Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 > > lmao...on the lifesaver joke...i had to send it to a friend who always calls her husband that..haha > > Hi ...welcome to our group....I'm sure you'll enjoy meeting all the great people here. Looking forward to getting to know you! how long has it been since you have been diagnosed? Do you have suppoirt from family and friends? What meds do you take? Sheena:)ttfn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2003 Report Share Posted February 22, 2003 , answers are in bold.... I actually meant brain surgery in general, being the most frequently sued specialists. And I think it's most invasive because the spirit and intellect reside in the brain along with it controlling everything the rest of the body does. Yep, it's a big deal. You certainly need to do your homework (which takes months) and have a peace about your decision. I firmly believe one's intuition is key in these huge life issues. > Oh , I'm so sorry but that sounds just like the standard medical response to concerns about vaccine injuries. The medical industry lies about vaccines, why not brain surgery? Not totally convinced it's lying but rather ignorance much of the time regarding vaccines anyway. I don't believe there is any ongoing conspiracy with brain surgery. They are VERY particular of who is even offered this option (I'm speaking of the curative options not the palliative). That's great. Is she still on the diet? She is on the maintenance life long version (like myself....) >How can pediatricians play mickey the dunce when so many of their little patients come back sick after being vaccinated? How many times does it take before the dawn comes to Marblehead? Think of it like this. These are people who have been trained and fully believe (with their hearts and souls) that vaccinating to prevent disease is the RIGHT thing. It's their livelihood. So, I guess I can sort of understand how they might not want to see the obvious. I can't imagine what that would feel like. They said it was a cure, ? The surgery was her chance for a cure, and yes they concurred. When someone is " cured " It means they found a permanent solution; that they no longer have to worry about the disease. It is well documented that COMPLETE (key word) removal of surgically remediable epileptogenic lesions can offer a cure in patients with refractory epilepsy. It happens all of the time. I'm aware of no other option that offers this definitiveness. (except for the B vitamin deficient people or maybe divine intervention....) > I'm so glad she's doing well. That was very difficult to read, though. Sorry; I was up late and failed to proofread. It did sort of all run together, didn't it? Point was, it was too risky to remove her complete epileptogenic focus but they were cautiously optimistic that she could obtain sz (seizure) freedom through the traditional means since they excised ~90% of the focus. If she became refractory again then another surgery to remove the remaining ~10% of the focus was an option. In the meantime, her brain will continue to rewire her leg area farther away from the sz focus (to a normal area) so that it can maintain normal function. This would allow them to safely remove the remaining diseased area should it become necessary. Although it's a stretch, I'm still saying that ~10% of spiking they were seeing post-op was just irritation from the grid that will go away in time. :-) (Gotta have faith!) > Thank you for sharing all of this with me/us. You're very welcome. > I'd love to hear your theories. Is it possible that Jordan was vaccine injured? Very possible. Although I believe it was virally mediated not chemically. Her Mercury levels have always been normal (even with DMSA challenge). Jordan was vaccinated while still recovering from a serious RSV infection. She also suffered from chronic ear infections and chronic antibiotic use. I believe her immature immune system was simply overwhelmed which allowed the insult to occur. .....her physicians would never (publicly) buy in to this theory, but they are supportive of her medical exemptions from any further vaccinations. ;-) No sense crying over spilled milk though. Rather our mission is to find healing (and yes, we're going for the CURE!!) Thank you for your interest in Jordan and best of luck to you in your search for seizure freedom! jennifer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Dear Maureen, When I tried to get on to the pages you suggested using the address you gave the message came up that the page could not be found at that address, can you throw any light on this please? Janet Lecturer in Public Health Nursing Joint Pathway Leader PHN Elles Building, Room L236 University of Paisley Paisley PA1 2BE Tel 0141 849 4108 >>> < > 09/23/03 10:32am >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 His name is larry hagman, they wrote a story in hcv magazine.you kow from show dallas,jr ewing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 kaitain4 Thanks for the updated information. Do you have any links to any of those independent tests? Also, there seems to be much discussion in regard to applying at areas with hair / without hair, with body fat / without bodyfat.... Any basis to those claims or are they topical testosterone versions of " urban legends " ? I believe that I had read somewhere (?) that topical testosterone application in hairy areas resulted in a higher conversion of T to DHT (through the hair follicles???), but I think that was " Bill 's Forever Young " and I noted that he seemed to downplay advantages of topical T applications. Wasn't sure of quite a few of his " recommendations " ..... While he was a big fan of TRT, it just seemed that he wasn't on the same page with a lot of other things that I have read. Larry S. >Message: 8 > Date: Thu, 12 Aug 2004 02:28:12 -0000 > From: kaitain4 >Subject: Re: AndroGel Placement > >Larry, > >Sorry for the confusion. First, you must understand that drug >companies have many things to consider when recommending a site for a >topically applied medication. First and foremost in their mind is >money, and they have to pay HUGE sums to get their medication tested >on humans. The more sites they test, the more money they have to >spend and the LONGER it takes them to get the drug to market, which >delay also costs them huge amounts of money. In the case of Androgel, >the sites the company recommends to apply it are only the sites they >paid to have it tested on. Legally they can't recommed that you put >it anywhere else because it wasn't officially " approved " for those >sites. That doesn't mean applying it to another part of the body is >harmful, it just means they didn't pay to have the drug tested there. > >Independant tests have shown other areas of the body to absorb as >well as or better than the sites recommended by the drug company. >Personal experiences from patients also confirm that other sites just >as effective. > > >Regards, > >K4 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 Dave, Thanks for the updated information. I am still in the very early part of the learning curve. Am on the minimum level (5 grms of AndroGel). It's been about 4 weeks now. Can tell it has helped some... but clearly not " there " yet. Also have the problems with emotionalism, moodiness, some depression, etc. My therapist (who has pushed for an endocrinologist all along) has been convinced for some months now that there also is an underlying problem with Thyroid... not only due to the emotional problems, but also mild fatigue, lack of motivation, cold feet and cold hands, sore throat with mild swelling just below Adam's Apple, etc. Fortunately I have an Endo appointment tomorrow, so hopefully I will be pleasantly surprised and find that this guy is very much " up-to-date " on matters of HRT / TRT and that I will start getting things moving to get problems resolved... and get some comprehensive testing to see where I'm at now. My total T prior to AGel was 189. Have no idea what it is now as my PCP (soon to be my former PCP) decided to not go forward with my follow-up bloodwork (due this week) since I was " going to be going to an endocrinologist and the endocrinologist could just take care of all that stuff at his end " ..... BTW, as to dealing with too much E2, here's one piece of advice I received (not from this forum) concerning that situation and using a natural response type therapy: If using androgel... Go to walmart and buy a bottle of " spring valley soy isoflavones " . start with just one a day. half in the morning and half in evening. every three days go up a half pill until you feel cold feet or your nipples look like a 30-06 bullet. usually people can tell when it is optimal by how they feel. the scrotum should not hug your body. with too much E or too little E, it will. so that is the easy, safe and cheap way to monitor the E level. trust me it works for most. Anyone have any experience with using soy isoflavones for excess E? BTW, ConsumerLabs rated Spring Valley as a VG product and they contain 40 mg of soy isoflavone per tablet. Here's something else that I found interesting. The author of this " tidbit " made reference to " cold feet " occurring with too little E (does that sound right???). I now wonder if a Thyroid problem may have been causing not only hypogonadism (with low T) but also generating a problem with too low E which would have then resulted in my current cold feet and cold hands situation??? The hypothyroidism could be accounting for the depression and emotional problems that I have been partly blaming on too high of E.... But then I've also been told that looking into Adrenal Fatigue possibilities might be beneficial (???). Larry S. >Message: 12 > Date: Wed, 11 Aug 2004 21:41:50 -0700 > From: " Dave " <daultman@...> >Subject: RE: Re: AndroGel Placement > >You refer to my post several times, so I'm going to snip yours down and just >reply to the stuff I can within the body of your post: > > > >>> Re: AndroGel Placement >>> >>> RE: AndroGel application >>> >>> I am quite confused now. >> >> > >Me too...that's why we're here. > ><snip> > > > >>> >>> Anyway, the literature that I had concerning the AndoGel >>> (supplied by above mentioned " regular doctor " ) described >>> applying it to the shoulders, upper arms, and upper abdomen. >> >> > >That's what the literature says. What's been posted here (though no link >yet) is that an independent study showed certain other areas to be more >effective. The manufacturer can only put on the box what was approved in >clinical trials: abdomen, arms, shoulders. > > > >>> Made no mention of upper legs or back (not that I could >>> readily apply it there anyway) or other areas. >> >> > > " Or eon " a recently deceased major contributor to the group had anecdotal >evidence, based on his own personal testing on himself of what gave him the >highest T levels. He shaved his inner thigh and rubbed androgel into the >shaved area with the bottom of a baby food jar...this resulted in apparent >large increases in his T. > > > >>> Absolutely NO mention made as to there being a concern about >>> " hairy areas " or " thick skin areas " (one post shown >> >> > >More anecdotal I guess...but it makes sense..hair is dead protein, if you >rub a gel into the dead protein, it doesn't get to the sking to be absorbed. >If you're sparsely hairy probably not an issue. If you think about the hair >distribution pattern on most men and where they don't have hair, and then >compare to the manufacturers suggested application areas, they're the same. >Only the hairiest of us tend to have hair on the upper arms, shoulders and >abdomen. Most men don't, right? Coincidence, or design by Androgel? > > > >>> indicated that the back skin was known to be " too thick " and >>> another mentioned that the back was a recommended area)... or >> >> > >You're referring to my post where I QUESTIONED someone who said the back was >the best absorbed area. > ><snip> > > > >>> Has this information been just things that get passed around >>> from user to user or are they based upon some specified >>> study? >> >> > >A little bit of both it seems. You're already learning for yourself that >doctors just don't understand this stuff, the ones here who have been doing >this for a long time have a better understanding and while there's some >misinformation, there's much more good information. > ><snip> > > > >>> Also, for the one posting where the individual indicated that >>> he had " been generally lousy feeling, depressed, and >>> downright WEEPY " (and yet had posted some fairly decent >>> figures concerning total T and free T).... doesn't that >>> sound pretty classic for being a case of excessive estrogen >>> levels? I would imagine that low thyroid levels would also >>> come into play there quite a bit also, but have to imagine a >>> strong likelihood of high estrogen levels. >> >> > >That was me who posted the bit about depression and weepiness. Other posts >describe recent saliva-based home hormone testing that indiated E2 levels >50% higher than maximum for a man. I'm confirming with blood tests, but >haven't gotten results yet to take to the doc and insist on treating E2, >because, like you, I suspect E2 is the cause of the weepiness. Thyroid or >E2 for the depression - I'm leaning towards thyroid right now, but don't >have the lab results back on that yet either. > >Like your PCP, mine seems to know only the basics about hormones...I have to >test on my own, get results, then convince him from there to go further. As >long as I can nudge him in the right direction it's not the best >arrangement, but tolerable. Better than doctor hopping looking for one who >knows what he's doing. > >Good luck with your TRT...as you can see here, it's quite a juggling act to >get everything right. Hopefully you're not like me and don't have other >defective or missing glands to complicate things even more. > > > > > >______________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2004 Report Share Posted August 12, 2004 On Thu, 12 Aug 2004 15:18:07 -0400, you wrote: >I now wonder if a Thyroid problem may have been >causing not only hypogonadism (with low T) but also generating a problem >with too low E which would have then resulted in my current cold feet >and cold hands situation??? The hypothyroidism could be accounting for >the depression and emotional problems that I have been partly blaming on >too high of E.... But then I've also been told that looking into >Adrenal Fatigue possibilities might be beneficial (???). The pituitary controls both the gonads and thyroid regulation. So you may have a pituitary issue affecting more than one region. Just a guess. But ask your endo. - - - - Just another albino black sheep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2005 Report Share Posted March 22, 2005 Foxx, Give me the details and I can probably make it happen. Tim Fishel Message: 5 Date: Mon, 21 Mar 2005 12:07:00 -0700 From: " Foxx " <foxx@...> Subject: RE: Pete's Training in the Mid-West? Hello Tim, Perhaps Nebraska, could you make that? Foxx Pete's Training in the Mid-West? Foxx and/or Pete, Any new plans for having the training classes in the Mid-West in the near future? Tim Fishel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2005 Report Share Posted March 23, 2005 Hi Tim, I'm working on this, am waiting to hear back from someone. Seems like Ido that often! Foxx Pete's Training in the Mid-West? Foxx and/or Pete, Any new plans for having the training classes in the Mid-West in the near future? Tim Fishel Quote Link to comment Share on other sites More sharing options...
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