Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 TRL, There's a peyroniesdiseasesupportgroup/ And a The Bent Penis Home Page Discussion, support, chat regarding Peyronie's http://www.angelfire.com/nt/rubent2/ Good luck, OR eon peyronie's disease Hello Everyone, I would like to ask what any of you people know about peyronie's disease. I have been off of propoisona (propecia) for approximately 4-5 months and have noticed that my dick has curved. It used to have a slight amount of curvature in it before (barely noticeable) which is somewhat common, but I am sure that it has gotten more worse now. Is it treatable? What casues it? Can it be corrected? I have heard that propecia is capable of doing this, so that's why I am so afraid. btw I really find it unfucking believable that propecia is FDA approved (even while urologists must be familiar with it as a cause of peyronie's). I mean hey, while we're at it, let's approve Crack Cocaine. Honestly, I would have rather have taken that!!!!!! sincerely hating the FDA/CMA/AMA, Tom --------------------------------- Post your free ad now! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 On Fri, 14 May 2004 08:51:11 -0700 (PDT), you wrote: > >I feel if it has not been done yet, is that you guys that are sick form using Propecia should start a law suit get together and start a big Ass law suit. Start a group up and potion the FDA to take the shit off the market. Do you remember the Diet drug that was out a few years back that was killing people. I think it was called Reducts or something like this. People got together and sued. This is the only way to get it off the market. >Phil Everyone who has had propecia problems should make a point of filing an adverse reactions report with the FDA. This stuff should not be allowed with these sort of side effects. I'll look into law suit issues later and post results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Hey Guys, Im curious would a lawsuit be the best way to finding a cure, that's the main goal for people like us suffering from propecia. Yes it should be banned, and word should get out on the negative side effects that merck will not respond to. There are several people who have emailed merck asking for help, and they're response was they can't do anything. So they are aware of the issue. I've cried many times and it's made me feel suicidal at times going thru these problems and being unable to find a good doctor willing to help. I did meet a MD who was a naturopath recently who seemed really willing to help, so I hope this works out. Our main goal is to get our lives back. Do you guys think a lawsuit is the best way to get our lives back? Thanks!!! > > > > >I feel if it has not been done yet, is that you guys that are sick form using Propecia should start a law suit get together and start a big Ass law suit. Start a group up and potion the FDA to take the shit off the market. Do you remember the Diet drug that was out a few years back that was killing people. I think it was called Reducts or something like this. People got together and sued. This is the only way to get it off the market. > >Phil > > > Everyone who has had propecia problems should make a point of filing > an adverse reactions report with the FDA. This stuff should not be > allowed with these sort of side effects. > > I'll look into law suit issues later and post results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 thanks retro, I will look into the FDA adverse reactions report. I am so sick to death of these fat cats at Merck making billions off of my tragedy (fucking capitalism, it really makes me feel like vomiting!!). I will look up the FDA website this weekend. I don’t know how Americans can live in a country where less than 5% of the population controls about 96% of the money??? (no offense, I do like Americans ) I think that a civil revolution is in order for you guys… retrogrouch@... wrote: On Fri, 14 May 2004 08:51:11 -0700 (PDT), you wrote: > >I feel if it has not been done yet, is that you guys that are sick form using Propecia should start a law suit get together and start a big Ass law suit. Start a group up and potion the FDA to take the shit off the market. Do you remember the Diet drug that was out a few years back that was killing people. I think it was called Reducts or something like this. People got together and sued. This is the only way to get it off the market. >Phil Everyone who has had propecia problems should make a point of filing an adverse reactions report with the FDA. This stuff should not be allowed with these sort of side effects. I'll look into law suit issues later and post results. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 On Fri, 14 May 2004 17:45:17 -0000, you wrote: >Hey Guys, > >Im curious would a lawsuit be the best way to finding a cure, that's >the main goal for people like us suffering from propecia. No but its the best way to keep your numbers from growing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 On Fri, 14 May 2004 17:45:17 -0000, you wrote: >willing to help, so I hope this works out. > >Our main goal is to get our lives back. Do you guys think a lawsuit >is the best way to get our lives back? No but it'll get you money to afford treatment for the rest of your life - if you're uninsured and some money to ease the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Actually money wouldnt even be worth the crap us sufferers are going through. I would not take all the money in the world to be in this situation. I wouldnt even mind to have gone through this experience as long as we can all get back to normal. It has actually taught me a valuable lesson and made be a better person (Although i am pretty angry now!) But the thought of dealing with this for the rest of my life especially at this age is unfathomable. > > >willing to help, so I hope this works out. > > > >Our main goal is to get our lives back. Do you guys think a lawsuit > >is the best way to get our lives back? > > > No but it'll get you money to afford treatment for the rest of your > life - if you're uninsured and some money to ease the pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 Agreed! I'll get a report written for the FDA and CMA this weekend. > > >Hey Guys, > > > >Im curious would a lawsuit be the best way to finding a cure, that's > >the main goal for people like us suffering from propecia. > > > No but its the best way to keep your numbers from growing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 I too will file a report!! I will also send a copy of the report to the fin group urging everyone to fill it out!!! swrtw2001 <no_reply > wrote: Agreed! I'll get a report written for the FDA and CMA this weekend. > > >Hey Guys, > > > >Im curious would a lawsuit be the best way to finding a cure, that's > >the main goal for people like us suffering from propecia. > > > No but its the best way to keep your numbers from growing. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 From www.drmirkin.com Note the last paragraph, which I ***'d for emphasis. BREAKTHROUGH IN PEYRONIE'S DISEASE Report #7244; 10/6/97 Peyronie's disease occurs when a man's erection bends in one direction. A recent report proposes a safe and effective cure: injections of a blood pressure medicine (1). Men have balloon-like blood vessels in their penis that fill with blood when they have erections. Sometimes scar tissue forms in the balloons. Scars cannot expand as much as balloons do, so the erected penis bends toward the scar side. Men most likely to suffer Peyronie's disease often have high blood pressure and high blood cholesterol and uric acid levels, which weaken blood vessel walls (2). Then when a man makes love, the trauma breaks these blood vessels which heal with scarring (3). Men with Peyronie's disease are usually told to live with it unless the erection becomes painful or the bend is so great that the man cannot engage in sexual relations. Then the usual treatment is to cut out the scar and replace it with a graft. Needless to say, this procedure doesn't always work. ***An exciting new report show that injections of the blood pressure medication, verapamil, into the scar every two weeks for 24 weeks cured most men with his condition.*** This is new untested thinking. Check with your doctor. By Gabe Mirkin, M.D., for CBS Radio News peyronie's disease Hello Everyone, I would like to ask what any of you people know about peyronie's disease. I have been off of propoisona (propecia) for approximately 4-5 months and have noticed that my dick has curved. It used to have a slight amount of curvature in it before (barely noticeable) which is somewhat common, but I am sure that it has gotten more worse now. Is it treatable? What casues it? Can it be corrected? I have heard that propecia is capable of doing this, so that's why I am so afraid. btw I really find it unfucking believable that propecia is FDA approved (even while urologists must be familiar with it as a cause of peyronie's). I mean hey, while we're at it, let's approve Crack Cocaine. Honestly, I would have rather have taken that!!!!!! sincerely hating the FDA/CMA/AMA, Tom --------------------------------- Post your free ad now! Canada Personals Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2004 Report Share Posted May 14, 2004 On Fri, 14 May 2004 18:58:46 -0400 (EDT), you wrote: > >I too will file a report!! I will also send a copy of the report to the fin group urging everyone to fill it out!!! > >swrtw2001 <no_reply > wrote: >Agreed! > >I'll get a report written for the FDA and CMA this weekend. Did anyone post this yet? http://www.fda.gov/opacom/backgrounders/problem.html How to Report Problems With Products Regulated by FDA Quote Link to comment Share on other sites More sharing options...
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