RE: Request to a moderator

[Guest guest]

YES! to both questions!

Maybe I'm not an alien after all........

Steph

PS I'm not a moderator.

----- Original Message -----

From: " knoto55 "

Sent: Friday, April 04, 2003 7:28 AM

> Hi -

>

> I would like to poll the group on two issues.

>

> 1. Are you Gay?

>

> 2. Are you a diagnostic dilemma? Doc's cant' figure out where some

> of your medical problems are coming from.

[Guest guest]

Steph,

My understanding is that any member can set up a poll, not just a moderator.

OR eon

[Guest guest]

I didn't know that. Anyway it takes me forever to set up polls on K-XXY and

I am a moderator there! )

Steph

----- Original Message -----

From: " OR eon "

Sent: Friday, April 04, 2003 1:51 PM

> Steph,

>

> My understanding is that any member can set up a poll, not just a

moderator.

>

> OR eon

[Guest guest]

Carl,

You have my sincere condolences....I had an Airedale die in my arms.

It's so hard losing a pet...their love is so unconditional.

Gonna get another kitten/cat now?

Regards

Larry

[Guest guest]

Obviously I was responding to wrong email....me bad...

OR eon

RE: Request to a moderator

Carl,

You have my sincere condolences....I had an Airedale die in my arms.

It's so hard losing a pet...their love is so unconditional.

Gonna get another kitten/cat now?

Regards

Larry

[Guest guest]

1) Nope - I enjoy the ladies (obviously more than they enjoy me -

what they don't like 1/2 men? - J/K)

2) Yeah - Been diagnosed with Mono (EBV), Chronic Fatigue Syndrome,

Fibromyalgia, and of course depression.

> Hi -

>

> I would like to poll the group on two issues.

>

> 1. Are you Gay?

> 2. Are you a diagnostic dilemma? Doc's cant' figure out where

some of your medical problems are coming from. >

>

> Thanks,

> Ken

[Guest guest]

Request to a moderator

> Hi -

>

> I would like to poll the group on two issues.

>

> 1. Are you Gay?

Not so far

> 2. Are you a diagnostic dilemma? Doc's cant' figure out where some

> of your medical problems are coming from.

No, it's all very clear - some XXY, some other reasons, much like the rest

of the human race . . . :-)

vaughn

[Guest guest]

Vaughn,

You are lucky that the Doctors found what is is wrong with you - very

lucky.

My doctors keep going around in circles trying to find something -

first they said it was AS, then they ruled that out. Then

Fibromyalgia, but I don't have the trigger points. Now the just say

some sort of metabolic bone disease - possible Osteomalicia. They

know I have the beginnings of Osteoarthritis and Osteopenia - but

that should not be causing all the pain I have constantly.

I think some of the Doctors think its all in my head, but when they

take the blood tests, its shows a high level of inflammation in my

body. Where its from? They dont' know.

again, you are lucky them came up with a diagnosis. That way they

know how to treat it.

Ken

>

> > 2. Are you a diagnostic dilemma? Doc's cant' figure out where

some

> > of your medical problems are coming from.

>

> No, it's all very clear - some XXY, some other reasons, much like

the rest

> of the human race . . . :-)

>

>

>

>

> vaughn

[Guest guest]

On 4/3/03 11:28 PM, " knoto55 " <no_reply > wrote:

> Hi - I would like to poll the group on two issues.

> 1. Are you Gay?

Yes.

>

> 2. Are you a diagnostic dilemma? Doc's cant' figure out where some of your

> medical problems are coming from.

>

Yes.

>

> Thanks,

> Ken

[Guest guest]

I have had doctors tell me it's all in my head! I was just 14 years old when

I complained of pain in my upper legs. 1 year ago (27 years later) I was

diagnosed with advanced Arthritis and told it probably started at quite a

young age.

As a teenager I suffered from Blackouts and throughout my adult life I

frequently get dizzy spells. No doctor, despite extensive tests has ever

come up with a diagnosis. I've had chronic diahreah <sp> for the best part

of 20 years. 5 hospitals and about a dozen specialists on and still no

diagnosis. Through my late teens to my late twenties I got frequent and

severe abdominal pain. For 10 years I was treated for kidney stones, but

there were never any stones. Ironically the pain has never returned since I

started on TRT 16 years ago. Could they have been period pain? Who knows!

For 8 years I had all the symptoms of Glaucoma, but never any trace of the

Glaucoma itself. It did eventually show up.

Now I have a muscle wasting condition and guess what, they don't know what

is causing it. One doc says it could be Klinefelter related, while another

reckons it's the TRT, and yet another reckons it's related to neither. The

one who reckons it's Klinefelter related reckons it merits a research

programme given that there are other XXY's with similar symptoms.

I discovered 5 years ago that my spine was curved at the base and probably

the reason why I'd suffered back pain for most of my life.

On several occasions I've heard those immortal words, " We've found something

else " . Exactly what was said before they came out with, " You have

Klinefelter Syndrome " . I was attending a clinic because I was getting severe

headaches.

In an earlier post someone mentioned that they used to punch their thighs to

ease the pain. I used to do that too, but once upon a time I used to bang my

head on the wall to ease the pain in my head. Fortunately they came up with

Migraine for that and ever since I've been taking a drug called Pizotifen

which works well most of the time.

I have so many medical conditions that I am not in the least bothered now

when I hear, " We've found something else " because it's happened so often.

Steph

----- Original Message -----

From: " knoto55 "

Sent: Saturday, April 05, 2003 6:07 PM

> Vaughn,

>

> You are lucky that the Doctors found what is is wrong with you - very

> lucky.

>

> My doctors keep going around in circles trying to find something -

> first they said it was AS, then they ruled that out. Then

> Fibromyalgia, but I don't have the trigger points. Now the just say

> some sort of metabolic bone disease - possible Osteomalicia. They

> know I have the beginnings of Osteoarthritis and Osteopenia - but

> that should not be causing all the pain I have constantly..............

[Guest guest]

The majority of that I'm either list owner or moderator....have

poll functions...dunno why our group does not have poll function.

My experience...individuals enjoy participating in polls because they are

anonymous.

OR eon

65 yo HIV+ GayMan