Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Dear Amy, Hang in there. My thoughts and prayers are with you and Allie. That must have been a very difficult thing to hear. Just try to stay strong and keep in mind that everything that Allie is going through now will make her a strong compassionate person. You are both in my heart. Ellie and Riley 4 poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Oh Amy: My heart goes out to you. I don't know what to say except that as I read your post it is only too easy to imagine how you must feel, and how hard it must be. How your heart must be aching. I am so sorry. As you say, we are here to support each other and I wish I only knew how to do that better for you. You and Alli are in my heart and prayers. Please try to look at the wish as a blessing and a joy for Alli, and keep faith that as bad as it has to potential to be, it also has the potential to turn around, for Alli to heal, for miracles to happen. This is what I wish and pray for you and Alli. Lynn & Mickey From: " gertieteach " <mamabear1026@...> Reply- Date: Fri, 12 Jul 2002 22:04:44 -0000 Subject: having a bad day OK Guys, I know I am just a newbie to this great group, but... man did I have a bad day today! I love coming here and reading all of your responses to each other and how uplifting you are of each other. I get so caught up in reading that sometimes I for get to reply! I just feel like I have to get this off my chest and maybe I can feel better about it. When I came into the grup I introduced you to my 15 year old daughter Alli who has Still's JRA, asthma, heart problems, elher danlos, and an immunity deficiency. The immune deficiency has been causing many problems of late. The Make-A-Wish Foundation called me today and very gently told me that one of her docs has referred her to have a wish granted. This hit me in the stomach like a cannon ball! It has always been in the back of our minds that Alli has a big problem. I try to push it back as far as it will go! I have volunteered for this organization and never thought my Alli would be one of their Wish Children! I put the phone down and called the doctor to ask some questions. He was very good to talk to me right away. I just needed to hear from him that Alli really qualified for a wish. He said that her immunity numbers were that bad. One bad infection and we could loose Alli. This is not something that I have ever wanted to face! She is my only child and the only child I will ever have. I have been numb for the better part of the day. The doctor has asked to meet with Alli at a local ice cream place tomorrow to explain how she qualifies and that she should not give up. Thanks for the time and place to vent. This has sent my world spinning! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 first let me say i am very sorry that you have to go through this. my sister lost her daughter about two years ago after an unexpected illness at age 18. it was devastating. before she passed away the make-a-wish foundation granted her a wish which was a " Les- " guitar. she loved playing the guitar and was very good. there is nothing i can say because i really am not in your shoes right now, so i will not attempt to try and make you feel better. you should be sad and all i can say is i am sorry for you and your daughter. i will say a prayer for you both. > OK Guys, I know I am just a newbie to this great group, but... man > did I have a bad day today! I love coming here and reading all of > your responses to each other and how uplifting you are of each other. > I get so caught up in reading that sometimes I for get to reply! I > just feel like I have to get this off my chest and maybe I can feel > better about it. > > When I came into the grup I introduced you to my 15 year old daughter > Alli who has Still's JRA, asthma, heart problems, elher danlos, and > an immunity deficiency. The immune deficiency has been causing many > problems of late. The Make-A-Wish Foundation called me today and very > gently told me that one of her docs has referred her to have a wish > granted. This hit me in the stomach like a cannon ball! It has always > been in the back of our minds that Alli has a big problem. I try to > push it back as far as it will go! I have volunteered for this > organization and never thought my Alli would be one of their Wish > Children! I put the phone down and called the doctor to ask some > questions. He was very good to talk to me right away. I just needed > to hear from him that Alli really qualified for a wish. He said that > her immunity numbers were that bad. One bad infection and we could > loose Alli. This is not something that I have ever wanted to face! > She is my only child and the only child I will ever have. I have been > numb for the better part of the day. The doctor has asked to meet > with Alli at a local ice cream place tomorrow to explain how she > qualifies and that she should not give up. > > Thanks for the time and place to vent. This has sent my world > spinning! > > Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Amy, oh dear Amy! NO parent should ever have to hear, 'that kind of news! I can't think of anything to say. much love and many prayers! hugs for your Alli.. Rusty On Fri, 12 Jul 2002 22:04:44 -0000 " gertieteach " <mamabear1026@...> writes: OK Guys, I know I am just a newbie to this great group, but... man did I have a bad day today! I love coming here and reading all of your responses to each other and how uplifting you are of each other. I get so caught up in reading that sometimes I for get to reply! I just feel like I have to get this off my chest and maybe I can feel better about it. When I came into the grup I introduced you to my 15 year old daughter Alli who has Still's JRA, asthma, heart problems, elher danlos, and an immunity deficiency. The immune deficiency has been causing many problems of late. The Make-A-Wish Foundation called me today and very gently told me that one of her docs has referred her to have a wish granted. This hit me in the stomach like a cannon ball! It has always been in the back of our minds that Alli has a big problem. I try to push it back as far as it will go! I have volunteered for this organization and never thought my Alli would be one of their Wish Children! I put the phone down and called the doctor to ask some questions. He was very good to talk to me right away. I just needed to hear from him that Alli really qualified for a wish. He said that her immunity numbers were that bad. One bad infection and we could loose Alli. This is not something that I have ever wanted to face! She is my only child and the only child I will ever have. I have been numb for the better part of the day. The doctor has asked to meet with Alli at a local ice cream place tomorrow to explain how she qualifies and that she should not give up. Thanks for the time and place to vent. This has sent my world spinning! Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Hi Amy, I read through the posts since last thursday to get caught up - and have read all of the responses, as well as your follow-up posts, but I wanted to let you know that you and Alli are in my thoughts and prayers, along with your whole family. Alli sounds like a remarkable young lady (comes from good parenting) - with a lot of inner strength that will go along way in this " battle " you are faced with. Her choices for her wish are also impressive, and I smiled at the picture of the whole family pulling together that you painted. Thanks for sharing that side of your story as well, it really lifted my heart at a moment when I needed a pick-me-up. Take care - lots of hugs! Val Rob's Mom (4,systemic) In a message dated Fri, 12 Jul 2002 5:04:44 PM Eastern Standard Time, mamabear1026 writes: > > > OK Guys, I know I am just a newbie to this great group, but... man > did I have a bad day today! I love coming here and reading all of > your responses to each other and how uplifting you are of each other. > I get so caught up in reading that sometimes I for get to reply! I > just feel like I have to get this off my chest and maybe I can feel > better about it. > > When I came into the grup I introduced you to my 15 year old daughter > Alli who has Still's JRA, asthma, heart problems, elher danlos, and > an immunity deficiency. The immune deficiency has been causing many > problems of late. The Make-A-Wish Foundation called me today and very > gently told me that one of her docs has referred her to have a wish > granted. This hit me in the stomach like a cannon ball! It has always > been in the back of our minds that Alli has a big problem. I try to > push it back as far as it will go! I have volunteered for this > organization and never thought my Alli would be one of their Wish > Children! I put the phone down and called the doctor to ask some > questions. He was very good to talk to me right away. I just needed > to hear from him that Alli really qualified for a wish. He said that > her immunity numbers were that bad. One bad infection and we could > loose Alli. This is not something that I have ever wanted to face! > She is my only child and the only child I will ever have. I have been > numb for the better part of the day. The doctor has asked to meet > with Alli at a local ice cream place tomorrow to explain how she > qualifies and that she should not give up. > > Thanks for the time and place to vent. This has sent my world > spinning! > > Amy > > > > To unsubscribe, please send a message to: > -unsubscribe > > To change your email delivery options, please visit: > / > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 Val, Thanks for your comments! We are much better now. It just seemed like our whole world fell in on us in a 24 hour period! Alli is the best kiddo I could ever ask for! Amy & Alli(15) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Well, I went through all the lab tests and the MRI and was indeed diagnosed with hypogonadism. The endo wanted to start me on T therapy. When I told him I was interested in HCG as well to preserve fertility, he said he didn't know anything about that and referred me to another Endo in his practice. I firmly believe he did this just because I had the nerve to speak up. Let this be a lesson to everyone else. Get what you want one piece at a time. I could have easily started therapy and then transferred to another endo before the T damaged my onions. Now the person he referred me to won't see me until June, and won't answer emails. Believe me that if I ever find a person in Va. who knows his ass from a hole in the ground, he'll be on the group list in a heartbeat! Now to continue waiting until June... and hope that he will deign to talk to me then. I called all the doctors on the TuneUpYourT website in Va, but as you know you can't actually talk to the doctor. I'm near the point where I'd be willing to travel somewhere on the east coast just to get the ball rolling. Anyone know a doctor who'd evaluate the results of my tests and MRI and prescribe HCG as well as T? Regards, Louis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2005 Report Share Posted March 18, 2005 Hi, My doctor, Dr. R. Don Gambrell, Augusta, GA is world renouned and his mentor now deceased, Dr. Greenblatt, was a pioneer in hormone therapy for both men and women since the 50's. Dr. Gambrell treats men for andropause and couples for fertility problems. Check them out on GOOGLE. He may or may not agree with your choice of therapies but will answer questions for those with problems. His web site is: http://www.members.aol.com/gambr999/ I receive 20 hormone pellets every 4 months with not patient involvement between visits. Fertility concerns are very important. ernestnolan > Well, I went through all the lab tests and the MRI and was indeed > diagnosed with hypogonadism. The endo wanted to start me on T therapy. > When I told him I was interested in HCG as well to preserve fertility, > he said he didn't know anything about that and referred me to another > Endo in his practice. I firmly believe he did this just because I had > the nerve to speak up. Let this be a lesson to everyone else. Get what > you want one piece at a time. I could have easily started therapy and > then transferred to another endo before the T damaged my onions. Now the > person he referred me to won't see me until June, and won't answer > emails. Believe me that if I ever find a person in Va. who knows his ass > from a hole in the ground, he'll be on the group list in a heartbeat! > Now to continue waiting until June... and hope that he will deign to > talk to me then. I called all the doctors on the TuneUpYourT website in > Va, but as you know you can't actually talk to the doctor. I'm near the > point where I'd be willing to travel somewhere on the east coast just to > get the ball rolling. Anyone know a doctor who'd evaluate the results of > my tests and MRI and prescribe HCG as well as T? > > Regards, > Louis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2009 Report Share Posted August 12, 2009 Jo I just wanted to let you know that we will be saying prayers for you all.? It is ok to fall apart some days. We just have to do it.? Mom's are not rock solid 100% of the time, only 99,9 Having a bad day G'day all, Well, I've just returned from taking Bayly to the hospital to see his Paed Rheumy. And for the first time in a long time I had terrible trouble not falling apart in front of everyone. Since it's the new Clinics at our local teaching hospital there was the Paed Rheumy, plus two student doctors, a student pharmacist, Bayly, and me. Thank goodness the 2 nurses had left the room! Seems the swelling in Bayly's left wrist is an arthritis flare up after all, so it's back to Sydney for hospital again, to put my little boy under anaesthetic for the 8th time in his life- the third this year!! Yep, another round of aspirations and injections (they're going to watch the hip, and decide whether to do the knee then too). I know I looked like I was barely holding it together, I felt my face was red hot, my eyes filled with tears, and no one seemed game to say anything in case I lost it then and there. Then we had to see the physiotherapist afterwards and she knew exactly where I was at, and gave me a reassuring rub on the arm (so had Dr C), so I nearly lost it then. I was so upset because I am simply sick to death of this bloody disease! And I was sooo frustrated because Bayly went all shy and wouldn't speak when they were asking him questions, so wouldn't answer their questions about what joint hurt and how much, therefore it took even longer to assess him. I was trying and trying to encourage him to talk. Then I got a bit cross and said I didn't want to hear the baby talk that he then came out with. And then when Dr C said he really needed to see us in Sydney, well, that was it. Aside from the obvious worry, I still don't have a car that will make the trip and I really don't fancy doing the train and friend's car thing again (I hate putting others out!) so I had one of those rotten anxiety attacks and only barely held it together. Fell apart once we got back to the car, cried all the way to Mcs to buy Bayly a treat for being so brave, and to apologise for letting him see me cry like that (in all these years I've tried never to do so). Cried when his Teacher and Aide asked me at school how I was going, and telling me how strong I was (ha!) Then came home and cried again. Crying now just for the hell of it. Grant's asleep and I feel so alone. So over it. So damned sad. Thanks for giving me a place to let it out. Lord knows there's not a lot of support in other places. Jo Bayly, 7, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Oh, Jo....I sooo know where you are at right now...believe me. And just about the time someone tells me how strong I am is when I want to just crumble and fall apart. It's ok.....I think it's pretty safe to say we all have been there. Probably multiple times. (((((Big hugs))))) Kathy mom to 4-1/2 poly JRA, ulcerative colitis and uevitis and Luke 7-1/2 Having a bad day G'day all, Well, I've just returned from taking Bayly to the hospital to see his Paed Rheumy. And for the first time in a long time I had terrible trouble not falling apart in front of everyone. Since it's the new Clinics at our local teaching hospital there was the Paed Rheumy, plus two student doctors, a student pharmacist, Bayly, and me. Thank goodness the 2 nurses had left the room! Seems the swelling in Bayly's left wrist is an arthritis flare up after all, so it's back to Sydney for hospital again, to put my little boy under anaesthetic for the 8th time in his life- the third this year!! Yep, another round of aspirations and injections (they're going to watch the hip, and decide whether to do the knee then too). I know I looked like I was barely holding it together, I felt my face was red hot, my eyes filled with tears, and no one seemed game to say anything in case I lost it then and there. Then we had to see the physiotherapist afterwards and she knew exactly where I was at, and gave me a reassuring rub on the arm (so had Dr C), so I nearly lost it then. I was so upset because I am simply sick to death of this bloody disease! And I was sooo frustrated because Bayly went all shy and wouldn't speak when they were asking him questions, so wouldn't answer their questions about what joint hurt and how much, therefore it took even longer to assess him. I was trying and trying to encourage him to talk. Then I got a bit cross and said I didn't want to hear the baby talk that he then came out with. And then when Dr C said he really needed to see us in Sydney, well, that was it. Aside from the obvious worry, I still don't have a car that will make the trip and I really don't fancy doing the train and friend's car thing again (I hate putting others out!) so I had one of those rotten anxiety attacks and only barely held it together. Fell apart once we got back to the car, cried all the way to Mcs to buy Bayly a treat for being so brave, and to apologise for letting him see me cry like that (in all these years I've tried never to do so). Cried when his Teacher and Aide asked me at school how I was going, and telling me how strong I was (ha!) Then came home and cried again. Crying now just for the hell of it. Grant's asleep and I feel so alone. So over it. So damned sad. Thanks for giving me a place to let it out. Lord knows there's not a lot of support in other places. Jo Bayly, 7, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 Hey, Jo. Sending lots of hugs across cyberspace. I am so sorry Bayley continues to have issues, but with the treatments, he will feel better. Just as the others have said, I know how you feel, even though my kid is grown. The helplessness you feel just stinks! No other way to say it. Please know support is here, best we can give it and know we're thinking positive thoughts and sending prayers, Michele ( 22, spondy) ________________________________ From: [mailto: ] On Behalf Of Jo & Grant Sent: Wednesday, August 12, 2009 10:47 PM Subject: Having a bad day G'day all, Well, I've just returned from taking Bayly to the hospital to see his Paed Rheumy. And for the first time in a long time I had terrible trouble not falling apart in front of everyone. Since it's the new Clinics at our local teaching hospital there was the Paed Rheumy, plus two student doctors, a student pharmacist, Bayly, and me. Thank goodness the 2 nurses had left the room! Seems the swelling in Bayly's left wrist is an arthritis flare up after all, so it's back to Sydney for hospital again, to put my little boy under anaesthetic for the 8th time in his life- the third this year!! Yep, another round of aspirations and injections (they're going to watch the hip, and decide whether to do the knee then too). I know I looked like I was barely holding it together, I felt my face was red hot, my eyes filled with tears, and no one seemed game to say anything in case I lost it then and there. Then we had to see the physiotherapist afterwards and she knew exactly where I was at, and gave me a reassuring rub on the arm (so had Dr C), so I nearly lost it then. I was so upset because I am simply sick to death of this bloody disease! And I was sooo frustrated because Bayly went all shy and wouldn't speak when they were asking him questions, so wouldn't answer their questions about what joint hurt and how much, therefore it took even longer to assess him. I was trying and trying to encourage him to talk. Then I got a bit cross and said I didn't want to hear the baby talk that he then came out with. And then when Dr C said he really needed to see us in Sydney, well, that was it. Aside from the obvious worry, I still don't have a car that will make the trip and I really don't fancy doing the train and friend's car thing again (I hate putting others out!) so I had one of those rotten anxiety attacks and only barely held it together. Fell apart once we got back to the car, cried all the way to Mcs to buy Bayly a treat for being so brave, and to apologise for letting him see me cry like that (in all these years I've tried never to do so). Cried when his Teacher and Aide asked me at school how I was going, and telling me how strong I was (ha!) Then came home and cried again. Crying now just for the hell of it. Grant's asleep and I feel so alone. So over it. So damned sad. Thanks for giving me a place to let it out. Lord knows there's not a lot of support in other places. Jo Bayly, 7, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2009 Report Share Posted August 13, 2009 I am so sorry Jo that you are both having such a hard time. ((((HUG)))) This is what happened to me everytime anyone at church or a social would ask how we were doing when my husband took trucking over the road, and I was PG with #6. I think many were very exasperated over me, like they just didn't get it, or got uncomfortable. It is hard to hold it together when it seems like your world is falling apart. But, over time, it will become your new normal, so when he is doing well, it will seem so easy. I used to pick up DH in the next town over, so that he could leave his truck at the truck stop, and then after 36 hours, we would have take him back. This was weekly once his 10 wks of training was done. It took me a long time to not have anxiety attacks every time I went through that time to go see my family in the big city. There will be situations like that for you too, even after he is feeling better. You just have to breathe. When he hurts, you hurt, that is so true. My DD doesn't get those horrible treatments that the ladies speak of here, but these meds are to get your child better. Remember that. Hopefully, it won't take him long to go into remission. But, until then, just take deep breaths. And, if that means you need DH to give you a shoulder rub every day when he gets home, then tell him this. It helps a lot of stress, believe me!! HTH, Kymberli > > > G'day all, > > Well, I've just returned from taking Bayly to the hospital to see his > Paed Rheumy. And for the first time in a long time I had terrible > trouble not falling apart in front of everyone. Since it's the new > Clinics at our local teaching hospital there was the Paed Rheumy, plus > two student doctors, a student pharmacist, Bayly, and me. Thank > goodness the 2 nurses had left the room! > > Seems the swelling in Bayly's left wrist is an arthritis flare up after > all, so it's back to Sydney for hospital again, to put my little boy > under anaesthetic for the 8th time in his life- the third this year!! > Yep, another round of aspirations and injections (they're going to watch > the hip, and decide whether to do the knee then too). > > I know I looked like I was barely holding it together, I felt my face > was red hot, my eyes filled with tears, and no one seemed game to say > anything in case I lost it then and there. Then we had to see the > physiotherapist afterwards and she knew exactly where I was at, and gave > me a reassuring rub on the arm (so had Dr C), so I nearly lost it then. > > I was so upset because I am simply sick to death of this bloody disease! > And I was sooo frustrated because Bayly went all shy and wouldn't speak > when they were asking him questions, so wouldn't answer their questions > about what joint hurt and how much, therefore it took even longer to > assess him. I was trying and trying to encourage him to talk. Then I > got a bit cross and said I didn't want to hear the baby talk that he > then came out with. And then when Dr C said he really needed to see us > in Sydney, well, that was it. Aside from the obvious worry, I still > don't have a car that will make the trip and I really don't fancy doing > the train and friend's car thing again (I hate putting others out!) so I > had one of those rotten anxiety attacks and only barely held it > together. > > Fell apart once we got back to the car, cried all the way to Mcs > to buy Bayly a treat for being so brave, and to apologise for letting > him see me cry like that (in all these years I've tried never to do so). > > Cried when his Teacher and Aide asked me at school how I was going, and > telling me how strong I was (ha!) > > Then came home and cried again. Crying now just for the hell of it. > > Grant's asleep and I feel so alone. So over it. So damned sad. > > Thanks for giving me a place to let it out. Lord knows there's not a > lot of support in other places. > > Jo > > Bayly, 7, extended oligo > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 What can I say Jo, except you know everyone is here for you guys. For you and the lil' guy...Hang tight and extra tough. Hugs and prayers! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2009 Report Share Posted August 14, 2009 Jo~ I am so sorry you are struggling right now...it IS very hard parenting a chronically ill (or special needs) child and sometimes we just must show our human side. Prior to my son's JIA diagnosis, we had dealt with so many other 'issues'...and my biggest mistake thru all of his early years was not taking care of me. So please, take care of you...and if that means having a good old cry...do it. You are human, you are a mom...and moms worry...a lot! Often we feel more pain than our kiddos do...it's just us. Hang in there and know we have all been there and done that...I just about had a major breakdown this week over 's warts. I was fine thru the JIA diagnosis, I've been fine as we deal with his serious vision loss and that testing next week...but earlier this week I had a mini breakdown over warts of all things...LOL! You are in our thoughts and prayers. and , 6, poly (04/09) plus a binch of other stuff > > > G'day all, > > Well, I've just returned from taking Bayly to the hospital to see his > Paed Rheumy. And for the first time in a long time I had terrible > trouble not falling apart in front of everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Hello all, and THANKYOU SO MUCH for all the responses. I feel overwhelmed with support! In a good way. [] Just been cruising through the last few days, almost on autopilot. Bayly went to bed crying with pain Thursday night, woke me (and unfortunately his little sister Violet too) up at 5am Friday morning absolutely howling with pain (I'm surprised you didn't hear him at your place!). He's had a better day today - I made the most of the beautiful winter sunshine and we visited two lots of friends- but he is simply breaking into tears very easily, which I can only put down to pain. His hand is even more swollen after all the bending and squeezing and assessing. I have to take him back to hospital again in the next few days to get resting/hard splints made- which I forgot to arrange in my anxiety (so I guess I can be forgiven). I'm still trying to track down a car (been searching for 3 months now) which is frustrating- all the specific things we need don't come in one particular model...or in our budget! LOL I have to admit I was definitely floored this time, but you are all spot on- even if you get down, you just have to get up, get over it and get on with it, right?! It's what mums do. But I really really appreciate the support and love I have had sent our way. It means a heap. Sending positive thoughts to all those who need it too! [:x] Jo Bayly, 7, extended oligo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Jo, Sorry that Bayly is still having such a rough time.? It just is not right. I did hear a noise around 5 a.m. and got woke up just might have been Bayly.? Oh yea, your 5 a.m. and my 5 a.m. are way different. Well maybe it took that long to get the sound around the world.? Sound does take longer then light to travel.? I pray that today is much better and then tomorrow even better beyond that. We have to take it just one day at a time which is really good.? Veri & Jaye 15 poly Re: Having a bad day Hello all, and THANKYOU SO MUCH for all the responses. I feel overwhelmed with support! In a good way. [] Just been cruising through the last few days, almost on autopilot. Bayly went to bed crying with pain Thursday night, woke me (and unfortunately his little sister Violet too) up at 5am Friday morning absolutely howling with pain (I'm surprised you didn't hear him at your place!). He's had a better day today - I made the most of the beautiful winter sunshine and we visited two lots of friends- but he is simply breaking into tears very easily, which I can only put down to pain. His hand is even more swollen after all the bending and squeezing and assessing. I have to take him back to hospital again in the next few days to get resting/hard splints made- which I forgot to arrange in my anxiety (so I guess I can be forgiven). I'm still trying to track down a car (been searching for 3 months now) which is frustrating- all the specific things we need don't come in one particular model...or in our budget! LOL I have to admit I was definitely floored this time, but you are all spot on- even if you get down, you just have to get up, get over it and get on with it, right?! It's what mums do. But I really really appreciate the support and love I have had sent our way. It means a heap. Sending positive thoughts to all those who need it too! [:x] Jo Bayly, 7, extended oligo Quote Link to comment Share on other sites More sharing options...
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