Re: Encouragement needed

June 20, 2001

on 6/19/01 10:57 PM, amydeel@... at amydeel@... wrote:

> Hi,

> I was thinking about all of the pain I have. You know feeling sick to my

> stomach all of the time, feeling so nauseous you'd think I was having morning

> sickness.

Hi Amy,

Another thing to note is that there are studies that support the connection

of arthritis to celiac disease, with is a sensitivity to gluten (grains like

wheat and barley). Whether that means the arthritis causes this or whether

they go hand in hand is unknown. I am currently on a gluten-free diet and

I'm not sure if it's the diet or that I'm just in a flare free pocket, but

I'm feeling much, much better. I haven't been on any DMARDs yet, so I knew

my stomach problems weren't caused by medications.

Some other interesting tidbits I found while rummaging through some books is

that forms of nightshade (tomatoes, potatoes, etc.) have been linked in the

past to food allergies that cause arthritic symptoms. With all the tomatoes

in today's easy to prepare lifestyle, I wouldn't rule this out for some

people.

Also, aspartame (I know I spelled that wrong, but it's the stuff behind

NutraSweet and similar sugar substitutes) is currently being reviewed by

many consumer advocate groups and the U.N. Some believe that it is directly

linked to an explosion of auto immune diseases...mainly M.S., lupus, and

(tada) arthritis. It's basically in most of today's diet products. The main

product that the groups are pointing to for a lot of problems is Diet Coke.

Best advise, give up all pop (or soda or Coke, depending on which part of

the world you live). My doc tells me that she never sees a normal bone

density test in women anymore due to all the carbination in our diets.

For those who want to switch, RC (yuk) has changed its formula from

NutraSweet to a new dietary sweetener made directly from sugar cane.

Best of luck to you with your tummy. Be sure to clue in your doc to see if

he can put you on Zantac or something. Take care!

deano

June 23, 2001

Deano, I ws diagnoses with this, it's called gluten-sensitive enteropathy. I

have been strictly gluten-free for about 5 or 6 weeks and I feel 90% better

and have stopped taking prescription meds. My P is also about 90% resolved.

I encourage people to look into this. I know that it is a rare condition and

that most P/PA is not caused from gluten sensitivity.....But, it is probably

worth it to try it out for a while (it takes 4 to 6 weeks for the gluten to

completely leave your system) and see if it helps. June

June 25, 2001

on 6/23/01 9:22 AM, junebug580 at junebug580@... wrote:

> Deano, I ws diagnoses with this, it's called gluten-sensitive enteropathy. I

> have been strictly gluten-free for about 5 or 6 weeks and I feel 90% better

> and have stopped taking prescription meds. My P is also about 90% resolved.

> I encourage people to look into this. I know that it is a rare condition and

> that most P/PA is not caused from gluten sensitivity.....But, it is probably

> worth it to try it out for a while (it takes 4 to 6 weeks for the gluten to

> completely leave your system) and see if it helps. June

>

What great news June! I'm really happy for you. I've noticed great results

myself..such as no joint pain at all for several days. I was on it for a

week before I purposefully slipped up. Even though I didn't notice any of

the stomach pains I had before, my joints became more achy. Would you mind

emailing me off list to tell me where you get products or recipe

information. My biggest problem is finding things that are easy to make with

my busy work schedule. Chicken and rice only goes so far!

Oh, and I was talking with my doc and she says that it's not that rare. In

fact, some major studies are pointing to a major link between food allergies

(not just gluten) and certain forms of arthritis like ours. I know I'm not

supposed to advertise on here *laugh* but I found a company online that will

do a complete allergy screening for you for $10. They supply your doctor

with the results so you can work together to determine your path to

wellness. You can look them up at: http://www.foodallergy.com.

deano

February 10, 2008

Kathleen -

There is a great support group in CA - look up CALDA and you will get lots

of good positive stories amongst the hard work a lot of people have done to

be able to be well.

They are a great resource - even their website.

Ann

-- [ ] Encouragement Needed

Hello, I was just dx with Lyme about 2 and a half weeks ago. It took

me 12 years to dx. The Lyme caused neurological problems. I have

over 20 spots on my brain due to white matter disruption..so they

thought i had MS but the spinal tap didn't show MS. I was Dx with

fibromyalgia in 95 and it wasn't till about 2 mo ago i went to a new

doctor that she ran a series of tests on me. It showed I had Lyme.

MY problem is everything I read sounds so depressing. I am oral

antibiotics but will be seeing a specialist soon. I have been on

them for just over 2 weeks. I notice a slight improvement with my

headaches...but I am so tired and weak today. I didn't even get out

of bed except to get food and drinks. Of course that is nothing new

to me....I have been sick for a long time. I was just hoping for

more improvement by now. I had a couple of good days and I guess i

was hoping things were improving. I have heard so many terrible

stories of people who were dx late like i was. Even stories of

people commiting suicide. I was wondering if there is any good news

out there? Have any of you had luck with treatment and are you doing

well? What can I expect as far as going back to work and feeling

better. I am also taking supplements that my doctor asked me to take

as well as regular meds (zoloft, vasotec,ambien cr, lyrica, vicodin

for pain) I am normally a very upbeat person. I was so happy to

finally be dx'd after all of these years...it was so horrible not

knowing what was wrong. I never seemed to fit into any of the

categories. My neuro, rheumy, and gp were of great help..but living

in CA never thought of testing me for Lyme Disease. They were always

understanding but puzzled by my many symptoms. Please if any of you

out there have anything positive to say...I could really use it!!!

Sincerely, Kathleen

February 11, 2008

Kathleen,

Yes, there is hope. I could hardly walk. Now I run a farm, 3 kids/dh to take

care of. I have horses, goats, sheep and dogs. What seems to work is

exercise, plus meds. I don't mean running track. Just walking and movement

will help kill the bugs. Rest when you have to, but do push fwd. This

attitude helped me get better. I had to get better I had to much to do.

Exercise kills the bugs by creating oxygen.

www.handsoncredit.net

www.petpeevin-singles.com

[ ] Encouragement Needed