Re: feeling like CRAP

[Guest guest]

Alot of you guys have it much worse then I do.... But I always feel like

crap.... ESPECIALLY in the morning.... I hate the early morning so

much...... I feel like i am glued to my bed and i am so drop dead

tired.... Its impossible to get up then..... But then when I have a few

cups of green tea (caffienated) in the late morning and early afternoon I

feel good again.... I guess thats my small window of oppurtunity of feeling

" good " ..... From about 1pm to 5pm.... Then my body starts slowing down again

as the sun goes down and stuff and the pains return..... I must be such a

sissy though , Because you guys are having all these injections ,

replacements , and everything and i'm not even on any medications... So i

dont understand this disease... My pains arent even too bad... Even in the

morning.... But its the extreme tiredness and brain foggy like feeling in

the morning that ruins the rest of my day... Like this morning the Fed Ex

guy woke me up at 10am and I didnt know where the heck I was... I think i

was still dreaming when i answered the door.... Anybody know how to compat

this brain foggy feeling? I'm sick of feeling like i'm in outer space all of

the time.. I was never like this before....

[Guest guest]

I will have whatever tea she is Drinking...Smile

[Guest guest]

Hiya NewJersey -

I feel pretty bad in the a.m. too - some days after my shower I even crawl

back into bed for five minutes to get the energy to get dressed. But then, I

have to get up at 6 a.m. for work, so no wonder I'm groggy? Anyhow, I know

what you mean about the " window " - I usually feel best from 10 a.m. to about

3 p.m. - then the tiredness sets in and I want to go home, but I have to stay

until about 5-5:30. I have a 15 mile commute so after 1/2 an hour in the car

I usually all but crawl up my front steps.

Anyway - you said you are on no medications so you think you shouldn't

complain, but maybe that's exactly what is wrong. At least maybe an

anti-inflamatory would make you feel a little less like crap? I take Vioxx

at night and when I had to go off of it for surgery I thought I'd die in the

mornings! I don't have the brain fog as much as others do on here, but it

felt like when I got out of bed that my feet would splinter into a million

pieces. I think it might be a good idea to talk to your rheumy about some

NSAIDS or other anti-inflamatories to make your mornings easier. If you

don't have a rheumy, an even better idea might be to get one.

Well, 8 a.m. now - I should hit my " peak " (low as that might be!) in an hour

or two - hope today is painfree for all,

[Guest guest]

I don't know your name, so hi newjersey23

I think you are being a bit hard on yourself. Ever heard the words 'judge

not'?. That applies to our attitude toward ourselves too.

Maybe you need to talk to your doctor about getting on some kind of

medication, especially something to improve the quality of your sleep. I

can't help but wonder if you might have fibromyalgia as well as PA because

much of your description of your day fits this. Morning and evenings are

always awful. Midday is better because by then you've reached a peak in

terms of energy and motivation. You are probably so tired when you get up

in the morning because you are not reaching the deep restorative sleep you

need for your body to repair itself. Why don't you talk to your doctor

about a low dose of Amitriptyline, also known as Elavil? It takes a few

weeks before you notice any improvement, but once you start sleeping better

the difference in the way you feel when you go through your day can be quite

dramatic.

It's interesting that you use the term 'brain fog'. Those of us who suffer

from Fibromyalgia refer to it as 'fibrofog'.

Hope this helps.

[Guest guest]

> I always feel like

> crap.... ESPECIALLY in the morning.... I hate the early morning so

> much...... I feel like i am glued to my bed and i am so drop dead

> tired....

Anybody know how to combat

> this brain foggy feeling? I'm sick of feeling like i'm in outer

space all of

> the time.. I was never like this before....

Hi- I think we all know exactly how you feel. I think the " brain fog "

(a very good description) and terrible endless tiredness are really

some of the nastiest things about this disease. I can't say it would

work the same for you, but I found to my great joy that when I

started on antibiotic therapy, after a couple of months the first

things that made me realize it was working were that the brain fog

started to lift, I felt clear in my head, and that horrible exhausted

feeling began to leave, for longer and longer periods of time. Many

people report this. Those things began to happen for me before I saw

any real difference in my joints. After about six or eight months,

the brain fog and exhaustion were gone. Now I feel my very best in

the morning. If I have a hard day, my knees and ankle which have

permanent damage from the many years of PA get tired and sore, but by

morning I feel good again. It's hard now even to believe my memory,

that there were days two years ago when I woke up, thought about how

terrible it was going to be to try to bend to put on my socks, and

just gave up and stayed in bed!

I haven't used MTX or the other new drugs, so I'm curious to know

how others' experience with those drugs compares to mine with the

antibiotic. Did the brain fog and exhaustion lift first with them

too? Or did joints begin to get better first?

I'm sure you can find a treatment that helps you- don't give up!!

Best regards,

[Guest guest]

> Hiya NewJersey -

> I feel pretty bad in the a.m. too - some days after my shower I

> even crawl back into bed for five minutes to get the energy to

> get dressed.

,

That's amazing, because it's usually exactly what I do too, even

though I don't have to be in to work until 1PM since I cut my hours

to half time.

-- Ron

[Guest guest]

Hi newjersey -

It sure sounds like you have fibromylgia big time. Maybe another trip to

the rheumy or try a different one. Or get on the net and research your

options.

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

I have PA and fibromyalgia, and it sounds like you may have

FM too. I feel I am more disabled because of FM than PA,

and I've already had both knees replaced, and need a couple

of new ankles. The extreme fatigue and muscle pain is very

debilitating. Maybe you feel so bad because you aren't

being treated for it. I went for many years without a

diagnoses, and felt like you do. I'm so much better now

that I am being treated. Do you need some links to web

sites that explain FM? I have a big list of links if you

want to read about it.

a

[ ] Re: feeling like CRAP

Alot of you guys have it much worse then I do.... But I

always feel like

crap.... ESPECIALLY in the morning.... I hate the early

morning so

much...... I feel like i am glued to my bed and i am so

drop dead

tired.... Its impossible to get up then..... But then

when I have a few

cups of green tea (caffienated) in the late morning and

early afternoon I

feel good again.... I guess thats my small window of

oppurtunity of feeling

" good " ..... From about 1pm to 5pm.... Then my body starts

slowing down again

as the sun goes down and stuff and the pains return.....

I must be such a

sissy though , Because you guys are having all these

injections ,

replacements , and everything and i'm not even on any

medications... So i

dont understand this disease... My pains arent even too

bad... Even in the

morning.... But its the extreme tiredness and brain foggy

like feeling in

the morning that ruins the rest of my day... Like this

morning the Fed Ex

guy woke me up at 10am and I didnt know where the heck I

was... I think i

was still dreaming when i answered the door.... Anybody

know how to compat

this brain foggy feeling? I'm sick of feeling like i'm in

outer space all of

the time.. I was never like this before....