Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 my daughter flapped and later that was a sign I missed. She started at 6 months but I never knew that could be autism. It sounds like autism to meFrom: jm.smoldt <jm.smoldt@...>Subject: ( ) worried about my baby Date: Saturday, April 17, 2010, 8:39 AM Maybe I am just overkill worried since having one child with autism increases the chances for sibs, but I am getting concerned about my little one who just turned one year old. I know it is really early to be worried. He has met most of his milestones but just barely. He was using maybe four or five gestures, but now he only uses one or two. This worries me as my eldest started out with gestures and lost all of them by 18 months. He is kinda babbling I guess but it is not complex babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very few consonants and no words. The most alarming is he very rarely responds to his name. He also is displaying sensory sensitivities, and wildly flaps his arms and crawls in little circles. My eldest was diagnosed so late, that I can't remember if he was remotely like this as a baby or not. What do you guys think? The ped is concerned yet, should I push for an EI referral anyway? He does seem plenty interested in other people but so is my eldest. I'm not sure, but I think I might have posted before on here when he was younger about his back arching and some other earlier problems. Also, does anyone know if rapid head growth is still an early indicator. I read some articles online but the doctor has never said anything about it. His head size started in the 20th percentile at birth and he is now in the 95th percentile for head size. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 Since mine was also dx late I always figure evals can't hurt, they won't qualify if they don't need it, right? Are you sure his hearings ok? My 3 year old was late with talking, responding, gestures etc but appeared to hear, turned out he heard but muffled so it effected all kinds of things. He is sensitive too now but developed later than my dds did so though we are watching him, for now I believe a lot of these things are from frustration and confusion b/c of his hearing (he has his 2nd set of tubes now and passed his last hearing test). So we are hopeful On 4/17/10, jm.smoldt <jm.smoldt@...> wrote: > Maybe I am just overkill worried since having one child with autism > increases the chances for sibs, but I am getting concerned about my little > one who just turned one year old. I know it is really early to be worried. > He has met most of his milestones but just barely. He was using maybe four > or five gestures, but now he only uses one or two. This worries me as my > eldest started out with gestures and lost all of them by 18 months. He is > kinda babbling I guess but it is not complex babbling. It is still OOOOOO > or AHHHHHHH with an occasional ba. Very few consonants and no words. The > most alarming is he very rarely responds to his name. He also is displaying > sensory sensitivities, and wildly flaps his arms and crawls in little > circles. My eldest was diagnosed so late, that I can't remember if he was > remotely like this as a baby or not. What do you guys think? The ped is > concerned yet, should I push for an EI referral anyway? He does seem plenty > interested in other people but so is my eldest. I'm not sure, but I think I > might have posted before on here when he was younger about his back arching > and some other earlier problems. Also, does anyone know if rapid head > growth is still an early indicator. I read some articles online but the > doctor has never said anything about it. His head size started in the 20th > percentile at birth and he is now in the 95th percentile for head size. > > -- Sent from my mobile device -mommy to Emma, Becca, , and Girl Scout cookies are coming! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 I feel your worry. Look at Dr. Stanley Greenpan's website he offers training on line at a reasonable cost to help parents engage high risk infants and children. It is the only program I know of for such young kids. This may help you feel you are doing all you can at such a young age. If you have insurance that will pay for speech/occupational therapy I would push for an evaluation. I do not think schools will offer early intervention until about 2 and 1/2 years old. It depends I guess on the city or town interventions. Early interventions can't hurt and you will feel more supported. You can look at the magic foundation if you think there may be some kind of growth issue. My daughter had a different kind of growth issue (too small) and the doctors did not catch it until I raised a flag. I really think parents have to raise the issues to see specialists this has been my experience and my daughter's case should have been obvious she had many physical issues with her hip, heart etc and the ped's missed them. Pam > > Maybe I am just overkill worried since having one child with autism increases the chances for sibs, but I am getting concerned about my little one who just turned one year old. I know it is really early to be worried. He has met most of his milestones but just barely. He was using maybe four or five gestures, but now he only uses one or two. This worries me as my eldest started out with gestures and lost all of them by 18 months. He is kinda babbling I guess but it is not complex babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very few consonants and no words. The most alarming is he very rarely responds to his name. He also is displaying sensory sensitivities, and wildly flaps his arms and crawls in little circles. My eldest was diagnosed so late, that I can't remember if he was remotely like this as a baby or not. What do you guys think? The ped is concerned yet, should I push for an EI referral anyway? He does seem plenty interested in other people but so is my eldest. I'm not sure, but I think I might have posted before on here when he was younger about his back arching and some other earlier problems. Also, does anyone know if rapid head growth is still an early indicator. I read some articles online but the doctor has never said anything about it. His head size started in the 20th percentile at birth and he is now in the 95th percentile for head size. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 We do have a hearing test scheduled, so I guess we will find out but there was a wait and we couldn't get him in until June. I hope it is only his hearing as that is fixable I guess for the most part. He's never had ear infections, though, at least never shown symptoms of them. Thanks! > > Maybe I am just overkill worried since having one child with autism > > increases the chances for sibs, but I am getting concerned about my little > > one who just turned one year old. I know it is really early to be worried. > > He has met most of his milestones but just barely. He was using maybe four > > or five gestures, but now he only uses one or two. This worries me as my > > eldest started out with gestures and lost all of them by 18 months. He is > > kinda babbling I guess but it is not complex babbling. It is still OOOOOO > > or AHHHHHHH with an occasional ba. Very few consonants and no words. The > > most alarming is he very rarely responds to his name. He also is displaying > > sensory sensitivities, and wildly flaps his arms and crawls in little > > circles. My eldest was diagnosed so late, that I can't remember if he was > > remotely like this as a baby or not. What do you guys think? The ped is > > concerned yet, should I push for an EI referral anyway? He does seem plenty > > interested in other people but so is my eldest. I'm not sure, but I think I > > might have posted before on here when he was younger about his back arching > > and some other earlier problems. Also, does anyone know if rapid head > > growth is still an early indicator. I read some articles online but the > > doctor has never said anything about it. His head size started in the 20th > > percentile at birth and he is now in the 95th percentile for head size. > > > > > > -- > Sent from my mobile device > > -mommy to Emma, Becca, , > and > > Girl Scout cookies are coming! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2010 Report Share Posted April 17, 2010 I will definitely check out that site, thanks! Early intervention is state funded in our area and is from 0-3. My daughter was in early intervention as well for sensory issues and feeding/growth issues. Having a tiny one is scary, I feel for ya! My daughter was 14 lbs at twelve months and 20 lbs at age 2. She's filled out a little bit, now a whopping 32 lbs at age 4. lol she's short, too so she is at least proportionate. I have found enough concerns with my little one, I am definitely considering an eval regardless of the dr's opinion. It's amazing how much parents see that the drs don't. > > > > Maybe I am just overkill worried since having one child with autism increases the chances for sibs, but I am getting concerned about my little one who just turned one year old. I know it is really early to be worried. He has met most of his milestones but just barely. He was using maybe four or five gestures, but now he only uses one or two. This worries me as my eldest started out with gestures and lost all of them by 18 months. He is kinda babbling I guess but it is not complex babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very few consonants and no words. The most alarming is he very rarely responds to his name. He also is displaying sensory sensitivities, and wildly flaps his arms and crawls in little circles. My eldest was diagnosed so late, that I can't remember if he was remotely like this as a baby or not. What do you guys think? The ped is concerned yet, should I push for an EI referral anyway? He does seem plenty interested in other people but so is my eldest. I'm not sure, but I think I might have posted before on here when he was younger about his back arching and some other earlier problems. Also, does anyone know if rapid head growth is still an early indicator. I read some articles online but the doctor has never said anything about it. His head size started in the 20th percentile at birth and he is now in the 95th percentile for head size. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2010 Report Share Posted April 18, 2010 Best wishes for your family. I included here Dr. Greenspan's website. There are so few professionals that have advice for parents with infants and autism. My daughter had horrible meltdowns as an infant (and continued as she got older). It is good to have some support somewhere. http://stanleygreenspan.com/ Pam > > > > > > Maybe I am just overkill worried since having one child with autism increases the chances for sibs, but I am getting concerned about my little one who just turned one year old. I know it is really early to be worried. He has met most of his milestones but just barely. He was using maybe four or five gestures, but now he only uses one or two. This worries me as my eldest started out with gestures and lost all of them by 18 months. He is kinda babbling I guess but it is not complex babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very few consonants and no words. The most alarming is he very rarely responds to his name. He also is displaying sensory sensitivities, and wildly flaps his arms and crawls in little circles. My eldest was diagnosed so late, that I can't remember if he was remotely like this as a baby or not. What do you guys think? The ped is concerned yet, should I push for an EI referral anyway? He does seem plenty interested in other people but so is my eldest. I'm not sure, but I think I might have posted before on here when he was younger about his back arching and some other earlier problems. Also, does anyone know if rapid head growth is still an early indicator. I read some articles online but the doctor has never said anything about it. His head size started in the 20th percentile at birth and he is now in the 95th percentile for head size. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2010 Report Share Posted April 20, 2010 I have read about the head circumference being an interesting symptom but not sure that is was connected directly to autism. Anyone heard more about that? I would err on the side of caution. I have 2 kids with autism and I started asking questions about the second one before the doc's were interested in paying attention to me. But I noticed a lot of " odd " things going on. They are not alike really and have different problems, but I saw some basic problems like speech not developing, not interested in other people, not playing with toys, stacking things, etc. You definitely should call your local health department and find out how to contact early intervention in your area. get an assessment! If speech is delayed, get a speech evaluation. You can start now working on language. With my 3rd ds, he isn't autistic but he had speech delays as well as some other issues and I got started with everything without waiting for anyone's opinion. It probably helped him a lot over all. With what I had learned from the 2nd ds, I put in a lot of time making him some word books and working on increasing his vocabulary and play skills. Plus he got into EI and Speech. So it really is important to get help sooner rather than wait. Go to this website and read more about early signs --> http://www.cdc.gov/ncbddd/actearly/index.html Roxanna Whenever I feel blue, I start breathing again. ( ) worried about my baby Maybe I am just overkill worried since having one child with autism increases the chances for sibs, but I am getting concerned about my little one who just turned one year old. I know it is really early to be worried. He has met most of his milestones but just barely. He was using maybe four or five gestures, but now he only uses one or two. This worries me as my eldest started out with gestures and lost all of them by 18 months. He is kinda babbling I guess but it is not complex babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very few consonants and no words. The most alarming is he very rarely responds to his name. He also is displaying sensory sensitivities, and wildly flaps his arms and crawls in little circles. My eldest was diagnosed so late, that I can't remember if he was remotely like this as a baby or not. What do you guys think? The ped is concerned yet, should I push for an EI referral anyway? He does seem plenty interested in other people but so is my eldest. I'm not sure, but I think I might have posted before on here when he was younger about his back arching and some other earlier problems. Also, does anyone know if rapid head growth is still an early indicator. I read some articles online but the doctor has never said anything about it. His head size started in the 20th percentile at birth and he is now in the 95th percentile for head size. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Update! My son had another doctor's appointment, and the doctor is now concerned. He is referring him to EI. He said it is really hard to say at this age, but due to the family history and that he is showing some delays, he should be at least closely monitored. The article I read was a study linking head circumference to autism, but I am not sure when the study was done or whether it was backed by subsequent studies or not. Considering my eldest also had a huge head, I kinda wondered about it. > > I have read about the head circumference being an interesting symptom > but not sure that is was connected directly to autism. Anyone heard > more about that? > > I would err on the side of caution. I have 2 kids with autism and I > started asking questions about the second one before the doc's were > interested in paying attention to me. But I noticed a lot of " odd " > things going on. They are not alike really and have different > problems, but I saw some basic problems like speech not developing, not > interested in other people, not playing with toys, stacking things, > etc. You definitely should call your local health department and find > out how to contact early intervention in your area. get an assessment! > If speech is delayed, get a speech evaluation. You can start now > working on language. With my 3rd ds, he isn't autistic but he had > speech delays as well as some other issues and I got started with > everything without waiting for anyone's opinion. It probably helped > him a lot over all. With what I had learned from the 2nd ds, I put in > a lot of time making him some word books and working on increasing his > vocabulary and play skills. Plus he got into EI and Speech. So it > really is important to get help sooner rather than wait. Go to this > website and read more about early signs --> > http://www.cdc.gov/ncbddd/actearly/index.html > > > Roxanna > Whenever I feel blue, I start breathing again. > > > ( ) worried about my baby > > > > > > Maybe I am just overkill worried since having one child with autism > increases the chances for sibs, but I am getting concerned about my > little one who just turned one year old. I know it is really early to > be worried. He has met most of his milestones but just barely. He was > using maybe four or five gestures, but now he only uses one or two. > This worries me as my eldest started out with gestures and lost all of > them by 18 months. He is kinda babbling I guess but it is not complex > babbling. It is still OOOOOO or AHHHHHHH with an occasional ba. Very > few consonants and no words. The most alarming is he very rarely > responds to his name. He also is displaying sensory sensitivities, and > wildly flaps his arms and crawls in little circles. My eldest was > diagnosed so late, that I can't remember if he was remotely like this > as a baby or not. What do you guys think? The ped is concerned yet, > should I push for an EI referral anyway? He does seem plenty > interested in other people but so is my eldest. I'm not sure, but I > think I might have posted before on here when he was younger about his > back arching and some other earlier problems. Also, does anyone know > if rapid head growth is still an early indicator. I read some articles > online but the doctor has never said anything about it. His head size > started in the 20th percentile at birth and he is now in the 95th > percentile for head size. > Quote Link to comment Share on other sites More sharing options...
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