Re: Digest Number 3

October 1, 1998

Hi All,

Wow we all have good stuff to share, I want to share some experience I have

had with

meds;

Re: Cyclosporin (aka Neoral) and MTX combination. I used it myself for over a

year,

with fair to good results - My doses were high at the end - 50 mg MTX/wk and

400 mg

Neoral a day. The Neoral is a big pill that comes foil wrapped and it smells

like a skunk.

Re: Folic Acid It is my understanding that it is standard practice to take 1

mg a day

EXCEPT FOR THE DAY OF YOUR MTX DOSING. This will ward off mouth sores,

and the like. It also helped me personally to get my red blood cell count

back up.

When I took MTX I had some problems with a low RBC- but only trouble with the

liver

once.

RE: MTX Toxicity It happened to me after two years of being on a real high

dose,

the symptoms were horrible headaches, ache all over, and rotten blood work.

Since

Then I can't take Metho - I guess I reached my life time maximum dose.

Re: MTX It takes 6-8 weeks to kick in at first. For me, it took about 2-3

weeks for any

increases to manifest relief. Once I got above a dose of 15 mg, my doctor

switched

me to a shot once a week instead of pills. It bothers the stomach less.

RE: Nausea I have found both Zofran and Kytril very effective. You need to

take them

a few hours before the shot or pills though, and keep up with the dosing for

24 hours

in my personal experience.

God Bless you all,

October 1, 1998

On Thu, 1 Oct 1998 11:12:21 EDT, CTNATIVE@... wrote:

>From: CTNATIVE@...

>

>Hi All,

>

>Wow we all have good stuff to share, I want to share some experience I have

>had with

>meds;

>

>Re: Cyclosporin (aka Neoral) and MTX combination. I used it myself for over a

>year,

>with fair to good results - My doses were high at the end - 50 mg MTX/wk and

Fifty mg WOW! my Rd said I could go as high as 20mg and that's it.

>Re: MTX It takes 6-8 weeks to kick in at first. For me, it took about 2-3

>weeks for any

>increases to manifest relief. Once I got above a dose of 15 mg, my doctor

>switched

>me to a shot once a week instead of pills. It bothers the stomach less.

>

>RE: Nausea I have found both Zofran and Kytril very effective. You need to

>take them

>a few hours before the shot or pills though, and keep up with the dosing for

>24 hours

>in my personal experience.

How do you know that the MTX is starting to work? I've been on it for

16 weeks now, and I'm not sure it's doing anything! Heck, it don't

even make me nauseous! : )

Steve

http://www.zoomnet.net/~steve

October 2, 1998

Hi ,

My hair started falling out at 7.5mg, and continues at 15mg, not mouth sores

though. *knock on wood*

Anyone know how to stop this side effect? I've heard grapeseed extract, but

no one knows for sure whether or not it's really effective.

Thanks,

Trish

October 2, 1998

Steve Ratliff wrote:

snip

>

> How do you know that the MTX is starting to work? I've been on it for

> 16 weeks now, and I'm not sure it's doing anything! Heck, it don't

> even make me nauseous! : )

>

> Steve

> http://www.zoomnet.net/~steve

Well Steve,

For me it was no morning stiffness any more from 1-2 hrs. of stiffness

to none, no swelling in my knees or wrists which before were very

enlarged, being able to bend my fingers in a fist again, along with

increased energy and generally just feeling more like my old self.

This happened at 15 mg. which I built up to over 3 months. I was lucky.

Had a flare a year ago this past summer and went to 17.5 mg per week for

four months when my hair started to fall out so I've been back on 15 mg.

for one year since then with no problem but recently am having some

mouth sores. My RD said I could try going down to 12.5 mg. since I'm

stable right now. I'll let you know if that gets rid of the sores.

Cheers,

January 26, 2000

Please subscribe me!! This address at Midvale@... and sabrait@...

Thanks

Sara COhen

>>> <onelist> - 01/26/0 8:27 AM >>>

---------------------------

January 26, 2000

Our doctor recommended melatonin in a dose of 3-5 mg. at bedtime for Elie. Elie

weighs 149 approx today.

Sara

>>> <onelist> - 01/26/0 8:27 AM >>>

---------------------------

January 26, 2000

Okay.......now I'm REALLY mixed up......why am I receiving the posts

individually and on one page where I have to scroll down?

Are we still getting the " old list " ?????????

January 26, 2000

Lauri "

Thanks so much for your comments on the Melatonin.....we're using Benadryl

but I saw what Melatonin did to my best friend when I went to NYC last

November...she slept like a baby on that stuff!!

You're right......you can buy it over the counter in supermarkets and at GNC

stores....will try tonight......wish me luck...by the way, can I get a copy

of that article that you mentioned it was in?

Thanks again,

January 26, 2000

Hi , The article with Melatonin in can be accessed at www.medscape.com.

You need to register, its free. Go into the psychiatric area and type in

area of interest as autism and it comes up. Hope it helps. Lauri

January 26, 2000

hey lau ra, hope the melatonin helps sean and MOSTLY HELPS YOU

SLEEP..............

January 27, 2000

OKAY DONT KNOW WHATS UP WITH THE LIST BUT I HAVE BEEN UNSUSCRIBED TWICE AND

HAVE DONE NOTHING RONG

\

January 27, 2000

Leah:

forward me the notice you received.

thx.

j

At 11:05 PM 1/27/00 EST, you wrote:

>From: Okieleah@...

>

>OKAY DONT KNOW WHATS UP WITH THE LIST BUT I HAVE BEEN UNSUSCRIBED TWICE AND

>HAVE DONE NOTHING RONG

>\

>

>---------------------------

June 27, 2001

HI ALL

I've been battling the flu or hep c who knows. Fever, GI and on and

on. I heard that a new treatment is being released in july. one shot a

month and 4 pills a day, don't know anything else about it. Tx lasts for

12 months. I will try to find out more an let you know. have a good day

all.

June 28, 2001

Never heard of the new treatment......Please keep us updated as to what

it is......I am really interested........

Angel Hugs,

Diane

June 28, 2001

Sounds like what I went through a couple of weeks ago,

it lasted almost 3 weeks, hopefully you'll get past it

more quickly. From all I've heard, that seems to come

and go at it's own schedule. I started out horrible,

then I thought it was a breeze (slight exaggeration)

for a couple of months and then it got worse again and

now it's better.

The new therapy sounds like peg-intron. I think the

number of pills (ribavarin) depends on your weight. I

take 6 per day on the standard combo. -dz-

--- moonchild74@... wrote:

HI ALL

I've been battling the flu or hep c who knows.

Fever, GI and on and on. I heard that a new

treatment is being released in july. one shot a

month and 4 pills a day, don't know anything else

about it. Tx lasts for 12 months. I will try to find

out more an let you know. have a good day all.

__________________________________________________

June 17, 2002

In response to Tony's question; I, myself, am interested in the isolated

compounds. I feel that, of course, it is not at all in the same balance as

that harvested from natural materials as either absolutes or essential oils.

But those are so VERY complex, that I would certainly appreciate the

opportunity to experience the isolates. It would let me know more about the

complete essential oil.

I wouldn't mind knowing about some suppliers for these. It's a very

complex subject and I know I'd be doing a lot of studying to make any sense

of it.

-- L Wakefield, owner and operator of the beastly truck heretik, that

refuses to stay between the lines when parking --

> Date: Mon, 17 Jun 2002 09:29:08 +0100

> From: " Tony Burfield " <nodice@...>

> Subject: Isolates anyone??

>

> Can I test the water here? How does this Natural Perfumery group feel

about

> using natural isolates? Should materials like geraniol ex Palma oil,

> linalol ex Lavender oil, orange oil terpeneless, cedarwood terpenes,

> vetiverol (fractions of vetiver oil rich in sesquiterpene alcohols) etc.

> etc. be used in Natural Perfumery/ Or are are we taking a more " holistic

> approach " using " complete oils " . What does everyone think?

>

> I have my own views but I'd like to hear those of others first. In fact it

> is a bit a of Catch-22 question, as the whole area is riddled with quite a

> lot of " hypocrisy " , but I'm not out to catch anyone out, or to score

points.

> I just that it concerns a large number of useful natural materials, which

> could considerably extend what it is possible to achieve in Natural

> Perfumery. Or then, possibly not.....!

>

> Tony.

July 24, 2003

Hi Annette, I thought the expeller pressed cno from India was supposed to be

centerfused and the oil and water were seperated in this process ant the

temp from pressing didn't go above 98 degrees.

Why aren't you posting on s list ;0) ? Its really funny!! s

been on every food list that I belong to and spammed the group by

advertizing his products and calling his site an open forum for discussion

of CNO yet he guards his site like a little yorkie snarling at anyone that

may attempt to answer a health question that reccomends an alternative

that may conflict with the products that he is now selling. I'm not talking

about a competitors product just an option! There used to be alot of

informed posters there but he's chased them all off except the sicophants.

So I had to chuckle when when you posted some info about CNO and got an

immediate hit from .

Thanks for starting a CNO discussion group where everyones CNO can be

discussed including Annettes. And maby you 'll take up " "

<catrinidad@...> on her offer to sell her CNO, maby Annette will as

well .....

> From: " Annette Fischer " <annette@...>

>Subject: Re: Re: coconut scents and expeller pressed coconut oil

>

>Coconut water, for the most part does not have any fats in it. I am

>familiar with the frozen coconut water from the Philippines and we are

>currently working on getting in Buko juice (coconut water) in tetra paks

>from the Philippines. Coconut Water is the water from young coconuts, not

>mature coconuts, and 8 oz will typically have about 90 calories. There are

>typically 0 grams of fat, 23 gms of carbohydrates (most of which are

>simple sugars) and there are 0 gms of protein. If sugar is added the

>carbs will be higher. (Coconut oil is made from mature coconuts and coconut

>water comes from young coconuts. As the coconut matures the carbohydrates

>decrease and the fat content increases.)

>

>The biggest draw to coconut water is that it is very alkalinizing. One of

>the reasons is that it is so high in potassium. It also contains Sodium and

>Calcium. These are all minerals that alkalinize the system. This is the

>stuff they used for IV solution in WWII. It is isotonic, meaning it is

>similar in molecular compatibility to the plasma of the blood. It is a far

>better electrolyte replacement than such things as Gatorade or PowerAde,

>etc and it is naturally sweet. You can ferment coconut water just as you

>do kefir with good micro organisms. It clouds as the cultures grow and get

> " fizzy " like a soft drink.

>

>There is some truth to the argument that most virgin coconut oil processes

>separate the water from the oil and in that water layer there would be many

>water soluble vitamins and minerals. This applies, as far as I know, to

>the fermentation processes in the Philippines and the centrifuge process in

>India. The only oil that does not see lots of heat, yet should retain

>those minerals, would be the DME process (Direct Micro Expeller). Most of

>that oil comes from the South Pacific, islands like Fiji and Samoa. There

>is suppose to be a plant in the Caribbean, a few in Mexico and some have

>even been put up in Africa. However, the DME oil sold in the US I believe

>all comes from Fiji and Samoa. The reason I believe the minerals and water

>soluble vitamins are likely to still be intact is that the freshly grated

>meat is tumble dried in about 30 minutes at about 100 degrees F. The

>moisture is driven off and then the oil is put into a hand press and

>pressed out. There is never a water layer. In the other two processes you

>actually have a layer of oil that is separated from a layer of water. So in

>these processes it seems likely the water soluble vitamins and minerals

>would remain in the water layer.

>

>If you are a low carb person then coconut milk and coconut cream do not

>have the carbs while coconut water would probably only be allowed if it was

>your only carb and you would have to be somewhat careful. If you are a

>person who really likes to be alkaline and your focus is more on that and

>trace minerals, then coconut water might compliment the coconut oil and

>other things in your diet. Coconut water, coconut milk and coconut cream

>are all wonderful bases for shakes and smoothies. But as far as something

>refreshing on a hot summer day, my preference would be lots of cold coconut

>water but my husband is a milk drinker and he prefers the coconut milk.

>

>It is very interesting to me that buko juice(coconut water) is considered

>very healthy in the countries where coconuts grow, yet there is no lauric

>acid and no fats. This means to me that as healthy as the medium chain

>fatty acids are, there is more health than that to be gained from the

>coconut.

>

>Annette

_________________________________________________________________

Add photos to your messages with MSN 8. Get 2 months FREE*.

http://join.msn.com/?page=features/featuredemail

July 24, 2003

-Well, my goal is to provide a truely open forum . I love the alternative ideas

and they are welcome here.Knowledge is mean to be shared!

But please, lets not knock anyone. s site is his . This one is OURS.It can

be whatever we make it.

IN NC

-- In coconutoil_open_forum , " Day " <chastsr@h...> wrote:

> Hi Annette, I thought the expeller pressed cno from India was supposed to be

> centerfused and the oil and water were seperated in this process ant the

> temp from pressing didn't go above 98 degrees.

> Why aren't you posting on s list ;0) ? Its really funny!! s

> been on every food list that I belong to and spammed the group by

> advertizing his products and calling his site an open forum for discussion

> of CNO yet he guards his site like a little yorkie snarling at anyone that

> may attempt to answer a health question that reccomends an alternative

> that may conflict with the products that he is now selling. I'm not talking

> about a competitors product just an option! There used to be alot of

> informed posters there but he's chased them all off except the sicophants.

> So I had to chuckle when when you posted some info about CNO and got an

> immediate hit from .

> Thanks for starting a CNO discussion group where everyones CNO can be

> discussed including Annettes. And maby you 'll take up " "

> <catrinidad@h...> on her offer to sell her CNO, maby Annette will as

> well .....

>

> > From: " Annette Fischer " <annette@w...>

> >Subject: Re: Re: coconut scents and expeller pressed coconut oil

> >

> >Coconut water, for the most part does not have any fats in it. I am

> >familiar with the frozen coconut water from the Philippines and we are

> >currently working on getting in Buko juice (coconut water) in tetra paks

> >from the Philippines. Coconut Water is the water from young coconuts, not

> >mature coconuts, and 8 oz will typically have about 90 calories. There are

> >typically 0 grams of fat, 23 gms of carbohydrates (most of which are

> >simple sugars) and there are 0 gms of protein. If sugar is added the

> >carbs will be higher. (Coconut oil is made from mature coconuts and coconut

> >water comes from young coconuts. As the coconut matures the carbohydrates

> >decrease and the fat content increases.)

> >

> >The biggest draw to coconut water is that it is very alkalinizing. One of

> >the reasons is that it is so high in potassium. It also contains Sodium and

> >Calcium. These are all minerals that alkalinize the system. This is the

> >stuff they used for IV solution in WWII. It is isotonic, meaning it is

> >similar in molecular compatibility to the plasma of the blood. It is a far

> >better electrolyte replacement than such things as Gatorade or PowerAde,

> >etc and it is naturally sweet. You can ferment coconut water just as you

> >do kefir with good micro organisms. It clouds as the cultures grow and get

> > " fizzy " like a soft drink.

> >

> >There is some truth to the argument that most virgin coconut oil processes

> >separate the water from the oil and in that water layer there would be many

> >water soluble vitamins and minerals. This applies, as far as I know, to

> >the fermentation processes in the Philippines and the centrifuge process in

> >India. The only oil that does not see lots of heat, yet should retain

> >those minerals, would be the DME process (Direct Micro Expeller). Most of

> >that oil comes from the South Pacific, islands like Fiji and Samoa. There

> >is suppose to be a plant in the Caribbean, a few in Mexico and some have

> >even been put up in Africa. However, the DME oil sold in the US I believe

> >all comes from Fiji and Samoa. The reason I believe the minerals and water

> >soluble vitamins are likely to still be intact is that the freshly grated

> >meat is tumble dried in about 30 minutes at about 100 degrees F. The

> >moisture is driven off and then the oil is put into a hand press and

> >pressed out. There is never a water layer. In the other two processes you

> >actually have a layer of oil that is separated from a layer of water. So in

> >these processes it seems likely the water soluble vitamins and minerals

> >would remain in the water layer.

> >

> >If you are a low carb person then coconut milk and coconut cream do not

> >have the carbs while coconut water would probably only be allowed if it was

> >your only carb and you would have to be somewhat careful. If you are a

> >person who really likes to be alkaline and your focus is more on that and

> >trace minerals, then coconut water might compliment the coconut oil and

> >other things in your diet. Coconut water, coconut milk and coconut cream

> >are all wonderful bases for shakes and smoothies. But as far as something

> >refreshing on a hot summer day, my preference would be lots of cold coconut

> >water but my husband is a milk drinker and he prefers the coconut milk.

> >

> >It is very interesting to me that buko juice(coconut water) is considered

> >very healthy in the countries where coconuts grow, yet there is no lauric

> >acid and no fats. This means to me that as healthy as the medium chain

> >fatty acids are, there is more health than that to be gained from the

> >coconut.

> >

> >Annette

>

> _________________________________________________________________

> Add photos to your messages with MSN 8. Get 2 months FREE*.

> http://join.msn.com/?page=features/featuredemail

July 25, 2003

Thanks Annette,

And I appreciate those of you with lots of coconut experience and knowledge

who are willing to share it with th rest of us.

IN NC

> > Hi Annette, I thought the expeller pressed cno from India was supposed to

be

> > centerfused and the oil and water were seperated in this process ant the

> > temp from pressing didn't go above 98 degrees.

> > Why aren't you posting on s list ;0) ? Its really funny!!

s

> > been on every food list that I belong to and spammed the group by

> > advertizing his products and calling his site an open forum for discussion

> > of CNO yet he guards his site like a little yorkie snarling at anyone that

> > may attempt to answer a health question that reccomends an alternative

> > that may conflict with the products that he is now selling. I'm not

talking

> > about a competitors product just an option! There used to be alot of

> > informed posters there but he's chased them all off except the sicophants.

> > So I had to chuckle when when you posted some info about CNO and got an

> > immediate hit from .

> > Thanks for starting a CNO discussion group where everyones CNO can

be

> > discussed including Annettes. And maby you 'll take up " "

> > <catrinidad@h...> on her offer to sell her CNO, maby Annette will as

> > well .....

> >

> > > From: " Annette Fischer " <annette@w...>

> > >Subject: Re: Re: coconut scents and expeller pressed coconut oil

> > >

> > >Coconut water, for the most part does not have any fats in it. I am

> > >familiar with the frozen coconut water from the Philippines and we are

> > >currently working on getting in Buko juice (coconut water) in tetra paks

> > >from the Philippines. Coconut Water is the water from young coconuts,

not

> > >mature coconuts, and 8 oz will typically have about 90 calories. There

are

> > >typically 0 grams of fat, 23 gms of carbohydrates (most of which are

> > >simple sugars) and there are 0 gms of protein. If sugar is added the

> > >carbs will be higher. (Coconut oil is made from mature coconuts and

coconut

> > >water comes from young coconuts. As the coconut matures the

carbohydrates

> > >decrease and the fat content increases.)

> > >

> > >The biggest draw to coconut water is that it is very alkalinizing. One

of

> > >the reasons is that it is so high in potassium. It also contains Sodium

and

> > >Calcium. These are all minerals that alkalinize the system. This is the

> > >stuff they used for IV solution in WWII. It is isotonic, meaning it is

> > >similar in molecular compatibility to the plasma of the blood. It is a

far

> > >better electrolyte replacement than such things as Gatorade or PowerAde,

> > >etc and it is naturally sweet. You can ferment coconut water just as you

> > >do kefir with good micro organisms. It clouds as the cultures grow and

get

> > > " fizzy " like a soft drink.

> > >

> > >There is some truth to the argument that most virgin coconut oil

processes

> > >separate the water from the oil and in that water layer there would be

many

> > >water soluble vitamins and minerals. This applies, as far as I know, to

> > >the fermentation processes in the Philippines and the centrifuge process

in

> > >India. The only oil that does not see lots of heat, yet should retain

> > >those minerals, would be the DME process (Direct Micro Expeller). Most

of

> > >that oil comes from the South Pacific, islands like Fiji and Samoa.

There

> > >is suppose to be a plant in the Caribbean, a few in Mexico and some have

> > >even been put up in Africa. However, the DME oil sold in the US I

believe

> > >all comes from Fiji and Samoa. The reason I believe the minerals and

water

> > >soluble vitamins are likely to still be intact is that the freshly grated

> > >meat is tumble dried in about 30 minutes at about 100 degrees F. The

> > >moisture is driven off and then the oil is put into a hand press and

> > >pressed out. There is never a water layer. In the other two processes you

> > >actually have a layer of oil that is separated from a layer of water. So

in

> > >these processes it seems likely the water soluble vitamins and minerals

> > >would remain in the water layer.

> > >

> > >If you are a low carb person then coconut milk and coconut cream do not

> > >have the carbs while coconut water would probably only be allowed if it

was

> > >your only carb and you would have to be somewhat careful. If you are a

> > >person who really likes to be alkaline and your focus is more on that and

> > >trace minerals, then coconut water might compliment the coconut oil and

> > >other things in your diet. Coconut water, coconut milk and coconut cream

> > >are all wonderful bases for shakes and smoothies. But as far as

something

> > >refreshing on a hot summer day, my preference would be lots of cold

coconut

> > >water but my husband is a milk drinker and he prefers the coconut milk.

> > >

> > >It is very interesting to me that buko juice(coconut water) is considered

> > >very healthy in the countries where coconuts grow, yet there is no lauric

> > >acid and no fats. This means to me that as healthy as the medium chain

> > >fatty acids are, there is more health than that to be gained from the

> > >coconut.

> > >

> > >Annette

> >

> > _________________________________________________________________

> > Add photos to your messages with MSN 8. Get 2 months FREE*.

> > http://join.msn.com/?page=features/featuredemail

>

July 25, 2003

,

I truly appreciate the way you are handling the group. I think it is wonderful

that you are encouraging an open forum and allowing us all to share with one

another.

Annette

Re: Re: coconut scents and expeller pressed coconut oil