anyone saying that I should not be doing something.

Cancer is a tricky business and everyone's path is different. I can only say

that

combining alternative with mainstream has worked very well for me.

So my suggestion is possibly look at how you are addressing these groups.

Are you attacking or making someone out to be wrong? Some people or groups may

not be ready for advice.

What really bugs me is the groups whose moderators have abandoned them, and

are taken over by spammers!

Best to you,

Terry

September 17, 2005

Hi Adam,

As the saying goes..you cant please everybody..but

that is not imporatnt...what is important is...you

said what you wanted to...

There are still a lot..who read and appreciate what

you are doing for this group/hang in there...and..dont

stop....

ROssana

> Adam wrote:

> ... I encounter so much hostility when I post

> anything non-conformist outside of this group in

> more traditional groups....

September 18, 2005

Adam, Yes I know how you feel. I went to a site where women who were survivors

of cancer supposedly were together doing alternative treatments. Well, fool am I

!! They all had surgery first and I was bombarded with admonishments about how I

HAD to have surgery.I just wrote them and the one who was so outspoken and told

them I was going to do it my way and that I had read of many who had cured their

cancer without surgery. I haven't cured it yet but I am still kicking and that

seems to be what it is all about anyway.

As I told the black kids in my building once - you can't change a racist's

opinion. Usually there has to be some earthshaking thing that happens to change

such thoughts. In our case, like theirs or their loved ones, getting cancer and

with the statistics going up it will be affecting us all soon, then they will be

looking for the cure too!!! Time is a great leveler of humanity! Just keep

working on it and keep your mind open! What works for one doesn't for another-

the antioxidants and CoQ10 seemed to work the best of everything for me. Then,

when I started PolyMVA my cancer grew because I wasn't supposed to take

antioxidants. One says soy is ok and one doesn't agree with that, so here we are

experimenting with our lives and I can tell you at M D , they are too!!

rosalind

September 19, 2005

lind,

How sad it is that so many women are addicted to the notion of

surgery. It is reminiscent of African women who have been clitorectomized

and infibulated and now insist that the next generation of women should be

treated the same.

For some women surgery can be a very rational choice; for others

surgery would be the beginning of the end. Most anywhere in life it seems

that people who are the most vociferous are the most wrong.

At 06:13 PM 09/18/05, you wrote:

>Adam, Yes I know how you feel. I went to a site where women who were

>survivors of cancer supposedly were together doing alternative treatments.

>Well, fool am I !! They all had surgery first and I was bombarded with

>admonishments about how I HAD to have surgery.I just wrote them and the

>one who was so outspoken and told them I was going to do it my way and

>that I had read of many who had cured their cancer without surgery. I

>haven't cured it yet but I am still kicking and that seems to be what it

>is all about anyway.

>

>As I told the black kids in my building once - you can't change a racist's

>opinion. Usually there has to be some earthshaking thing that happens to

>change such thoughts. In our case, like theirs or their loved ones,

>getting cancer and with the statistics going up it will be affecting us

>all soon, then they will be looking for the cure too!!! Time is a great

>leveler of humanity! Just keep working on it and keep your mind open! What

>works for one doesn't for another- the antioxidants and CoQ10 seemed to

>work the best of everything for me. Then, when I started PolyMVA my cancer

>grew because I wasn't supposed to take antioxidants. One says soy is ok

>and one doesn't agree with that, so here we are experimenting with our

>lives and I can tell you at M D , they are too!!

>

>rosalind

September 19, 2005

I will echo the surgery issue. I have a woman who’s 82 year old aunt has

breast cancer. The doctor told her they probably got it all with the

biopsy, but has scheduled her in 3 weeks for a radical mastectomy " just in

case. " The man is a butcher and she is going along with it like a sheep to

the slaughter.

Bruce Guilmette, Ph.D.

Survive Cancer Foundation, Inc.

http://www.survivecancer.net

________________________________________

From: [mailto: ] On

Behalf Of Gammill

Sent: Monday, September 19, 2005 2:08 AM

Subject: Re: [ ] Re: I love this group