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Re: New Poll!!

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In a message dated 3/24/01 8:27:26 PM Pacific Standard Time,

Bubbasee@... writes:

<< Sorry I didn't include the link for the first poll i created so here

it is:

/surveys?id=604180

Thanks again for your vote!

>>

Interesting that so far the largest percentage of voters polled are in the

health care type of employment. Before I became disabled I was an RN working

as a Public Health Nurse. ---------Deborah

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I am an RN also. I am down to working eight hour days which my coworkers can't seem to understand. (The normal shift is 12 hours in the ED.) Strange, you would think if anyone would understand, they would.

I can't seem to reach the poll either.

Thanks, Judith from Mi.

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In a message dated 3/25/01 7:36:57 PM Pacific Standard Time, clonan@...

writes:

<< In a message dated 3/25/01 2:49:51 AM Central Standard Time,

writes:

> Re: New Poll!!

>

> Deborah, I tried to find the poll, but can't get into it through

> .... Any suggestions?.... FYI, I am also an RN--- worked in critical

> care fields for 20+ years. Case Management for the past few since the PA

> took it's toll. There seems to be a lot of us with PA....

>>

Did you try the web address that he included in the email about the poll?

Here it is again for your convenience:

/surveys?id=612627

Is this the one you mean? If not, write back and let me know or contact the

group leaders. And it does seem to be a type of correlation between PA and

health care workers or nurses. I wonder if anyone has done a study? Take

care. Hope I helped any. Oh, there is another poll also he wrote us, if the

one above is the wrong one, tell me, because I have the other URL also.

------Deborah

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Hi. I was diagnosed about 3 yrs ago. I have been having symptoms-pain, stiffness, so bad I couldn't walk in the am, couldn't sleep because of the pain. Then I had a couple of tendons rupture, one in my finger then one in my ankle. Both for over a year before the Drs. finally paid attention. I kept going to the Dr. and they sent me home on pain meds that never worked. I eventually had surgery on my ankle, ruptured posterior tibial tendon. They have no idea how that happened and neither do I. No injury that I can remember. I also have a ruptured tendon in my first finger of my right hand.

No idea how that happened either. I had started getting this rash that wouldn't go away. I got the diagnoses of PA just because they ruled out everything else. I am now on MTX and vioxx (which really helped me). The rash is still here, mostly on my scalp but appears now and then wherever it wants to. The fatigue is endless, which is the most frustrating thing for me. And the mental fog I seem to be in, glad to hear other speak of it too. (thought I was just getting stupid) Work is very difficult because it is so physically demanding but I keep hoping it is good for me, kind of like exercise. Thank God my husband is the world's best. I used to be so independent and now I have to ask for help - with everything. At least he feels needed now.

Write if you have questions, this group is wonderful for the info they make available. Let's us all know we are not crazy.

Good Luck, Judith from Mi.

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FROM: NANCY2NURSE

I AM BEGINNING TO WONDER WHAT IS GOING ON. SEEMS LIKE

NURSES SUCH AS MYSELF KEEP POPPING UP WITH THESE

MEDICAL PROBLEMS. WILL EVERYBODY TELL ME WHAT OTHER

SORT OF MEDICAL PROBLEMS THEY ARE HAVING ALONG WITH P

AND PA? I AM CURIOUS ABOUT WHAT TO EXPECT. I

RECENTLY HAVE HAD VERY GOOD LUCK WITH CONTROLLING MY

PAIN BY CHANGING MY DIET. I HAVE SO MANY OTHER

SYMPTOMS THAT I AM FRIGHTENED AND NEED SUPPORT. HELP

FRIENDS, THIS IS A SCAREY SITUATION. I AM ON MY OWN

AND HAVE NOT HELP. NANCY2NURSE@....

--- JUICETRN@... wrote:

> I am an RN also. I am down to working eight hour

> days which my coworkers

> can't seem to understand. (The normal shift is 12

> hours in the ED.) Strange,

> you would think if anyone would understand, they

> would.

> I can't seem to reach the poll either.

> Thanks,

> Judith from Mi.

>

__________________________________________________

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In a message dated 3/26/2001 10:00:52 PM Eastern Standard Time, nancy2nurse@... writes:

WILL EVERYBODY TELL ME WHAT OTHER

SORT OF MEDICAL PROBLEMS THEY ARE HAVING ALONG WITH P

AND PA?

Hi - I'm in with the "we have every immune disorder known to man" group. I have PA, diabetes, allergies -

and now, once again, kidney stones (which aren't related to the PA, but are a royal pain in the butt!)

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:

Food allergies, low back problems, fatigue and cognitive fog. Looking at fybro now...

Re: [ ] Re: Re: New Poll!!

In a message dated 3/26/2001 10:00:52 PM Eastern Standard Time, nancy2nurse@... writes:

WILL EVERYBODY TELL ME WHAT OTHER SORT OF MEDICAL PROBLEMS THEY ARE HAVING ALONG WITH P AND PA? Hi - I'm in with the "we have every immune disorder known to man" group. I have PA, diabetes, allergies - and now, once again, kidney stones (which aren't related to the PA, but are a royal pain in the butt!)

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  • 4 weeks later...
Guest guest

> Hi. I was diagnosed about 3 yrs ago. I have been

> having symptoms- pain, stiffness, so bad I couldn't

> walk in the am, couldn't sleep because of the pain.

> Then I had a couple of tendons rupture, one in my

> finger then one in my ankle. Both for over a year

> before the Drs. finally paid attention. I kept

> going to the Dr. and they sent me home on pain meds

> that never worked. I eventually had surgery on my

> ankle, ruptured posterior tibial tendon. They have

> no idea how that happened and neither do I. No injury

> that I can remember. I also have a ruptured tendon

> in my first finger of my right hand. No idea how

> that happened either. I had started getting this rash

> that wouldn't go away. I got the diagnoses of PA

> just because they ruled out everything else. I am

> now on MTX and vioxx (which really helped me). The

> rash is still here, mostly on my scalp but appears now

> and then wherever it wants to. The fatigue is

> endless, which is the most frustrating thing for me.

> And the mental fog I seem to be in, glad to hear other

> speak of it too. (thought I was just getting stupid)

> Work is very difficult because it is so physically

> demanding but I keep hoping it is good for me, kind of

> like exercise. Thank God my husband is the world's

> best. I used to be so independent and now I have to

> ask for help - with everything. At least he feels

> needed now. Write if you have questions, this group

> is wonderful for the info they make available.

> Let's us all know we are not crazy.

> Good Luck,

> Judith from Mi.

Hi Judith,

I am from MI as well and am wondering if you have found a doctor that

you like. I am also wondering what exercise you do. My husband has

PA and has a physically demanding job. It has been difficult for him

to find exercise that doesn't cause further swellling.

Thanks for sharing,

Krista

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