Re: Afternoon Naps

[Guest guest]

I am right there with you for that 2 hour nap. I keep thinking maybe 30 min. tops. I look at the clock and it's 2 hours. Also at the same time you need your nap...everything the same...Donna

The Fergus' <akfergus@...> wrote:

> As for the fatigue...it is from both really. But the PA is the main onefor me. I get up feeling great and by 2p.m. I'm whipped for the rest of theday.\Hi all,Same goes for me. No matter how little or how much sleep I get, I NEED a napevery afternoon. Around 1 or 2. If I'm out doing something that doesn't letme have a rest, I am exhausted by 7 PM and inevitably fall asleep around 7.I don't like this as it keeps me from getting to sleep at night. Most nightsI have a hard enough time as it is. And it doesn't matter how good or bad Ifeel. I have just resolved myself to the fact that it is " norm " for me torest. And I mean a 2 hr sleep!-------------------------- eGroups Sponsor -------------------------~-~> " Discover the Only Method Ever Shown to Triple Maximum Life Span. " Secrets Revealed in Your Free October Newsletter. Sign up now.>Please'>1/9417/4/_/494167/_/970497382/-------------------------------------------------------------------->Please visit our new web page at:http://www.wpunj.edu/icip/paThis past year had moderated a chat on arthritis at www.about.com on Thursday evenings and hopes to start up doing so again soon- we will keep you posted! Meanwhile, if anyone would like to start a weekly chat on egroups, please contact or . Thanks

[Guest guest]

You can count me in on the afternoon nap too. I watch one soap opera in the

afternoon comes on from 1-2 and I can't stay awake for it so I tape it. lol

It surely is amazing the same differences.

Nanny

[Guest guest]

This drives me crazy too..... I get this extreme, overwelming feeling of

sleep and tiredness during the day , no matter how much sleep I get at

night.... My dad- 63 works 12 hour days and comes home to seeing his son

sleeping... Its just pathetic.... Doesnt anybody truly understand why this

is? I know arthritis causes the immune system to work harder by fighting off

the pain , but alot of people on here dont always complain about the

fatigue.....

>>>>>>Message: 9

Date: Mon, 2 Oct 2000 08:16:10 -0300

From: " The Fergus' " <akfergus@...>

Subject: afternoon naps

> As for the fatigue...it is from both really. But the PA is the main one

for me. I get up feeling great and by 2p.m. I'm whipped for the rest of the

day.

\Hi all,

Same goes for me. No matter how little or how much sleep I get, I NEED a nap

every afternoon. Around 1 or 2. If I'm out doing something that doesn't let

me have a rest, I am exhausted by 7 PM and inevitably fall asleep around 7.

I don't like this as it keeps me from getting to sleep at night. Most nights

I have a hard enough time as it is. And it doesn't matter how good or bad I

feel. I have just resolved myself to the fact that it is " norm " for me to

rest. And I mean a 2 hr sleep!

<<<<<<

[Guest guest]

I don't think your at all alone in the Fatigue thing, I'm exhausted all the

time. Becky

afternoon naps

>

> > As for the fatigue...it is from both really. But the PA is the main one

> for me. I get up feeling great and by 2p.m. I'm whipped for the rest of

the

> day.

>

> \Hi all,

> Same goes for me. No matter how little or how much sleep I get, I NEED a

nap

> every afternoon.

hr sleep!

> <<<<<<

>

[Guest guest]

> From: Marsh <wrdwitch@...>

> Organization: The Word Witch/ Center for Celebrating Life

> Reply- egroups

> Date: Tue, 03 Oct 2000 16:34:46 -0700

> egroups

> Subject: Re: [ ] Re: Afternoon Naps

>

> Hey New Jersey-

>

> I am totally right there with you...the tiredness and depression thing seem to

> go hand in hand too... I can't get motivated at all some days, other days I

> get up and get going....only to crash and burn by like, 2 or 3...

> (I am only 30, and I feel like I am 80 sometimes...)

>

> A lot of folks don't understand, even family members. My sister has this too,

> and she is taking all the meds and everything ... but because I have decided

> to go the " natural " route...it is like my symptoms and disease isn't valid.

Ooh that makes me wanna kick ass!! Natural is the only way to go as far as I

am concerned anyhting else has risks. It;s ahrd enough to choose this and

find info about it. nevermind get i paid for (you can;t). Then to ahve it

invalidated!!! grrr

-Adriel

>

[Guest guest]

Hey New Jersey-

I am totally right there with you...the tiredness and depression thing seem to

go hand in hand too... I can't get motivated at all some days, other days I get

up and get going....only to crash and burn by like, 2 or 3...

(I am only 30, and I feel like I am 80 sometimes...)

A lot of folks don't understand, even family members. My sister has this too,

and she is taking all the meds and everything ... but because I have decided to

go the " natural " route...it is like my symptoms and disease isn't valid.

Hang in there, it is all we can do. Do you go through cycles of flare up and

remission? Or are you pretty constant in your problems? What are your biggest

complaints?

I have been somewhat in remission for a few years, with the skin flares

happening mostly in winter and the joints mostly of and on through my hormone

cycles...but the fatigue and depression and such are a constant struggle...

Later

-Li

Attachment: vcard [not shown]

[Guest guest]

Good Morning Everyone,

I have been a member of this group for a couple of weeks and wanted to share

with you all I have learned.

I thought I was a morning person--never understood that I'm fatigued by

mid-afternoon.

I thought those sharp, quick head pains --well, I don't know what I thought

was causing those--but I had no idea it could be related to PA.

I thought that my back hurt because I was walking funny--now I understand

that I may be walking funny because my back hurts.

I thought-why bother with more xrays? We know what the problem is now! Now

I've figured out that is a good way to measure disease progression.

I'm sure I've learned much more in the last few weeks. I have an appointment

coming up soon and feel much more prepared.

Just wanted to thank all of you for the information and support.

Jeanne in Idaho

[Guest guest]

newjersey wrote:

> This drives me crazy too..... I get this extreme, overwelming feeling of

> sleep and tiredness during the day , no matter how much sleep I get at

> night.... My dad- 63 works 12 hour days and comes home to seeing his son

> sleeping... Its just pathetic.... Doesnt anybody truly understand why this

> is?

Hi,

No one seems to understand the problems, particularly in

the younger ones, unless it's something very visible like

open wounds, fever, etc. My observations of the

problems between the generations has so much to do with

attitudes -- on BOTH sides.

Our younger son suffers from the effects post-traumatic

stress syndrome that began while he was in the military

and the depression that accompanies it. He also has some

physical symptoms that the VA clinics have not pursued

enough to determine the cause, let alone exactly what they

are or do -- muscle weakness and visible trembling that

come out after exertion. Being unable to finish a project

seems to add to the frustration, anger and depression.

His elders, including his dad, judge him as lazy, lacking

initiative and diligence. Of course, this just adds more to

the problem when the people we love and who love us

have such negative feelings toward us.

The majority of the older generation seem to believe that

you can overcome ANYthing if you try hard enough.

And they're at least partially correct. After a lot of

encouragement, our son made attempts to explain his

difficulties and some of what he said got through. Some

of the sarcastic comments let up. And, at the age of 29,

he has gone back to college to get his degree in computer

science -- living on loans, scholarships, his GI bill money,

doing his own cooking and housework, etc.

> I know arthritis causes the immune system to work harder by fighting off

> the pain , but alot of people on here dont always complain about the

> fatigue.....

I suspect there are several things that contribute to

the feeling of fatigue. My personal struggle has done

nothing but grow worse over the past year. It upsets

me that I cannot do the things that I've done in the

past and leaves more for my hubby to do or is left undone.

I'm trying to take some my own advice but it's so

hard to do when everything hurts. I try to accomplish

at least one chore that I can feel good about. It means

setting priorities to conserve energy.

It's easier to give advice than to take it but I'd like to

give you some of what I gave my son and myself:

try to do something during the day that your folks

appreciate; eliminate as many negative comments

and attitudes toward yourself and your folks; let them

know that you genuinely appreciate their support; stick

to a healthy diet and habits rather than self medicating

with alcohol, etc. Try to take your nap early enough

that you can be awake and friendly when your dad

comes home and be determined to 'visit' with him.

Show some interest in what he does or likes and

dwell less on your problems until later in the discussion.

Let him know you're not happy with the circumstances

and ask his advice. Sometimes it's the little things that

help heal the family rifts.

I hope you don't mind my singling you out for this

reply but I can hear your emotional pain in many

of your posts and would like to help you by letting

you know there are people who do understand some

of what you're going through, including fatigue.

Sincerely,

Patty B in the Pinewoods of East Texas