New to PA

[Guest guest]

Elegantst wrote:

Is there any known reason for the outbreaks to begin? I had toe surgery 3

times within a year, first one ingrown on one big toe, then 4 ingrowns (both

sides of two big toes) with accompanying major cutting on those toes to

prevent it happening again. Only after that did I start to get " sausage

toes " . My podiatrist seemed frustrated (he removed two nails from two of the

sausages which is the 3rd surgery) so he sent me to a rheumy, who immediately

diagnosed the PA.

-------------------------

The first thing that jumped to my mind was soemthing called " infectious

arthritis " -- I'm no Dr., but any RD worth his salt would be able to tell you

more about it...I've read that arthritis-like symptoms that suddenly onset after

surgery, specifically if they're localized to that surgical site, are prime

candidates for this diagnosis. If you are lucky enough to have that, it can be

cured. I don't want to give false hope, but it may be worth checking into, if

you haven't already ruled it out.

Mike D

[Guest guest]

Mike,

How can " infectius psoraisis " be cured. I have outbreaks along a surgical

incision. It comes and goes. I have a very good dermatologist who looks at

the whoel person and not just the condition or my weight - although he is

concerned about it, he doesn't nag.

Lynn

>The first thing that jumped to my mind was soemthing called " infectious

>arthritis " -- I'm no Dr., but any RD worth his salt would be able to tell

you

>more about it...I've read that arthritis-like symptoms that suddenly onset

after

>surgery, specifically if they're localized to that surgical site, are prime

>candidates for this diagnosis. If you are lucky enough to have that, it

can be

>cured. I don't want to give false hope, but it may be worth checking into,

if

>you haven't already ruled it out.

[Guest guest]

Sorry, don't know I've heard of " infectious psoriasis " -- but my guess si that

it's not that unusual for psriasis to break out where the skin is already

stressed, such as the site of an operation or suture..... not sure, just my gut

feeling... anyone?

Mike D

" Lynn Lassiter " <puprun@...> on 05/17/99 06:05:00 PM

Please respond to onelist

onelist

cc: (bcc: Daehnick/Boulder/IBM)

Subject: Re: [ ] New to PA

From: " Lynn Lassiter " <puprun@...>

Mike,

How can " infectius psoraisis " be cured. I have outbreaks along a surgical

incision. It comes and goes. I have a very good dermatologist who looks at

the whoel person and not just the condition or my weight - although he is

concerned about it, he doesn't nag.

Lynn

>The first thing that jumped to my mind was soemthing called " infectious

>arthritis " -- I'm no Dr., but any RD worth his salt would be able to tell

you

>more about it...I've read that arthritis-like symptoms that suddenly onset

after

>surgery, specifically if they're localized to that surgical site, are prime

>candidates for this diagnosis. If you are lucky enough to have that, it

can be

>cured. I don't want to give false hope, but it may be worth checking into,

if

>you haven't already ruled it out.

------------------------------------------------------------------------

It's finally here! What's your opinion?

Create a Star Wars discussion group at ONElist.

[Guest guest]

Hello --

Having recently been diagnosed with PA myself, Jeannie in Miami's e-mail

struck a cord with me. I'm an avid knitter, basketmaker, and gardener,

and the thought that I may not beable to pursue these interests makes

me cringe.(especially knitting!)

Right now, I'm still okay--a mild " sausaging " of my left hand--enough for

me to grasp what may lay ahead. Since I am near retirement, I

was looking forward to the day when I could have endless time to weave

knit and garden. I still am optimistic but only time will tell.

Rita

Springwater, NY

cloudy, drizzling, and warm...

The longer I live, the more I find that I am never wrong about anything,

and that all the pains I have so humbly taken to verify my notions have

wasted my time. -- Bernard Shaw

[Guest guest]

On Thu, 24 Jun 1999 00:20:16 +0000, j.brown4@... wrote:

>From: j.brown4@...

>

>I have just been diagnoised with PA by a RA. He is

>trying nsaids first. I am now taking naprelan(naproxen

>sodium). Did anyone else start out this way? He said he

>wanted to start conservatively with the treatment at

>first. I only have pain in both knees with no swelling.

That's the way my first RD started out, real conservatively. My new RD

is pretty aggressive though, and I think I prefer it that way, I had a

lot of joint damage really quickly, and I wonder if I had been put on

DMARDS earlier, if I might not have been able to avoid some of that

damage.

Steve

http://www.zoomnet.net/~steve

[Guest guest]

Welcome,

I wanted to mention the use of the archives of the list. You can put in a

keyword such as Vioxx or Celebrex, and see what others on the list say about

using them. They are two new non narcotic pain relievers that have fewer

effects on the GI tract.

Also, one of our members RAHArris has put a web page up for us. There are

several links there for pharmacy info.

Talk to you more when I return from vacation.

[Guest guest]

--- Steve Ratliff <steve@...> wrote:

> From: steve@... (Steve Ratliff)

>

> On Thu, 24 Jun 1999 00:20:16 +0000, j.brown4@...

> wrote:

>

> >From: j.brown4@...

> >

> >I have just been diagnosed with PA by a RA. He is

> >trying nsaids first. I am now taking

> naprelan(naproxen

> >sodium). Did anyone else start out this way?

I have to say I'm with Steve on this one. I really

wish I'd gone to a doctor sooner and started more

aggressive treatment. Once the joint is damaged

surgery is the only way to help it, but if you can

control or affect the disease, well the longer you can

postpone any major invasive procedures the better in

my book. Not necessarily saying your RD is on the

wrong track, each case is differant and yours may not

be as severe as mine, but aggressive treatment is not

a bad thing.

===

C McCullough

thelockhorns@...

_________________________________________________________

[Guest guest]

Jim,

I started out slowly at first until my Rheumy made a rude comment and I

decided he wasn't for me. Then I went to a new one and he was more

aggressive. He explained that he likes to take a more aggressive

approach because he wants to make sure that there is no permanent

dammage done. He then stated a particular case in which the patient was

permanently dammaged due to lack of aggressive treatment in her youth.

I personally prefer the aggressive approach because 1) I was in less

pain in a shorter amount of time and 2) I didn't want to take the risk

of permanent dammage if I could prevent it.

You mentioned he started you out on naproxen. I too started out that way

with the first doctor and it didn't do a darn thing for me. For what

it's worth, why not ask him why he doesnt believe in an aggressive

approach? You deserve some relief.

Best wishes,

Dez

[Guest guest]

Hi Deborah

Yes STRESS does have a BIG role in PA and you seem to have been pulled

through a hedge over the past few years. What you need to do is try and

remember when you first noticed the initial eruptions of psoriasis. I

erupted at 16, before that I had seen my GP because I kept 'fainting' and he

diagnosed either early menopause, or a viral infection. He gave me

antibiotics and after completing this course, the psoriasis erupted on my

knee. For years I always BLAMED that particular antibiotic, so refused to

take it again. Now however I believe it was whatever BUG I had contracted.

Odd because the late Dennis potter had the exact same symptoms as I. He was

at a Labour Conference in Brighton as a reporter, when he kept fainting,

that was the start of his PA.

Love and God Bless

Gillian

[Guest guest]

Gillian

Thanks for your reply. I can always remember having the psoriasis lesions on

my scalp and behind my ears. I don't remember ever having a breakout anywhere

else.

3 questions. I. Is the EPO I have been seeing the hormone replacement

erythropoeitin? And if so I was only familiar with the use of it to increase

red blood cell production. Why is it used in Arthritis?

2. I see alot on this site re: enbrel. I was told this drug was not cost

effective for most (over 1000 dollars monthly)

3. Last but not least! Where are you (country wise)

Thanks

Deborah

[Guest guest]

Hi Iris.

I was brought into the PA family via plantars fascitis and heel spurs

myself. I'm not sure if you are to or not, but the thing I've found that

helps the best for my PF is moderate, but consistent exercise. I still wake

up some mornings where my feet hurt until I get walking around a bit on

them, but exercise (like walking) seems to help greatly. For my heel spurs

my podiatrist fitted me for heel inserts and I've found that shoes with

lower profiles work wonders. When I'm going through a bad spell, I will also

raise my legs with a pillow while I'm reading before bed and use an

electronic shiatsu massager on my feet and lower legs. It's also possible

that the chondroitin/glucosamine supplements that I take are helping with

this aspect as well. I take 1500mg each night before bed.

I hope that helps you with some ideas and hope that you see some relief.

deano

> From: iris523@...

> Reply-

> Date: Mon, 9 Jul 2001 12:01:51 EDT

> psoriatic arthritis

> Subject: [ ] new to pa

>

> dear pa family,

> i have been suffering with plantar fasciitis and heel spurs for over two

> years. have seen many different types of doctors and have had many different

> types of treatments, some experimental, the only treatment not tried was

> surgery. as a last resort, i saw a rheumatologist who took a blood test for

> a gene marker for p.a. he felt that i have an underlying condition, p.a.,

> which was causing the pf. i have been taking mobic and sulfasalazine for 6

> weeks now. i have noticed a slight improvement except when there is a

> weather change. then the pain returns full force. i would greatly

> appreciate any advice and support that you could provide.

> sincerely,

> iris523@...

[Guest guest]

Dear Iris, Just wanted to let you know that I had plantar fascitis

and heel spurs in both feet. By the time I got to an orthopedist the

situation was so bad and he scheduled surgery immediately. He

advised that I do both feet at the same time - one anethesia, one

recovery, etc. Well, I had them both done. It was a very painful

recovery - not able to walk for weeks. The surgery did fix the

problem when I finally recovered. My adivce is to consider doing

only one foot at a time if you do decide on surgery. Not being able

to walk and trying to manage crutches with both feet hurting is

difficult. I fell once while in recovery and hurt my hip. The icing

on the cake was that my insurance would only pay for one foot - they

condidered it two surgeries. If I had done only one foot at a time

they would have paid the whole thing - Go Figure!! Best of luck with

your feet. Lee

> dear pa family,

> i have been suffering with plantar fasciitis and heel spurs for

over two

> years. have seen many different types of doctors and have had many

different

> types of treatments, some experimental, the only treatment not

tried was

> surgery. as a last resort, i saw a rheumatologist who took a blood

test for

> a gene marker for p.a. he felt that i have an underlying condition,

p.a.,

> which was causing the pf. i have been taking mobic and

sulfasalazine for 6

> weeks now. i have noticed a slight improvement except when there

is a

> weather change. then the pain returns full force. i would greatly

> appreciate any advice and support that you could provide.

> sincerely,

> iris523@a...