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Re: Digest Number 313

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, PA

> sufferers tend to be on very low doses, typically 7.5 - 17.5 mg, once a

> week

I found this remark interesting and the fact that MTX usually works for PA

sufferers. My doctor has told me that also. i have been on MTX since March

1998. PO for the first 4 months and IM ever since. It hasn't done much of

anyhting at all, hasn't even touched the P spots as the doctor says usually

happens. I take 20 mg and have been on that dose for a year or more. You

that know me, know there are many more drugs than that. I wonder why it

hasn't helped me, or for that matter, why nothing else has. Sometimes I

begin to think that this is all in my head and I possibly can't be having

the kind of pain I do because this stuff is suppose to work.

While I'm here, let me ask a question. Can a person's narcotic pain

releivers start to NOT work anymore, I mean that it isn't enough? I have

been on codeine contin for quite some tiome. The last increase was to 150 mg

three times a day..it never took all the pain away, but it was better.Some

days I was down to 1 tylenol#3 a day. This week has been awful..5-6

tylenol#3. I had some 200 mg codeine contin left over and the doc had once

suggested 200mg Three times..so I took it on my own last night and this

am..200 mg. I was a bit less sore this am..took 1 tylenol..and seem ok now.

So, could my 150 mg stop working or what??

...I HATE having pain..really getting tired of it..it limits

everything I do or want to do

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, I also am a RN with PA and little P. I do remember 40 yrs ago a male

patient that was only skin and bones from terminal cancer. I gave him a shot

of morphine in the arm. There was only bone and no muscle. I can still hear

the sound (to me) when that needle hit the bone. You are right. I

apologized as I felt sooo bad. He said he never felt it, and I really did

believe him, but I sure do remember. Betty in Va

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  • 6 months later...
Guest guest

Welcome Katy to the list and congratulations on the birth of your twins! And

you have an older one too.......three's a crowd! I have a son who will be 6

in June, and my b/g twins are 3 1/2. Hope you all get well soon, and stay

well! Again, welcome.

love debbi

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  • 3 months later...

Dear Leigh and ,

I love your site! I enjoyed reading about the babies. You have done such

a great job here. Such distinct personalities your angels have right

from the start. Thank you for sharing the stories and letting us share

the joy.

Bless you all,

Dorie

MY PAGES

Dorie's

Find it Page

Find it Page Two

Dorie's Geneology

Links

Medical links

Craft

Links

Recipes,

Recipes, Recipes

Dorie's

F-keys for gifs,backs,midi

Dorie's

f-key link Heaven

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Page

Debbie's Page

My

Folder Dumpster #1My Folder Dumpster #2

My Folder

Dumpster #3

The Litter Box

My

Friend....

click here to see

A gift from Rob,

thanks Pooh Pot

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  • 2 years later...
Guest guest

Hey, ,

Prayers for your grandson's surgery to be successful and as pain-free as

possible.

Prayers also, for the families of the young men who lost their lives

recently on a fishing trip. Life is so unpredictable, and these things

remind us to live life to the fullest, every day!

Jackie

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Guest guest

We are all thrilled the POW's are safe let us PRAY that some MIA's be found

alive ! They are all in my prayers,

from MO

Re: Digest Number 313

> Hey, ,

> Prayers for your grandson's surgery to be successful and as pain-free

as

> possible.

> Prayers also, for the families of the young men who lost their lives

> recently on a fishing trip. Life is so unpredictable, and these things

> remind us to live life to the fullest, every day!

> Jackie

>

>

>

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  • 1 month later...
Guest guest

,

some answers from someone living abroad for your paper. see my answers in red.

1. What do you know about Samter's?all the pain and symptoms with it. same details as provided by Tami.

2. Do you know how many people or a percent of people who have Samter's?no, but never met someone who has it.

3. What things have you found to be helpful, such as foods, medicain,

activities, ect. that help your symptoms?- medicine mostly (Singulair, nasonex, rhinocort, anti-histaminics).

in case of urgency: onix12 (asthma) and zyrtec for rhinitis reaction

- I tried natural medicine (acupuncture, homeopathy, naturopathy) for 5-6 years and did not get any meaningful results.

- saline water rincage

- getting mroe sleep

- less dusty place

4. What have you found that makes your symptoms worse?

Alcohol, a real bad cold, humidity, air conditioning

5. When were you diagonised?

at age 16 after a severe aspirin reaction that nearly cost my life

6. Has a major event occured because of Samter's, such as a bad allergic reaction to aspirin, or something else?

c.f. answer to point 5

7. What do you think about Samter's? same as Tami.

8. How do you get Samter's? Are you born with it? Or is it because you have really bad allergies?no clue but hope my children do not end up in the same mess as I am in.

7. Anything else I could put in my paper for my interview part.Please write your e-mail address and I would appreaciate a first and last name too!drouin@...

Anne Drouin

Good luck. Anne

>>> <samters > 05/20/03 03:08pm >>>

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