Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 how wonderful of you to arm yourself before the fact, before the doctors do a scare tactic on you with your inoccent child in your hands. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 At 03:12 PM 04/12/2000 -0700, you wrote: >Hello >My name is and I am new here. Actually I >don't have any vaccination stories to tell. I don't >even have children yet, but somehow bumped into the >idea of not vaccinating my future childern, and would >like to learn as much as possible about it before even >getting pregnant. This will allow for more time than >just 9 months to educate myself on this subject. >Thanks for having me, and I look forward to learning >like crazy! > That is EXCELLENT! Welcome, . Lots of us have thousands of articles and everyone here has much to share from experience and research. So glad you are thinking of this ahead of time - most people research more about a car or a washingmachine purchase than they do vaccines. Sheri -------------------------------------------------------- Sheri Nakken, R.N., MA wwithin@... Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin Bookstore - http://www.nccn.net/~wwithin/bookstor.htm International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2000 Report Share Posted April 12, 2000 Welcome to the list! I was so glad that someone mentioned vaccinations when I was pregnant with my first child. I researched for the rest of my pregnancy and now almost 5 years later I have two vaccine free children and this wonderful list! I'm sure many here wish they knew what they know now before they vaccinated their children. It is great that you are considering this so early! Hope you can keep up with all the e-mails! List Owner Hi, I'm new Hello My name is and I am new here. Actually I don't have any vaccination stories to tell. I don't even have children yet, but somehow bumped into the idea of not vaccinating my future childern, and would like to learn as much as possible about it before even getting pregnant. This will allow for more time than just 9 months to educate myself on this subject. Thanks for having me, and I look forward to learning like crazy! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2000 Report Share Posted July 2, 2000 At 11:29 PM 07/02/2000 -0000, you wrote: >Thought I should introduce myself. Mother of 3, partly immunised. >Gave up vaccinating a few years back (except when daughter trod on >rusty barbed wire in the middle of cow poo-tetanus shot). >Started questioning vaccinations when daughter was 15mths and had an >anaphylactic/anaphylactoid (they couldn't decide) reaction to what >was then the Measles/Mumps injection (pre MMR). Further questioned >the next year when 2mth old son reacted with hours-long screaming and >body stiffening to the DPT. Acquired eldest son at age 8yrs whose >history was normal until around age 2yrs from what we can gather. He >has Aspergers Syndrome. >Youngest son was also exposed to pesticides in large dose from >cropduster at age 5mths and was chronically ill with respiratory and >digestive problems until we found a terrific natural health clinic >about a year ago. Although he's been on diets, organic food, >supplements, etc. for years, the clinic achieved improvements in one >year that I had not been able to do. He showed large amounts of >mercury in his system from various tests not deemed acceptable by >conventional doctors. Taking the other kids shortly. >Meg Welcome, Meg. Thanks for sharing your story! Sheri > > >------------------------------------------------------------------------ >Life's too short to send boring email. Let SuperSig come to the rescue. >1/6137/10/_/489317/_/962580559/ >------------------------------------------------------------------------ > > -------------------------------------------------------- Sheri Nakken, R.N., MA ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin Bookstore - http://www.nccn.net/~wwithin/bookstor.htm International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education KVMR Broadcaster/Programmer/Investigative Reporter, Nevada City CA CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 In a message dated 12/20/00 11:41:27 PM Eastern Standard Time, liamm@... writes: << Who is the doctor in NJ you are using? Kathy >> Dr. Roman Finn. You in Jersey? My dentist in Manhattan is the best, the wholistic one that I use. She tried to point me towards acknowledging the candida but I thought it was all mercury since it happened so quickly. I did some ALA and a bit of DMSA, and lots of porphyrazyme (biotics) and msm and cabbage and stuff, but I think that I was well guarded anyways when the mercury went thru, it just still wreacked havoc on me internally. I am hoping against hope that the brain isn't too affected. My doc said I seriously need to improve my metabolism though. I'm very tiny (95 pounds and 5 '2) so I never thought I had a screwy metabolism. I do have absorption prob's I think. I also had a tetnus shot back in March (ick), but now I know all the evils of metals and vaccines, cookware etc. I forgot to add that I'm also drinking Pau D'Arco tea and Noni tea. Nastasya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 In a message dated 12/21/00 2:21:10 AM Eastern Standard Time, Sstuck@... writes: << I am interested in this doctor you talk about. What is this test you had done? I take it it isn't an everyday test? like not every doc would be able to do this test? If you could send me some more info privatly iw oukld be most grateful. I can't belive iams till upa nd my husband is sound asleep. I was just complaining this morninga bout how I can't stay awake ,now tonight I can't gettosleep even though Iam pretty tired right now. not fun. I gues smoney has me up. ooh fun. S. >> I'm having a bout of insomnia tonight as well. First at the doctors, I had a Tissue Mineral Analysis, which is a hair test. Cost 80 bucks and I had to send a specific hair sample to texas and they sent back report. Said my cal/mag were way too high, sodium and maganese way too low. It was mainly to show metal toxicity though. Which to my surprise I was more in the clear than I ever thought I could be. Next he took some blood, but those tests aren't back yet. Then I went back and this woman comes in and does what is called a Darkfield Microscopy test ( I just sent an email to explain that). She pricked my finger and without knowing jack about me started to look at the blood and spelled out my symptoms plain as day. Psoriasis, anxiety type problems, fatigue, joint pain, etc. Mind you she did not see my chart either. There is a poster on the wall there that shows what normal blood looks like and what blood looks like with fungus or cancer or anything else scary, and mine was definately fungus, I saw it myself. But she has to do a bit of research and consulting with my doctor to decide the entire course of action ( just had the test on Monday) but to start she gave me Dr. Crooks book on CFIDS and the Yeast Connection and told me to diet, take the caprylic acid and some other stuff in the meantime. My dried blood looked pretty good (comparing to the posters) but she was particularly surprised that I was nearly over the metal problem, as most patients she has are usually pretty severe with metal toxicity. Props to my dentist on that, she has a supplement assistant that was on it in a big way. I highly recommend getting this test if you can find someone that does it. I'm just darn lucky on this one. It was $120.00 including the book and some material and the consultation. Not bad. This test has been noted as being able to find cancer and diabetes much earlier in the game than any other test. She could even tell that I used to smoke pot. And I didn't have a habit either, just an occasional thing, goes to show ya that you do have a permanent record ay? She said she saw a bladder infection, which I had just had one, but over a month ago treated by a different doctor. She said it's still there. So much for Cipro, so I bumped up the ole garlic, even my cat is getting supplements now with garlic. One can never be too sure. I'm just glad I'm not allergic to him, believe me I was so tested. I just wish there was a quicker way to get over this without selling my first born ya know? Nastasya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 Nastasya, Thanks for sharing, very interesting story. I have heard that antibiotics can facilitate mercury transport into the brain when both exposures happen simultaneously. This is why children should never be vaccinated while taking antibiotics. It seems like you are on the right course for healing. Who is the doctor in NJ you are using? Kathy Hi, I'm new >Hello, I'm Nastasya. I'm 32 and live in the NYC area. > >I've been thru a hell of a ride since early May. > >I finally got dental benefits (yeah you know what's coming)but I have >a heart murmur so they always made me take antibiotics before they >would even take an xray. The dentist told me I had two cracked >fillings that needed to be replaced. I told him to make sure they put >white ones in cuz I had heard that amalgam is bad and that I have >psoriasis and have had since I got amalgam fillings as a kid. > >I had a weird attack in the chair, but it passed. Mind you I have >never had anxiety or depression. Two days later got my period and >could not stop vomitting, couldn't even keep water down so I called >the ambulance, got to the hospital just in time, I nearly kicked from >dehydration. > >Two days after that, I was at work, just came in from lunch yippy >skippy and then my heart started going nuts and my vision got weird >and I had to get out of there. I couldn't get to a dr. for two days >and my heart did not let up. > >I took vit's and acidophilus but nothing helped. The doc wrote me >off with anxiety and gave me ativan which knocked me out. But upon >consciousness the heart was still going. That was tested, so was my >blood, but nothing. Finally taking some sinus meds I could get back >to work but my vision/concentration/memory were just terrible. This >is not something that built up either, it dropped like a bomb. > >A month later I went back to the dentist and felt a bit worse and >then I made the connection to mercury. Joined a few lists online, >found a wholistic dentist, had my remaining mercury and two root >canals removed over the summer and into fall. But all the >supplements and everything still did not change the vision/mem/conc. >and exhaustion. > >I went doc to doc in my insurance plan trying to find stuff, but I've >been tested for everything, thyroid, lyme, lupus, had an MRI on my >eyes, but nothing changed. I ate tons of veggies and fruits and >whatnot, but nothing changed. > >Then October 30, I was at work, after lunch and I was upset cuz my >friend told me that I had to face that I was basically " mental " cuz I >wasn't able to make a plane trip to see my parents that week. The >more I cried (and I'm not a cryer) the more the room spinned. I >bolted out of work to home and have been on disability since. > >I had been seeing a psychologist during this whole time (since I got >sick in May)but now I had to see a psychiatrist. Back in May when >this started the first doc put me on celexa (a type of prozac)and one >day on that and I wanted to die. So I was scared to take anything >else but really thought I needed to. So I was put on Paxil, 5mg at >first. I was a wreck but then a bit calmer on this for a few days, >but then when I had to up it to 10mg after a week I got so bad I >truly wanted to die. I got off that and knew it just had to be >something else. > >So I asked on my metals list (another health list)about naturopaths, >and a guy that lives in my state helped me out to see this Russian >wholistic doc in North Jersey. > >I just had some blood tests done and one called the Darkfield >Microscopy test Monday. Now all the results aren't in yet but it was >clear on the scope ( I was present I saw it) that there is a fungus >in my blood. The chick doing my test didn't know anything about me >but she could tell everything by looking at the blood on the scope. >The psoriasis, the anxiety stuff everything. But she believes that >the fungus is candida so as of two days ago my epicurean lifestyle >was executed. I hate this, but I want my life back and will do >anything to get there. > >Luckily, I don't drink alcohol but I've never done well with >proteins, I feel starved after that, so the carb thing is going to be >hard. > >Right now I'm taking colon cleansing herbs, caprylic acid, olive leaf >extract, acidophilus, vit C, and E, MSM, hydrochloric acid, garlic, >cilantro oil, oregano oil, and chlorella. > >Oh also I had a hair test, showed that metals were not a problem, >same with the blood. The Darkfield test showed that I had dealt with >mercury and aluminum but that I was pretty much past it. An unusual >sighting apparently. > >So antibiotics set me up for the fall, but the mercury rush after the >dentist blew it up. My diet ensured it stayed that way. No matter >how healthy I was doing, it wasn't enough. > >So now I'm paying. Don't know what the doc will put me on when all >the results are done, but I hate this so far and hope that I can find >out any half way decent recipes out there so I don't have to feel >like I eat cardboard for lunch and dinner everyday. > >Sorry so long, >Nastasya > > > >Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 20, 2000 Report Share Posted December 20, 2000 I am interested in this doctor you talk about. What is this test you had done? I take it it isn't an everyday test? like not every doc would be able to do this test? If you could send me some more info privatly iw oukld be most grateful. I can't belive iams till upa nd my husband is sound asleep. I was just complaining this morninga bout how I can't stay awake ,now tonight I can't gettosleep even though Iam pretty tired right now. not fun. I gues smoney has me up. ooh fun. S. I may get stuck a lot in life, but at least I stick with it:) Hi, I'm new Hello, I'm Nastasya. I'm 32 and live in the NYC area. I've been thru a hell of a ride since early May. I finally got dental benefits (yeah you know what's coming)but I have a heart murmur so they always made me take antibiotics before they would even take an xray. The dentist told me I had two cracked fillings that needed to be replaced. I told him to make sure they put white ones in cuz I had heard that amalgam is bad and that I have psoriasis and have had since I got amalgam fillings as a kid. I had a weird attack in the chair, but it passed. Mind you I have never had anxiety or depression. Two days later got my period and could not stop vomitting, couldn't even keep water down so I called the ambulance, got to the hospital just in time, I nearly kicked from dehydration. Two days after that, I was at work, just came in from lunch yippy skippy and then my heart started going nuts and my vision got weird and I had to get out of there. I couldn't get to a dr. for two days and my heart did not let up. I took vit's and acidophilus but nothing helped. The doc wrote me off with anxiety and gave me ativan which knocked me out. But upon consciousness the heart was still going. That was tested, so was my blood, but nothing. Finally taking some sinus meds I could get back to work but my vision/concentration/memory were just terrible. This is not something that built up either, it dropped like a bomb. A month later I went back to the dentist and felt a bit worse and then I made the connection to mercury. Joined a few lists online, found a wholistic dentist, had my remaining mercury and two root canals removed over the summer and into fall. But all the supplements and everything still did not change the vision/mem/conc. and exhaustion. I went doc to doc in my insurance plan trying to find stuff, but I've been tested for everything, thyroid, lyme, lupus, had an MRI on my eyes, but nothing changed. I ate tons of veggies and fruits and whatnot, but nothing changed. Then October 30, I was at work, after lunch and I was upset cuz my friend told me that I had to face that I was basically " mental " cuz I wasn't able to make a plane trip to see my parents that week. The more I cried (and I'm not a cryer) the more the room spinned. I bolted out of work to home and have been on disability since. I had been seeing a psychologist during this whole time (since I got sick in May)but now I had to see a psychiatrist. Back in May when this started the first doc put me on celexa (a type of prozac)and one day on that and I wanted to die. So I was scared to take anything else but really thought I needed to. So I was put on Paxil, 5mg at first. I was a wreck but then a bit calmer on this for a few days, but then when I had to up it to 10mg after a week I got so bad I truly wanted to die. I got off that and knew it just had to be something else. So I asked on my metals list (another health list)about naturopaths, and a guy that lives in my state helped me out to see this Russian wholistic doc in North Jersey. I just had some blood tests done and one called the Darkfield Microscopy test Monday. Now all the results aren't in yet but it was clear on the scope ( I was present I saw it) that there is a fungus in my blood. The chick doing my test didn't know anything about me but she could tell everything by looking at the blood on the scope. The psoriasis, the anxiety stuff everything. But she believes that the fungus is candida so as of two days ago my epicurean lifestyle was executed. I hate this, but I want my life back and will do anything to get there. Luckily, I don't drink alcohol but I've never done well with proteins, I feel starved after that, so the carb thing is going to be hard. Right now I'm taking colon cleansing herbs, caprylic acid, olive leaf extract, acidophilus, vit C, and E, MSM, hydrochloric acid, garlic, cilantro oil, oregano oil, and chlorella. Oh also I had a hair test, showed that metals were not a problem, same with the blood. The Darkfield test showed that I had dealt with mercury and aluminum but that I was pretty much past it. An unusual sighting apparently. So antibiotics set me up for the fall, but the mercury rush after the dentist blew it up. My diet ensured it stayed that way. No matter how healthy I was doing, it wasn't enough. So now I'm paying. Don't know what the doc will put me on when all the results are done, but I hate this so far and hope that I can find out any half way decent recipes out there so I don't have to feel like I eat cardboard for lunch and dinner everyday. Sorry so long, Nastasya Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 In a message dated 12/21/00 4:02:54 PM Eastern Standard Time, Sstuck@... writes: << I think it was on this list that iwas told about cranberry pills, you can get them pure cranberry at the grocery store, healths tore.. If i feel a little burning or My hubby and I have had fun I take two amd I have been ok so far. just an FYI. I will defintaly be lookingf or a doctor thatd oes this kind of testing. Even if I have to drive to your doctor or fly or whatever. I will trya nd see hwat i can do here first though. S >> Where are you maybe I might know someone that knows someone ya know? Nastasya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 I think it was on this list that iwas told about cranberry pills, you can get them pure cranberry at the grocery store, healths tore.. If i feel a little burning or My hubby and I have had fun I take two amd I have been ok so far. just an FYI. I will defintaly be lookingf or a doctor thatd oes this kind of testing. Even if I have to drive to your doctor or fly or whatever. I will trya nd see hwat i can do here first though. S. I may get stuck a lot in life, but at least I stick with it:) Re: Hi, I'm new In a message dated 12/21/00 2:21:10 AM Eastern Standard Time, Sstuck@... writes: << I am interested in this doctor you talk about. What is this test you had done? I take it it isn't an everyday test? like not every doc would be able to do this test? If you could send me some more info privatly iw oukld be most grateful. I can't belive iams till upa nd my husband is sound asleep. I was just complaining this morninga bout how I can't stay awake ,now tonight I can't gettosleep even though Iam pretty tired right now. not fun. I gues smoney has me up. ooh fun. S. >> I'm having a bout of insomnia tonight as well. First at the doctors, I had a Tissue Mineral Analysis, which is a hair test. Cost 80 bucks and I had to send a specific hair sample to texas and they sent back report. Said my cal/mag were way too high, sodium and maganese way too low. It was mainly to show metal toxicity though. Which to my surprise I was more in the clear than I ever thought I could be. Next he took some blood, but those tests aren't back yet. Then I went back and this woman comes in and does what is called a Darkfield Microscopy test ( I just sent an email to explain that). She pricked my finger and without knowing jack about me started to look at the blood and spelled out my symptoms plain as day. Psoriasis, anxiety type problems, fatigue, joint pain, etc. Mind you she did not see my chart either. There is a poster on the wall there that shows what normal blood looks like and what blood looks like with fungus or cancer or anything else scary, and mine was definately fungus, I saw it myself. But she has to do a bit of research and consulting with my doctor to decide the entire course of action ( just had the test on Monday) but to start she gave me Dr. Crooks book on CFIDS and the Yeast Connection and told me to diet, take the caprylic acid and some other stuff in the meantime. My dried blood looked pretty good (comparing to the posters) but she was particularly surprised that I was nearly over the metal problem, as most patients she has are usually pretty severe with metal toxicity. Props to my dentist on that, she has a supplement assistant that was on it in a big way. I highly recommend getting this test if you can find someone that does it. I'm just darn lucky on this one. It was $120.00 including the book and some material and the consultation. Not bad. This test has been noted as being able to find cancer and diabetes much earlier in the game than any other test. She could even tell that I used to smoke pot. And I didn't have a habit either, just an occasional thing, goes to show ya that you do have a permanent record ay? She said she saw a bladder infection, which I had just had one, but over a month ago treated by a different doctor. She said it's still there. So much for Cipro, so I bumped up the ole garlic, even my cat is getting supplements now with garlic. One can never be too sure. I'm just glad I'm not allergic to him, believe me I was so tested. I just wish there was a quicker way to get over this without selling my first born ya know? Nastasya Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 I live in Southern Ct closest to Westerly RI o rMystic CT Kinda inbetween the two. i just found a great clinic we'll see whatthey send me. S. I may get stuck a lot in life, but at least I stick with it:) Re: Hi, I'm new In a message dated 12/21/00 4:02:54 PM Eastern Standard Time, Sstuck@... writes: << I think it was on this list that iwas told about cranberry pills, you can get them pure cranberry at the grocery store, healths tore.. If i feel a little burning or My hubby and I have had fun I take two amd I have been ok so far. just an FYI. I will defintaly be lookingf or a doctor thatd oes this kind of testing. Even if I have to drive to your doctor or fly or whatever. I will trya nd see hwat i can do here first though. S >> Where are you maybe I might know someone that knows someone ya know? Nastasya Send blank message to candidiasis-unsubscribeonelist if you want to UNSUBSCRIBE ! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 21, 2000 Report Share Posted December 21, 2000 Hi Nastasya - I'm in the NYC area, too - and would love to contact this doctor - could you provide me with telephone number, etc.? Also, I had the exact same experience as you (minus the dental) I was sick with a massive kidney infection, thought it had been treated, then two weeks later found myself at work with the walls closing in, room turning dark, heart going a mile a minute and palms sweaty. It was the scariest experience... furthermore, I went to doctors for over a year (I was previously living in London) before one suggested candida (and had to see a psychiatrist - as the endocrinologist was sure it was all in my head). Now I've started Nystatin and the diet... I will say my mental health has much improved, but my weight gain (put on 50 pounds in three months) and constipation still don't seem to be improving... any ideas how long it takes for everything to kick in? Another new member - Molly >From: Nastasya1@... >Reply-candidiasisegroups >candidiasisegroups >Subject: Re: Hi, I'm new >Date: Wed, 20 Dec 2000 23:50:38 EST > >In a message dated 12/20/00 11:41:27 PM Eastern Standard Time, >liamm@... >writes: > ><< Who is the doctor in NJ you are using? > Kathy >> > >Dr. Roman Finn. You in Jersey? > >My dentist in Manhattan is the best, the wholistic one that I use. She >tried >to point me towards acknowledging the candida but I thought it was all >mercury since it happened so quickly. > >I did some ALA and a bit of DMSA, and lots of porphyrazyme (biotics) and >msm >and cabbage and stuff, but I think that I was well guarded anyways when the >mercury went thru, it just still wreacked havoc on me internally. I am >hoping against hope that the brain isn't too affected. > >My doc said I seriously need to improve my metabolism though. I'm very >tiny >(95 pounds and 5 '2) so I never thought I had a screwy metabolism. I do >have >absorption prob's I think. > >I also had a tetnus shot back in March (ick), but now I know all the evils >of >metals and vaccines, cookware etc. > >I forgot to add that I'm also drinking Pau D'Arco tea and Noni tea. > >Nastasya _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 In a message dated 12/23/00 11:47:52 AM Eastern Standard Time, mollypadgett@... writes: << constipation still don't seem to be improving... any ideas how long it takes for everything to kick in? Another new member - Molly >> Hi, no I don't know how long it takes for things to kick in. How long once you started Nystatin did your mental health improve? Did you have whacky vision/concentration/memory problems too? That's my biggest complaint. My doc first got me on a colon cleanse with these herb tablets. I'm supposed to take as many as to get me going at least twice a day. Sometimes it doesn't do it so I take half of this aloe pill that I have. I bought these a month or so ago cuz I swear nothing worked. www.nexttonature.com is where I got em. I have to bring them in to the doc to make sure they are ok, I forgot last time. But they work. They were recommended to me on my " metals " list. My doc info is below: Roman E. Finn, MD 201-291-0401 He's in Paramus New Jersey. Nastasya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 My hair test showed me low in Maganese as well. What symptoms went away when you started back on it? But I'm scared of dmps, I heard major horror stories against it, most people I know favor dmsa. I have capotomer from Thorne which I used a bit. But my Darkfield test is pretty much considered even better than a dmps test and it agrees with my hair test. But I may take a dmps test just too make sure. Nastasya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 If you were exposed to mercury, and it got into your nervous system, it's still in there. Hair analysis is not conclusive, especially for mercury problems involving the nervous system. You need to find an alternative M.D. who will perform an analysis using DMPS chelation. Take care KB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 26, 2000 Report Share Posted December 26, 2000 See what I wrote here: message/candidiasis/5792 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2001 Report Share Posted January 31, 2001 Hi SusiePT, This post came through, no problem! The Expert Consensus Guidelines suggests therapy with children before medication and only adding medication if the OCD is severe or if there is a comorbidity that interferes with the clients ability to make change. This means - try the therapy and use meds only as necessary! The benefits of medication is that if the O's and C's are so intrusive in the client's life, the meds can help ease some of them, so that therapy can be conducted. The popular practice is to remain on medication for a long term so that the brain receive an efficient chemical boost. Then slowly remove them with the constant supervision of the therapist who helps deal with the anxiety. There are several new books on the market that you might want to look into: http://www.ocfoundation.org/ocf1110a.htm I recommend two new books that clearly explain ERP and how it works. One by Tamar Chansky, Ph.D. (an advisor to this list) and the other by Fred Penzel, Ph.D. Both are very easy to understand. I hope this helps .... take care, wendy in canada ==================================================== >1. Can therapy for OCD be successful without meds? Leanne's pediatric >neurologist had told me that Leanne would have OCD problems (based on >her echolalia and palilalia at the time of diagnosis), and that I >should use meds as " a last resort " since Leanne was so high >functioning. I have always felt that I have anxiety traits, and I do >the " checking " things found with OCD, but I have managed well without >medication or therapy. Is it reasonable for me to have Leanne try the >therapy without the meds? I am not opposed to using them if I find >that her symptoms progress to where they affect her functioning and >happiness, I just hesitate to start them when her symptoms don't seem >that severe. My husband was dx'd with TS at age 46, and he has done >well without meds. >2. I have read many books on TS including the Comings book and > " Shadow Syndromes " I have asked the library to get the OCD book by >March and Mulle, and the book on TS and Obsessions by Leckman and >Cohen for me- can you suggest other good books on OCD treatments that >would help guide me in making the best medication decisions for >Leanne? > Thank you for your time and patience. I would appreciate it if you >have any info. that could help me.-----SusiePT _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 I won't take up a lot of everyone's time ... just wanted to tell you welcome to the list! Glad you made it I hope you get as much off this list as I do ... but don't worry ... I don't post NEAR as much on here as I do on TSparents Peggikaye ... Oklahoma -- In @y..., susiept@4... wrote: > Hi folks! I am new to this group, and I am having problems posting > (this is my second attempt) > I have an 8 1/2 year old girl with TS (tics since age 2 1/2), heat > sensitivity, auditory processing, anxiety disorder, and now OCD. She > has never been on meds. > Leanne has always successfully suppressed her tics at school, and > released them at home. She has always been a happy child,who has been > successful in academics and socially (she has had a 504 accommodation > plan at school and done well with it). > With a recent bout of tic waxing, she started to " even up " (she > would touch the other side of her body in the same place when > touched), and to develop a fear about a monster in our toilets (she > would close the lid and put her foot on it when washing her face or > brushing her teeth, but it never stopped her from using the toilet.) > I took her to a psychologist who saw her when she was first dx'd > with TS at age 7, and the psychologist confirmed my impression that > it was OCD symptoms. She wanted to refer Leanne for a medication eval > and told me that doing therapy without medication for OCD " bordered > on malpractice " since meds were so successful and Leanne might feel > bad if the therapy failed. She did agree to try counseling only > first, at my insistance. > She had Leanne do " scripting " (March's program she told me- she > said she did not do ERP but did do CBT based on March's manual) and > Leanne tried the activity last night while flushing the toilet. Today > she was able to do her grooming activities with the toilet seat up > and said it wasn't too bad, but that she still is afraid to draw a > picture of the monster (something the counselor suggested) but that > she would try to work up to that. > My questions are this > 1. Can therapy for OCD be successful without meds? Leanne's pediatric > neurologist had told me that Leanne would have OCD problems (based on > her echolalia and palilalia at the time of diagnosis), and that I > should use meds as " a last resort " since Leanne was so high > functioning. I have always felt that I have anxiety traits, and I do > the " checking " things found with OCD, but I have managed well without > medication or therapy. Is it reasonable for me to have Leanne try the > therapy without the meds? I am not opposed to using them if I find > that her symptoms progress to where they affect her functioning and > happiness, I just hesitate to start them when her symptoms don't seem > that severe. My husband was dx'd with TS at age 46, and he has done > well without meds. > 2. I have read many books on TS including the Comings book and > " Shadow Syndromes " I have asked the library to get the OCD book by > March and Mulle, and the book on TS and Obsessions by Leckman and > Cohen for me- can you suggest other good books on OCD treatments that > would help guide me in making the best medication decisions for > Leanne? > Thank you for your time and patience. I would appreciate it if you > have any info. that could help me.-----SusiePT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2001 Report Share Posted July 29, 2001 Hi Terry, Looks like i get the honor of being the first one to welcome you to the board! Welcome. You'll find lots of loving, helpful people here. I have a 7 y.o. son (and 10 y.o. daughter) who is seeing a psychologist for sadness, anxiety, tactile defensiveness, and compulsions (although the doctor said he wouldn't be suprrised if the compulsions end up turning into OCD later on since our family has a motherlode of anxiety disorders). So I don't *see* in MIchael the worries that you see in your son (although I suspect they are there, because occasionally he'll say something that causes me to think he worries privately to himself). Unfortunately, I'm not the greatest source of information, but I just wanted to offer you a hearty welcome and tell you that you're in the right place. I'll llet some of hte other more experienced parents advise you on how to deal with the obsessions. And yes, they've often said that OCD symptoms get worse the closer the school year gets because stress brings it on again. My son, for instance, is struggling with his schoolwork so I'm expecting more symptoms as the school year nears. In fact, his doctor's receptionist said their appointment books fill up quickly in August for just that reason - the onset of school and more anxiety. -Jean ________________________________________________________________ GET INTERNET ACCESS FROM JUNO! Juno offers FREE or PREMIUM Internet access for less! Join Juno today! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Thanks for the Welcome, Jean! That's pretty telling if therapist's offices book up in August so fast. I guess being aware that our kid's anxiety will go up and why, is part of the battle right there. Ben is certainly in a different " place " emotionally right now, but he barely made it through the last few days of kindergarten. Lunchtime was when he would seem to have the worst trouble, so I was coming in and having lunch with him and his classmates, which would seem to help, but his teacher called me on the last full day of school about 1 hour after lunch and said he was so stressed that he was asking her " the questions " 2 to 3 times a minute. So I came and got him. I think it was breaking her heart as much as mine. She told me that her daughter spent a summer, after she graduated from college, convinced that she had kidney disease and was dying. Meds broke the cycle, but I think Mrs. D. could relate closely to what we were going through and our anxieties as parents watching and feeling helpless. She kept a VERY close eye on Ben during those last few months. Anyway, now I look forward to the new year and I don't see how he can make it through a whole YEAR unless we have a very clear plan for helping him. I'll check out the OCF web site again. I looked at it a while back, but that was before I knew what I know now. But I did check for CB therapists and support groups in the area - the closest support group is 3 hours away and there were no therapists listed :-( I did find a cognitive therapy center in Albany (I think it is just two therapists), but could find no information on them. I'll be calling today to see if they have any information they can send me on their practice. Terry > Hi Terry, > Looks like i get the honor of being the first one to welcome you to the > board! Welcome. You'll find lots of loving, helpful people here. I > have a 7 y.o. son (and 10 y.o. daughter) who is seeing a psychologist for > sadness, anxiety, tactile defensiveness, and compulsions (although the > doctor said he wouldn't be suprrised if the compulsions end up turning > into OCD later on since our family has a motherlode of anxiety > disorders). So I don't *see* in MIchael the worries that you see in your > son (although I suspect they are there, because occasionally he'll say > something that causes me to think he worries privately to himself). > > Unfortunately, I'm not the greatest source of information, but I just > wanted to offer you a hearty welcome and tell you that you're in the > right place. I'll llet some of hte other more experienced parents advise > you on how to deal with the obsessions. And yes, they've often said that > OCD symptoms get worse the closer the school year gets because stress > brings it on again. My son, for instance, is struggling with his > schoolwork so I'm expecting more symptoms as the school year nears. In > fact, his doctor's receptionist said their appointment books fill up > quickly in August for just that reason - the onset of school and more > anxiety. > -Jean > > ________________________________________________________________ > GET INTERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 In a message dated 10/15/2001 8:22:52 AM Eastern Daylight Time, alexande@... writes: Anybody having/had problems with sleep? If so, what did you do? Missy, I've always had sleep problems with my son, this is what we've done so far and results: Herbal - valerian etal.....no seeable results melatonin - seemed to make him more active at night 5 htp - has helped him sleep for longer periods but not all night (trying increasing dosages for effect currently) secretin - initially slept through night after 1st infusion, results lasted from 11/98 through summer when porcine (ferring) secretin in short supply and used synthetic, all other secretin effects remained but the sleep Calcium/magnesium - no effect seeable Ferber method - worked a little when he was 2, but all help lost when he moved out of crib. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 : Sounds like we're in the same universe w/ nothing working. I'll be sure to post what the sleep specialist advises us to do. Although his "we'll do the sleep study and maybe I can help you," left me with a sick feeling. Actually, I wanted to scream, "what do you mean MAYBE? It's a good thing I don't carry a gun, buddy! I'm the Mom of a kid with special needs AND I'm sleep deprived, and you want to say MAYBE?" ) Missy -----Original Message-----From: Lake260@... [mailto:Lake260@...]Sent: Monday, October 15, 2001 2:37 PMautism Subject: Re: [autism] Hi, I'm NewIn a message dated 10/15/2001 8:22:52 AM Eastern Daylight Time, alexande@... writes: Anybody having/had problems with sleep? If so, what did you do? Missy, I've always had sleep problems with my son, this is what we've done so far and results: Herbal - valerian etal.....no seeable results melatonin - seemed to make him more active at night 5 htp - has helped him sleep for longer periods but not all night (trying increasing dosages for effect currently) secretin - initially slept through night after 1st infusion, results lasted from 11/98 through summer when porcine (ferring) secretin in short supply and used synthetic, all other secretin effects remained but the sleep Calcium/magnesium - no effect seeable Ferber method - worked a little when he was 2, but all help lost when he moved out of crib. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2002 Report Share Posted March 1, 2002 Hi Marsha, I " m Terri, I was diagnosed with Hep-C July of last year, and started the Peg-Intron treatment in November. The people on this website our great. We all need support, and sometimes just someone that will listen. When I have unaswered questions, this is where I go. Even if they do not know, their love and support are very comforting. Hey Guys, I finally got the first bit of good news. I guess when I first started my treatments, my Hep-C count was 600,000.+. My last blood work showed it to be below 600. It helps to know my misery has not been in vain. God Bless everyone.....and take care. Love Terri Hi, I'm New > Hi, > > I just got a positive test for Hepatitis C and my doctor is going to > have me take a more thorough test. > > Here is my question: My biggest health problem is chronic headaches > (non-migraine) that are right across the top of my head. Does anyone > else experience this? Could this be a symptom of Hep C? > > The reason I ask is that I've suffered with these headaches and am > hoping that being treated for the hepatitis will help alleviate the > headaches. I don't want to have to deal with hepatitis and headaches > as two separate issues. > > I just got my results over the phone and I'm pretty upset. I don't > really think I'm at a late stage of hepatitis or my regular blood > tests would have indicated something (guessing). I had several > transfusions in 1988 so this isn't a total shock. > > Marsha > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 I have just joined your group and I have been reading all the emails I have received. I cannot believe how many people think the same way I do and how many different topics have been covered. I wondered if anyone out there has ever gone into the number of drugs that are being constantly pumped into our " old folk " . It is horrendous, they are the greatest guinea pigs the drug companies have and most of them have no say because they are in 'homes for the aged' or they are too afraid to speak out. So many die from experimental drugs and malpractice by the Doctor but when it happens " they were just old people and their time was up " . I find it pretty scary when I think that all of us have to grow old one day and how little say we will actually have when we are in their situation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2002 Report Share Posted October 30, 2002 Hi Charlie and thank you for your welcome, I do have one question that I can't find the answer to anywhere... please email me off-list someone if this is an obvious question. Anyway I have read a lot about PA and RA often being very hard to tell apart. Well, it was always pretty clear I didn't have RA (no heat, redness, swelling etc) and I had a blood test the other day showing a normal sed-rate (hope I got that right - a general test to look for inflammation anywhere in the body). The osteopath said before I got the result that a lack of elevation in this test wouldn't rule out PA, it would only rule out RA and other inflammatory joint problems. My question is, is it possible to have PA without inflammation and with a normal sed-rate? Is this a different kind of PA from the kind that is very like RA? I would also like to ask if it is possible to diagnose PA in the absence of psoriasis. I have nail pitting and I had some straange things going on with a toenail, but no skin problems. Like I said if these are obvious questions and anyone doesn't want to clog up the list telling me what I should already know, please email me off list at crana@... thank you all Rosie [Moderator's note: There is a blood test that can test for a " Rheumatoid Factor. " I don't know the technical name of the test (perhaps someone else can help out here), but a positive result indicates RA. A negative result doesn't necessarily rule out RA however. In any case, I was floored by your osteopath's implicit assumption that PA is not an inflammatory disease. I'm no doctor, but I've had this disease long enough to know that PA is indeed an inflammatory disease, and that high sed rates are usually typical during a PA flare-up. May I suggest that you consult a rheumatologist rather than (or in addition to), your osteopath? Ron] Charlie wrote: " Hi Rosie, I am sorry to hear that you may be joining us. A few things to remember this disease goes up and down. There are good days out there. If you have spacific questions you can always ask this group, there are so many knowledgable people here that can help. Good Luck, Charlie " Quote Link to comment Share on other sites More sharing options...
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