Peripheral neuropathy

[Guest guest]

Thanks you, I will give that a try and see what happens!

linda

________________________________

From: Mercurius Trismegistus <magisterium_magnum@...>

Dr

Sent: Thursday, April 16, 2009 2:52:33 PM

Subject: Re: Peripheral Neuropathy

In TCM Dietary Therapy, there's nothing " in " the food, but it's " medicinal

property. " It's just that type of qi. These foods will tonify foundational

essence. Once you have sufficient yin, the yang will be in balance.

Peripheral Neuropathy

>>>>

>>>> Anybody got any tips on protecting the feet of older diabetics? My

>>>> mom's

>>>> new boyfriend has an issue with that. I recommended Cayenne and

>>>> possibly

>>>> ozone.

>>>> He's also got arterial sclerosis, high blood pressure and high

>>>> cholesterol, but I kind of know how to deal with that stuff using

>>>> acupuncture, garlic, hawthorne, cayenne and celery juice.

>>>> Thanks.

>>>>

>>>>

[Guest guest]

I'm just now seeing all the Peripheral Neuropathy postings.

FYI - the best thing for PN we've seen is the Rebuilder.

_http://www.peripheralneuropathytreatments.com/_

(http://www.peripheralneuropathytreatments.com/)

chad (http://www.peripheralneurothytreatments.com)

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[Guest guest]

I'm trying again,

Does anyone here have peripheral neuropathy associated with their PA?

I got but one private response so far. I would be most pleased and

interested to hear from others about this topic.

Thanks, Brent

[Guest guest]

Yes, I also have peripheral neuropathy (PN) associated with the PA in my

opinion. The doctors say they can't officially make the connection, but since I

am not diabetic, (the commonest cause of PN), there is no other condition that I

can hang it on. The neurologist says that there is no treatment for it available

at this time. The problem that I find with it is if I get a cut, I can't tell.

I wish you good health

Walt

[Guest guest]

Thanks for getting back to me, Walt,

Funny you should mention cuts:

I kicked my toe on a sharp edge (apparently) of our bathroom waste basket lid

flipper-upper, just yesterday. It didn't particularly hurt, so I paid it no

attention. I ended up bleeding all over the house. My wife followed the blood

spots to me to find my foot resting unbeknownst to me in a bit of a pool under

my desk at this computer. I almost always go barefoot at home as it is cooler

and the socks are so irritating.

I'd be more than a little interested to hear from anyone else on this topic.

Best wishes, Brent

[Guest guest]

Yes I have been experiencing something with my hands. Numbness, but pain too,

hard to explain. Might be neuropathy as a cause from the meds according to my

primary care physician. All I know is that this is the worst time of year to

have this happen as I like to garden, and play golf and it's finally the season

here.

Bonnie

[Guest guest]

I never heard of black chicken. Can you elaborate?

Michele

_____

From: Dr [mailto:Dr ] On Behalf Of

Mercurius Trismegistus

Sent: Thursday, April 16, 2009 4:08 AM

Dr

Subject: Re: Peripheral Neuropathy

No, this is the " eastern " conception of " liver. " Do you have access to an

acupuncturist or Chinese herbalist?

Dietary therapy is important.

I would recommend black beans, black chicken, black rice, black sesame,

walnuts, red grapes, goji, shitake, sprouts, organic eggs, organic kidneys

and liver (see if you can find an organic butcher.) Raspberries and

raspberry tea.

Acupuncture and herbs would be much stronger, of course. There are some

great medicinal wines and teas as well.

Yoga/Tai Chi/QiGong practice would be good as well.

Peripheral Neuropathy

>>

>> Anybody got any tips on protecting the feet of older diabetics? My mom's

>> new boyfriend has an issue with that. I recommended Cayenne and possibly

>> ozone.

>> He's also got arterial sclerosis, high blood pressure and high

>> cholesterol, but I kind of know how to deal with that stuff using

>> acupuncture, garlic, hawthorne, cayenne and celery juice.

>> Thanks.

>>

>>

[Guest guest]

I have never heard of that.  Can you explain why the meat is black.  Why is it

more tonifying?  What did they do to make the flesh black?  And since it's not

organic is it good to add more toxins to one's system?

From: Mercurius Trismegistus <magisterium_magnum@...>

Subject: Re: Peripheral Neuropathy

Dr

Date: Friday, May 1, 2009, 2:18 PM

You can get it in Asian food stores. It's the same as regular chicken, only

the meat is black. It's much more tonifying of foundational essence.

Peripheral Neuropathy

>>>

>>> Anybody got any tips on protecting the feet of older diabetics? My mom's

>>> new boyfriend has an issue with that. I recommended Cayenne and possibly

>>> ozone.

>>> He's also got arterial sclerosis, high blood pressure and high

>>> cholesterol, but I kind of know how to deal with that stuff using

>>> acupuncture, garlic, hawthorne, cayenne and celery juice.

>>> Thanks.

>>>

>>>

[Guest guest]

You can get it in Asian food stores. It's the same as regular chicken, only

the meat is black. It's much more tonifying of foundational essence.

Peripheral Neuropathy

>>>

>>> Anybody got any tips on protecting the feet of older diabetics? My mom's

>>> new boyfriend has an issue with that. I recommended Cayenne and possibly

>>> ozone.

>>> He's also got arterial sclerosis, high blood pressure and high

>>> cholesterol, but I kind of know how to deal with that stuff using

>>> acupuncture, garlic, hawthorne, cayenne and celery juice.

>>> Thanks.

>>>

>>>

[Guest guest]

Bonnie,

My rheumatologist gave me a script for Voltaren Gel 1% for the pain in my

hands and knee joints. It's a topical gel that you apply every 6

hours. I take Ultram but there are times my hands and knees ache so bad

and adding this to my treatment really helped. I've even found that it

works wonderfully on my sciatic nerve when it bothers me.

Celeste

[Guest guest]

Thanks I'll have to ask about it. The only thing is though, I don't usually use

hand creams because I have to put drops in my eye often and I don't want to get

anything in my eyes.

" Bonnie J. Parlin " <bonnieandjerry177@...>

----- Original Message -----

From: JustMyJunk

<<My rheumatologist gave me a script for Voltaren Gel 1% for the pain in my

hands and knee joints. It's a topical gel that you apply every 6 hours.>>

[Guest guest]

My foot and ankle ache so bad at times too. So I ordered Voltaren from a

Canadian pharmacy where it's OTC there. They have a 50gm tube for $19.99

including shipping. I also have osteo arthritis (OA) and hope this gives me

some relief. I much rather use a topical gel NSAID than a pill, as it's

supposed to be safer. I've been taken off MTX for a couple weeks since my ALT

was too high...our poor livers really take a beating with all the med we take!

Lynn

" Life is not about waiting for the storm to pass,

but about learning how to dance in the rain. "

[Guest guest]

Lidocaine patches are another topical anesthetic that work well for a variety

of aches and pains.  Unfortunately, it doesn't seem that a lot of doctors use

them, relying instead on meds taken orally that can have side effects.  They do

require a scrip. 

 Joanna Hoelscher

[Guest guest]

Thanks for your reply, Bonnie.

For me, the sensation of painful burning heat is the worst complication.

I have a suspicion that there are many of us that have this happening in

conjunction with our PA. At this point, I think that most of my current

pain is due to peripheral neuropathy (PN) as a complication of PA.

Either I get brain fog from the PA/PN pain and not sleeping or I have to

drug myself into a fog to be able to sleep. Either way, I have become

unfit for work: I can't count on myself to be present enough to do the

work I have spent years educating myself to do.

For those who are unclear as to what PN is and want to learn a bit more,

here is a link that you may find useful. The link also has useful links.

http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropa\

thy.htm

or

http://tinyurl.com/5jfhm

[Guest guest]

Hi Celeste,

Are you saying that the pain medication for your feet and hands is to treat

peripheral neuropathy? From what I understand, it is a topical NSAID, an

anti-inflamitory developed for osteo-arthritis. It doesn't sound like it would

be used for peripheral neuropathy, but could possibly be used for pain and

inflamation associated with PA. My PA drugs don't help my PN. Only narcotics

help my PN.

http://www.drugs.com/pro/voltaren-gel.html

It would be helpful if you could clarify.

" skrewtz " <brentherman@...>

[Guest guest]

Thanks for that link. I think I definitely need to see a neurologist to see

where this is coming from. It's keeping me up at night.

Bonnie

----- Original Message -----

From: skrewtz

<<For those who are unclear as to what PN is and want to learn a bit more, here

is a link that you may find useful. The link also has useful links.>>

http://www.ninds.nih.gov/disorders/peripheralneuropathy/detail_peripheralneuropa\

thy.htm

or

http://tinyurl.com/5jfhm

[Guest guest]

My pain in my hands isn't associated with peripheral neuropathy (PN) but from

the PsA. Even if you aren't sure it might work it may be worth asking you rheumy

for a sample to see if it gives you any relief.

Now my left leg is another story. I was in a bad car wreck 17 years ago

and have PN in my left leg. The nerves in that leg were messed up

badly. It's gotten better over the years as the nerves have healed some

but I still have a good bit of pain and the cream even works on my leg.

There are nights that if I didn't have it to use I would never get any

sleep.

Celeste

[Guest guest]

Lynn:  please keep us posted on how well the Voltaren Gel works. Hard to imagine

how it can work topically so it will be interesting to hear the follow up.    

 Joanna Hoelscher

[Guest guest]

Hi Bonnie,

I have often wondered had I not gone through the 2 plus years of myofascial

release if I would have improved on my own? I think not, only because I recently

meet the acquaintance of another woman who had revision 2 years before me. She

also developed nueropathy as a result of the surgery and she never improved. We

spoke about myofascial and she has been going for about four months now and sees

a marked improvement in her nerves and posturing, so, I guess, I am officially

an advocated especially with peripheral nueropathy. C

>

> Hi all,

>

> I, too, am a big fan of myofacial release. It's did wonders for me a few

years ago, with neuropathy and pain. It even helped with postural therapy.

>

> Bonnie

>

[Guest guest]

Hi all,I'm pre-revision, but I've been getting trigger point therapy and myofascial release weekly for about 6 weeks and I see an improvement in my posture and in my pain level.The trigger point therapy can be quite painful, although it's only about 10 seconds of pressure on each point, so it's manageable. To make it easier, my therapist recommended a regular massage immediately before he treats me. That helped a lot too.ShariOn May 4, 2009, at 4:21 PM, redmarmie wrote:Hi Bonnie,I have often wondered had I not gone through the 2 plus years of myofascial release if I would have improved on my own? I think not, only because I recently meet the acquaintance of another woman who had revision 2 years before me. She also developed nueropathy as a result of the surgery and she never improved. We spoke about myofascial and she has been going for about four months now and sees a marked improvement in her nerves and posturing, so, I guess, I am officially an advocated especially with peripheral nueropathy. C>> Hi all,> > I, too, am a big fan of myofacial release. It's did wonders for me a few years ago, with neuropathy and pain. It even helped with postural therapy. > > Bonnie>

[Guest guest]

I wish to say thanks to all who have contributed to this thread. Any replies by

those (lurkers) who have PN issues but have yet to publish on this topic would

be most welcome by me. Please come out of the shadows if you have any

experiences.

Thanks for clarifying, Celeste.

Brent

[Guest guest]

Hi Shari, C.,

I've been a patient of a wonderful physical therapist on and off for different reasons. I saw her last 4 years ago for continuing post revision pain and now I am seeing her again for shoulder surgery rehab. In between, about 2 years ago, I went to a different therapist who did myofacial release and cranial sacral therapy and thereby changed my posture. When I first saw the original therapist again several weeks ago to start my shoulder treatment, she watched me walk to the treatment room and exclaimed at how much my posture had improved since she last saw me 4 years ago. She was amazed at how tall and straight I was standing.

I don't know if this will make sense to anyone, but I think my muscles, ligaments, etc., "fought" revision surgery changes to my back, so that I stood pretty much as I did pre revision, which, in turn, kept me in considerable pain. I believe the myofacial therapy and cranial sacral therapy allowed me to free myself from my old, pre revision stance and stand erect per revision surgery. My kyphosis still makes my stance imperfect, but I am not so bent over anymore.

I still have pain that my pain doc takes care of, but I am in much better shape than I was 2 years ago, which was 9 years post revision.

Bonnie

[Guest guest]

Hi Bonnie,

I thoroughly agree that myofascial release helps with the " memory muscles " and

nerves, that crave to return to their original crippled state. My therapist was

very clear about the body going into trauma, from surgery until 3,6 months

sometimes a year later, these muscles " wake up " and the first thing they do is

try to reach their old state. Muscles and nerves have to be restretched and

retrained to hold our new bodies. I guess, it is one of the reasons that core

strengthening is so important but had it not been for the neuropathy I probably

would not have sought out a PT that could do myofascial release. It is nice to

stand tall again and to feel my toes again. C

>

> Hi Shari, C.,

>

> I've been a patient of a wonderful physical therapist on and off for different

reasons. I saw her last 4 years ago for continuing post revision pain and now I

am seeing her again for shoulder surgery rehab. In between, about 2 years ago,

I went to a different therapist who did myofacial release and cranial sacral

therapy and thereby changed my posture. When I first saw the original therapist

again several weeks ago to start my shoulder treatment, she watched me walk to

the treatment room and exclaimed at how much my posture had improved since she

last saw me 4 years ago. She was amazed at how tall and straight I was

standing.

>

> I don't know if this will make sense to anyone, but I think my muscles,

ligaments, etc., " fought " revision surgery changes to my back, so that I stood

pretty much as I did pre revision, which, in turn, kept me in considerable pain.

I believe the myofacial therapy and cranial sacral therapy allowed me to free

myself from my old, pre revision stance and stand erect per revision surgery.

My kyphosis still makes my stance imperfect, but I am not so bent over anymore.

>

> I still have pain that my pain doc takes care of, but I am in much better

shape than I was 2 years ago, which was 9 years post revision.

>

> Bonnie

>

[Guest guest]

Hi ,Your explanation makes sense to me. I've only been getting myofascial release and trigger point therapy weekly for 6-8 weeks, and immediately after each session, I can stand completely straight, not leaning forward nor to the right as I tend to do. (I cried with relief and amazement after the first session.) But after a few hours, things slide back to their comfortable (not straight) position because that's where the muscles are accustomed to being. He has given me stretches to do 3x/day, but I'm not strict enough with myself. Now that you've explained it like this, I'm going to try harder.I also need to lose at least 20 pounds. 30 might be even better. I'm only 4'11ish now (I was 5' 1/2" but I've shrunk) and weigh 145.  This is the heaviest I've ever been and I know it's taking a toll on my back. The last 10 pounds were gained over the past 5 years from lack of exercise and being in my mid-40s. Any suggestions from the group on successes you've had losing weight, and exercises or activities that worked for you? As I mentioned, I tried yoga to increase flexibility and strength, and I loved it, but that's what started my back's downward slide. I guess my muscles didn't react evenly or tightened up unevenly, which led to the pain.ShariOn May 5, 2009, at 8:29 PM, redmarmie wrote:Hi Bonnie,I thoroughly agree that myofascial release helps with the "memory muscles" and nerves, that crave to return to their original crippled state. My therapist was very clear about the body going into trauma, from surgery until 3,6 months sometimes a year later, these muscles "wake up" and the first thing they do is try to reach their old state. Muscles and nerves have to be restretched and retrained to hold our new bodies. I guess, it is one of the reasons that core strengthening is so important but had it not been for the neuropathy I probably would not have sought out a PT that could do myofascial release. It is nice to stand tall again and to feel my toes again. C>> Hi Shari, C.,> > I've been a patient of a wonderful physical therapist on and off for different reasons. I saw her last 4 years ago for continuing post revision pain and now I am seeing her again for shoulder surgery rehab. In between, about 2 years ago, I went to a different therapist who did myofacial release and cranial sacral therapy and thereby changed my posture. When I first saw the original therapist again several weeks ago to start my shoulder treatment, she watched me walk to the treatment room and exclaimed at how much my posture had improved since she last saw me 4 years ago. She was amazed at how tall and straight I was standing. > > I don't know if this will make sense to anyone, but I think my muscles, ligaments, etc., "fought" revision surgery changes to my back, so that I stood pretty much as I did pre revision, which, in turn, kept me in considerable pain. I believe the myofacial therapy and cranial sacral therapy allowed me to free myself from my old, pre revision stance and stand erect per revision surgery. My kyphosis still makes my stance imperfect, but I am not so bent over anymore.> > I still have pain that my pain doc takes care of, but I am in much better shape than I was 2 years ago, which was 9 years post revision.> > Bonnie>

[Guest guest]

Shari,

I think if you are looking for encouragement in the weight loss department you

should look no further than the photos section of the group. Check out Suzannes

(SB) photos. I know she will be glad to share her story, or you type her name in

the search box and come to posts about her success losing weight.

Ironically, the pending revision and her surgeons reservations about an anterior

surgery were what got her on the track to losing weight before her surgery. Her

commitment to get herself into the best shape possible really seems to have paid

off. You can read all the exciting adventures she has these days...marathons,

vacations, dancing...and all this from a gal who was using a scooter in the year

preceeding revision!

If you are in pain when you are doing anything weight bearing then you would be

well advised to consult your doctor about him signing you off for water based

exercise. There are any numbers of types that might be suited for your current

condition from a simple arthritis class to developing your own aqautic routine

(stationary/vertical or swimming). Some fitness centers or physical therapy

offices offer warm water therapy pools. The bottom line is to find a program

that works for you that you can commit to...and then do it! With or without

weight loss most of us have found water therapy to be extrememly helpful in

returning to a fairly high level of functioning after revision. I go 3x a week

as a rule, and if I miss a few session because I am travelling I always feel

much worse for it.

Good luck in your search.

Take Care, Cam