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Have been away for quite sometime. Saw in a couple of messages reference to

brain damage related to memory and cognitive function. Just want to say the

neurological system is extremely complex, and I think that " brain " damage also

relates to bodily organ function. If you consider Autonomic Nervous System and

Central Nervous System, which is all regulated in the brain, wow, you are

talking about every function in your body. For starters, think heart function

and digestive function. That is regulated by the A.N.S. in the brain. Results:

NMH, tachycardia, over production of gastric juices, thus contributer to ulcers.

Under activity of digestive peristlisis, (movement of esophagus, to stomach to

intestines) in moving digested particles through, resulting in gastritis,

gasiness, constipation, great medium to grow things. Problems with the

sympathetic and norasympatheic system as with adrenalin, seratonin, depression,

confusion, seizures. Then think Thyroid problems, hormones regulating heart,

digestion, insulin, liver enzymes etc. Overexcretion of substances and

underexcretion of substances. Histamine receptors all over the body regulated

by the A.N.S. Sensory nerves regulated by A.N.S, such as in vision changes,

smell as in chemical sensitivites. Then Central Nervous System with voluntary

muscles, motor nerves and sensory nerves within C.N.S, as with fibromyalgia and

possible enzyme defiency, now also suspected of over production of nerve ending

production which is now crossed with the A.N.S. as a result of growth hormone

release deficit. It is endless and intertwining So in referring to brain

damage, I would think, not just cognitive, but total body/organ function. A

system gone haywired. Just my penny thrown in there.

C.H.

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> From: worldtraveler6@...

> the neurological system is extremely complex, and I think that " brain "

> damage also relates to bodily organ function. If you consider Autonomic

> Nervous System and Central Nervous System, which is all regulated in the

> brain, wow, you are talking about every function in your body. For

> starters, think heart function and digestive function.

>snip> Then Central Nervous

> System with voluntary muscles, motor nerves and sensory nerves within

> C.N.S, as with fibromyalgia and possible enzyme defiency, now also

> suspected of over production of nerve ending production which is now

> crossed with the A.N.S. as a result of growth hormone release deficit. It

> is endless and intertwining So in referring to brain damage, I would

> think, not just cognitive, but total body/organ function. A system gone

> haywired. Just my penny thrown in there.

C.H.,

Total agreement from me (FWIW).

BUT that STILL leaves us none the wiser as to what might be causing the

brain damage (temporary or permanent) which then in turn causes all the

dysfunctioning in ALL PARTS (cognitive and organs alike), and that's what

I'm interested in:

Is it a primary injury to the brain, as in " something " attacking it directly

(virus, bacteria, exogenous chemicals, etc.) or is it secondary (toxins,

from an infection for eg, produced elsewhere and invading brain tissue and

impeding good functioning, chemicals which might be by-products of some

other phenomenon going on elsewhere in the body, or simply, lack of

irrigation of the brain through blood vessel constriction like Rickettsiae

for eg, or other toxins or chemicals affecting blood vessels, or other

mechanisms like hypercoagulation and fibrin deposits, or through heart not

pumping enough blood to brain etc. etc. etc.??

And then, if we hypothesise a root cause, do we fix the pb by getting rid of

the root cause or do we need intervention at various levels to break the

likely vicious feedback loops already in place and running?

In fact, I get dizzy contemplating the various possibilities and

combinations.

How can doctors with their usually pretty limited (yet supposedly

undamaged!) brains handle even the THEORY of this illness in all its

complexities?! As one of them said to me once (I was pbly at the stage when

I was asking a lot from them): " we are doers not thinkers " . At least he was

aware!

Nelly

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> > So in referring to brain

> damage, I would

> > think, not just cognitive, but total body/organ function. A

> system gone

> > haywired.

Obviously. All feedback mechanisms. You damage the brain, you

damage how the body functions. I think the reverse may be true

to a point as well. If you damage part of the body, feedback

mechanisms may upset balances in the brain.

> And then, if we hypothesise a root cause, do we fix the pb by

> getting rid of

> the root cause or do we need intervention at various levels

> to break the

> likely vicious feedback loops already in place and running?

At this point I believe we have little chance to find a root

cause. Most of us can't get the idiot docs to order half the

bloody tests we need in order to find a " cause " - or even

identify the major players. To make matters worse, CDC funding

to study CFIDS were illegally funnelled elsewhere.

IMO, without the tests necessary to identify our problems, our best

hope is to try to break into the feedback cycle. Since the brain

controls everything, we need to look seriously at brain function.

Patti

--

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  • 2 years later...

Notice they recommend treatment with pharmaceuticals or surgery......(profits)

and not diet, which has been proven to be the most effective treatment! (no

profit)

At 03:25 PM 11/2/01 -0800, you wrote:

>

> Do Seizures Cause Brain Damage?

>

> January 21,1999

>

> The American Academy of Neurology/MedscapeWire

>

> ST. PAUL, MN - A new patient study indicates that seizure activity

> originating in a specific location of the brain causes the region to become

> irreversibly damaged. The study was published in the current issue of

> Neurology, the scientific journal of the American Academy of Neurology.

>

> Researchers studied 35 patients with uncontrolled temporal lobe epilepsy

> whose seizures originate in the hippocampus (an area within the brain's

> temporal lobe that controls memory and learning). " We found that uncontrolled

> seizures originating in the hippocampus cause the hippocampus to shrink, "

> said study author and neurologist Theodore, MD, of the National

> Institutes of Health in Bethesda, MD. " Brain damage to the hippocampus could

> affect memory or learning. " On average, patients in the study were 35 years

> old and had epilepsy for 23 years. Those living with uncontrolled epilepsy

> the longest had the smallest hippocampus. " A person living with uncontrolled

> epilepsy for 23 years may have as much as a 15 percent reduction in

> hippocampal volume compared to a person diagnosed with epilepsy for one

> year, " said Theodore.

>

> " Patients may prevent brain damage by properly treating their seizures early

> after the onset of epilepsy, said Theodore. " Most importantly, if medication

> is not controlling seizures, patients should seek other treatment options

> such as surgery. "

>

> To measure the volume of each patient's hippocampus, researchers used a 3-D

> magnetic resonance imaging (MRI) technique. Volume of the hippocampus in

> which seizures originate was compared to the volume of the same individual's

> healthy hippocampus located on the opposite side of the brain.

>

> Not all patients will necessarily develop damage to the hippocampus, said

> Theodore. " It may take more than 20 years for brain damage to develop. We

> don't want to alarm anyone, but we do want to emphasize the importance of

> thorough, early treatment for seizures. "

>

> Temporal lobe epilepsy can cause a variety of symptoms. With such a seizure a

> patient can experience a sudden loss of responsiveness while appearing to

> stare motionlessly, sudden and unprovoked sense of fear, strong sense of an

> unpleasant odor, déjà vu, moaning or lip smacking. Epilepsy affects 2.5

> million Americans and encompasses more than 40 neurological conditions that

> share a common symptom - seizures.

> <http://autismabstracts.tripod.com/content.htm#top>top

>

>

>

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Exactly you hit it on the head. The only solution is pharmacrap and

surgery....like a brokenrecord

Kathy

Re: [ ] brain damage

Notice they recommend treatment with pharmaceuticals or

surgery......(profits)

and not diet, which has been proven to be the most effective treatment! (no

profit)

At 03:25 PM 11/2/01 -0800, you wrote:

>

> Do Seizures Cause Brain Damage?

>

> January 21,1999

>

> The American Academy of Neurology/MedscapeWire

>

> ST. PAUL, MN - A new patient study indicates that seizure activity

> originating in a specific location of the brain causes the region to

become

> irreversibly damaged. The study was published in the current issue of

> Neurology, the scientific journal of the American Academy of Neurology.

>

> Researchers studied 35 patients with uncontrolled temporal lobe epilepsy

> whose seizures originate in the hippocampus (an area within the brain's

> temporal lobe that controls memory and learning). " We found that

uncontrolled

> seizures originating in the hippocampus cause the hippocampus to shrink, "

> said study author and neurologist Theodore, MD, of the National

> Institutes of Health in Bethesda, MD. " Brain damage to the hippocampus

could

> affect memory or learning. " On average, patients in the study were 35

years

> old and had epilepsy for 23 years. Those living with uncontrolled epilepsy

> the longest had the smallest hippocampus. " A person living with

uncontrolled

> epilepsy for 23 years may have as much as a 15 percent reduction in

> hippocampal volume compared to a person diagnosed with epilepsy for one

> year, " said Theodore.

>

> " Patients may prevent brain damage by properly treating their seizures

early

> after the onset of epilepsy, said Theodore. " Most importantly, if

medication

> is not controlling seizures, patients should seek other treatment options

> such as surgery. "

>

> To measure the volume of each patient's hippocampus, researchers used a

3-D

> magnetic resonance imaging (MRI) technique. Volume of the hippocampus in

> which seizures originate was compared to the volume of the same

individual's

> healthy hippocampus located on the opposite side of the brain.

>

> Not all patients will necessarily develop damage to the hippocampus, said

> Theodore. " It may take more than 20 years for brain damage to develop. We

> don't want to alarm anyone, but we do want to emphasize the importance of

> thorough, early treatment for seizures. "

>

> Temporal lobe epilepsy can cause a variety of symptoms. With such a

seizure a

> patient can experience a sudden loss of responsiveness while appearing to

> stare motionlessly, sudden and unprovoked sense of fear, strong sense of

an

> unpleasant odor, déjà vu, moaning or lip smacking. Epilepsy affects 2.5

> million Americans and encompasses more than 40 neurological conditions

that

> share a common symptom - seizures.

> <http://autismabstracts.tripod.com/content.htm#top>top

>

>

>

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  • 3 years later...

In a message dated 11/5/04 1:43:51 PM Mountain Standard Time,

SSRI medications writes:

> Glitter, is this because of SSRIs or did you have a brain injury

> another way?

>

Never had it before I took Paxil. It started while I was ON the drug, and

only got worse after that. I cannot stand any noise at all anymore. I don't

even listen to music very much because sometimes it's too overstimulating.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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In a message dated 11/5/04 1:43:51 PM Mountain Standard Time,

SSRI medications writes:

> Glitter, is this because of SSRIs or did you have a brain injury

> another way?

>

Never had it before I took Paxil. It started while I was ON the drug, and

only got worse after that. I cannot stand any noise at all anymore. I don't

even listen to music very much because sometimes it's too overstimulating.

" Blind Reason "

a novel of pharmaceutical intrigue

Think your antidepressant is safe? Think again. It's

Unsafe At Any Dose

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  • 1 year later...

There has been a lot of reported cases of improvement using HBOT - Hyperbaric

Chamber treatments. this forces extra oxygen into tissues and the brain. The

treatments are helping children born with cerebral palsy. For a supplement that

gives an O2 boost, try DMG sublingual tablets melt under the tongue, vitamin O,

and anything that increases oxygen will help the brain. A friend of mine had a

son with severe brain damage and she saw improvement with the DMG and essential

oils like Rose Oil and lavender. Somehow they can make ions move. Rose oil has

the highest activity. I don't understand how that works.

beckie <trisomy11q@...> wrote: can a child that has brain damage some

what recover?

its affecting her in that she cant walk sit or stand.

she also has genetic probems. the only thing she can do

is move her arms legs and head.

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Hi Beckie,

See the Institutes for Achievement of Human Potential in Philadelphia. The best

team and protocols ever designed to deal with brain injury in small children.

Highly succesful if parents want to work hard (I mean really hard) at reversing

the effects of the injury.

You may get and follow lots of advice each suggesting their own experience. That

appoach may applicable to a broken bone not to a broken brain. An injured brain

needs a highly structured set of protocols explicitly designed to address each

injury. The IAHP teaches parents to carry out these individualized protocols at

home with the help of volunteers.They are inexpensive and most insurance

carriers pay for their services.

I have no conexion of any kind with them but helped my brain injured son for

fourteen years following a car accident and I highly recommend them.

Email me at fcunsrial@... should you need more info.

The best for you and your child.

brain damage

can a child that has brain damage some what recover?

its affecting her in that she cant walk sit or stand.

she also has genetic probems. the only thing she can do

is move her arms legs and head.

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I don't really know your child's condition but I do have an incident I went

through with my mother. She's a cancer patient and a few weeks ago she lost her

mind completely. I gave her this product called triotein and after a few

minutes, she was back to normal. Come to find out, another tumor had grown

back. The product builds glutathione in the body and is very good for the

brain. Glutathione is the Master antioxidant in the body. They recommend

taking triotein with cluster water so the water can go obsorb within the cells

better. So that would be good for the brain and other parts of the body. I'll

send you a link about this product and glutathione..

http:\\www.magueyweaves.com/pages/lexxus/jtrioteinmixinginstructions.htm

beckie <trisomy11q@...> wrote: can a

child that has brain damage some what recover?

its affecting her in that she cant walk sit or stand.

she also has genetic probems. the only thing she can do

is move her arms legs and head.

__________________________________________________

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If your not near Philly look up http://hopeandfuture.org/ They come to

different parts of the US. i have been taking my kids to polis from NJ for

2 years and doing the exercises etc. To learn about Human Potential in

Philadeplphia there is a book by Glenn Domain What to do about your brain

injured child.

Holly Masclans

Mom on a Mission for Autism

Our lives begin to end the day we remain silent about things that

matter. Luther King, Jr.

Re: brain damage

Hi Beckie,

See the Institutes for Achievement of Human Potential in Philadelphia. The best

team and protocols ever designed to deal with brain injury in small children.

Highly succesful if parents want to work hard (I mean really hard) at reversing

the effects of the injury.

You may get and follow lots of advice each suggesting their own experience. That

appoach may applicable to a broken bone not to a broken brain. An injured brain

needs a highly structured set of protocols explicitly designed to address each

injury. The IAHP teaches parents to carry out these individualized protocols at

home with the help of volunteers.They are inexpensive and most insurance

carriers pay for their services.

I have no conexion of any kind with them but helped my brain injured son for

fourteen years following a car accident and I highly recommend them.

Email me at fcunsrial@... should you need more info.

The best for you and your child.

brain damage

can a child that has brain damage some what recover?

its affecting her in that she cant walk sit or stand.

she also has genetic probems. the only thing she can do

is move her arms legs and head.

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Hi Becky I have a good friend that has a grandchild that was born with

only a small percentage of one side of the brain her parents have her

on therapy daily and she is improving all the time e-mail me and we

can get you in touch with the

parents...debbie ...debbiegerard99@...

>

> If your not near Philly look up http://hopeandfuture.org/ They come

to different parts of the US. i have been taking my kids to polis

from NJ for 2 years and doing the exercises etc. To learn about Human

Potential in Philadeplphia there is a book by Glenn

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Investigate Jin Shin Jyutsu. This practice changes cells. JJ

brain damage

can a child that has brain damage some what recover?

its affecting her in that she cant walk sit or stand.

she also has genetic probems. the only thing she can do

is move her arms legs and head.

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