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Hello ! I am Sally Jo aka SJ and I live in Terre Haute, Indiana. It was nice to read your post as this list has sure been quiet since I joined it. I was really beginning to wonder if the members had abandoned it or something to that effect. What is your survey all about? I am going to check out your website now. Take care and perhaps the others on this list will chime in, so I know who all is here.

Always,

SJ

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Wow a . . . Argentina. What a wonderful country to live in. I've always wanted to visit Rio. I'm Sally Jo aka SJ and I live in Terre Haute, Indiana, USA. I'm glad you posted . . . perhaps the rest will come out of hiding? I hope so!

Always,

SJ

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SJ,

Hello I am Donna. I live in Arkansas.

I am mostly a lurker seeking new or improved info to post at my web site.

I had my test redone yesterday to see if I am still in remission. I was in

Jan after 18 months of combo hell.

I am just starting to feel like living and I still feel awful, I have been 7

months off the crap. I am beginning to wonder about Combo. I don' t thinks

its as safe as they say. WAY to many side effects that you can't lose. And

for all the doc's to say " I don't know " to just about every question you

ask, I am finding so many similarities of side effects and after effects that

are " common " among heppo's Nation wide that I wonder if they have not closed

their eyes to our problems to further science at our expense, Now that is

just my opinion.

Going into treatment I had slight allergies that were seasonal, the runny

nose, sniffing etc. Nothing that Tylenol sinus didn't clear right up. Two

years later I have 3 meds for High blood pressure, a med for stiff joints,

that walking is impossible unless I am taking, and a med for severe itching.

I have horrible scars on my arms & legs from scratching uncontrollably, I

catch EVERYTHING that comes along & antibiotics are my best friend, and its

caused MAJOR depression that I had to stop treatment for a while. I now

include 60 mgs of prozac in my daily reguime also. I now swell badly & have

a water pill as well. So my experience has not been a good one other that I

am neg. Of I am praying that I still am anyway because I REFUSE to ever take

that again. At this point I think Quality of life is more important than

quantity, and I am only 41 years old with all this mess. I must say that I

have lost my job over this, have not been able to get employment but I put

down I have Hep C. Maybe I need to stop telling everyone?

Welcome to the list!!!! Look forward to see your post!

The real art of conversation is not

only to say the right thing at the

right time, but also to leave unsaid

the wrong thing at the tempting moment.

Donna

RACECAR spelled backwards is " RACECAR "

Go Mark ! #6

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Donna, thank you so much for your post. I am going to save it as new and answer you when I have more time, as my mother and father are rolling into town this afternoon in their motorhome (from Oregon) and I still have so much to do before they get here. I appreciate your honesty and have so much more to ask you. Thanks for delurking to help me in this life-threatening position I face . . . to do treatment or not . . . that is the question.

Always,

SJ

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  • 5 months later...

Hi everyone, I hope you are all feeling well. My name is Ari and I

haven't posted a message here in a long time. When last I was heard

from here, I was extremely sick and even more depressed. I needed to

change my life a very great deal. I learned how to eat, graduated

from physical therapy to a personal trainer… from not being able to

walk at this time last year to lifting weights and exercising daily.

Around this time last year my liver started acted up. I was on

methotrexate, vioxx, paxil, xanax, muscle relaxers, and zantac. I

was also self prescribing sweet smelling smokes. I wasn't suicidal,

but I had given up. I wasn't even 30 at the time.

I still have to take synthroid for my thyroid…. But I refuse to

take even aspirin anymore. I don't know how long this " remission "

will last… but I'm finally helping myself. I'm not trying to say

that this is all you have to do to feel better. All I'm saying is

that I had to do it and thank God I did. I'm not pain free, but I

haven't felt this good since high school. Last year I was crying

myself to bed. A couple of months ago, while bench pressing more

weight than I weigh myself…. I started crying out of joy. I

couldn't believe what I was doing… how " normal " I felt.

This group helped me " decide to live " . For a long time I neglected

the group because I didn't want to feel sick. I needed to distance

myself from who I had become. I still have issues… but my mental

state is no longer inflaming my physical ailments. My arthritis

still scares me. Now that I've risen so far, I have further to fall

and I don't know how I survived my depression. I will endeavor with

every effort to NEVER go there again.

Be well, Ari

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Ari:

Your story is absolutely enlightening. How wonderful for you! And, don't be

afraid of falling further if the remission ends...just enjoy this time...it

seems you earned it!

Keep it up. My prayers are with you...and all of us!

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  • 2 weeks later...

In a message dated 12/22/01 9:14:56 AM Central Standard Time,

awilker@... writes:

> I will endeavor with

> every effort to NEVER go there again.

>

CONGRATULATIONS............

Chicagoland Sharon

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