Re: dovonex

[Guest guest]

Hi arjay,

I have dovonex at home. Do you apply the creme directly on the nail, do you

put some under the nail.

What is your technique.

Thank's for the tip.

.

[Guest guest]

Ron,

I have been using dovonex for several years and is the only thing that works

for me. My P is steroid resistant type of P.

LeAnn & Blossom

Heart Bandits American Eskimo Dog Rescue

Railroad Coordinator

www.heartbandits.com

[Guest guest]

ron wrote:

> ....anyone else have good luck with the Dovonex?

>

Yes, I do pretty much. Have been using it for about two years, _supposed_ to be

twice a day per

doctor's recommendation but sometimes I either don't do it twice or -- when

things look pretty

good or whatnot, not at all. When I do it per doc's orders it keeps the spots

smoothed and

faded out. Some have even gone away, though I must admit my P is the mildest now

it's been in

decades.

Louise

Tucson

[Guest guest]

Hi ,

I am in KY,so I kind of know your weather!

We have been having 80 and 90 degree weather here the past few days,

today is supposed to be only in the 60's!

My dh (who has PA) loves the hot weather.He says he doesn't hurt as bad.

We don't usually have tornadoes because of all the mountains.

I will definitly keep your son in our prayres.

My 13 yo gilr has always had passing out spells.First one was when she was 2.

It's scary but she's ok.

Have a great day

Jenn A

[Guest guest]

in Ohio,

Our prayers are with you and your family. Sure

hope that all goes well with your Son.

God bless,

Pat

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[Guest guest]

Sorry, I just posted to in Ohio and it's

. There must be a out there who

needs prayers too, huh?

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[Guest guest]

Dovonex has worked wonders for me. But only if I put it on the red

patches at night, cover with saran wrap (plastic wrap/film), tape

down the edges of the plastic wrap with masking tape & leave it on

all night (careful to remove tape slowly in the morning so as not to

irritate the surrounding skin). After a few months of doing this,

the patch are usually gone or almost gone. It really works!! Nothing

else worked before dovonex.

PS. I wrote a little post yesterday about mouth sores. The rheumy

seemed to imply that they are related to PA somehow (not just a

result of the meds). I'm looking for more info on this if anyone

knows more about it. I just want to clarify - I was referring to

canker sores, the little painful white dots inside the mouth & on the

tounge that are sensitive to acidity. These are not the same as cold

sores/herpes mouth sores that some people get on the outside of their

mouth or lips.

Sharon

>

> > Has anybody been given dovonex? If anyone has, can you tell me

if it's

> > worked very well. He gave me some of that yesterday for my

> > scalp.Thanks! Robin

> >

>

> Hi--I've been using Dovonex cream (in vaseline, that is) for years

for the

> patches on my body, along with Denorex shampoo for scalp psoriasis.

The two

> nicely keet the psorasis at bay so that it _almost_, at times,

becomes a

> non-issue in my life.

> If I use Dovonex once a day, it slows down the spreading of the

patches. If

> I use it four times a day, it heals the patches slowly but surely--

but it's

> best to keep on using it for awhile after the patches seemed

healed. But

> sometimes I just get sick of the whole thing, ignore it for awhile

or just

> use it occasionally, and then I have to start over. Though it takes

> persistance, a nice thing about Dovonex is that it never seems to

lose its

> effectiveness, and if you aren't using megadoses, appears to be

harmless.

>

> Now that I can't get coal tar shampoos here in Italy and my

visiting

> relatives from CA can no longer bring me Denorex (would you like me

to

> bring you anythng? Yes, Tar Shampoo!), I've tried Dovonex lotion

(in an

> alcohol solution) for the scalp. Works pretty well but only if I

use it at

> least a couple times a day. So the next time I am in a

country/state that

> sells coal tar shampoo I will stock up--Denorex shampoo was the

best for

> the scalp.

>

> For those who are new to psoriasis--be very careful about doctors

who toss

> you a bottle or tube of cortisone! Topical cortisone can be used

only

> intermittently (some use it on the weekends?) Otherwise, the P,

after

> seeming to clear, will come back with a vengence.

> I went to an ear doc last year with blocked up ears--turned out it

was

> build-up from P scales and wax inside the ear canal! I could not

convince

> the doc that daily use of his cortisone lotion was not the

solution. Oh

> brother. I don't expect them to know everything, but they should

not argue

> with the experience of chronic patients! Anyway, now my ears get a

dose of

> Dovonex in alcohol too.

>

> Maureen in Italy

[Guest guest]

Orin,

Below are two inexpensive occlusion suits for $12 and $25

respectively. The third is more expensive at $60.

-- Ron

http://temp.gobizgo.com/slim-ez/Lightweight%20Occlusion%20Suit.html

http://temp.gobizgo.com/slim-ez/Heavyweight%20Occlusion%20Suit.html

http://www.delasco.com/pcat/cBProd.asp?c=Psoriasis%

5FTreatments & a=Sleep%5FSauna%5FCons & b=dlmis021

> This question may be a little racy for this forum

> but has anyone ever worn a fetishists PVC outfit?

> looks like that might work pretty well. I looked into

> a " sauna suit " but they were pretty expensive and I didnt

> want to spend the money without knowing how effective it

> would be. Orin

[Guest guest]

> Does the thin skin from topical steroid return to normal after

> discontinuation of the steroid? Orin

Mine skin has returned to normal in a few spots where the psoriasis

has gone away (i.e., has been gone for 12 years). In other spots

where the psoriasis is stubborn (i.e.,disappears for a while, then

returns), the skin bleeds easily -- but that may be caused by the

psoriasis, not the topical steroid.

[Guest guest]

At 20.57 12/11/02, you wrote:

>I've been using dovonex for about a week. I have P all over my

>scalp. It's hard to just put it where the P is. Will it make the skin

>too thin and bleed where I don't have any P? How do you know when to stop

>applying it if you can't see it? Just a few questions I was thinking

>about last night. I don't want to hurt my scalp after all this.

>Robin

Robin, you are confusing Dovonex with topical steroid ointments. They are

the ones that thin your skin; Dovonex has no steroids.

Most people tolerate Dovonex in vaseline for years; it never seems to lose

its (slow) effectiveness, though it can irritate slightly, for instance on

the more delicate face skin.

The Dovonex-in-alcohol solution, which won't grease up your hair, may tend

to dry out your skin and irritate, but this is not the same as the thinning

of topical steroid ointments (which tend to make my P rapidly _worse_ if I

use it for more than a day or two).

I occasionally use the ointment at night, and the alcohol solution in the

daytime. But you might want to use a coal tar shampoo if they are available

where you live.

Maureen