Re: IVIG antibodies

[Guest guest]

My son had IVIG for the last year or so of treatment, and it helped a lot. His ANC held more steady and he was sick less. The treatments take some time, usually a few hours, as you probably know, but I found it very worth it. was very worn out and it took him quite some time to recover from the chemo. His immune system still is not what it should be, but he's a 3-year OT survivor, and he's doing much better. Hang in there!

Beth

[ ] IVIG antibodies

Hi my son was diagnosed Aug 2007 with Pre-B ALL. He has been in and out of the hospital a lot since his diagnosis with infections. This last time they checked his immuglobin and found it extremely low and started him on IVG antibody transfusions. In March it was 270, April down to 180 and this month 230. Has anyone else out there had any experience with this treatment for the immune system. They told me he will have to continue on it throughtout the rest of his treatment monthly for his immune system is just worn out. He still has 7 months of treatment left and I am concerned that his little body has just had enough chemo.

If anyone has any information on this I would really like to hear more about it.

Thanks,

Connie Gliott

[Guest guest]

Hi Connie

My son began his IVIG one year into treatment. His immuglobin was in the 200's and after 6 months of infusions it was 600. But after being off for three months his levels were back down so he has restarted the infusions again. For the 4 month period he took a break from the infusion he got a nasty infection and his counts crashed and chemo held so I really prefer he gets the infusions because it really seems to help him. We still have 15 months of treatment left. I have a friend with a child with DS and not leukemia whose immuglobins levels are in the 100's. He doesn't get the infusions becasue her son really never gets sick. But I think its really important for our cancer kids to get the antibody boost to protect from possible infections.

Jo

-----Original Message-----From: [mailto: ]On Behalf Of Connie GliottSent: Wednesday, May 19, 2010 7:53 PM Subject: [ ] IVIG antibodies

Hi my son was diagnosed Aug 2007 with Pre-B ALL. He has been in and out of the hospital a lot since his diagnosis with infections. This last time they checked his immuglobin and found it extremely low and started him on IVG antibody transfusions. In March it was 270, April down to 180 and this month 230. Has anyone else out there had any experience with this treatment for the immune system. They told me he will have to continue on it throughtout the rest of his treatment monthly for his immune system is just worn out. He still has 7 months of treatment left and I am concerned that his little body has just had enough chemo.

If anyone has any information on this I would really like to hear more about it.

Thanks,

Connie Gliott

[Guest guest]

My son was on monthly IVIG infusions for the last 8 moths of treatment and then for another 8 months after he went OT. We started it because his IgG level was low and he was getting sick and being hospitalized so often. We continued after he went OT to get him through flu season. He reacted to the IVIG a few times in the beginning (bad stomach cramps and vomiting) so they had to give it very slowly which made for looooong clinic visits, but that was better than being inpatient. We last had his IgG level tested about a year OT and it was back in the normal range.

Lots of kids I know have needed IVIG transfusions, especially near the end of treatment when their bodies have been beaten down by the chemo for so long. My son was a skinny, weak, sickly looking little boy at the end of treatment, but we are now 20 months OT and he is healthy, strong and robust!

Hang in there! The finish line is in sight!

Ann

From: conniegliott@...Date: Wed, 19 May 2010 16:52:53 -0700Subject: [ ] IVIG antibodies

Hi my son was diagnosed Aug 2007 with Pre-B ALL. He has been in and out of the hospital a lot since his diagnosis with infections. This last time they checked his immuglobin and found it extremely low and started him on IVG antibody transfusions. In March it was 270, April down to 180 and this month 230. Has anyone else out there had any experience with this treatment for the immune system. They told me he will have to continue on it throughtout the rest of his treatment monthly for his immune system is just worn out. He still has 7 months of treatment left and I am concerned that his little body has just had enough chemo.

If anyone has any information on this I would really like to hear more about it.

Thanks,

Connie Gliott

The New Busy think 9 to 5 is a cute idea. Combine multiple calendars with Hotmail. Get busy.

[Guest guest]

My son, Ethan, was on regular IVIG treatments the last 6-9 months before completion and 6 months after. We called it the "immunity in a bottle" because he always perked up after his infusion. We loved the availabiltity to IVIG. Ethan would have continued to be a very sick little boy if it weren't for the IVIG.

~

[ ] IVIG antibodies

Hi my son was diagnosed Aug 2007 with Pre-B ALL. He has been in and out of the hospital a lot since his diagnosis with infections. This last time they checked his immuglobin and found it extremely low and started him on IVG antibody transfusions. In March it was 270, April down to 180 and this month 230. Has anyone else out there had any experience with this treatment for the immune system. They told me he will have to continue on it throughtout the rest of his treatment monthly for his immune system is just worn out. He still has 7 months of treatment left and I am concerned that his little body has just had enough chemo.

If anyone has any information on this I would really like to hear more about it.

Thanks,

Connie Gliott