Hello

[Guest guest]

Hi ,

I too am fairly new to the group. My daughter Ciara was diagnosed with

Stills Disease ( systemic onset JRA) in March of this year(at the age of

16months). I too was told that hers was a viral infection. But finally

after a week and a half of temps above 103 degrees, and her constant crying

it took her in once again. That's when they decided to admit her to the

hospital. They did all sorts of test on her to rule out different things

and finally the diagnosed Stills. She is doing ok now she still has her

days of ''ickyness'' but overall she is doing good. She is on 2 cc's

prednisone am & pm and methotrexate once a week. I hope your son gets feeling

better.

Sincerely,

Eddens

Hello

Hello! I am new to the group, my name is and my son was

diagnosed with Systemic JRA about a month ago. I think i am still in a

daze, and a little bit in denial, even though when the possibility was first

mentioned I began reading everything that I could get my hands on and was

pretty sure of the diagnosis before the Doctors agreed. He was hospitilized

twice before all was evaluated. He is on a total of 27 mg of Prednilosone

daily (spaced out in three doses) - which he has been on for about a month.

He was previously on decreasing doses of Prednilosone every other day for

nephrotic syndrome associated with Minimal Change Disease which he was

diagnosed with May 2000 (in the hospital on Mother's Day). He had been

hospitilized twice since then for nephrotic syndrome with a total of three

relapses of the nephrotic syndrome before the JRA symptoms materilized - He

had a relapse of the nephrotic syndrome, brought on by JRA (or the virus as

they were then calling !

it)- so was taking the Prednilos

one - and the systemic symptoms disapeared after the med was started, and

reappeared as we began to taper the Prednilosone as indicated by his

nephrotic symptoms. I am not sure if the two are connected - it seems they

may be, though his Nephrologist maintains they are separate. She noted that

the good thing is that since he will be on the high dose Prednilosone for so

long that will prevent a relapse of the nephrotic syndrome. (am i supposed

to cheer now?) (I usually call him Robbie and here lately Rob) will

be four in October. He was a 28 week Preemie who spent the first eight

weeks of his life in the NICU. He had surgery at five months (relatively

minor - if that is possible at five months - he was so small the docs were

concerned about anesthesia). Rob weighed 2 lbs 7 oz at birth and was still

under 11 pounds at ten months. Still small for his age, he has been growing

steadily, so this has me concerned about how it will affect his growth, as I

was already con!

cerned about the Prednilosone's

affect prior to the JRA. Though at this point I guess the growth issue is

only one of my many concerns. After I found this group and began reading -

the tears finally came - so I got some of that out of my system and I

appreciate all that all of you do to help out each other - and now me. It

is really hard, on Rob's bad days to look at him when he tells me in his

very grown up matter-of-fact voice, " Mom, the pain won't go away. " Not a

question - a statement of acceptance. I tell him he will have good days and

bad days, and that the Doctors will find the right way to help him. He told

me last night that he wasn't going to be sick any more - that he didn't like

going to the doctor. Last week, when we were at the hospital for labwork,

we stopped by the cafeteria for lunch (yum! Rob's idea, not mine) and went

to get him an ice cream bar for desert, on the way back to the table he said

" Mom, I want to take it to my room upstairs & watch tv " He's spent so much

time as an in!

patient recently that he assumed

we were staying.

Rob's JRA symptoms started with a slight limp - he said that he was pushed

off a bike at school (daycare) - but the next day at school he told them

that he fell off a scooter at the store the night before (we hadn't been

anywhere and there was no scooter) I assumed that he had hurt himself - but

just didn't remember what happened. The next day the limp was severe and he

was in a lot of pain - a trip to the doc and multiple xrays and no anwers -

and was given motrin. The next night he cried and then screamed in his

sleep (not waking right away) about the pain in his arms and shoulder and

wanted band-aids on his elbos. His temp was 104.5. I gave him Motrin and

held him until morning and went to his regular doctor. That morning he held

his arms close to his body, walked like an old man and would hold my hand

when crossing the street - because it hurt too much for me to touch his

hand. The did labs, sent us home saying it was probably viral. His temp

was back up when we go!

t home, then the doc called, sai

d his labs didn't look good, and had me bring him to the hosp for admission

and more tests. The second admission he was even sicker, high fevers,

rashes that came and went, pain - his liver and spleen were enlarged (He

wouldn't walk many days) He wanted me to pick him up, wrapping him in a

blanket first so I wouldn't hurt him as much when touching him (The blanket

was his idea - he's a pretty smart kid). I am a divorced, working mom so I

am exhausted and know I need to keep it together so I can care for him.

They started him on cyclosporine earlier this week - and I am not at all

happy with the side affects I am reading associated with this one -

particularly long term.

Well, I tend to ramble even on good days - and this has turned into a much

longer email that I anticipated. I apologized for my lack of brevity, and

thank you in advance for listening, for being there.

Thanks.

Rob's mom

To manage your subscription settings, please visit:

For links to websites about JRA:

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[Guest guest]

Hello Rob's mom, Vernie, you have found the right place here, for you

can't ask for or recieve any better support or understanding than you'll

get right here. We got good strong arms and shoulders for hugs and when

you need a shoulder to lean on!

I have been living with jra for 33 yrs. now , I was diagnosed at the age

of 13, at a time when they were just starting to except the fact, that

kids do get arthritis. And they have come a long way in the area of drugs

for the treatment of this dicease, one of the best pieces of information

I can offer you is, don't be affraid to ask the doctor any questions ,

because that is what they are there for . And don't feel as though a

question may seem stupid, Because there is NO STUPID QUESTIONS! when it

come to the care of your childs health . We often times let the doctors

make us feel inadiquitely uninformed, but don't let them.

You will make contact with some very helpful folks here, so go to picking

our brains!

Mime is just full of cob webs any ways, it heeds a good cleaning out!

Morse

Flint Mi

[Guest guest]

,

Welcome to the group. You will find all kinds of info,advice

and support. Your dazed reaction to your son having JRA is very

normal. I think we have all been through that.

Please keep in touch and ramble when you want. That's why we

are here.

Teri

[Guest guest]

Sorry , I think I may have renamed you, my mistake, I know now it

is not Vernie! Again I'm sorry

Morse

I guess it's not just my Limbs that are Rusty! a little gray matter gone

to rust as well.

[Guest guest]

Wow , My heart goes out to you hun! My name is Theresa (Tree) , I was

diag. with JRA at the age of 8 but it had gone wrongly diagnosed for 5 years.

I'm 39 now and have a wealth of, " I been there befores , " that I can share with

you. First , this is JRA and it can be dealt with and your little Rob already

sounds like a trooper. Second, We are here to help you and Rob, don't hesitate

to ask anything large or small ,short or long if it's on your mind ...it's

important ! Most of all know that your not alone and we truely do wish to help

! I Hope you have some support near by , family ,good friends, try to educate

them too as you go. It sounds like with Rob's rough start and nephrotic syndrome

, that you've learned to educate yourself and deal with your doctors . I know

this is another thing on the plate of your life to digest, but your denial is oh

so normal . In fact you may go thru a whole greiving process of denial, anger ,

bargaining, depression and acceptance . But let me tell you a few positive

things about JRA, Strength, Unconquered spirit, Compassion, Fortitude, Character

, and the list goes on and on . I know this may sound totally insane (and I do

have my moments) but I wouldn't trade my life with JRA ! At this point I can

truely say that my positives totally outnumber my negatives. Keep your spirits

up and Rob will follow suit. oh and I'm always long winded and loud too hahaha !

I try to see the positive in every negative ( there is one you know , though

sometimes hard to find)

Laughing and sunshine are two things I must have everyday ..try em ' you'll like

em' lol

My Next surgery will be a solar panel hahaha ! Keep in touch and KEEP SMILIN'

:):)

Tree :)

Hello

Hello! I am new to the group, my name is and my son was

diagnosed with Systemic JRA about a month ago. I think i am still in a daze,

and a little bit in denial, even though when the possibility was first mentioned

I began reading everything that I could get my hands on and was pretty sure of

the diagnosis before the Doctors agreed. He was hospitilized twice before all

was evaluated. He is on a total of 27 mg of Prednilosone daily (spaced out in

three doses) - which he has been on for about a month. He was previously on

decreasing doses of Prednilosone every other day for nephrotic syndrome

associated with Minimal Change Disease which he was diagnosed with May 2000 (in

the hospital on Mother's Day). He had been hospitilized twice since then for

nephrotic syndrome with a total of three relapses of the nephrotic syndrome

before the JRA symptoms materilized - He had a relapse of the nephrotic

syndrome, brought on by JRA (or the virus as they were then calling !

it)- so was taking the Prednilos

one - and the systemic symptoms disapeared after the med was started, and

reappeared as we began to taper the Prednilosone as indicated by his nephrotic

symptoms. I am not sure if the two are connected - it seems they may be, though

his Nephrologist maintains they are separate. She noted that the good thing is

that since he will be on the high dose Prednilosone for so long that will

prevent a relapse of the nephrotic syndrome. (am i supposed to cheer now?)

(I usually call him Robbie and here lately Rob) will be four in October.

He was a 28 week Preemie who spent the first eight weeks of his life in the

NICU. He had surgery at five months (relatively minor - if that is possible at

five months - he was so small the docs were concerned about anesthesia). Rob

weighed 2 lbs 7 oz at birth and was still under 11 pounds at ten months. Still

small for his age, he has been growing steadily, so this has me concerned about

how it will affect his growth, as I was already con!

cerned about the Prednilosone's

affect prior to the JRA. Though at this point I guess the growth issue is only

one of my many concerns. After I found this group and began reading - the tears

finally came - so I got some of that out of my system and I appreciate all that

all of you do to help out each other - and now me. It is really hard, on Rob's

bad days to look at him when he tells me in his very grown up matter-of-fact

voice, " Mom, the pain won't go away. " Not a question - a statement of

acceptance. I tell him he will have good days and bad days, and that the

Doctors will find the right way to help him. He told me last night that he

wasn't going to be sick any more - that he didn't like going to the doctor.

Last week, when we were at the hospital for labwork, we stopped by the cafeteria

for lunch (yum! Rob's idea, not mine) and went to get him an ice cream bar for

desert, on the way back to the table he said " Mom, I want to take it to my room

upstairs & watch tv " He's spent so much time as an in!

patient recently that he assumed

we were staying.

Rob's JRA symptoms started with a slight limp - he said that he was pushed off a

bike at school (daycare) - but the next day at school he told them that he fell

off a scooter at the store the night before (we hadn't been anywhere and there

was no scooter) I assumed that he had hurt himself - but just didn't remember

what happened. The next day the limp was severe and he was in a lot of pain - a

trip to the doc and multiple xrays and no anwers - and was given motrin. The

next night he cried and then screamed in his sleep (not waking right away) about

the pain in his arms and shoulder and wanted band-aids on his elbos. His temp

was 104.5. I gave him Motrin and held him until morning and went to his regular

doctor. That morning he held his arms close to his body, walked like an old man

and would hold my hand when crossing the street - because it hurt too much for

me to touch his hand. The did labs, sent us home saying it was probably viral.

His temp was back up when we go!

t home, then the doc called, sai

d his labs didn't look good, and had me bring him to the hosp for admission and

more tests. The second admission he was even sicker, high fevers, rashes that

came and went, pain - his liver and spleen were enlarged (He wouldn't walk many

days) He wanted me to pick him up, wrapping him in a blanket first so I wouldn't

hurt him as much when touching him (The blanket was his idea - he's a pretty

smart kid). I am a divorced, working mom so I am exhausted and know I need to

keep it together so I can care for him. They started him on cyclosporine

earlier this week - and I am not at all happy with the side affects I am reading

associated with this one - particularly long term.

Well, I tend to ramble even on good days - and this has turned into a much

longer email that I anticipated. I apologized for my lack of brevity, and thank

you in advance for listening, for being there.

Thanks.

Rob's mom

To manage your subscription settings, please visit:

For links to websites about JRA:

http://www.geocities.com/Heartland/Village/8414/Links.html

[Guest guest]

hello valerie and robert..welcome to this wonderful place, the people are

terrific..lots of info to read or just a place to laugh,cry.and smile while

reading..oh yeah and a good place to gripe if need be! Good luck with you

and robert..i also was a single parent at one time dealing with

tabitha(polyarticular jra-16yrs old) but you will be surprised how tough

robert and you will become. If ya have any questions feel free to email

anytime(nutsomom5@... or Twilightsgem@...) take care.

karen and tabby

From: carneyval@...

Reply-

< >

Subject: Hello

Date: Fri, 17 Aug 2001 10:57:26 EDT

Hello! I am new to the group, my name is and my son was

diagnosed with Systemic JRA about a month ago. I think i am still in a

daze, and a little bit in denial, even though when the possibility was first

mentioned I began reading everything that I could get my hands on and was

pretty sure of the diagnosis before the Doctors agreed. He was hospitilized

twice before all was evaluated. He is on a total of 27 mg of Prednilosone

daily (spaced out in three doses) - which he has been on for about a month.

He was previously on decreasing doses of Prednilosone every other day for

nephrotic syndrome associated with Minimal Change Disease which he was

diagnosed with May 2000 (in the hospital on Mother's Day). He had been

hospitilized twice since then for nephrotic syndrome with a total of three

relapses of the nephrotic syndrome before the JRA symptoms materilized - He

had a relapse of the nephrotic syndrome, brought on by JRA (or the virus as

they were then calling !

it)- so was taking the Prednilos

one - and the systemic symptoms disapeared after the med was started, and

reappeared as we began to taper the Prednilosone as indicated by his

nephrotic symptoms. I am not sure if the two are connected - it seems they

may be, though his Nephrologist maintains they are separate. She noted that

the good thing is that since he will be on the high dose Prednilosone for so

long that will prevent a relapse of the nephrotic syndrome. (am i supposed

to cheer now?) (I usually call him Robbie and here lately Rob) will

be four in October. He was a 28 week Preemie who spent the first eight

weeks of his life in the NICU. He had surgery at five months (relatively

minor - if that is possible at five months - he was so small the docs were

concerned about anesthesia). Rob weighed 2 lbs 7 oz at birth and was still

under 11 pounds at ten months. Still small for his age, he has been growing

steadily, so this has me concerned about how it will affect his growth, as I

was already con!

cerned about the Prednilosone's

affect prior to the JRA. Though at this point I guess the growth issue is

only one of my many concerns. After I found this group and began reading -

the tears finally came - so I got some of that out of my system and I

appreciate all that all of you do to help out each other - and now me. It

is really hard, on Rob's bad days to look at him when he tells me in his

very grown up matter-of-fact voice, " Mom, the pain won't go away. " Not a

question - a statement of acceptance. I tell him he will have good days and

bad days, and that the Doctors will find the right way to help him. He told

me last night that he wasn't going to be sick any more - that he didn't like

going to the doctor. Last week, when we were at the hospital for labwork,

we stopped by the cafeteria for lunch (yum! Rob's idea, not mine) and went

to get him an ice cream bar for desert, on the way back to the table he said

" Mom, I want to take it to my room upstairs & watch tv " He's spent so much

time as an in!

patient recently that he assumed

we were staying.

Rob's JRA symptoms started with a slight limp - he said that he was pushed

off a bike at school (daycare) - but the next day at school he told them

that he fell off a scooter at the store the night before (we hadn't been

anywhere and there was no scooter) I assumed that he had hurt himself - but

just didn't remember what happened. The next day the limp was severe and he

was in a lot of pain - a trip to the doc and multiple xrays and no anwers -

and was given motrin. The next night he cried and then screamed in his

sleep (not waking right away) about the pain in his arms and shoulder and

wanted band-aids on his elbos. His temp was 104.5. I gave him Motrin and

held him until morning and went to his regular doctor. That morning he held

his arms close to his body, walked like an old man and would hold my hand

when crossing the street - because it hurt too much for me to touch his

hand. The did labs, sent us home saying it was probably viral. His temp

was back up when we go!

t home, then the doc called, sai

d his labs didn't look good, and had me bring him to the hosp for admission

and more tests. The second admission he was even sicker, high fevers,

rashes that came and went, pain - his liver and spleen were enlarged (He

wouldn't walk many days) He wanted me to pick him up, wrapping him in a

blanket first so I wouldn't hurt him as much when touching him (The blanket

was his idea - he's a pretty smart kid). I am a divorced, working mom so I

am exhausted and know I need to keep it together so I can care for him.

They started him on cyclosporine earlier this week - and I am not at all

happy with the side affects I am reading associated with this one -

particularly long term.

Well, I tend to ramble even on good days - and this has turned into a much

longer email that I anticipated. I apologized for my lack of brevity, and

thank you in advance for listening, for being there.

Thanks.

Rob's mom

_________________________________________________________________

Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp

[Guest guest]

I want to toss out a question to everyone. My neice (19 yrs. old) is in a drug/alcohol Rehab in Fla. She just called her Mom to inform her that she tested positive for Hep B. I have been all over the internet to get info which has helped but I still have questions regarding blood work to determine whether she is accute or chronic. I learned early on in this group that you are all some of the most informed people out there and can get info on many things. I trust you all and am looking forward to hearing from you to help me and my family understand hep b. I don't know how similiar it is to hep c although I know that its easier to get and 95% of people who get it get rid of it withing 6 months. Ok, now I'm rambling on. Please any info is greatly appreciated.

Love, Vicky

[Guest guest]

, congratulations on making it through the year,

and I pray that you will find you are undetectable.

I think that would be a nice gesture on your part, if

you should decide to speak to these people. I think

your good nature would lend itself well to that type

of thing. I have trouble speaking to groups of people

that I don't know, although AA has come a long way in

getting me over that. Besides speaking around the

tables, I was asked to tell my story at an open

meeting we have once a week, and felt I could not say

no. I was scared, but it came off pretty good. I read

a survey once that asked people what they are afraid

of and death came in second to public speaking..

-dz-

Good luck, sorry to hear of your wasted trip. That is

one of the bad things about the VA.

--- <ralexan@...> wrote:

> Hi Everyone

>

> Sorry I have not been around much this last week. I

> have been a little busy. Had to go to Corpus

> Christie on Mon. to see my primary care Doctor.,

> then it was off to San on Wed. for the Hepc

> clinic. Finally another trip to Corpus to the Dr.

> again only to find out that the Dr. I had to see had

> emergency bypass surgery and they don't know when

> he'll be back.

>

> The nurse in charge of the Hepc clinic is starting

> an educational class for patients who have been

> diagnosed with hepc and their families. She has

> invited me to come and talk to them about what to

> expect from the combo treatment.

>

> The end of this month marks 1 year of treatment for

> me this. I am having a pcr test in the middle of the

> month to find out my progress. If I'm still positive

> the Dr. is considering the peg combo for a year.

>

> I hope and pray that all of you are doing good

> today.

>

> Well that is about all for now so I guess I had

> better go.

>

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

,

I wondered where you were..... I will be praying that your pcr comes

back undetected..... I can't believe it has already been a year. I just

know in my heart that your test will be good..... You have kept a

positive attitude, and that helps so much in our treatment, whatever it

might be....

HELLO EVERYONE ;o

WAVING ATCHA FROM

N.J.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

HAVE A GREAT DAY!!!!!!!!!!!!!

Angel Hugs,

Diane

[Guest guest]

Good Morning -dz-

How are you doing on this fine Monday morning?????? ;o

Angel Hugs,

Diane

[Guest guest]

Can anyone tell me how to get rid of a wasp or bee's nest in my

lawn..... I won't go close enough to see which it is, but my son was

mowing the lawn and they came up from a hole in the ground..... Any

suggestions????????

Angel Hugs,

Diane

[Guest guest]

Morning. I saw my dr Friday, he verified what the

nurse told me, that I was undetectable. He is still

recommending I complete the 48 week tx. I pretty much

expected that. After I finish, I am to come back in

after 6 mos. and if undetectable come back in another

6 mos., if still undetectable. I will just continue

with regular physicals and watch the liver panels.

-dz-

--- diane214@... wrote:

> Good Morning -dz-

> How are you doing on this fine Monday

> morning?????? ;o

>

>

>

> Angel Hugs,

>

> Diane

>

>

__________________________________________________

[Guest guest]

Vicky: here is a little information...

Hepatitis B - Serum Hepatitis

Hepatitis B is caused by the hepatitis B virus. The

virus is very common in Asia, China, Philippines,

China, Africa and the Middle east. In Europe and North

America the incidence of known carriers is about 1 in

a 1000 people. World wide, it is estimated that there

are over 350 million hepatitis B carriers which

represents 5% of the worlds population and it is

estimated that 10 to 30 million people become infected

with the virus each year.

How is Hepatitis B Transmitted

Hepatitis B (HBV) is transmitted by the exchange of

body fluids e.g. Blood, Semen, Breast Milk and in some

circumstances saliva. People most at risk include:

Anyone who has unprotected sexual intercourse.

IV drug users who share needles and syringes.

Health care workers in contact with potentially

contaminated blood or body fluids.

Babies born to mothers with the virus.

Anyone in intimate contact with an infected person.

Many cases of acute hepatitis B occur sporadically

with no known source and studies have shown that prior

unrecognised infection is common.

What happens when infected with Hepatitis B

It is possible to be infected with the hepatitis B

virus (HBV) and experience no illness or symptoms

whatsoever. Commonest is an acute attack of hepatitis

during which you may feel unwell, tired and lose your

appetite. Sometimes there is the characteristic

yellowish colour of jaundice best seen in the whites

of the eyes. This can last from a few days to a few

months. Itching skin and pale stools may also occur.

In some cases hepatitis B can be fatal, especially in

the elderly where mortality rates may be as high as 10

- 15%.

Around 90% of people infected with hepatitis B recover

completely and become immune to the virus. Blood tests

will show antibodies to hepatitis B indicating you

have had hepatitis B but are now immune and cannot get

hepatitis B again. However 10% of people infected with

hepatitis B develop chronic infection, may have

ongoing symptoms and they continue to be infectious

for a variable length of time. Chronic infection is

defined as having hepatitis B present for 6 months or

more.

People with a chronic hepatitis infection are at risk

of liver damage and around 20-30% of these progress to

cirrhosis.

__________________________________________________

[Guest guest]

Hi Diane,

To bee or not to bee. If the bees must be killed, try to do it without

adding toxic pesticides to the environment. Thin out some old latex paint

and go out in the night or early AM, when they are all still in the nest and

pour the paint down the hole and put the can upside down over the hole. The

paint should get on their wings and they will not be able to fly.

I have had a bee dilemma this summer - wasps built a paper nest in my wood

shed and I was going to spray them. Then I realized they were not hurting

anything so I just let them bee. :-) I have found a ground nest in the

woods and I just stay away from the area. I'm sure they have a worthwhile

purpose in nature. There is also a nest in my small sailboat though and I

may have to resort to chemicals to get rid of them if I decide to go sailing

again this year. It really bothers me lately to kill anything.

Bee Well

Dennis

Re: [ ] Hello

> Can anyone tell me how to get rid of a wasp or bee's nest in my

> lawn..... I won't go close enough to see which it is, but my son was

> mowing the lawn and they came up from a hole in the ground..... Any

> suggestions????????

>

>

> Angel Hugs,

> Diane

>

>

>

>

[Guest guest]

Thanks Dennis,

I just knew you would bee ;o the one to respond...... I don't like

killing anything either... We are allergic to them, and they are also

close to my neighbors fence... Its either the bee or me...... You know

who goes...... And don't say me.....It's the bee LOL...... Thanks again

Dennis....

Angel Hugs,

Diane

[Guest guest]

Congrats ~dz~ that is indeed good news.

Always,

SJ

[Guest guest]

Doing good here Diane........How are you sweetie?

Vicky

[Guest guest]

-dz- & , Hi S.J.

You Go Boys!!!!!! I wish you both all of the luck in the world and I am

sending healing prayers on Angels Wings to both of you..... All the way

from N.J. ;o

Waving at ya all from the Garden

State~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Angel Hugs,

Diane

[Guest guest]

Thanks, one day at a time. I seem to be handling the

sides fairly well, mostly just worn down all the time.

As long as I can make it through work, I guess I can

tolerate the rest of the tx. -dz-

--- MrsDHANDSOME1@... wrote:

> Congrats ~dz~ that is indeed good news.

>

> Always,

> SJ

>

__________________________________________________

[Guest guest]

Thank you... waving back from America's Dairyland

~~~~~~~~~~~~~~~~~~~~~~~~~~~ -dz-

--- diane214@... wrote:

>

> -dz- & , Hi S.J.

>

> You Go Boys!!!!!! I wish you both all of the luck

> in the world and I am

> sending healing prayers on Angels Wings to both of

> you..... All the way

> from N.J. ;o

> Waving at ya all from the Garden

>

State~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

>

>

> Angel Hugs,

>

> Diane

>

>

__________________________________________________

[Guest guest]

-dz-

I wanted to remind you that you have work today.. ;o

Angel Hugs,

Diane

[Guest guest]

Hi Vicky & Jan & S.J.

,

How are you girls doing????

Angel Hugs,

Diane

[Guest guest]

Diane, you are a trooper. Were you even on treatment for the hepc? I recall that you were but I don't know for sure how long or what. Keep me updated ok. I'm sending you prayers across the Delaware.

Vicky

[Guest guest]

Hi Vicky,

Hanging in there.... Just got off the phone with my Gastro.... My

viral load is close to 6 million...... he also did a cancer screening

and that was slightly elevated in the pancreas...... The strange thing

is that I have the blockage in my stomach Aorta, but my cholesterol came

back normal for the first time in a long time...... I am just thinking

positive..... And I know all will turn out for my benefit..... I am

not throwing in the towel yet..... I am too ornery for that....... ;o

Seems as tho' everything is falling apart.... My husband leaves and now

this..... But ya know what.... I am becoming stronger and more

determined to fight back...... Look out Rocky!!!!!! Diane is going to

run up and down those steps in Philly..... LOL..... ;o

Angel Hugs,

Diane

[Guest guest]

Hi Vicky,

Oh yes... I was on interferon for 6 months.....I have a bleeding

disorder and it almost killed me..... My white count dropped to barely

non existent overnight.... First sign of trouble they stopped me for 2

weeks and then I went on half doses...... No go.... I had to have blood

drawn every week due to the bleeding disorder.... I was about to give

myself a shot and my Dr. called and said " Diane, Did you do your shot

yet??? " I said I have it in front of me... He said Do Not Do that shot

or any more ever.....

I waited for a few months and finally asked about a transplant and he

told me I was not a candidate due to my bleeding disorder.... He sent me

for a 2nd and a third opinion with a Dr. who specializes in treating

Livers only and he said the same thing....... Then he sent me to another

Dr. t get yet another opinion and same thing... The transplant is a

bloody surgery going in and since I have this bleeding disorder I would

not even be considered for transplant.... Soooooooo I watch everything

that I eat and take different herbs...... Drink water all day and don't

drink or smoke..... I am sure I would be a lot worse off if I didn't do

this..... Oh and most of all I have faith and think positive...... And I

have all of you to share with and be there for each other.... ;o

Angel Hugs,

Diane