Re: Re: Prednisone help pa?--Liz

[Guest guest]

stacymb314 <stacymb314@...> wrote:

> Just wondering if prednisone helped pa at all. Since I have been on

it for my pustular psoriasis, my back hasn't hurt at all, and it

usually gave some sort of problems every day. Thanks...

>

> Liz

>

>

>

[Guest guest]

I have had methanol prednisolone through a drip and also take 10mg per day.

It seems to work okay..

[Guest guest]

I keep hearing that you should not take Prednisone for very long. However,

it is the only thing I found to reduce the swelling in my fingers. The bad

news is that my new insurance doesn't have Prednisone in their " formulary "

list so it costs me an arm and a leg to get it.

in Wylie Texas

[Guest guest]

I wanted to thank everyone for their responses. I'm glad to hear that it has

helped so many people!!! I really didn't have a problem with side effects. I

took 40 mgs for 2 week, then 20 mgs for 2 week. I'm still pain free in my back

and my skin is doing very well, with not one blister or split!

Liz

[Guest guest]

,

Here in Australia it does not cost an arm and a leg. We are unable to claim

it on insurance either.

Re: [ ] Re: Prednisone help pa?--Liz

I keep hearing that you should not take Prednisone for very long. However,

it is the only thing I found to reduce the swelling in my fingers. The bad

news is that my new insurance doesn't have Prednisone in their " formulary "

list so it costs me an arm and a leg to get it.

in Wylie Texas

[Guest guest]

Received newsletter dated 1/10/02 from Psoriasis Foundation--they have

developed a site for more information on

Enbrel--http.//www.psoriasis.org/enbrel.approval.jan02.htm--some may find

informative. Also, next live 90-minute chat is scheduled for Wednesday, Feb.

13 at 6:00 p.m. The topic will be psoriatic arthritis, including overview of

disease and therapies for treating it. Guest expert will be Philip Mease,

M.D. of Seattle Rheumatology Assoc. and the University of Washington School

of Medicine. Dr. Mease has been a top investigator in the development and

testing of new treatments for PA, including enbrel.

The NPF holds scheduled chats each month--some open topics, others on

specific subjects. Almost all are reserved for members, but this special

educational session on PA is open to everyone--members and non-members.

If you are interested in participating on Feb. 13, go to www.psoriasis.org

and look for the links on the home page. You will be asked to install and

run a chat software program and you must click yes to participate. This

program will be temporarily installed on your computer. (FYI, March chat

subject is on coping with emotional impact of dealing with psoriasis and

PA--topic is being repeated because of all the positive response to same

subject in January--and is more evidence of NPF greater emphasis on PA.)

I might add that I joined NPF just so I could receive their mailed quarterly

newsletter--but being involved on internet is even better!

Wishing all well days, in Virginia

[Guest guest]

- I took only prednisone for the first 8 months I had PA because I didn't

have insurance and it was the only thing I could afford. If you buy generic it

is very cheap. I paid $6.00 at walmart for bottle of 30 -5mg pills.

>>> BGWtexas@... 02/09/02 08:13PM >>>

I keep hearing that you should not take Prednisone for very long. However,

it is the only thing I found to reduce the swelling in my fingers. The bad

news is that my new insurance doesn't have Prednisone in their " formulary "

list so it costs me an arm and a leg to get it.

in Wylie Texas

[Guest guest]

Sandy wrote:

, You may check with your insurance company to see what they

will accept. I have been on " Medrol " -- which is very similar to

prednisone. If you check the books on prescription drugs, there are

quite a few different varieties out there. Sometimes the drs go with

their favorites, not knowing what the insurance companies carry.

Sandy

Thanks for the tip, Sandy. I will do that.

[Guest guest]

wrote:

Hope it helps for me to share my experiences with prednisone--and I hope we

both will be off of it soon! -- in Virginia ( is husband)

Yes Virginia, it does help. Please keep sharing and let me know what your

rheumy says on 2/25. It was interesting to me that not a candidate for

embrel because of MS/type lesions on your MRI. Were you having MS symptoms,

thus the reason for the MRI, are was the MRI for something else. I ask

because, years ago and before I even knew about PA, I was having some

problems that I thought sure was MS. However, by the time I persuaded my

doctor to send me to a neurologist, then persuaded the neurologist to do an

MRI and then waited to be scheduled....my symptoms had gone away. The MRI

was negative. I have since learned that, unless you are having an MS flare,

it may not show on an MRI. So now I am wondering if MS and PA are related

somehow....along with every other autoimmune disease there is. (anyone have

any thoughts?)

in Wylie

[Guest guest]

--MRI was ordered by Neurologist as part of evaluation for migraine

headaches. No symptoms of MS--lesions present in same areas of brain as

seen in MS. I see neurologist every six months to follow-up on migraine

meds so my primary physician suggested possibility of neurologist (different

Dr. than one who told me about MS lesions 8 years ago) beginning an

assessment for MS at my next appointment in April so I would know for sure

that I could not take enbrel. When I mentioned this possibility to rhuemy

he said not necessary as he would not consider prescribing enbrel for me in

any event because of past results of MRI showing lesions of MS. There does

appear to be a great deal of overlap among the autoimmune diseases--whether

some are more predictable than others to occur with PA, I don't know. Will

be back in touch for sure after my 2/25 appt. with rhuemy. -- in

Virginia