Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 In a message dated 07/03/2006 11:18:25 GMT Standard Time, HomeBuilders@... writes: There will be more to this story, but I am happy to say that after 5 months, the methotrexate began to work. My pain has gradually decreased and after a month is is down by 70% I have been off the vicodan for a month now which I was on for 2 years. I am back to lifting heavy weights in the gym again, and I expect to continue to improve. I will write again with an update. I wish you could all be doing as well as I am. Aloha , Brilliant! I hope it keeps improving for you. I am also trying to lift heavy weights just now. I am currently managing to lift a teacup but I'm aiming for a mug and then ultimately a pint glass. lol Seriously though , that is good to hear. It gives hope to the people who are struggling with it just now. Hope that they might eventually get back to some form of normality. Keep going in the right direction. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Well, my grandma agreed that she would try the following, to start with. She'll take Mangosteen juice. She'll take CoQ10 for her heart and some energy, as long as her doctor says it's fine (she's on Lipitor). She's taking low dose Naltrexone starting tonight. She'll take almonds, Brazil nuts, and tea of Rose Hips to nourish her white blood cells, as long as the nuts do not bother her diverticulitis (she wants me to confer with her doctors on this as well - i guess nuts can be an issue for some people with diverticulitis - she has not personally had issues with them so far however) And I didn't mention it to her yet, but I don't think she'll have anything against zapping, since it's completely passive, and she's sitting in a bed all day, anyway. Hopefully these things will buy us some time, and get her at least feeling better while I look into more powerful Stage IV cancer remedies. A couple that looked really interesting and inexpensive were oleander, and Cesium chloride/hydrazine sulphate. My only issue with these now is to find out what the purported cure rate is. I checked cancertutor.com, and it's very informative, but does not list anything about cure rate claims for each of the therapies. -Ken Bagwell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Dear Ken, Great that your grandma agreed to eat the almonds and brazil nuts. Best to buy them raw and organic. If you can, sprout them, meaning soak them in water for 24 hours, much easier to digest. I have soaked the almonds many times, don't know how that goes with Brazil nuts as they need to be whole and with the skin on. To eat those nuts roasted and with salt on them, makes it so much harder for the body to digest. Hope this helps. Phyllis ChinLdy@... **************Feeling the pinch at the grocery store? Make meals for Under $10. (http://food.aol.com/frugal-feasts?ncid=emlcntusfood00000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Ken, Diverticulitus folks aren't supposed to eat nuts, but good that it hasn't bothered her. Have you thought about almond milk? Very easy to make and all over the place to buy. From: ChinLdy@... <ChinLdy@...> Subject: Re: Some good news... Dr Date: Thursday, March 26, 2009, 8:40 AM Dear Ken, Great that your grandma agreed to eat the almonds and brazil nuts. Best to buy them raw and organic. If you can, sprout them, meaning soak them in water for 24 hours, much easier to digest. I have soaked the almonds many times, don't know how that goes with Brazil nuts as they need to be whole and with the skin on. To eat those nuts roasted and with salt on them, makes it so much harder for the body to digest. Hope this helps. Phyllis ChinLdyaol (DOT) com ************ **Feeling the pinch at the grocery store? Make meals for Under $10. (http://food. aol.com/frugal- feasts?ncid= emlcntusfood0000 0002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 I know we all share your joy at the difference these drugs are making in Bayly's life! Thanks for sharing the good news and hope with everyone! And most importantly, way to go Bayly!!! and Rob Some good news... > ...no, make that GREAT news! > > It is amazing what the right drug combo can do for your child!! After > years of juggling NSAIDs, steroids (oral and injected), Methotrexate > (tablet and injected), and good old paracetamol and codeine for pain > relief. Looks like we have a potential winner with Enbrel - > still with > Mtx once a week (both injected). After being on and off the walking > frame, in and out of a wheelchair, and with all the casts, > splints, and > bandages in between, Bayly competed in his school athletics > carnival for > the first time this year. He has previously sat on the sidelines > or been > a helper with the events. > > Not only did he get up and go in this age race, but he attempted > the 800 > metres (that's 2625 feet for the non metric among us)!!! > > I wasn't there to see it unfortunately but by all accounts (and > soooooomany people wanted to tell me how proud they were of > Bayly) he trotted > off and was approaching the end of the first lap (400m) when he really > started to show signs of fatigue and effort, well didn't he have the > entire school, and all the parents and teachers watching, > cheering him > on saying " Go Bayly! Go Bayly! " and he finished the first lap to great > applause by all accounts (and some teary eyes too). He couldn't > go on > for the second lap, but gee- 400m for a kid who could once > barely walk > at all, and has been bullied for how funny he runs or how slow > he is... > is just terrific in my book! > > Just wanted to share. I am just so proud of my son for his amazing > courage and tenacity. > > Jo > Bayly, 9, eoJIA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Hi Jo, You just made my day. I know and understand the joy and pride you are feeling. He is such a great kid, and a lot of it is because he has a great mom-who has never given up fighting for him. Lots of hugs. (n, 22, systemic) On May 15, 2011, at 11:39 PM, Family wrote: > ...no, make that GREAT news! > > It is amazing what the right drug combo can do for your child!! After > years of juggling NSAIDs, steroids (oral and injected), Methotrexate > (tablet and injected), and good old paracetamol and codeine for pain > relief. Looks like we have a potential winner with Enbrel - still with > Mtx once a week (both injected). After being on and off the walking > frame, in and out of a wheelchair, and with all the casts, splints, and > bandages in between, Bayly competed in his school athletics carnival for > the first time this year. He has previously sat on the sidelines or been > a helper with the events. > > Not only did he get up and go in this age race, but he attempted the 800 > metres (that's 2625 feet for the non metric among us)!!! > > I wasn't there to see it unfortunately but by all accounts (and soooooo > many people wanted to tell me how proud they were of Bayly) he trotted > off and was approaching the end of the first lap (400m) when he really > started to show signs of fatigue and effort, well didn't he have the > entire school, and all the parents and teachers watching, cheering him > on saying " Go Bayly! Go Bayly! " and he finished the first lap to great > applause by all accounts (and some teary eyes too). He couldn't go on > for the second lap, but gee- 400m for a kid who could once barely walk > at all, and has been bullied for how funny he runs or how slow he is... > is just terrific in my book! > > Just wanted to share. I am just so proud of my son for his amazing > courage and tenacity. > > Jo > Bayly, 9, eoJIA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 Way to go Bayly!!!!!! We are so proud of you!! Beth " We cannot control the wind, but we can adjust our sails " From: Family <veebeejaygee@...> Sent: Monday, May 16, 2011 1:39 AM Subject: Some good news...  ....no, make that GREAT news! It is amazing what the right drug combo can do for your child!! After years of juggling NSAIDs, steroids (oral and injected), Methotrexate (tablet and injected), and good old paracetamol and codeine for pain relief. Looks like we have a potential winner with Enbrel - still with Mtx once a week (both injected). After being on and off the walking frame, in and out of a wheelchair, and with all the casts, splints, and bandages in between, Bayly competed in his school athletics carnival for the first time this year. He has previously sat on the sidelines or been a helper with the events. Not only did he get up and go in this age race, but he attempted the 800 metres (that's 2625 feet for the non metric among us)!!! I wasn't there to see it unfortunately but by all accounts (and soooooo many people wanted to tell me how proud they were of Bayly) he trotted off and was approaching the end of the first lap (400m) when he really started to show signs of fatigue and effort, well didn't he have the entire school, and all the parents and teachers watching, cheering him on saying " Go Bayly! Go Bayly! " and he finished the first lap to great applause by all accounts (and some teary eyes too). He couldn't go on for the second lap, but gee- 400m for a kid who could once barely walk at all, and has been bullied for how funny he runs or how slow he is... is just terrific in my book! Just wanted to share. I am just so proud of my son for his amazing courage and tenacity. Jo Bayly, 9, eoJIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 What wonderful news!!! Way to go, Bayly and to you momma as well. You both have had to stay strong to get to this point. Well done! =) Sharon (, 18 months old, systemic) > > ...no, make that GREAT news! > > It is amazing what the right drug combo can do for your child!! After > years of juggling NSAIDs, steroids (oral and injected), Methotrexate > (tablet and injected), and good old paracetamol and codeine for pain > relief. Looks like we have a potential winner with Enbrel - still with > Mtx once a week (both injected). After being on and off the walking > frame, in and out of a wheelchair, and with all the casts, splints, and > bandages in between, Bayly competed in his school athletics carnival for > the first time this year. He has previously sat on the sidelines or been > a helper with the events. > > Not only did he get up and go in this age race, but he attempted the 800 > metres (that's 2625 feet for the non metric among us)!!! > > I wasn't there to see it unfortunately but by all accounts (and soooooo > many people wanted to tell me how proud they were of Bayly) he trotted > off and was approaching the end of the first lap (400m) when he really > started to show signs of fatigue and effort, well didn't he have the > entire school, and all the parents and teachers watching, cheering him > on saying " Go Bayly! Go Bayly! " and he finished the first lap to great > applause by all accounts (and some teary eyes too). He couldn't go on > for the second lap, but gee- 400m for a kid who could once barely walk > at all, and has been bullied for how funny he runs or how slow he is... > is just terrific in my book! > > Just wanted to share. I am just so proud of my son for his amazing > courage and tenacity. > > Jo > Bayly, 9, eoJIA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 WOOOOOOO HOOOOOOOO! Way to go Bayley! So glad things are so much better for him and you all. Congratulations on this great accomplishment! , Kaylee, 8, ext pauci, Uveitis, ADHD, ODD Some good news... ....no, make that GREAT news! It is amazing what the right drug combo can do for your child!! After years of juggling NSAIDs, steroids (oral and injected), Methotrexate (tablet and injected), and good old paracetamol and codeine for pain relief. Looks like we have a potential winner with Enbrel - still with Mtx once a week (both injected). After being on and off the walking frame, in and out of a wheelchair, and with all the casts, splints, and bandages in between, Bayly competed in his school athletics carnival for the first time this year. He has previously sat on the sidelines or been a helper with the events. Not only did he get up and go in this age race, but he attempted the 800 metres (that's 2625 feet for the non metric among us)!!! I wasn't there to see it unfortunately but by all accounts (and soooooo many people wanted to tell me how proud they were of Bayly) he trotted off and was approaching the end of the first lap (400m) when he really started to show signs of fatigue and effort, well didn't he have the entire school, and all the parents and teachers watching, cheering him on saying " Go Bayly! Go Bayly! " and he finished the first lap to great applause by all accounts (and some teary eyes too). He couldn't go on for the second lap, but gee- 400m for a kid who could once barely walk at all, and has been bullied for how funny he runs or how slow he is... is just terrific in my book! Just wanted to share. I am just so proud of my son for his amazing courage and tenacity. Jo Bayly, 9, eoJIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 The BEST news!! Keep going Bayly! Kirsten, mom to , age 7, spondy > > ...no, make that GREAT news! > > It is amazing what the right drug combo can do for your child!! After > years of juggling NSAIDs, steroids (oral and injected), Methotrexate > (tablet and injected), and good old paracetamol and codeine for pain > relief. Looks like we have a potential winner with Enbrel - still with > Mtx once a week (both injected). After being on and off the walking > frame, in and out of a wheelchair, and with all the casts, splints, and > bandages in between, Bayly competed in his school athletics carnival for > the first time this year. He has previously sat on the sidelines or been > a helper with the events. > > Not only did he get up and go in this age race, but he attempted the 800 > metres (that's 2625 feet for the non metric among us)!!! > > I wasn't there to see it unfortunately but by all accounts (and soooooo > many people wanted to tell me how proud they were of Bayly) he trotted > off and was approaching the end of the first lap (400m) when he really > started to show signs of fatigue and effort, well didn't he have the > entire school, and all the parents and teachers watching, cheering him > on saying " Go Bayly! Go Bayly! " and he finished the first lap to great > applause by all accounts (and some teary eyes too). He couldn't go on > for the second lap, but gee- 400m for a kid who could once barely walk > at all, and has been bullied for how funny he runs or how slow he is... > is just terrific in my book! > > Just wanted to share. I am just so proud of my son for his amazing > courage and tenacity. > > Jo > Bayly, 9, eoJIA > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2011 Report Share Posted May 16, 2011 What great news! Pass our congrats on to Bayly. It sounds like Enbrel is doing the trick. Thanks for the update Jo, hope all is well down under! Michele ( 24, spondy) From: [mailto: ] On Behalf Of Family Sent: Monday, May 16, 2011 1:40 AM Subject: Some good news... ....no, make that GREAT news! It is amazing what the right drug combo can do for your child!! After years of juggling NSAIDs, steroids (oral and injected), Methotrexate (tablet and injected), and good old paracetamol and codeine for pain relief. Looks like we have a potential winner with Enbrel - still with Mtx once a week (both injected). After being on and off the walking frame, in and out of a wheelchair, and with all the casts, splints, and bandages in between, Bayly competed in his school athletics carnival for the first time this year. He has previously sat on the sidelines or been a helper with the events. Not only did he get up and go in this age race, but he attempted the 800 metres (that's 2625 feet for the non metric among us)!!! I wasn't there to see it unfortunately but by all accounts (and soooooo many people wanted to tell me how proud they were of Bayly) he trotted off and was approaching the end of the first lap (400m) when he really started to show signs of fatigue and effort, well didn't he have the entire school, and all the parents and teachers watching, cheering him on saying " Go Bayly! Go Bayly! " and he finished the first lap to great applause by all accounts (and some teary eyes too). He couldn't go on for the second lap, but gee- 400m for a kid who could once barely walk at all, and has been bullied for how funny he runs or how slow he is... is just terrific in my book! Just wanted to share. I am just so proud of my son for his amazing courage and tenacity. Jo Bayly, 9, eoJIA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2011 Report Share Posted May 17, 2011 What absolutely wonderful news...Enbrel gave my son his childhood back as well. It IS amazing to witness. So happy for you both! & , 7.5, poly...nystagmus...SPD.... Sent from my iPhone Quote Link to comment Share on other sites More sharing options...
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