Re: just a random rant on my apointment today

[Guest guest]

Dude,

What are your lab values?? You really seem to be getting depressed

here, and that is an unfortunate side-effect of this condition. Your

T levels may be way off for your age group. Get your latest labs from

your MD and post here for us.

The self-esteem thing is a big one and many of us struggle with that.

I think the most important thing for you to do is to find a physician

who DOES care about your condition and is willing to work with you.

You're a very young man and should be full of energy, life, and the

expectations of marriage and a family! I'm sure there is an MD out

there who will listen and help, but you're going to have to do a

little work to find him/her. What city do you live in? Maybe some

group members have first-hand knowledge of someone reputable in your

area.

Don't keep your feelings and fears bottled up inside. If there is any

group of people on the planet that understand how you feel - your

fears, emotions, anger and frustration - it has got to be the HYPO2

group!! We will help you in any way humanly possible. Just get it all

out on the table.

Hang in there!!

K4

> Well I paid another visit to the Endo today. Actually I paid a

> visit to my endo's Nurse because he didn't really feel he needed to

> see me.

>

> I have a major issue with this endo but I don't know of any others

> in the area to go to. My current endo was suggested by my old

> pediatric endo upon turning 21. The guy that I see upped my dosage

> of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> informed my therapist about it. He did this two months ago,

however

> he failed to inform me of this change. So I've been on the 5 mg

for

> the past months.

>

> He refuses to put me on HCG. Citing that my insurance company

won't

> pay for it and that he will only put me on it should I ever want to

> try and have children. How does he even know it will work then

> without trying it now? I really am not happy with my physical

> appearance in the lower section of my body. I had hoped to be put

> on HCG to try and enlarge the smaller parts of my anatomy to

> increase my self esteem. I figured HCG was a nice try at that, my

> therapist even thought so. He offered to write a letter to the

> insurance company and still my endo says they won't allow it. So

my

> endo wants me to look into implants if I am having such low self

> esteem. But the problem comes is that will wipe out any chance at

> all of ever having my own children with someone.

>

> I've hit a point at the age of 22 here now that I really have

> stopped caring about myself. After today's appointment I've

> realized that the medical profession is no longer out to help their

> patients but to line their pockets with gold. My therapist as nice

> of a guy he is and willing to help isn't really pushing my endo

> anymore and is instead trying to get me to divert my thoughts.

When

> you are young and supposed to be out dating it's hard to divert

your

> thoughts on that. Especially when so many will judge you based on

> your appearance.

[Guest guest]

The endo won't do lab tests. He says they are false readings. That

the way one person would react to a T count of 500 another would do

so differently. I tried to get him to do the tests for my own

benefit of knowing and he still refused saying that it proved

nothing. He gave me the song and dance about how one diabetic will

react well to one level of blood sugar while another will react

poorly to the same. He did issue a CBC test to test my blood

vessels or something with increasing the androgel to 7.5 but from

what I understand it's just a test to make sure my veins don't

weaken or anything.

I'm in the Buffalo NY region. I've asked around and everyone claims

that the endo I see is the best in the area. Which frightens me to

believe that. I wanted to leave him this summer but my therapist

wanted me to give him the benefit of the doubt. I've not been to

see my therapist in over a month though as college started up again

and I hadn't had time to make another apointment. I see a

pyschiatrist the end of this week.

I agree that I should look into another endo, it's just a matter of

finding one. Everyone that I've spoken to says good things about

the endo I have, makes me feel like I am just over exagerating.

But with his refusal to even try HCG with me (I was on it before and

it worked wonders when I was with the pediatric endo's), his non

testing of by hormone levels. I even mentioned this site to him and

that others suggest the tests and he told me that any of the

doctor's that others are seeing must not have picked up a medical

journal in years if they still test.

I find myself to have been spoiled as a child when it came to

doctor's. My uncle is a pediatrician and I went to his office, all

the doctor's knew me there and always made sure to give me the best

treatment they could. When I saw the pediatric endo she was friends

with my uncle as he did rotations at the hospital there and is a

teaching doctor with the local med school. So they too made sure to

give me the best treatment possible. Now I am older and most of the

doctors I see now know my uncle my name at most and have no contact

with him. They treat me as any other person, and where I am used to

speaking with my doctors as almost friends I find that the doctors I

see now treat me as just another person they have to see in a day.

I didn't ask for this condition, I was born with it. To the belief

that it was due to me being 5 weeks late because of my mothers

doctor at the time being stubborn and waiting until she went into

labor. But yet the endo makes me feel guilty when I suggested HCG,

saying that I was being to worried about my appearance.

I really wish that for one day all these doctors could experience

what we go through, that they could understand what it means to live

with this. Maybe then they would change their minds.

> > Well I paid another visit to the Endo today. Actually I paid a

> > visit to my endo's Nurse because he didn't really feel he needed

to

> > see me.

> >

> > I have a major issue with this endo but I don't know of any

others

> > in the area to go to. My current endo was suggested by my old

> > pediatric endo upon turning 21. The guy that I see upped my

dosage

> > of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> > informed my therapist about it. He did this two months ago,

> however

> > he failed to inform me of this change. So I've been on the 5 mg

> for

> > the past months.

> >

> > He refuses to put me on HCG. Citing that my insurance company

> won't

> > pay for it and that he will only put me on it should I ever want

to

> > try and have children. How does he even know it will work then

> > without trying it now? I really am not happy with my physical

> > appearance in the lower section of my body. I had hoped to be

put

> > on HCG to try and enlarge the smaller parts of my anatomy to

> > increase my self esteem. I figured HCG was a nice try at that,

my

> > therapist even thought so. He offered to write a letter to the

> > insurance company and still my endo says they won't allow it.

So

> my

> > endo wants me to look into implants if I am having such low self

> > esteem. But the problem comes is that will wipe out any chance

at

> > all of ever having my own children with someone.

> >

> > I've hit a point at the age of 22 here now that I really have

> > stopped caring about myself. After today's appointment I've

> > realized that the medical profession is no longer out to help

their

> > patients but to line their pockets with gold. My therapist as

nice

> > of a guy he is and willing to help isn't really pushing my endo

> > anymore and is instead trying to get me to divert my thoughts.

> When

> > you are young and supposed to be out dating it's hard to divert

> your

> > thoughts on that. Especially when so many will judge you based

on

> > your appearance.

[Guest guest]

Dude,

If your MD won't even do lab work then he is a quack! Dump him

immediately! You are wasting your time and your health on him!

Hypogonadism is a complex condition that can be caused by multiple

factors. Lab tests are the only way to determine the type and scope

of your problem and to determine whether there are other problems

associated with your low testosterone. For an MD to dismiss lab tests

altogether in a case like yours is bordering on malpractice! IMHO!

Educate yourself! Go to the LINKS section of this forum and read the

AACE clinical guidelines for the diagnosis and treatment of this

condition. Then compare it to your own experience. You cannot stay

with your current MD and have any hope of being treated correctly.

Move on, and start the search for someone with a clue.

Regards,

K4

> > > Well I paid another visit to the Endo today. Actually I paid a

> > > visit to my endo's Nurse because he didn't really feel he

needed

> to

> > > see me.

> > >

> > > I have a major issue with this endo but I don't know of any

> others

> > > in the area to go to. My current endo was suggested by my old

> > > pediatric endo upon turning 21. The guy that I see upped my

> dosage

> > > of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> > > informed my therapist about it. He did this two months ago,

> > however

> > > he failed to inform me of this change. So I've been on the 5

mg

> > for

> > > the past months.

> > >

> > > He refuses to put me on HCG. Citing that my insurance company

> > won't

> > > pay for it and that he will only put me on it should I ever

want

> to

> > > try and have children. How does he even know it will work then

> > > without trying it now? I really am not happy with my physical

> > > appearance in the lower section of my body. I had hoped to be

> put

> > > on HCG to try and enlarge the smaller parts of my anatomy to

> > > increase my self esteem. I figured HCG was a nice try at that,

> my

> > > therapist even thought so. He offered to write a letter to the

> > > insurance company and still my endo says they won't allow it.

> So

> > my

> > > endo wants me to look into implants if I am having such low

self

> > > esteem. But the problem comes is that will wipe out any chance

> at

> > > all of ever having my own children with someone.

> > >

> > > I've hit a point at the age of 22 here now that I really have

> > > stopped caring about myself. After today's appointment I've

> > > realized that the medical profession is no longer out to help

> their

> > > patients but to line their pockets with gold. My therapist as

> nice

> > > of a guy he is and willing to help isn't really pushing my endo

> > > anymore and is instead trying to get me to divert my thoughts.

> > When

> > > you are young and supposed to be out dating it's hard to divert

> > your

> > > thoughts on that. Especially when so many will judge you based

> on

> > > your appearance.

[Guest guest]

Pohoneho,

What's small? Your penis? If so, when its soft or erect? If not

that is it your testicles? I'm gone through my whole life with small

balls- and now that I'm on Androgel, they've shrunk even more. I know

they make prothesis testicles but can they put them in with your

regulars? Or do they have to do an orchidomaty (sic) and take out

your nuts?

Ken

> Well I paid another visit to the Endo today. Actually I paid a

> visit to my endo's Nurse because he didn't really feel he needed to

> see me.

>

> I have a major issue with this endo but I don't know of any others

> in the area to go to. My current endo was suggested by my old

> pediatric endo upon turning 21. The guy that I see upped my dosage

> of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> informed my therapist about it. He did this two months ago,

however

> he failed to inform me of this change. So I've been on the 5 mg

for

> the past months.

>

> He refuses to put me on HCG. Citing that my insurance company

won't

> pay for it and that he will only put me on it should I ever want to

> try and have children. How does he even know it will work then

> without trying it now? I really am not happy with my physical

> appearance in the lower section of my body. I had hoped to be put

> on HCG to try and enlarge the smaller parts of my anatomy to

> increase my self esteem. I figured HCG was a nice try at that, my

> therapist even thought so. He offered to write a letter to the

> insurance company and still my endo says they won't allow it. So

my

> endo wants me to look into implants if I am having such low self

> esteem. But the problem comes is that will wipe out any chance at

> all of ever having my own children with someone.

>

> I've hit a point at the age of 22 here now that I really have

> stopped caring about myself. After today's appointment I've

> realized that the medical profession is no longer out to help their

> patients but to line their pockets with gold. My therapist as nice

> of a guy he is and willing to help isn't really pushing my endo

> anymore and is instead trying to get me to divert my thoughts.

When

> you are young and supposed to be out dating it's hard to divert

your

> thoughts on that. Especially when so many will judge you based on

> your appearance.

[Guest guest]

My testicles are almost non existant. They just never grew. Having

never made my own testosterone except for the few short months I was

on hcg (they grew in size, not much but I did notice a change) they

have been very tiny. In general I find it a discommfort walking as

they sit so close to my body, as well as they push tight against my

groin and caiuse discomfort. I was told that they would be removed

if i had silicon ones put in. SOmeone mentioned on this site one

time that the urologist believed they would have to do a few surgies

and start with smaller size prosthesis in the case of not having

skin that stretched very far. Over time the old ones would be taken

out and larger ones put in until the desired size was reached.

As far as the size of my penis yes I feel that it is small, in both

states of flacid and erect. The few times I have been intimate with

a female it's been difficult to enjoy it just doesn't seem to do the

job. A lot of people say tht technique matters too, I've yet to

find a technique that is consistant for my partners and my

enjoyment. I've been staying away from getting into relationships

because of these problems. I've had three bad breakups already, not

ready for another because of hypogonadism just yet.

I'm going to start searching out a new doctor, as I agree that the

tests do need to be done. Maybe my endo is a good doctor, but he's

not a good perople person. And that's what I want in a doctor,

someone willing to at least work with me.

I may be willing to travel to see someone who is good as long as my

insurance will cover it. I'm checking on that. So any doctor

suggestions right now on the NE part of the country in the NY, PA,

Ohio, Mass, NJ area is welcome.

> > Well I paid another visit to the Endo today. Actually I paid a

> > visit to my endo's Nurse because he didn't really feel he needed

to

> > see me.

> >

> > I have a major issue with this endo but I don't know of any

others

> > in the area to go to. My current endo was suggested by my old

> > pediatric endo upon turning 21. The guy that I see upped my

dosage

> > of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> > informed my therapist about it. He did this two months ago,

> however

> > he failed to inform me of this change. So I've been on the 5 mg

> for

> > the past months.

> >

> > He refuses to put me on HCG. Citing that my insurance company

> won't

> > pay for it and that he will only put me on it should I ever want

to

> > try and have children. How does he even know it will work then

> > without trying it now? I really am not happy with my physical

> > appearance in the lower section of my body. I had hoped to be

put

> > on HCG to try and enlarge the smaller parts of my anatomy to

> > increase my self esteem. I figured HCG was a nice try at that,

my

> > therapist even thought so. He offered to write a letter to the

> > insurance company and still my endo says they won't allow it.

So

> my

> > endo wants me to look into implants if I am having such low self

> > esteem. But the problem comes is that will wipe out any chance

at

> > all of ever having my own children with someone.

> >

> > I've hit a point at the age of 22 here now that I really have

> > stopped caring about myself. After today's appointment I've

> > realized that the medical profession is no longer out to help

their

> > patients but to line their pockets with gold. My therapist as

nice

> > of a guy he is and willing to help isn't really pushing my endo

> > anymore and is instead trying to get me to divert my thoughts.

> When

> > you are young and supposed to be out dating it's hard to divert

> your

> > thoughts on that. Especially when so many will judge you based

on

> > your appearance.

[Guest guest]

> My testicles are almost non existant. They just never grew. Having

> never made my own testosterone except for the few short months I was

> on hcg (they grew in size, not much but I did notice a change) they

> have been very tiny.

It sounds like you have secondary hypogonadism. Did you ever have your

LH and FSH levels measured? I think you should be on HCG or maybe

HMG.

> In general I find it a discommfort walking as

> they sit so close to my body, as well as they push tight against my

> groin and caiuse discomfort.

I had an orchiopexy (or orchidopexy)to correct that. I feel much

better. Do a google search to find out more.

> I was told that they would be removed

> if i had silicon ones put in. SOmeone mentioned on this site one

> time that the urologist believed they would have to do a few surgies

> and start with smaller size prosthesis in the case of not having

> skin that stretched very far. Over time the old ones would be taken

> out and larger ones put in until the desired size was reached.

That was me. I never had that done since I went on HCG and some of the

size came back.

> As far as the size of my penis yes I feel that it is small, in both

> states of flacid and erect. The few times I have been intimate with

> a female it's been difficult to enjoy it just doesn't seem to do the

> job. A lot of people say tht technique matters too, I've yet to

> find a technique that is consistant for my partners and my

> enjoyment. I've been staying away from getting into relationships

> because of these problems. I've had three bad breakups already, not

> ready for another because of hypogonadism just yet.

I'm not certain, but maybe a higher T level would help you some.

> I'm going to start searching out a new doctor, as I agree that the

> tests do need to be done. Maybe my endo is a good doctor, but he's

> not a good perople person. And that's what I want in a doctor,

> someone willing to at least work with me.

Good idea!

> I may be willing to travel to see someone who is good as long as my

> insurance will cover it. I'm checking on that. So any doctor

> suggestions right now on the NE part of the country in the NY, PA,

> Ohio, Mass, NJ area is welcome.

Dr. Shippen, who wrote " The Testosterone Syndrome " is in or near

Reading, PA. His office number is 610-777-7896. Tell his receptionist

where you live and ask her to see if he knows a doctor near you who's

been to one of his seminars. Keep in mind they get alot of phone calls

and they may kind of give you the brush off. I think it's because of

the volume of calls they get. Just be persistent.

[Guest guest]

Thanks for all the info. I will be sure to give them a call and see

about a doctor in my area that has attended his seminars. I was on

HCG for about 8 months. However once I left the pediatric endo and

went to the endo I am at now because I turned 21 I was taken of

HCG. A lot of my anger and want to change doctor's is because my

current endo will not put me back on HCG and put me on androgel. He

says my insurance won't cover it. However I know they will, they

did before. I even went so far as to call my insurance company

today to check with them. They said all my doctor needs to do is

fill out the form with the diagnosis and they will authorize it as

there is already a prior authorization approved they would have no

reason to deny it. So what it comes down to is my doctor either

never bothered to check or has lied to me about them not approving

it.

I spent a good hour writing a three page letter to him voicing my

concerns and own personal findings. Like I said he won't run

tests. I went to the androgel website and added a quote to list all

the tests the makers of androgel suggest be done. I asked him that

if he believes those tests to be unimportant even though the makers

of the medicine he has prescribed me feel they are important enough

to mention testing for. I expect him to say they are being

overprecautious and at my age I have nothing to worry about as he

has said every time I bring it up.

WEll here's to hopeing that someday I find a doctor that cares.

>

> > My testicles are almost non existant. They just never grew.

Having

> > never made my own testosterone except for the few short months I

was

> > on hcg (they grew in size, not much but I did notice a change)

they

> > have been very tiny.

>

> It sounds like you have secondary hypogonadism. Did you ever have

your

> LH and FSH levels measured? I think you should be on HCG or maybe

> HMG.

>

> > In general I find it a discommfort walking as

> > they sit so close to my body, as well as they push tight against

my

> > groin and caiuse discomfort.

>

> I had an orchiopexy (or orchidopexy)to correct that. I feel much

> better. Do a google search to find out more.

>

> > I was told that they would be removed

> > if i had silicon ones put in. SOmeone mentioned on this site

one

> > time that the urologist believed they would have to do a few

surgies

> > and start with smaller size prosthesis in the case of not having

> > skin that stretched very far. Over time the old ones would be

taken

> > out and larger ones put in until the desired size was reached.

>

> That was me. I never had that done since I went on HCG and some of

the

> size came back.

>

> > As far as the size of my penis yes I feel that it is small, in

both

> > states of flacid and erect. The few times I have been intimate

with

> > a female it's been difficult to enjoy it just doesn't seem to do

the

> > job. A lot of people say tht technique matters too, I've yet to

> > find a technique that is consistant for my partners and my

> > enjoyment. I've been staying away from getting into

relationships

> > because of these problems. I've had three bad breakups already,

not

> > ready for another because of hypogonadism just yet.

>

> I'm not certain, but maybe a higher T level would help you some.

>

> > I'm going to start searching out a new doctor, as I agree that

the

> > tests do need to be done. Maybe my endo is a good doctor, but

he's

> > not a good perople person. And that's what I want in a doctor,

> > someone willing to at least work with me.

>

> Good idea!

>

> > I may be willing to travel to see someone who is good as long as

my

> > insurance will cover it. I'm checking on that. So any doctor

> > suggestions right now on the NE part of the country in the NY,

PA,

> > Ohio, Mass, NJ area is welcome.

>

> Dr. Shippen, who wrote " The Testosterone Syndrome " is in or near

> Reading, PA. His office number is 610-777-7896. Tell his

receptionist

> where you live and ask her to see if he knows a doctor near you

who's

> been to one of his seminars. Keep in mind they get alot of phone

calls

> and they may kind of give you the brush off. I think it's because

of

> the volume of calls they get. Just be persistent.

[Guest guest]

Hi PO -

thanks for answering.

In your case, with a tight scrotum, I guess they would have to move

up incrementally. But, scrotum skin is highly flexible and if I

remember correctly controlled by muscles that cause it to tighten or

loosen.

As a Gay person, I've seen all sizes of penis - soft and erect.

There's really a multitude of sizes out there. When soft it don't

matter unless you're embarrassed by it. Mine can shrink up really

small when soft and cold - I gave up worrying about others seeing it

that way years ago.

When erect I've seen some small and some well, I'd say too big. The

ones that are small looked to be only 3 inches when hard. And they

can be thick or thin. I remember one person - his hard penis was

like my thumb - and he was married too! But those guys are still able

to enjoy them. Some have been married and they say they may not do

so well at penetrating deeply, but they've learned to rub it against

their partner's clitoris just right to satisfy her. Have you thought

of seeing a sex therapist? They might be able to help you and give

you more confidence.

Good luck!

Ken

> > > Well I paid another visit to the Endo today. Actually I paid a

> > > visit to my endo's Nurse because he didn't really feel he

needed

> to

> > > see me.

> > >

> > > I have a major issue with this endo but I don't know of any

> others

> > > in the area to go to. My current endo was suggested by my old

> > > pediatric endo upon turning 21. The guy that I see upped my

> dosage

> > > of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> > > informed my therapist about it. He did this two months ago,

> > however

> > > he failed to inform me of this change. So I've been on the 5

mg

> > for

> > > the past months.

> > >

> > > He refuses to put me on HCG. Citing that my insurance company

> > won't

> > > pay for it and that he will only put me on it should I ever

want

> to

> > > try and have children. How does he even know it will work then

> > > without trying it now? I really am not happy with my physical

> > > appearance in the lower section of my body. I had hoped to be

> put

> > > on HCG to try and enlarge the smaller parts of my anatomy to

> > > increase my self esteem. I figured HCG was a nice try at that,

> my

> > > therapist even thought so. He offered to write a letter to the

> > > insurance company and still my endo says they won't allow it.

> So

> > my

> > > endo wants me to look into implants if I am having such low

self

> > > esteem. But the problem comes is that will wipe out any chance

> at

> > > all of ever having my own children with someone.

> > >

> > > I've hit a point at the age of 22 here now that I really have

> > > stopped caring about myself. After today's appointment I've

> > > realized that the medical profession is no longer out to help

> their

> > > patients but to line their pockets with gold. My therapist as

> nice

> > > of a guy he is and willing to help isn't really pushing my endo

> > > anymore and is instead trying to get me to divert my thoughts.

> > When

> > > you are young and supposed to be out dating it's hard to divert

> > your

> > > thoughts on that. Especially when so many will judge you based

> on

> > > your appearance.

[Guest guest]

Thanks for the input Ken. I can see that worrying about it as much as

I do isn't going to fix the problem. It's just so hard to just

accept. I'm working though to learn that it's not a bad thing.

Though I do want to do something about the testis and the scrotum as

it does get very painful to walk for any length of time. Others with

average size testis may have the same problem, I do not know. What I

do know is sometimes I just wanna go lay down and not do anything

cause it is just to painful.

> > > > Well I paid another visit to the Endo today. Actually I paid a

> > > > visit to my endo's Nurse because he didn't really feel he

> needed

> > to

> > > > see me.

> > > >

> > > > I have a major issue with this endo but I don't know of any

> > others

> > > > in the area to go to. My current endo was suggested by my old

> > > > pediatric endo upon turning 21. The guy that I see upped my

> > dosage

> > > > of androgel from 5 mg to 7.5 mg. He wrote it in my charts and

> > > > informed my therapist about it. He did this two months ago,

> > > however

> > > > he failed to inform me of this change. So I've been on the 5

> mg

> > > for

> > > > the past months.

> > > >

> > > > He refuses to put me on HCG. Citing that my insurance company

> > > won't

> > > > pay for it and that he will only put me on it should I ever

> want

> > to

> > > > try and have children. How does he even know it will work then

> > > > without trying it now? I really am not happy with my physical

> > > > appearance in the lower section of my body. I had hoped to be

> > put

> > > > on HCG to try and enlarge the smaller parts of my anatomy to

> > > > increase my self esteem. I figured HCG was a nice try at that,

> > my

> > > > therapist even thought so. He offered to write a letter to the

> > > > insurance company and still my endo says they won't allow it.

> > So

> > > my

> > > > endo wants me to look into implants if I am having such low

> self

> > > > esteem. But the problem comes is that will wipe out any chance

> > at

> > > > all of ever having my own children with someone.

> > > >

> > > > I've hit a point at the age of 22 here now that I really have

> > > > stopped caring about myself. After today's appointment I've

> > > > realized that the medical profession is no longer out to help

> > their

> > > > patients but to line their pockets with gold. My therapist as

> > nice

> > > > of a guy he is and willing to help isn't really pushing my endo

> > > > anymore and is instead trying to get me to divert my thoughts.

> > > When

> > > > you are young and supposed to be out dating it's hard to divert

> > > your

> > > > thoughts on that. Especially when so many will judge you based

> > on

> > > > your appearance.

[Guest guest]

> Though I do want to do something about the testis and the scrotum as

> it does get very painful to walk for any length of time. Others

> with average size testis may have the same problem, I do not know.

> What I do know is sometimes I just wanna go lay down and not do

> anything cause it is just to painful.

The pain went away when I got the orchiopexy. You should really

consider this if you're in that much pain. It's usually a procedure

done on young boys with undescended testicles, but it's also done on

older males.