Re: shoes and fatigue

[Guest guest]

Hi - first of all, congratulations on your new job!! I think it take a

tremendous amount of courage to go into a new work environment when healthy

let alone with PA!

ok - shoes?? Well, Dr. Scholls, Dexter and a few others make walking shoes

which you may be able to wear with pants. Kmart sells soft mocassins/loafers

(I think it's their store brand) which come in very wide widths - I wear them

with dresses - not too stylish, but who cares? I need the comfort.

As far as fatigue - well, it never seems the doctors have an answer for that

one. I manage to do my 40 hours a week only because I try to eat fairly

healthy, take vitamins, drink a lot of water, and always always get 8 or more

hours of sleep a night. I can remember before PA going out on a work night

and coming into work the next day on about 3 hours of sleep (usually with a

hangover!) and doing fine - No more!! I would die without the 8 hours. But

I'm lucky - I seem to be about the only one in this group who doesn't have

problems with sleeping. Sleep is my pain release. Unless I'm in

excrutiating pain, I can usually drop off. Make sure you get enough sleep,

even if it means asking for some sleeping pills for the first week or so.

You'll do just fine:)

Good luck,

[Guest guest]

SARAH,

I DON'T KNOW ANY INFORMATION ABOUT SHOES THAT HELP I DO KNOW THAT I HAD TO GO

TO A WIDER WIDTH AND I NEVER BUY " CHEAP " SHOES BECAUSE THEY HURT. BASICALLY

I BUY VERY CUSHIONED SHOES BUT I DON'T PAY ATTENTION TO " BRAND NAMES " I JUST

TRY A WHOLE LOT OF LOT OF THEM ON BEFORE BUYING.

BUT I CAN TELL YOU THAT NO MATTER WHAT I DO THE FATIGUE THING (FOR ME ANYWAY)

NEVER GOES AWAY. EVEN WHEN I WAS TAKING AMBIEN FOR SLEEP AND SLEEP I DID I

WAS CONSTANTLY FATIGUES. SO MUCH SO THEY THOUGHT MAYBE THE AMBIEN WAS MAKING

THE FATIGUE WORSE. I HAVE BEEN ON AMITRIPTYLINE AND THAT ISN'T HELPING

ALTHOUGH THE DOCTORS SAY IT SHOULD BE BUT MAYBE JUST ON THE PAIN PART.

THE FATIGUE AND DEPRESSION ARE THE PITS - TOGETHER WITH THE PAIN IT TURNS TO

HELL.

DON'T MEAN TO SCARE YOU. NOT ALL OF US HAVE THE SAME SYMPTOMS. HOPEFULLY

YOUR DOCTOR CAN PRESCRIBE SOMETHING THAT WILL WORK FOR YOU.

YAWNING AGAIN,

CHICAGOLAND SHARON

[Guest guest]

Ryka makes shoes for women - they fit great.

[ ] shoes and fatigue

> Hey, all. I am starting a new job in about a week and am in a panic

> about two things. First, does anybody have any recommendations for

> shoes that won't kill?

[Guest guest]

sarahr@... wrote:

>

> Hey, all. I am starting a new job in about a week and am in a panic

> about two things. First, does anybody have any recommendations for

> shoes that won't kill?

I can't help with the fatigue question but I can with shoes! I really

love my clogs. They're by Haflinger. These days, what with a screwed-up

toe and wide feet anyway, they're all I wear. Except when I wear what I

call my Seattle shoes. (Which is where I bought them; Seattle has some

of the best shoe stores! And people who know how to _fit_ you! If you

possibly can, look up a store that has a pedorthist. World of

difference, I've found.) My Seattle shoes are so sturdy they'll probably

last into the next century; these are by Ariat and I know that's a brand

you can find lots of places, including department stores.

Other names for comfy shoes are Ecco, Mephisto, SoftSpots .... I know

others will post their favorites; good to get different names because we

all have different-shaped feet! For instance I love the look of Danko

(sp?) shoes but I can't fit into their clogs because of the way the

instep is shaped (theirs is for an instep that's low while mine's too

high), etc., etc. I also didn't do nearly as well with Birkenstocks as

with Ecco, yet others are just the opposite.

Good luck to you!

--Louise

[Guest guest]

Cobbie Cuddlers are great and they have many styles. Kmart carries them.

Almost better than tennis shoes. As far as fatigue... exercise. Good luck

on your new job.

jlc

[Guest guest]

--- I'm sorry I will not be able to help you with shoes. The

only shoes that I can stand to wear are from Walmart. They are

hanging on the end with thongs, slippers etc. They look like a solid

black or navy or red shoe (last year they had white rubber soles-

Really ugly) now with black rubber soles. They have a nice amount of

foam for the insole. But even in these my fight complain. They don't

have a heel , they are flat and that helps MY ankles,back and knees.

Maybe if you wear a long dress or pants you could get away with them

at work.They are only $9.99. As for the fatigue I can tell you what

helped me. For years I was so tired and was very anemic (iron and

pernecious) but felt much better after a total hysterectomy, BUT

then I had a terrible flare. I already had Fibromyalgia along with PA

and I seriously never left my house for two years. I spent 75% (some

days more) of the time in bed!!! If you knew me you would be shocked.

I love to go 100 miles per hour (not in car) and I am HYPER. Anyway I

finally gave in to more RX's out of sheer desperation. I started

taking Amitryptiline and I actually got some decent sleep.Three weeks

ago I went to a wonderful Pain Specialist she is wonderful and gave

me great hope. She does pain blocking and lots of other physical

therapy. Anyway she talked me out of Amitryptiline and started me on

TRAZODONE HYDROCHLORIDE. You have probably heard the concept of

getting into phase 4 deep sleep. They say that if you do not get to

deep sleep (as many of us do not due to pain) Your body cannot repair

the damage that you cause everyday to your muscles just by living.

Consequently your pain continues to worsen. But I can tell you that

these types of meds have helped me greatly since starting on one in

FEB. 2001. Not only does your fatigue lesson but my constant muscle

pain has improved as well. Unfortunately it doesn't seem to help my

joints much so when I use my newly improved energy my joints are

terrible. Oh well, any improvement is a good one-right? I was trying

to explain how different I felt to some family members I said it felt

like someone turned the lights on mentally and physically. All I can

say is that so far it has seemed to help me. Sorry so long it must be

my newly found energy!!! Have a Happy Day and hope everyone had a

special Mother's Day!!! Take care! DENA..., sarahr@a... wrote:

> Hey, all. I am starting a new job in about a week and am in a panic

> about two things. First, does anybody have any recommendations for

> shoes that won't kill? I have been living in my Nikes and my old

beat-

> up moccasins but this new job isn't the sort of place where you can

> wear those. I would love to be able to venture out into the world

of

> malls and shoestores forearmed with recommendations from all of you-

-

> nobody with normal ankles can really ever quite appreciate what

it's

> like to hobble around all day fantasizing about having your feet

> amputated for Christmas. My arthritis is doing its annual thing of

> summering in my ankles and feet already.

> The other question I have is this: does anybody have any

suggestions

> for ways to alleviate, even a little, the fatigue that seems to be

a

> big part of this disease? I really want to make a good impression

on

> my new employers and something tells me that lying down on the

floor

> every two hours and groaning won't do the trick. I have been

working

> from home for a while, where no one knows if I am working and lying

> in bed at the same time, but those days are over. My doctor doesn't

> seem to quite understand that the fatigue is as big a part of this

as

> the pain.

> I am amazed at how practical and how cheering it is to participate

in

> this group. Thank you, everyone, for being here. I wish I had known

> about you all years ago. Of course that would have been easier if I

> had had a diagnosis years ago!

> Stone

>

>

> [

[Guest guest]

Hi. I too love to live in my Nikes & New Balance but I have found

that Dansko makes a wonderful shoe (The Professional model is what I

have)) in many different colors. Personally, I think they are ugly

but people are always saying they like them (maybe they're just being

polite) but they are soooo comfortable. After you wear them a few

days they form to your feet & I think they feel better than my Nikes,

etc. You can look at them at www.dansko.com Unfortunately the model

I wear is $90 (that's pretty rich) but I like them so well, I have

them in three colors. I work part time as an RN & they help me make

it. Hope that helps & best wishes at your job!

> Hey, all. I am starting a new job in about a week and am in a panic

> about two things. First, does anybody have any recommendations for

> shoes that won't kill? I have been living in my Nikes and my old

beat-

> up moccasins but this new job isn't the sort of place where you can

> wear those. I would love to be able to venture out into the world

of

> malls and shoestores forearmed with recommendations from all of you-

-

> nobody with normal ankles can really ever quite appreciate what

it's

> like to hobble around all day fantasizing about having your feet

> amputated for Christmas. My arthritis is doing its annual thing of

> summering in my ankles and feet already.

> The other question I have is this: does anybody have any

suggestions

> for ways to alleviate, even a little, the fatigue that seems to be

a

> big part of this disease? I really want to make a good impression

on

> my new employers and something tells me that lying down on the

floor

> every two hours and groaning won't do the trick. I have been

working

> from home for a while, where no one knows if I am working and lying

> in bed at the same time, but those days are over. My doctor doesn't

> seem to quite understand that the fatigue is as big a part of this

as

> the pain.

> I am amazed at how practical and how cheering it is to participate

in

> this group. Thank you, everyone, for being here. I wish I had known

> about you all years ago. Of course that would have been easier if I

> had had a diagnosis years ago!

> Stone

>

>

> [

[Guest guest]

, How dressy or professional do your shoes need to be? I swear by Doc

Martens, 's and of course Birkenstocks. June

[ ] shoes and fatigue

> Hey, all. I am starting a new job in about a week and am in a panic

> about two things. First, does anybody have any recommendations for

> shoes that won't kill?