Intro

May 27, 2009

Just Diagnosed.

Try this www.psoriagold .com

I got 99% (trunk & limbs) relief after 6 months treatment. Scalp is little bit

difficult. Almost 80-90% relief.

Extremely satisfied because of good improvement in forehead (earlier caused lot

of embarrassment).

Best regards,

September 8, 2009

Hi Sara

Im so sorry to hear that again I must say " welcome to the group " --this is one

group that loves new friends but not so much when it means another child has

been affected!

Unfortunately many of the more experienced Drs handling Lyme ( some call them

LLMDs as in Lyme Literate MDs) wont handle kids. The ONLY pediatric specialist

still around is Dr in Ct.?

A few peds Drs may be willing to work with him as consultant, a few may also be

willing to go by ILADS guidelines rather than the more prohibitive and riskier

IDSA guidelines, but theyre hard to find.

and a few Family Practice Drs with capability of treating children may also be

familiar with proper Lyme treatment and if the case isnt too complex, theyll

handle it well---or possibly seek consult with one of the more Lyme

knowledgeables if and when the case gets difficult.

May I suggest that you contact local support groups and find out who they use

for their kids and especially whom to avoid. Be careful about internet

groups--theyre infiltrated with scammers and marketeers as well as

uncredentialed " healers " selling their fake cures.Some good books and also some

horrible money wasters are out there.

If you email me I can get a list together of local groups for you to contact.

Yes it is costly to seek the advice of a LLMD when almost all dont take

insurance. But its far more costly ( in lost time, in more bodily and health

damages and in emotional turmoil) in the long run to try to hope a non Lyme

knowledgeable Dr will or even can teat the patient.Unfortunately almost all Lyme

knowledgeable Drs cant take insurance--its not that theyre trying to make it

harder or make more money faster--that Lyme diagnosis means oftentimes they wont

be paid at all, face mountains of denials and forms and many have gone out of

business ( lost their medical practices) from the Lyme patients they tried to

help and ended up not being reimbursed by insurance.

Its a shame that the best often must charge more ( lengthier office exams and

visits) and dont/cant accept insurances.?

btw her GI findings arent that rare--lymph adenopathy is very common as is GI

involvement.Some find that warm " beans " ( flax seed pouches or tube socks with

rice, microwaved a bit till warm) help the belly pain.

the 4-6 week cycles of worse symptoms are common as well due to the time it

takes for the spirochete to reproduce, be killed and then the die off products

to be removed from the body.

Also make sure she is tested and evaluated for coinfections--things like to

piggy back with Lyme--babesia, bartonella, mycoplasma, ehrlichia, etc etc

sometimes even if the Lyme is being well treated those other " bugs " can cause

symptoms of their own and need their own type of medicine.

the sooner and best/strongest attack is usually best IMO. and that is best done

by a " LLMD " or a Dr who works with an LLMD or who are themselves very

experoenced with Lyme and who dont just follow IDSA guidelines.

email me at finrussak@... and good luck.

Finette

[ ] Intro

Good afternoon my name is Sara and I live in Greene county NY(upstate) and my 12

year old daughter was dx'ed on June 9th 09 with Lymeshe presented with the

rash,fevor,aches and arthritis pains, photosensitivity....went on cefitin (she

could not handle the doxicycline) for 21 days . She was fine for about 4 weeks

then started up again with all of the symptoms again but this time her gut was

invovled all of the lymph nodes were the size of globe grapes (she had to have a

barium gi)and now she is 1/2 have though her amoxicillian..28 days....and she is

not getting better........not sure what our next move will be maybe a LL MD..but

that will be costly since they do not take insurance.

Sara

September 9, 2009

Hi. There is a program that offers money to have kids treated. Here is a link to

the website and form:

http://www.lymediseaseassociation.org/LymeAidPkg.pdf

They give up to $1000.00 for treatment and testing. I used it when I needed to

get my daughter treated and it was a life saver, literally! I really encourage

you to get her help. Dr. Horowitz is taking new patients again. If you live near

Poughkeepsie, he would be a good choice. His office is in Hyde Park and they are

familiar with the Lyme Aid for Kids program. Fallon is the other person we

see there. He did suggest that if someone comes in with the Lyme Aid for kids

that the office be reminded what it is. It's a really easy form and I doubt

you'd have trouble getting any Lyme Doc. to accept it. Good luck!

Annie

P.S. If you want to know more about Dr. Horowitz his bio is on the ilads.org

site, under officers and directors. He's the VP of the organization. Here's the

link;

http://ilads.org/about_ILADS/officers_directors.html

>

> Good afternoon my name is Sara and I live in Greene county NY(upstate) and my

12 year old daughter was dx'ed on June 9th 09 with Lymeshe presented with the

rash,fevor,aches and arthritis pains, photosensitivity....went on cefitin (she

could not handle the doxicycline) for 21 days . She was fine for about 4 weeks

then started up again with all of the symptoms again but this time her gut was

invovled all of the lymph nodes were the size of globe grapes (she had to have a

barium gi)and now she is 1/2 have though her amoxicillian..28 days....and she is

not getting better........not sure what our next move will be maybe a LL MD..but

that will be costly since they do not take insurance.

> Sara

>

September 10, 2009

Thank you for the welcome THis is a group that I must honestly say is one that

I wised no parent ever had to join. But again thank you

I understand that I need to get my daughter to a LLMD,one beyond her helpfull

doc...I will give a condensed version of my reasons why a good LLmd may not

happen

first-I am on SSD-I am a NYS RN due to problems 15 years ago I can no longer

work

2-thus said since then I have been living at an income below the poverty level

for the country.(14,000$and on that I raised 3 girls sent one to college and the

middle one is in the military)..but I live simply with in my means and have good

friends that offer what they can.

I can not sell my home : the market is bad and my mortage is less than most

rents....so I would be a fool to sell and it was on the market for a few years

no takers..

I am not on welfare,or food stamps I recieve HEAP

I have a garden know how to buy bulk and cook to make it last.

3- I do have savings not much ....but that was intended to buy food during the

winter months starting in oct.

or do I use it to pay the taxes?...

or do I take that money and bring my daughter for one visit to a Doctor?

I know that she needs to be seen by someone that will have a greater idea as to

what is going on

but I have sold everything of value I have no credit no equity in the

home.....friends-have lost there jobs and have there own troubles,family lol

that is not an option.

So this is where I am I know that something must be done and yes soon but dang

it I dont know what.......I understand that the LLMDS need to make money....I do

but you know what one that in my area of NY is going to be a million aire in no

time with the prices that some are charging, so what if you take

medicare/medcaid....i guess that makes the md feel like he is giving back to the

community Yes I am angry that my daughter is sick and a damn good md is close by

and I cant afford to take her there let alone have her seen for follow ups....it

is just to much right now for me to handle this insanity but I am not given the

freedom to have a melt down I must just bit my lip and get on with it

sara

>

> Im so sorry to hear that again I must say " welcome to the group " --this is one

group that loves new friends but not so much when it means another child has

been affected!

>

> Unfortunately many of the more experienced Drs handling Lyme ( some call them

LLMDs as in Lyme Literate MDs) wont handle kids. The ONLY pediatric specialist

still around is Dr in Ct.?

>

> A few peds Drs may be willing to work with him as consultant, a few may also

be willing to go by ILADS guidelines rather than the more prohibitive and

riskier IDSA guidelines, but theyre hard to find.

>

> and a few Family Practice Drs with capability of treating children may also be

familiar with proper Lyme treatment and if the case isnt too complex, theyll

handle it well---or possibly seek consult with one of the more Lyme

knowledgeables if and when the case gets difficult.

>

> May I suggest that you contact local support groups and find out who they use

for their kids and especially whom to avoid. Be careful about internet

groups--theyre infiltrated with scammers and marketeers as well as

uncredentialed " healers " selling their fake cures.Some good books and also some

horrible money wasters are out there.

>

> If you email me I can get a list together of local groups for you to contact.

>

> Yes it is costly to seek the advice of a LLMD when almost all dont take

insurance. But its far more costly ( in lost time, in more bodily and health

damages and in emotional turmoil) in the long run to try to hope a non Lyme

knowledgeable Dr will or even can teat the patient.Unfortunately almost all Lyme

knowledgeable Drs cant take insurance--its not that theyre trying to make it

harder or make more money faster--that Lyme diagnosis means oftentimes they wont

be paid at all, face mountains of denials and forms and many have gone out of

business ( lost their medical practices) from the Lyme patients they tried to

help and ended up not being reimbursed by insurance.

>

> Its a shame that the best often must charge more ( lengthier office exams and

visits) and dont/cant accept insurances.?

>

> btw her GI findings arent that rare--lymph adenopathy is very common as is GI

involvement.Some find that warm " beans " ( flax seed pouches or tube socks with

rice, microwaved a bit till warm) help the belly pain.

>

> the 4-6 week cycles of worse symptoms are common as well due to the time it

takes for the spirochete to reproduce, be killed and then the die off products

to be removed from the body.

>

> Also make sure she is tested and evaluated for coinfections--things like to

piggy back with Lyme--babesia, bartonella, mycoplasma, ehrlichia, etc etc

sometimes even if the Lyme is being well treated those other " bugs " can cause

symptoms of their own and need their own type of medicine.

>

> the sooner and best/strongest attack is usually best IMO. and that is best

done by a " LLMD " or a Dr who works with an LLMD or who are themselves very

experoenced with Lyme and who dont just follow IDSA guidelines.

>

> email me at finrussak@... and good luck.

>

> Finette

>

> [ ] Intro