Re: Minocycline.....Feeling worse after 2 weeks....

[Guest guest]

Hang in there Mike!

I'm in middle of reading The Arthritis Breakthrough by Dr. Brown which is a

book on antibiotic therapy and it DEFINATELY mentions that you feel worse

before you feel better. It's called the Jarisch Herxheimer Reaction. It is

actually good news when that occurs because it means that the anibiotic is

working and breaking down the organisms which create toxins that circulate in

the body.

I haven't yet started the antibiotic protocal because I can't find a doctor

close to me who does it. Who do you use in New Jersey? I'm in Rockland

County NY and if your Dr. is in Northern NJ I could travel to him.

Check out this website about Antibiotic therapy...www.rheumatic.org/Index.html

and join the support group at rheumatic

Good luck and I hope things get better for you real soon.

Rivky :-)

[Guest guest]

> I was wondering if someone here could provide me with some links on

> Anti-Biotic therapy for arthritis... Specifically with the

anti-biotic

> Minocycline.....

Hi- yes: look at rheumatic.org and roadback.org for tons of

information, and, better yet, get the book " The New Arthritis

Breakthrough " by Henry Scammell, which discusses this in great

dteail.

> I have been on this for a little over 2 weeks now and I am feeling

worse

> instead of better.... I do not know if this is suppose to be like

this....

> Although i think i did read somewhere that it IS suppose to get

worse before

> getting better....

Yes, that's right, it is very typical, and probably a good sign that

the antibiotic is working, to feel worse at first. That happened to

me really drastically when I started two years ago. Again, info on

the websites and the book explain this.

All i know is that my shoulders are killin me and I was

> barely able to get up from bed this morning.... I will hang on

with this

> therapy as long as I am assured it will get better in the future....

>

> thanks ......mike

Mike- There are no guarantees, but Dr. Brown who originated this

treated around 10,000 people over 40 years with better than 80%

success rate. Also note that it is entirely OK to take NSAIDS to

help

you through this bad period- in fact, it is strongly recommended.

Very best wishes to you, hope this does as well for you as it has for

me! --

> [

[Guest guest]

I am taking indomethacine and minocycline. They seem to help but they make

me really tired and lazy. They do seem to help my joints though.

I really want to find some alternative med/treatment though cause I know the

indo and mino will damage me in other ways.

[Guest guest]

He's in Watchung New Jersey ........ Dr. Whitman..... He's a very nice guy

and the first thing I said to him is that I came to you because I hear that

you are very knowledgeable about Antibiotic Therapy for arthritis...... And

he said " yes " and we started from there.... You gotta tell these doctors

what you want......Otherwise they'll put you on something you might not

like.... Email me if you want directions and stuff... THe person who

recommended me to this guy was from the roadback.org site (

http://roadback.org/Index1.html )

Re: Minocycline.....Feeling worse after 2 weeks....

>

> Hang in there Mike!

> I'm in middle of reading The Arthritis Breakthrough by Dr. Brown which is

a

> book on antibiotic therapy and it DEFINATELY mentions that you feel worse

> before you feel better. It's called the Jarisch Herxheimer Reaction. It

is

> actually good news when that occurs because it means that the anibiotic is

> working and breaking down the organisms which create toxins that circulate

in

> the body.

> I haven't yet started the antibiotic protocal because I can't find a

doctor

> close to me who does it. Who do you use in New Jersey? I'm in Rockland

> County NY and if your Dr. is in Northern NJ I could travel to him.

> Check out this website about Antibiotic

therapy...www.rheumatic.org/Index.html

> and join the support group at rheumatic

> Good luck and I hope things get better for you real soon.

> Rivky :-)

>

>

>

[Guest guest]

> I am taking indomethacine and minocycline. They seem to help but

they make

> me really tired and lazy. They do seem to help my joints though.

> I really want to find some alternative med/treatment though cause I

know the

> indo and mino will damage me in other ways.

>

>

Hi - I'm afraid the tiredness is likely to be due to the

disease itself, not the drugs. However, indomethacine is known

as one of the strongest, but also most dangerous (ulcers) NSAIDS.

I was given it years ago (long before I started antibiotics).

It helped a lot with the pain, but like all NSAIDS,

didn't stop the joint damage.

After a while it also made me feel very sleepy,spacey and even

dizzy, and when I stopped it I immediately had a really terrible

PA flare, and was much worse off than before I started it.

There are many other NSAIDS- why not ask your doctor to give

you a different one to try? This is only my opinion, but I think

indomethacin is a nasty one. What is other peoples' experience

with using it long-term?

The long-term safety and side-effect record of minocycline is

extremely good. Ask your doctor about that too. Doctors should

always be willing to discuss these questions- it's our right to

be helped to judge for ourselves the risks we take in treatment.

Best regards --

[Guest guest]

I'm taking indomethacine as well (I began yesterday) and so far, I've had

restful sleep and have not woken up more tired than when I started out. I'm

sorry to hear you are tired like that. I think what is making the

difference for me is I am taking a Mega B stress complex vitamin from

walgreens along with it and I think it's helping combat fatigue.

Mel

>From: pucks93739@...

>Reply-

>

>Subject: Re: [ ] Minocycline.....Feeling worse after 2

>weeks....

>Date: Tue, 7 Aug 2001 00:25:41 EDT

>

>I am taking indomethacine and minocycline. They seem to help but they make

>me really tired and lazy. They do seem to help my joints though.

>I really want to find some alternative med/treatment though cause I know

>the

>indo and mino will damage me in other ways.

>

>

>

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[Guest guest]

In a message dated 08/07/2001 11:47:03 AM Eastern Daylight Time,

pucks93739@... writes:

<< They seem to help but they make

me really tired and lazy. >>

- Tiredness is a part of PA, but I wouldn't classify coping with PA and

the fatigue it brings on as laziness. Cut yourself some slack. I'm thinking

it's good ole PA and not laziness -