Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Hi Sheila Thank you so much for all of that information. I have checked the symptom list and while I do have quite a few symptoms, there are many many more that I don't have which makes me nervous about going back to the GP. I will have to do it because I do feel rotten and I can't cope with keep gaining weight for no particular reason. I've never seen an endocrinologist. I saw an ENT surgeon at the hospital and it was he who performed my partial thyroidectomy. The hospital did a blood test about 6 weeks after the surgery and then discharged me and told me that I would not need any more tests. The GP seems to agree with this. He did the test last year because I saw him a few times as I just felt unwell but couldn't quite put my finger on it, except that I was permanantly exhausted - that certainly hasn't changed. He sent me an email to tell me that 'the results are normal. This does not however explain your tiredness. Regards Dr H' And that was it. I've been back since and he keeps refering back to the test that was done over a year ago saying 'Well we've already tested your thyroid and that was fine'. My mum has many medical problems and she is possibly going to have to have her parathyroid gland/s removed - I'm not sure how closely these are linked to thyroid problems and whether these sort of things are hereditary. I too suffer from other problems. I have Crohn's disease (although yet again I get regularly fobbed off by the consultant as being " fine " ) and I suffer badly from IBS and constipation. I'm in quite a lot of pain as I type. I just need to pluck up the courage and energy to visit the doctor again. Don't get me wrong, he's no monster, but I hate the idea of going and almost questioning his opinion when it may just be that there is nothing wrong with me. I certainly don't feel like there's nothing wrong with me though! Anyway, I've rambled enough, but it is so good to have found somewhere that I can get advice from people who REALLY understand. Thanks again a x > > Hi a and welcome to our forum where I hope you get the support and > information you need. > > > > It is NOT sufficient that a GP tests your thyroid function only once a year, > especially after having a partial thyroidectomy. I would send a letter to > your GP with a copy to the Head of Practice. List all of your symptoms (you > can check yours against the list of symptoms in our web site > www.tpa-uk.org.uk ) and list alongside your basal temperature for say, 5 > mornings, before getting out of bed, and before drinking anything. Normal > temperature is 98.6. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Hi a, I suggest that you go to the files and look at the symptoms list there- everything you describe is there. Go back to the doc and get the figures for those blood tests along with the ranges. A healthy thyroid will show a TSH of around 1.0.- range 0.5 to 5.5 If he refuses to test again ask for a referral to an endo . Subject: Hi, I'm new Hello everyone. I had a partial thyroidectomy to remove a nodule in 2007. Following the surgery I had a blood test and was told all was fine and that I would need no further treatment and no further checks. My symptoms are that I'm constantly exhausted (although I do work full time and have 2 small children), grumpy and irritable (see point 1!), forgetful, Any advice or information would be most grateful as I'm fed up with feeling wretched! Thanks a x ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Hi a - you don't have to have ALL those symptoms, just some of them. The ones we listed are those that people who are hypothyroid have reported. We are all different, some get a lot, some get few, but if the symptoms you are experiencing are listed there, that is OK. Be brave and stick up for yourself - there is something that isn't right. I think what your surgeon failed to say was that when you were discharged, they should have told you that " hopefully, you will not need any more tests, but if you have symptoms, then you must get a full thyroid function test. I have never heard of a doctor referring to a year old test when his patient complained of symptoms of hypothyroidism. That is an absolute disgrace and should be reported to the Head of Practice. As mentioned previously, you might find it better to send a letter to your doctor listing your symptoms and requesting a full thyroid function test as those of a year ago are not telling the story of what is happening to you right now, and request a referral to an endocrinologist. Luv - Sheila Thank you so much for all of that information. I have checked the symptom list and while I do have quite a few symptoms, there are many many more that I don't have which makes me nervous about going back to the GP. I will have to do it because I do feel rotten and I can't cope with keep gaining weight for no particular reason. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2009 Report Share Posted April 30, 2009 Hi a, I think that your doc is taking the whole thyroid thing too lightly and is apparently unaware how devastating hypo can be-even when tests are apparently 'normal', but how normal is normal? Yes thyroid problems can be hereditary- I'm third generation in my family. Parathyroid glands regulate the use of calcium in the body- I wonder if she has asked what aftercare she will have to protect her bones if all four parathyroids are removed. I feel that as doc is unsympathetic you could write him a letter giving all you symptoms and asking for a referral to an endocrinologist who specialises in thyroid ( most are diabetes )and asking for the letter to be kept on file- copy to the head of practice. Not everybody has all the symptoms, but those you describe certainly are, but the TSg test is not as reliable as some docs would like to think. Subject: Re: Hi, I'm new ___________________________________________________________ Hi Sheila I've never seen an endocrinologist. 'Well we've already tested your thyroid and that was fine'. My mum has many medical problems and she is possibly going to have to have her parathyroid gland/s removed - I'm not sure how closely these are linked to thyroid problems and whether these sort of things are hereditary.. Don't get me wrong, he's no monster, but I hate the idea of going and almost questioning his opinion when it may just be that there is nothing wrong with me. I certainly don't feel like there's nothing wrong with me though! Anyway, I've rambled enough, but it is so good to have found somewhere that I can get advice from people who REALLY understand. Thanks again a x > > It is NOT sufficient that a GP tests your thyroid function only once a year, > especially after having a partial thyroidectomy. I would send a letter to > your GP with a copy to the Head of Practice. List all of your symptoms (you > can check yours against the list of symptoms in our web site > www.tpa-uk.org.uk ) and list alongside your basal temperature for say, 5 > mornings, before getting out of bed, and before drinking anything. ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2009 Report Share Posted October 31, 2009 > > My name is Roy. I joined the group last night after reading all of Bee's site and almost all the posts going back to 2004 which had the word " rash " in them. (Over 1300!) +++Hi Roy. Welcome to our wonderful group. , and thank you for sharing your story with all of us. <snip> Re: rashes: I know Bee would say they are toxins coming out. But if so, the toxins have been coming out for over a year now. Will I ever heal? I just want my life back. They make it painful to walk, exercise, sit, drive. Sorry for this horribly long post. I will never take up this much space again, but thought I should tell my story at least once. +++Thank you for sharing your story with all of us. We have all understand since we've " been there, done that. " +++Yes, there is hope for you! See this Success Stories about a lady has rashes all her life: http://www.healingnaturallybybee.com/success/ss60a.php +++Here's another lady who applied cod liver oil to her rash - of course she is also on my program: http://www.healingnaturallybybee.com/success/ss61a.php Here's another one: http://www.healingnaturallybybee.com/success/ss63a.php Roy, you can't go wrong following Nature's fundamental laws on health by providing your body with the nutrients it needs so it can heal itself naturally, the way Nature intended. Of course that includes eliminating toxins and foods that feed candida, and also eliminating toxins in general and damaging foods. I look forward to our consultation my friend. The best in health, Bee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 Don't wast your money. Skin tests are not definitive tests on full body saturation levels. http://www.optimox.com/pics/Iodine/updates/UNIOD-02/UNIOD_02.htm If you have a nodule on your thyroid you are deficient and more than likely toxic as well. You have fibromyalgia too that is helped with iodine. You need some magnesium and unrefined salt. You can find the companion nutrients for iodine supplementing on my website at www.naturalthyroidchoices.com Also you may wish to check out http://fibromyalgiarecovery.com/ Hi, I'm new I've been lurking, reading, trying to learn and get up the courage to try either lugol's or iodoral. I'm going to buy some 2% tincture of iodine and do an iodine skin test to determine if I have a deficiency. I have a multi-nodular thyroid that's hashi's negative, my free T3 was slightly low and my endo said it wasn't low enough to treat, but I have fibromyalgia symptoms of pain & insomnia, etc, and also cold feet, hair falling out.... so she may be wrong about treating the thyroid. Here are the instructions I found for an iodine skin test: http://www.noaw.com/Iodine%20Def/tincture_of_iodine.htm I'm taking a combo selenium with A, C, E & zinc by Carlson Labs. Also taking LDN which has helped a lot with the fibro pain, but I don't think it's helping the thyroid symptoms since it doesn't seem to be an autoimmune thyroid problem. Thanks! :DTamra in Gilroy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 Tamra: Thanks for this info..I am going to try it also. Debbie Ann Hi, I'm new I've been lurking, reading, trying to learn and get up the courage to try either lugol's or iodoral. I'm going to buy some 2% tincture of iodine and do an iodine skin test to determine if I have a deficiency. I have a multi-nodular thyroid that's hashi's negative, my free T3 was slightly low and my endo said it wasn't low enough to treat, but I have fibromyalgia symptoms of pain & insomnia, etc, and also cold feet, hair falling out.... so she may be wrong about treating the thyroid. Here are the instructions I found for an iodine skin test: http://www.noaw.com/Iodine%20Def/tincture_of_iodine.htm I'm taking a combo selenium with A, C, E & zinc by Carlson Labs. Also taking LDN which has helped a lot with the fibro pain, but I don't think it's helping the thyroid symptoms since it doesn't seem to be an autoimmune thyroid problem. Thanks! :DTamra in Gilroy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 That iodine skin test is not a reliable way of testing your body for deficiencies. You already have two to three things that you wrote in your e-mail that almost prove you are iodine deficient. from IllinoisFrom: debbie williamson <deb54@...>iodine Sent: Sat, January 9, 2010 6:37:39 PMSubject: Re: Hi, I'm new Tamra: Thanks for this info..I am going to try it also. Debbie Ann Hi, I'm new I've been lurking, reading, trying to learn and get up the courage to try either lugol's or iodoral. I'm going to buy some 2% tincture of iodine and do an iodine skin test to determine if I have a deficiency. I have a multi-nodular thyroid that's hashi's negative, my free T3 was slightly low and my endo said it wasn't low enough to treat, but I have fibromyalgia symptoms of pain & insomnia, etc, and also cold feet, hair falling out.... so she may be wrong about treating the thyroid. Here are the instructions I found for an iodine skin test: http://www..noaw. com/Iodine% 20Def/tincture_ of_iodine. htm I'm taking a combo selenium with A, C, E & zinc by Carlson Labs. Also taking LDN which has helped a lot with the fibro pain, but I don't think it's helping the thyroid symptoms since it doesn't seem to be an autoimmune thyroid problem. Thanks! :DTamra in Gilroy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 Yeah, thanks Steph...makes sense...wasn't thinking.. Debbie Ann Hi, I'm new I've been lurking, reading, trying to learn and get up the courage to try either lugol's or iodoral. I'm going to buy some 2% tincture of iodine and do an iodine skin test to determine if I have a deficiency. I have a multi-nodular thyroid that's hashi's negative, my free T3 was slightly low and my endo said it wasn't low enough to treat, but I have fibromyalgia symptoms of pain & insomnia, etc, and also cold feet, hair falling out.... so she may be wrong about treating the thyroid. Here are the instructions I found for an iodine skin test: http://www.noaw.com/Iodine%20Def/tincture_of_iodine.htm I'm taking a combo selenium with A, C, E & zinc by Carlson Labs. Also taking LDN which has helped a lot with the fibro pain, but I don't think it's helping the thyroid symptoms since it doesn't seem to be an autoimmune thyroid problem. Thanks! :DTamra in Gilroy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2010 Report Share Posted January 9, 2010 Hi , At the advice of a friend I joined the fibromyalgiarecovery.com group a few days ago. It looks very promising! I've been taking Magnesium Citrate for the last two years and also using both Celtic grey sea salt and Himalayan pink sea salt. Thanks for the naturalthyroidchoices link. I'll check it out to see what else I need to go along with the iodine. Tamra in Gilroy > > Don't wast your money. Skin tests are not definitive tests on full body saturation levels. http://www.optimox.com/pics/Iodine/updates/UNIOD-02/UNIOD_02.htm If you have a nodule on your thyroid you are deficient and more than likely toxic as well. You have fibromyalgia too that is helped with iodine. You need some magnesium and unrefined salt. You can find the companion nutrients for iodine supplementing on my website at www.naturalthyroidchoices.com > > Also you may wish to check out http://fibromyalgiarecovery.com/ > > > > > Hi, I'm new > > > > I've been lurking, reading, trying to learn and get up the courage to try either lugol's or iodoral. I'm going to buy some 2% tincture of iodine and do an iodine skin test to determine if I have a deficiency. I have a multi-nodular thyroid that's hashi's negative, my free T3 was slightly low and my endo said it wasn't low enough to treat, but I have fibromyalgia symptoms of pain & insomnia, etc, and also cold feet, hair falling out.... so she may be wrong about treating the thyroid. Here are the instructions I found for an iodine skin test: > > http://www.noaw.com/Iodine%20Def/tincture_of_iodine.htm > > I'm taking a combo selenium with A, C, E & zinc by Carlson Labs. Also taking LDN which has helped a lot with the fibro pain, but I don't think it's helping the thyroid symptoms since it doesn't seem to be an autoimmune thyroid problem. > > Thanks! > > Tamra in Gilroy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2010 Report Share Posted January 11, 2010 I'm not exactly new I just lurk and try to learn.What is MTHFR? thanks > > thanks and yes, I do have MTHFR. Didn't know it related to detox-the only > thing they knew when i was tested was cardio/clotting/stroke risk. > > Yes, celiac gives a lot of deficiencies-damaged gut-and also associated with > a lot of " separate " illnesses and problems. Geesh, can't even remember all of > them-dental problems, not having enamel form properly on teeth, thyroid, > pain, inflammation, fibro, fibrocystic stuff, miscarriages, increased chance of > Down Syndrome births, migraines, a ton of stuff I'd have to dig out to remember. > Been on the GF diet for 7 years and it helps. But still not " there " yet. My > daughters and I all feel the effects on thryoid if we get gluten-we take a > dive. That's why I'm hoping the iodine will be a helpful addition. Gluten > really gunks up the system (in addition to my other toxic issues) and hoping this > will all help me get more gunk out. When my thyroid levels go out of whack, > everything gets worse-pain, chemical sensitivity, etc. > > Haven't started iodine yet-still looking for a dr. and reading and thinking. > Don't want to jump in to fast before I know all the ropes and pitfalls. > > Someone on the list posted OT on NAC. I got some and tried it. Well, don't > take it at night! It's really loosened things up, made my cough worse and > keeping me up. But it's supposed to be good for the asthma. Tomorrow i'm taking > it early.' > Phyllis > **************New MapQuest Local shows what's happening at your destination. > Dining, Movies, Events, News & more. Try it out > (http://local.mapquest.com/?ncid=emlcntnew00000002) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 MTHFR is the name of a gene. You can have a defect in the C677T or A1298C. It is one of many genes that when defective can cause issues with the methylation cycle. www.heartfixer.com or Dr. Amy Yasko's site would give you a starting place to learn about this if you want to take it further. Deb > > > > thanks and yes, I do have MTHFR. Didn't know it related to detox-the only > > thing they knew when i was tested was cardio/clotting/stroke risk. > > > > Yes, celiac gives a lot of deficiencies-damaged gut-and also associated with > > a lot of " separate " illnesses and problems. Geesh, can't even remember all of > > them-dental problems, not having enamel form properly on teeth, thyroid, > > pain, inflammation, fibro, fibrocystic stuff, miscarriages, increased chance of > > Down Syndrome births, migraines, a ton of stuff I'd have to dig out to remember. > > Been on the GF diet for 7 years and it helps. But still not " there " yet. My > > daughters and I all feel the effects on thryoid if we get gluten-we take a > > dive. That's why I'm hoping the iodine will be a helpful addition. Gluten > > really gunks up the system (in addition to my other toxic issues) and hoping this > > will all help me get more gunk out. When my thyroid levels go out of whack, > > everything gets worse-pain, chemical sensitivity, etc. > > > > Haven't started iodine yet-still looking for a dr. and reading and thinking. > > Don't want to jump in to fast before I know all the ropes and pitfalls. > > > > Someone on the list posted OT on NAC. I got some and tried it. Well, don't > > take it at night! It's really loosened things up, made my cough worse and > > keeping me up. But it's supposed to be good for the asthma. Tomorrow i'm taking > > it early.' > > Phyllis > > **************New MapQuest Local shows what's happening at your destination. > > Dining, Movies, Events, News & more. Try it out > > (http://local.mapquest.com/?ncid=emlcntnew00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2010 Report Share Posted January 12, 2010 Forgot, you have to lick on heart care, then methyl cycle genomics. deb > > > > thanks and yes, I do have MTHFR. Didn't know it related to detox-the only > > thing they knew when i was tested was cardio/clotting/stroke risk. > > > > Yes, celiac gives a lot of deficiencies-damaged gut-and also associated with > > a lot of " separate " illnesses and problems. Geesh, can't even remember all of > > them-dental problems, not having enamel form properly on teeth, thyroid, > > pain, inflammation, fibro, fibrocystic stuff, miscarriages, increased chance of > > Down Syndrome births, migraines, a ton of stuff I'd have to dig out to remember. > > Been on the GF diet for 7 years and it helps. But still not " there " yet. My > > daughters and I all feel the effects on thryoid if we get gluten-we take a > > dive. That's why I'm hoping the iodine will be a helpful addition. Gluten > > really gunks up the system (in addition to my other toxic issues) and hoping this > > will all help me get more gunk out. When my thyroid levels go out of whack, > > everything gets worse-pain, chemical sensitivity, etc. > > > > Haven't started iodine yet-still looking for a dr. and reading and thinking. > > Don't want to jump in to fast before I know all the ropes and pitfalls. > > > > Someone on the list posted OT on NAC. I got some and tried it. Well, don't > > take it at night! It's really loosened things up, made my cough worse and > > keeping me up. But it's supposed to be good for the asthma. Tomorrow i'm taking > > it early.' > > Phyllis > > **************New MapQuest Local shows what's happening at your destination. > > Dining, Movies, Events, News & more. Try it out > > (http://local.mapquest.com/?ncid=emlcntnew00000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 Hi everyone, I'm new to the group and don't know where to begin. Just had an ARD meeting at my sons school for my son (8) speech when they brought up Aspergers. We are getting the school psychologist to observe him. I also set up a private evaluation at our local hospital in Dallas. After doing my own research I'm sure has Aspergers Syndrome. My mom and sister said they thought he had it, but never brought it up to me because they didn't want to hurt my feelings! I'm in overload with emotions, questions... We have three kids, 8,6 and 4. I'm a stay at home mom and my husband is an attorney. We are of Jewish faith. My son is such a sweet boy, but I'm so worried about him now. I just wanted to introduce myself and say " hi " to everyone. I know this will be a great source of support as we go though this journey. Thanks for reading... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2010 Report Share Posted March 15, 2010 HI laura! Welcome to the group!! I"m new here as well!!! I have a daughter that is 8 with Aspergers. I have been there with all those emotions as well. Hoping all your meetings go smoothly!! On Mar 15, 2010, at 2:54 PM, laurahobbs2000 wrote: Hi everyone, I'm new to the group and don't know where to begin. Just had an ARD meeting at my sons school for my son (8) speech when they brought up Aspergers. We are getting the school psychologist to observe him. I also set up a private evaluation at our local hospital in Dallas. After doing my own research I'm sure has Aspergers Syndrome. My mom and sister said they thought he had it, but never brought it up to me because they didn't want to hurt my feelings! I'm in overload with emotions, questions... We have three kids, 8,6 and 4. I'm a stay at home mom and my husband is an attorney. We are of Jewish faith. My son is such a sweet boy, but I'm so worried about him now. I just wanted to introduce myself and say "hi" to everyone. I know this will be a great source of support as we go though this journey. Thanks for reading... “Here's to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes... the ones who see things differently -- they're not fond of rules... You can quote them, disagree with them, glorify or vilify them, but the only thing you can't do is ignore them because they change things... they push the human race forward, and while some may see them as the crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.” - Steve Jobs Quote Link to comment Share on other sites More sharing options...
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