Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 I was off it for about 5 weeks or so. The symptoms will just slowly return. Is there a reason you want to wait to start it back up later rather than now? Just curious...Good luck! Take care, D in MN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Has anyone had experience with withdrawing from Enbrel? > Symptoms of PA start coming back fairly quickly. Trying to stretch out the time between injections will do the same thing depending on how aggressive your PA is at the time :-) PatB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hi Pat, I hope you don't mind if i ask a couple of questions about your trial. I just started Enbrel a couple of weeks ago...have had 5 injections now. My PA is definitely a lot better already, but so far, no change in my P. How long did it take for the skin to start to clear? And how much did it clear? Hope you don't mind me asking questions but I am very curious about how well Enbrel works for the skin, because I would LOVE to have some relief with that as well. P.s....if Enbrel continues to work for me, I will NEVER stop taking it :-) Thanks, > I just finished a Clinical Trial for Enbrel for Psoriasis 8 weeks ago with significant improvement in P and PA. I would like to know what others have experienced in stopping the drug. I do have it available, if necessary, but I am waiting for symptoms to return to restart the drug. Has anyone had experience with withdrawing from Enbrel? > ----------- PatB = zero, zip, nada, zilch for the psoriasis while on Enbrel:-( Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2001 Report Share Posted August 10, 2001 Hi Pat...I too am curious about your study's protocol and purpose. Are the results published? It is significant to me because I just started Enbrel and my RD means to leave me on it short term (3 - 6 months), then take me off. There seems to be some evidence, based on initial field reports, that Enbrel can force remission in PA. Was your study to determine that? If you have the time and inclination please elaborate. Who did the study and where? How long were you on Enbrel and what was the dosing protocol? What was the baseline, age, sex, etc? Thanks ......... Ronnie E. [ ] Going off Enbrel I just finished a Clinical Trial for Enbrel for Psoriasis 8 weeks ago with significant improvement in P and PA. I would like to know what others have experienced in stopping the drug. I do have it available, if necessary, but I am waiting for symptoms to return to restart the drug. Has anyone had experience with withdrawing from Enbrel? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 <> Going off Enbrel> Hi Pat, here..... I started taking Enbrel last May. Have had no side effects and it have seen a vast improvement in the PA. I am now off mtx completely. Unfortunately, the P is still there--- not really worse but not really better either. Still, I am so happy to be off the mtx and all of it's lnasty side effects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2001 Report Share Posted August 11, 2001 Would anybody happen to know any good rheumatologist in the San Diego area. All my rheumy gave me was minocyline and endomethacine and it doesnt seem to be doing enough. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Hi .... I live in San Diego. The RD I use is Dr. Jaffer at 9850 Genesee Ave. in La Jolla, Suite 860. 92037 Phone 858-457-3270. His office is in the Ximed building. He used to be Chief of Staff for Scripps Memorial Hospital. He is South African educated if that means anything to you. My wife is an executive for a major Biotech company and has known and used him for years. He is very knowledgeable and open minded and keeps up with the latest research. He has me on Enbrel at this time for PA. RGDS Ronnie E. Re: [ ] Going off Enbrel Would anybody happen to know any good rheumatologist in the San Diego area. All my rheumy gave me was minocyline and endomethacine and it doesnt seem to be doing enough. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2001 Report Share Posted August 12, 2001 Re: [ ] Going off Enbrel Would anybody happen to know any good rheumatologist in the San Diego area. All my rheumy gave me was minocyline and endomethacine and it doesnt seem to be doing enough. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2001 Report Share Posted August 13, 2001 In a message dated 8/13/2001 3:50:23 AM Eastern Daylight Time, ronevans@... writes: << live in San Diego. The RD I use is Dr. Jaffer at 9850 Genesee Ave. in La Jolla, >> Ronnie and - I'm jealous - I spent a summer in San Diego about 8 years ago - in Coronado - We've had record heat (101) and humidity (99%) here in Philly!!! Ugh! I miss your weather!!! (and LaJolla is one of the pretty places I've ever seen) Wishing I was there, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2001 Report Share Posted August 13, 2001 Small world...I was born in Coronado Hospital. The SD county is still nice. Especially the weather. But with the pollution, the population, the cost of living, and the Boarder, it isn't the paradise it used to be. It was once so rural that my brother and I had a duck blind in the bay and caught fish 3 days a week 3 bolcks from our house for dinner. I go to Kauai frequently. There are a lot of ex-San Diegans there and the weather is even better. Ronnie E. Re: [ ] Going off Enbrel In a message dated 8/13/2001 3:50:23 AM Eastern Daylight Time, ronevans@... writes: << live in San Diego. The RD I use is Dr. Jaffer at 9850 Genesee Ave. in La Jolla, >> Ronnie and - I'm jealous - I spent a summer in San Diego about 8 years ago - in Coronado - We've had record heat (101) and humidity (99%) here in Philly!!! Ugh! I miss your weather!!! (and LaJolla is one of the pretty places I've ever seen) Wishing I was there, Quote Link to comment Share on other sites More sharing options...
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