need advice please

[Guest guest]

Hi ,

In Georgia, the gals all seemed to have had revision with a great doc, DrHorton,

who unfortunately retired recently due to severe arthritis in his hands. He was

at Emory, and referred his pending patients on to Dr. Dheera Ananthakrishnan as

I understand it. She might be worth putting on your short list. Let me know if

you need help digging up contact info.

Cindi Ackerman was the last patient of DrHorton, and you can search under her

name for more information. There are a number of our members in the Atlanta

area...so you can try those search terms too for older posts of folks in your

area. You can probably hold a nice little mini-meet up too if you wish.

Take Care, Cam

[Guest guest]

Hey ,

I missed the fact that you are from Atlanta. I live in Roswell. If you'd like to

get together sometime for coffee, I'd be happy to tell you what I know. Or if

you just want to talk by phone. There are some back doors to the Emory docs if

you are having a hard time getting past the pain management folks. Let me know

if you are interested. It helped me a lot to talk it out with folks in the same

situation.

-Dyann Diamond

dyanndiamond@...

> From: cammaltby <cammaltby@...>

> Subject: [ ] Re: need advice please

>

> Date: Saturday, January 29, 2011, 4:21 PM

> Hi ,

>

> In Georgia, the gals all seemed to have had revision with a

> great doc, DrHorton, who unfortunately retired recently due

> to severe arthritis in his hands. He was at Emory, and

> referred his pending patients on to Dr. Dheera

> Ananthakrishnan as I understand it. She might be worth

> putting on your short list. Let me know if you need help

> digging up contact info.

>

> Cindi Ackerman was the last patient of DrHorton, and you

> can search under her name for more information. There are a

> number of our members in the Atlanta area...so you can try

> those search terms too for older posts of folks in your

> area. You can probably hold a nice little mini-meet up too

> if you wish.

>

> Take Care, Cam

>

>

>

> ------------------------------------

>

> scoliosis veterans * flatback sufferers * revision

> candidates

[Guest guest]

Pamela,

Sounds really intense, I bet the recovery time is long. I had no idea there was even such surgery. Is this something you are thinking about doing? If so what made you come to this decision?

Take care,

From: Pamela Hanley <campbetty@...>Subject: RE: [ ] need advice please Date: Friday, January 28, 2011, 2:57 PM

, I am in your exact position. Pain management does not work and you want it fixed. I'm deciding whether to go all out with the complete marathon surgery of 11 hours and a year recovery or do it in stages....I will probably do it in stages...and do it with a local doctor who does not have a ton of flatback surgeries under his belt but is very familar with it all. Pamela

From: sabrinastrickland@...Date: Fri, 28 Jan 2011 05:47:25 +0000Subject: [ ] need advice please

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is

wrong to be fixed. Is this unheard of or something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people "I can't cause my back hurts" it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

Melinda,

Thank you for your help, how do you feel after your revision? What did they do and how was your recovery time? I'm still searching for a "good" doctor in my area. But, hopefully I will find someone soon.

Take care,

From: sabrinastrickland <sabrinastrickland@...>Subject: [ ] need advice please Date: Thursday, January 27, 2011, 11:47 PM

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is wrong to be fixed. Is this unheard of or

something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people "I can't cause my back hurts" it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

Dyann,

Thanks for sharing and the good advice. I have received alot of emails and everyone is really helpful and have done alot of reseach. I will have to do some of my own and decide what is best for me. What sort of surgery did you have done? And how are you doing now?

Oh by the way happy belated birthday, hope you had a good one.

Take care,

From: Dyann Diamond <dyanndiamond@...>Subject: RE: [ ] need advice please Date: Saturday, January 29, 2011, 7:09 PM

Hello ,

I'm 2 years post-op and I was in a very similar situation to you. I walked like an old lady BEFORE surgery because the disc has worn away so much that my spine had started to slip forward. The term you'll hear a lot hear is "Flat Back". I have photos posted in the files. Before and after.

I was peri-menapausal going into surgery and I'm still at the same place. As a matter of fact, some of the symptoms actually lessened after surgery for about a year. I'm turning 47 tomorrow.

You'll find lots of Docs eager to do surgery for people like us... it's like a challenge to them. But very few really have the experience or understand the complications. Try to find someone with multiple successful "Herrington rod Revision" surgeries under their belt.

It's a bit of an Orthopedic sub-specialty. There are not a lot of truly gifted Docs out there.

You'll notice some of the Gals here went through some bad Docs and surgeries until they found someone who knew what he/she was doing.

Surgery is a last resort obviously. Consider it once the frustration of a limited lifestyle and the pain is too much for you. The recovery is awful and very long. But the results for me, outweighed the costs. We each have our own thresholds...

Best wishes,

-Dyann

[Guest guest]

PAIN. Constantly in my lower back. I need to be brave and do something about this while I have insurance.Pamela

From: sabrinastrickland@...Date: Mon, 31 Jan 2011 14:58:25 -0800Subject: RE: [ ] need advice please

Pamela,

Sounds really intense, I bet the recovery time is long. I had no idea there was even such surgery. Is this something you are thinking about doing? If so what made you come to this decision?

Take care,

From: Pamela Hanley <campbetty@...>Subject: RE: [ ] need advice please Date: Friday, January 28, 2011, 2:57 PM

, I am in your exact position. Pain management does not work and you want it fixed. I'm deciding whether to go all out with the complete marathon surgery of 11 hours and a year recovery or do it in stages....I will probably do it in stages...and do it with a local doctor who does not have a ton of flatback surgeries under his belt but is very familar with it all. Pamela

From: sabrinastrickland@...Date: Fri, 28 Jan 2011 05:47:25 +0000Subject: [ ] need advice please

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is wrong to be fixed. Is this unheard of or something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people "I can't cause my back hurts" it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

Hi ,

I concur with everything just said. You may be able to buy some time with

pain meds, and PT, etc, but for the most part Flatback syndrome is progressive

and will need attending to in due time. When you are ready of course. If it is

any consolation to you, I am 3 years out now from my revision surgery and doing

very well. It was a hard decision when to do it and with whom to get the

revision done with. But I did it and am very glad I did. My quality of life is

greatly increased, and I have no more pain. It was a good decision for me.

Leading up to it was excruciating for sure, but now life is good on the other

side of revision surgery as far as I am concerned. I want you to know their is

hope out there. Try not to despair. It is a long hard road but you can come out

ok. With carefully thought out decisions and some skillful surgeons it can all

come together for a good outcome for you.

Good luck and God Bless. .

Carol <NY>

>

> >

> >

> > , I am in your exact position. Pain management does not work and you

> > want it fixed. I'm deciding whether to go all out with the complete marathon

> > surgery of 11 hours and a year recovery or do it in stages....I will

> > probably do it in stages...and do it with a local doctor who does not have a

> > ton of flatback surgeries under his belt but is very familar with it all.

> >

> > Pamela

> >

> >

> >

> > ------------------------------

> >

> > From: sabrinastrickland@...

> > Date: Fri, 28 Jan 2011 05:47:25 +0000

> > Subject: [ ] need advice please

> >

> >

> >

> > Hi my name is and I'm new here, was hoping I could ask some

> > questions or get some advice on what to do and the best direction to take. I

> > had scholiosis surgery in 1981 when I was 13, I have never had any problems

> > up until I turned 40, I ignorned it for about 3 years but the pain has

> > gotten worse, on most days it is hard for me to walk for very long or sit or

> > stand. After several tests they told me I had degenative disc issues that

> > comes from the Harrington rod that could not have been forseen in the 80's.

> > My doctor sent me to a pain management doctor who only wants to give me

> > pills and a shot once in a while. I do not want to be on pain pills for a

> > number of reasons and the SI injections aren't working real well, I have

> > expressed this with my pain management doc. He told me to come back when it

> > gets real bad, the pain is real bad now but I don't want to go back to him.

> > I would like for whatever is wrong to be fixed. Is this unheard of or

> > something cause I've read several people in the same shape. What could I be

> > doing to make my sitution better? I use to be active, now I'm always telling

> > people " I can't cause my back hurts " it is very depressing to me. I have

> > also done physical therepy. I don't know what to do I'm just tired of being

> > tired. Thank you in advance for any information, its nice to know I'm not

> > alone...thanks for listening

> >

> >

> >

> >

>

[Guest guest]

,

I went back to work full time at 10 weeks after my revision. Honestly, it was a little too soon. I wish I would have taken a few more weeks. I was going stir crazy at home and wanted to get back to work. My employeer did bring a couch into my office and I was able to lie down for about 45 minutes in the middle of the day. I have anterior/posterior surgery all done in one day that lasted about 10 hours. They took out my old hardware and put in new rods and screws and extended my fusion to the sacrum. I'm very thankful that I had a revision. I am now upright. I still have "bad days"- especially if I over do it and there are things I will never be able to do... paint my toenails, sit in a bathtub, snow ski (I hated it anyway). I have learned to adapt being fused to the sacrum. I love water exercise and do it 3-4 days/week. I also still work full time in a hospital and I am on my

feet most of the day. Revision is different for everyone. I was told it would take about 18 months to feel "normal" again; that was true for me. I also had to wear a brace (TLSO) for 6 months after surgery due to "soft bones." I didn't like having the brace (could only take it off for 30 min per day to shower), but it really made me feel more secure. Let me know if you have any other questions. I had to travel for my revision. Most of us do in order to get the best doctors.

Melinda

From: sabrinastrickland <sabrinastrickland@...>Subject: [ ] need advice please Date: Thursday, January 27, 2011, 11:47 PM

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is wrong to be fixed. Is this unheard of or

something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people "I can't cause my back hurts" it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

, Can you give me a rundown of what being fused to the sacrum feels like? Also, what can't you do besides toe nails....can you sit in a chair? Do a side bend? Thanks...Pamela

From: melmalone@...Date: Tue, 1 Feb 2011 12:21:00 -0800Subject: Re: [ ] need advice please

,

I went back to work full time at 10 weeks after my revision. Honestly, it was a little too soon. I wish I would have taken a few more weeks. I was going stir crazy at home and wanted to get back to work. My employeer did bring a couch into my office and I was able to lie down for about 45 minutes in the middle of the day. I have anterior/posterior surgery all done in one day that lasted about 10 hours. They took out my old hardware and put in new rods and screws and extended my fusion to the sacrum. I'm very thankful that I had a revision. I am now upright. I still have "bad days"- especially if I over do it and there are things I will never be able to do... paint my toenails, sit in a bathtub, snow ski (I hated it anyway). I have learned to adapt being fused to the sacrum. I love water exercise and do it 3-4 days/week. I also still work full time in a hospital and I am on my feet most of the day. Revision is different for everyone. I was told it would take about 18 months to feel "normal" again; that was true for me. I also had to wear a brace (TLSO) for 6 months after surgery due to "soft bones." I didn't like having the brace (could only take it off for 30 min per day to shower), but it really made me feel more secure. Let me know if you have any other questions. I had to travel for my revision. Most of us do in order to get the best doctors.

Melinda

From: sabrinastrickland <sabrinastrickland@...>Subject: [ ] need advice please Date: Thursday, January 27, 2011, 11:47 PM

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is wrong to be fixed. Is this unheard of or something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people "I can't cause my back hurts" it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

Pamela,

 

I think what being fused to the sacrum FEELS like, is like when people who haven't been pregnant ask what being pregnant feels like, it has it's basics, and has it's exceptions. Where exactly you will fall over time depends a lot on how you were before surgery, what levels are fused on you, what your surgery entails, and how you heal. Also flexability plays a part, I've never had a lot, but have seen members who can do far more movement than me, aka Kam, who can bend over and touch her toes after being fused to the sacrum.

 

Also know,with time and healing, you both compensate better, learn tricks around a really fused spine, and muscles and ligaments stretch from being so tight before surgery, and give you more range of motion.

 

I'm fused T1 to the sacrum, so from the base of my neck, all the way down. I have a pretty complicated hardware layout given an area in my spine where my bones wouldn't hold screws( I'm K in the photo's in the FILES section), so I have little in the way of forward lean, so I'm pretty much upright. I use a golfers bend to get things off the floor, and with that I can get the majority of stuff on the floor.I still use grabbers, for things in the back of the dryer, and very low on the floor. I still use a sockaid to put socks on. I have some nerve damage, and have trouble picking my legs up in a seated position, in otherwords I have to help my leg with my hands sometimes. I can't tie my shoes, so I tie them and push the tongue through the laces to hold it, and use them like slip on shoes. I too have trouble being able to get my feet out from under me in a normal tub, so I shower, and I never was a bath gal anyway. Shaving ones legs isn't fun, I can do it, with much practice. I can clip my nails by bringing my foot up by my hip on one side, and can do the other foot in my lap. What works for me. I always am aware of my back, not pain, just a kinda muscle contraction feeling, kinda like when you have an inflamed taste bud, you always know it's there, Kumar says that is because of having 4 spine surgeries, and muscles and nerves being cut into so many times. I'm 8 years out from my last revision and still feel like I have a board strapped to my back, your torso moves as one piece, and yeah, it doesn't feel natural.Getting into and out of cars, especially low ones , or ones with a small door opening, is tough, but doable. My suggestion to make your like easier and more comfortable if you can is get a SUV or a mini van for ease.

 

Okay, I told you some of the complicated stuff of what it FEELS like, now here is the good stuff. If you are as lucky as me and you come out of this very well, the GOOD far outweighs the challenges. Mind you it took three revisions to get me where I am, and I get how complicated this surgery is, and that even in the best of hands, not all of us come out of revision with the whole vision of a good outcome. A good outcome can be anywhere from pain reduction and improved function with being upright, to what I have, painfree, mobility restored, and even improved body stance and appearance. Believe me, I went into the whole revision process just wanting to get my pain managable, and got the whole enchillada, painfree land. Having the pain gone, being upright so you can see the sky instead of the sidewalk, and not needing to hold onto a shopping cart to walk, not needing to know where every bench is in town so you can sit to resolve your pain. I got a functioning life back! Is it perfection, no, but vastly improved, and none of my complications in anyway compares to the pain. Pain eats at you, and people tell me all the time you can see the relief in my eyes, as I was a mess before surgery. I'm thankful everyday I that the stick - to -it -ness to never give up on finding my answers, acting on my plan, and having a surgeon who never gave up on me, and gave me a quality of life back I only hoped for. I'm lucky and I know it.

 

Hope that helps.

 

Colorado Springs

On Tue, Feb 1, 2011 at 1:30 PM, Pamela Hanley <campbetty@...> wrote:

 

, Can you give me a rundown of what being fused to the sacrum feels like? Also, what can't you do besides toe nails....can you sit in a chair? Do a side bend? Thanks...Pamela 

From: melmalone@...Date: Tue, 1 Feb 2011 12:21:00 -0800

Subject: Re: [ ] need advice please 

,

 

I went back to work full time at 10 weeks after my revision.  Honestly, it was a little too soon.  I wish I would have taken a few more weeks.  I was going stir crazy at home and wanted to get back to work.  My employeer did bring a couch into my office and I was able to lie down for about 45 minutes in the middle of the day.  I have anterior/posterior surgery all done in one day that lasted about 10 hours.  They took out my old hardware and put in new rods and screws and extended my fusion to the sacrum.  I'm very thankful that I had a revision.  I am now upright.  I still have " bad days " - especially if I over do it and there are things I will never be able to do... paint my toenails, sit in a bathtub, snow ski (I hated it anyway).  I have learned to adapt being fused to the sacrum.  I love water exercise and do it 3-4 days/week.  I also still work full time in a hospital and I am on my feet most of the day.  Revision is different for everyone.  I was told it would take about 18 months to feel " normal " again; that was true for me.  I also had to wear a brace (TLSO) for 6 months after surgery due to " soft bones. "   I didn't like having the brace (could only take it off for 30 min per day to shower), but it really made me feel more secure.  Let me know if you have any other questions.  I had to travel for my revision.  Most of us do in order to get the best doctors. 

 

Melinda

From: sabrinastrickland <sabrinastrickland@...>Subject: [ ] need advice please

Date: Thursday, January 27, 2011, 11:47 PM

 

Hi my name is and I'm new here, was hoping I could ask some questions or get some advice on what to do and the best direction to take. I had scholiosis surgery in 1981 when I was 13, I have never had any problems up until I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on most days it is hard for me to walk for very long or sit or stand. After several tests they told me I had degenative disc issues that comes from the Harrington rod that could not have been forseen in the 80's. My doctor sent me to a pain management doctor who only wants to give me pills and a shot once in a while. I do not want to be on pain pills for a number of reasons and the SI injections aren't working real well, I have expressed this with my pain management doc. He told me to come back when it gets real bad, the pain is real bad now but I don't want to go back to him. I would like for whatever is wrong to be fixed. Is this unheard of or something cause I've read several people in the same shape. What could I be doing to make my sitution better? I use to be active, now I'm always telling people " I can't cause my back hurts " it is very depressing to me. I have also done physical therepy. I don't know what to do I'm just tired of being tired. Thank you in advance for any information, its nice to know I'm not alone...thanks for listening

[Guest guest]

I have my toes done at a pedicure salon! That's how I deal with it! Seriously, I

really don't know how a person could have a fused spine without having to go to

a pedicure salon! (maybe I'm lazy, but it just makes it so much easier)

Carol V.

>

>

> From: sabrinastrickland <sabrinastrickland@...>

> Subject: [ ] need advice please

>

> Date: Thursday, January 27, 2011, 11:47 PM

>

>

>

>

> Hi my name is and I'm new here, was hoping I could ask some questions

or get some advice on what to do and the best direction to take. I had

scholiosis surgery in 1981 when I was 13, I have never had any problems up until

I turned 40, I ignorned it for about 3 years but the pain has gotten worse, on

most days it is hard for me to walk for very long or sit or stand. After several

tests they told me I had degenative disc issues that comes from the Harrington

rod that could not have been forseen in the 80's. My doctor sent me to a pain

management doctor who only wants to give me pills and a shot once in a while. I

do not want to be on pain pills for a number of reasons and the SI injections

aren't working real well, I have expressed this with my pain management doc. He

told me to come back when it gets real bad, the pain is real bad now but I don't

want to go back to him. I would like for whatever is wrong to be fixed. Is this

unheard of or something cause I've read several people in the same shape. What

could I be doing to make my sitution better? I use to be active, now I'm always

telling people " I can't cause my back hurts " it is very depressing to me. I have

also done physical therepy. I don't know what to do I'm just tired of being

tired. Thank you in advance for any information, its nice to know I'm not

alone...thanks for listening

>

[Guest guest]

Amen... pedicure all the way!

-Dyann

> From: carolmarie20041957 <dcvaughan@...>

> Subject: [ ] Re: need advice please

>

> Date: Tuesday, February 1, 2011, 6:30 PM

> I have my toes done at a pedicure

> salon! That's how I deal with it! Seriously, I really don't

> know how a person could have a fused spine without having to

> go to a pedicure salon! (maybe I'm lazy, but it just makes

> it so much easier)

>

> Carol V.

>

>

> >

> >

> > From: sabrinastrickland <sabrinastrickland@...>

> > Subject: [ ] need advice please

> >

> > Date: Thursday, January 27, 2011, 11:47 PM

> >

> >

> >   

> >

> > Hi my name is and I'm new here, was hoping I

> could ask some questions or get some advice on what to do

> and the best direction to take. I had scholiosis surgery in

> 1981 when I was 13, I have never had any problems up until I

> turned 40, I ignorned it for about 3 years but the pain has

> gotten worse, on most days it is hard for me to walk for

> very long or sit or stand. After several tests they told me

> I had degenative disc issues that comes from the Harrington

> rod that could not have been forseen in the 80's. My doctor

> sent me to a pain management doctor who only wants to give

> me pills and a shot once in a while. I do not want to be on

> pain pills for a number of reasons and the SI injections

> aren't working real well, I have expressed this with my pain

> management doc. He told me to come back when it gets real

> bad, the pain is real bad now but I don't want to go back to

> him. I would like for whatever is wrong to be fixed. Is this

> unheard of or something cause I've read several people in

> the same shape. What could I be doing to make my sitution

> better? I use to be active, now I'm always telling people " I

> can't cause my back hurts " it is very depressing to me. I

> have also done physical therepy. I don't know what to do I'm

> just tired of being tired. Thank you in advance for any

> information, its nice to know I'm not alone...thanks for

> listening

> >

>

>

>

>

> ------------------------------------

>

> scoliosis veterans * flatback sufferers * revision

> candidates

[Guest guest]

Hello Pam felt like i had to jump in here. I just got my fusion extended to the sacrum about 3 months ago.

Yes the toe nails are a tough one. Also bending down to pick anything up is darn near impossible. I just think ahead and leave nothing on the floor that i will need later.

I can if i am feeling good that day bring my leg over my other one, kinda like sitting Indian style, and reach my nails. But only on good days.

This is really embarrassing but my biggest hurdle is wiping my butt. i cannot twist around to get at it. So still working on that one with the wife.

Take care.

SS> From: carolmarie20041957 <dcvaughan@...>> Subject: [ ] Re: need advice please> > Date: Tuesday, February 1, 2011, 6:30 PM> I have my toes done at a pedicure> salon! That's how I deal with it! Seriously, I really don't> know how a

person could have a fused spine without having to> go to a pedicure salon! (maybe I'm lazy, but it just makes> it so much easier) > > Carol V. > > > > > > > > From: sabrinastrickland <sabrinastrickland@...>> > Subject: [ ] need advice please> > > > Date: Thursday, January 27, 2011, 11:47 PM> > > > > > > > > > Hi my name is and I'm new here, was hoping I> could ask some questions or get some advice on what to do> and the best direction to take. I had scholiosis surgery in> 1981 when I was 13, I have never had any problems up until I> turned 40, I ignorned it for about 3 years but the pain has> gotten worse, on most days it is hard for me to walk for> very long or sit or stand. After several tests they told me> I had degenative disc issues that comes from the Harrington> rod that could not have been forseen in the 80's. My doctor> sent me to a pain

management doctor who only wants to give> me pills and a shot once in a while. I do not want to be on> pain pills for a number of reasons and the SI injections> aren't working real well, I have expressed this with my pain> management doc. He told me to come back when it gets real> bad, the pain is real bad now but I don't want to go back to> him. I would like for whatever is wrong to be fixed. Is this> unheard of or something cause I've read several people in> the same shape. What could I be doing to make my sitution> better? I use to be active, now I'm always telling people "I> can't cause my back hurts" it is very depressing to me. I> have also done physical therepy. I don't know what to do I'm> just tired of being tired. Thank you in advance for any> information, its nice to know I'm not alone...thanks for> listening> >> >

> > > ------------------------------------> > scoliosis veterans * flatback sufferers * revision> candidates

[Guest guest]

Steve,

 

You are in the early stages of healing, and thus still have surgery protocols, so anything I said to Pamela, is definately for after healing has finished.  If not in a brace, you are upright, using grabbers, and NOT getting at your feet.

 

Steve, try looking at toileting aids, such as the Bottom Buddy, many of our members have used them with success, and it helps not needing a spouse to help with a potentially embarassing task. With my long fusion, T1 to the sacrum, and a imperfect shoulder, this task can be hard for me also. I get added reach by using wet flushable wipes( both Walmart and Target have them next to the diapers, their brands are very wet, good for getting things clean). I use two wipes, one overlaying the other for extra length, and fold them in half length wise, and it gets the job done for me. I carry the wipes in my purse, and have them in containers in all bathrooms, on the top of the toilets. A must have as far as I'm concerned, and if you use the store brands, cheaper. There are also some in the toilet paper isle, those tend to be dryer, I don't use them, but love the containers they come in, reuseable, and handy. I tend to go for the store brands in most things, and here, given the job, moist is best, and cleans better.

 

Hang in there, with all the protocols after surgery it's tough, but time and healing will be your friend. Go get a pedicure, Guys do it nowadays, relaxing, and one less chore to have the wife do.

 

Colorado Springs

On Wed, Feb 2, 2011 at 5:47 AM, steve linkinhoker <stevelinkinhoker@...> wrote:

 

Hello Pam felt like i had to jump in here. I just got my fusion extended to the sacrum about 3 months ago.

Yes the toe nails are a tough one. Also bending down to pick anything up is darn near impossible. I just think ahead and leave nothing on the floor that i will need later.

I can if i am feeling good that day bring my leg over my other one, kinda like sitting Indian style, and reach my nails. But only on good days.

This is really embarrassing but my biggest hurdle is wiping my butt. i cannot twist around to get at it. So still working on that one with the wife.

Take care.

SS

> From: carolmarie20041957 <dcvaughan@...>> Subject: [ ] Re: need advice please

> > Date: Tuesday, February 1, 2011, 6:30 PM> I have my toes done at a pedicure

> salon! That's how I deal with it! Seriously, I really don't> know how a person could have a fused spine without having to> go to a pedicure salon! (maybe I'm lazy, but it just makes> it so much easier)

> > Carol V. > >

> > > > > > From: sabrinastrickland <sabrinastrickland@...>> > Subject: [ ] need advice please> >

> > Date: Thursday, January 27, 2011, 11:47 PM> > > > > >   > > > > Hi my name is and I'm new here, was hoping I> could ask some questions or get some advice on what to do

> and the best direction to take. I had scholiosis surgery in> 1981 when I was 13, I have never had any problems up until I> turned 40, I ignorned it for about 3 years but the pain has> gotten worse, on most days it is hard for me to walk for

> very long or sit or stand. After several tests they told me> I had degenative disc issues that comes from the Harrington> rod that could not have been forseen in the 80's. My doctor> sent me to a pain management doctor who only wants to give

> me pills and a shot once in a while. I do not want to be on> pain pills for a number of reasons and the SI injections> aren't working real well, I have expressed this with my pain> management doc. He told me to come back when it gets real

> bad, the pain is real bad now but I don't want to go back to> him. I would like for whatever is wrong to be fixed. Is this> unheard of or something cause I've read several people in> the same shape. What could I be doing to make my sitution

> better? I use to be active, now I'm always telling people " I> can't cause my back hurts " it is very depressing to me. I> have also done physical therepy. I don't know what to do I'm

> just tired of being tired. Thank you in advance for any> information, its nice to know I'm not alone...thanks for> listening> >> > > > > ------------------------------------

> > scoliosis veterans * flatback sufferers * revision> candidates

[Guest guest]

, I have posted here only a few times although I have been lurking and following the discussions. I'm currently fused T4 to sacrum but have flatback even though my four surgeries were all during the past ten years. I'm scheduled for revision with Dr. Lenke in March and he will fuse me to T1 and re-do my entire lumbar area. I just wanted to say that your nice post is very accurate about what it's like to be fused to the sacrum. One thing you didn't mention is trying to get up from lying flat on a yoga mat or something similar. I compare it to being a beached whale! Right now I can cut my toenails (with difficulty) and shave my legs (what little hair I have left!) but that will change after the new surgery. So I think I will start scheduling a pedicure at the same

salon and the same time I get my hair done. I have a lot of faith in Dr. Lenke so I'm not too nervous about the surgery but not looking forward to the long recuperation I know will come. Right now I'm obsessed with trying to make the arrangements for being out of town for almost 3 weeks, since I'm single and will be alone for part of the time. Felicia Kramerhttp://anotherbrightidea.etsy.comwww.feliciakramer.blogspot.com

[Guest guest]

Felicia,

 

I'm sorry you are facing yet another surgery, but you are in good hands with Lenke, my two surgeons Dr. Anant Kumar and Dr. O'Brien think he and Bridwell are tops in the field, and consulted both of them on my case back in 2002, when I had my last revision.

 

How could I forget the beached whale feeling! UGH! At 50 plus and going through menopause, my memory is on meno-pause sometimes. Thanks for adding that part.

 

Give us the dates and I'll put it on the group calendar, so we can be there to talk with as you are going through your recovery.

 

Hopefully some will chime in on doing this marathon single and without a lot of help. Planning as you say is key. Where will you be staying after surgery, hotel or an extended stay apartment? Is someone coming with you?

 

March will be here before you know it, and onto recovery!

 

Colorado Springs

On Wed, Feb 2, 2011 at 7:02 AM, Felicia Kramer <feliciakramer4@...> wrote:

 

, I have posted here only a few times although I have been lurking and following the discussions. I'm currently fused T4 to sacrum but have flatback even though my four surgeries were all during the past ten years. I'm scheduled for revision with Dr. Lenke in March and he will fuse me to T1 and re-do my entire lumbar area. 

I just wanted to say that your nice post is very accurate about what it's like to be fused to the sacrum.  One thing you didn't mention is trying to get up from lying flat on a yoga mat or something similar. I compare it to being a beached whale!  Right now I can cut my toenails (with difficulty) and shave my legs (what little hair I have left!) but that will change after the new surgery. So I think I will start scheduling a pedicure at the same salon and the same time I get my hair done.

I have a lot of faith in Dr. Lenke so I'm not too nervous about the surgery but not looking forward to the long recuperation I know will come. Right now I'm obsessed with trying to make the arrangements for being out of town for almost 3 weeks, since I'm single and will be alone for part of the time.  

Felicia Kramer

http://anotherbrightidea.etsy.com

www.feliciakramer.blogspot.com

 

[Guest guest]

Cam, I cancelled my Jan. 21st appointment with Dr Bendo because I was switching insurance plans. Drivinf into NYC by yourself with dogs in the car is better when there isn't a snowstorm...so I am rescheduling for March...will call for that appointment this week. I have things to get set up...I can deal with my Pomeranian during recovery but not my Great Dane. Also, I hate being vulnerable in front of a new relationship that I'm starting now, and honestly that had everything to do with why I cancelled my Jan. appointment. I need the honeymoon period (I have been single for a decade) and surgery will end it too early. Cam, thank you for checking in on me......Pamela

From: cammaltby@...Date: Sat, 5 Feb 2011 03:00:43 +0000Subject: [ ] Re: need advice please

Pam,I am a little confused. Did you actually have a consult with DrBendo already and set a date with him? Please tell us about that.I know you can do it...its just a matter of getting everything all set up. There has to be someone who will take your dog for a month or so....perhaps a rescue group would be set up with foster dog parents?Take Care, Cam

[Guest guest]

Pamela,

Thanks, I was confused because you sort of sounded like you had gotten to the

point where you had already seen DrBendo and were deciding between him and your

local guy....and also had a tentative date. In truth....sometimes members skip

over telling us where they are and it can get a little confusing, so I was just

trying to figure out if I had missed something.

Back when I was in a quandary about revision I remember feeling like if I

actually saw surgeons for opinions and they suggested I was a candidate for it,

then I would have to go ahead right away....thus I put making those appointments

for awhile. When I finally saw both DrRand and DrBoachie, arguably two surgeons

with very good reputations on the east coast, both of them told be that although

I was a candidate for surgery, it was not an emergency and I could take all the

time I needed to set a date. In fact DrRand, who I saw first, suggested I was

not " ready " ...and in retrospect I was not mentally in the same place I was 10

months later when I had had a good second opinion and intervening epidural

injections that really didnt work. By my second visit with him he didnt hesitate

to suggest that I meet with the office scheduler for surgery. So....I guess I am

just trying to save your worry that DrBendo is going to rush you into surgery.

Very likely you will find that seeing him will just be another step along the

way. You may not have to problem solve all the other things going on in your

situation as it relates to being set up for surgery. And you'll have plenty of

time while waiting for the snow to melt.

Take Care, Cam

[Guest guest]

Cam, yes, the main reason I'm pushing myself to have surgery is my insurance ends in 11 months....and don't I still need insurance after the big event? For follow ups and bone stimulators? I wonder. As soon as I can I'm driving to see Dr Bendo in the NYC spine clinic where they take my insurance. I will also see if my insurance provides someone to help me for a month after, just drop in everyday to help me move?. One of my biggest fears is how rigid my body will be after total fusion. Is it freakish? Pardon my asking this but....do people still have sex after? Or is that considered a risk to the surgery healing? I can hear everyone chuckling but what does this do to that part of your life after surgery? Once you get past 1-2 months? Again, not trying to be crude but I am so uncertain about how flexible...I am imagining the only thing that moves are arms and legs...with a ram-rod straight and unmoving torso. Can anyone provide insight in this area? Thanks again.Pamela

From: cammaltby@...Date: Mon, 7 Feb 2011 13:12:10 +0000Subject: [ ] Re: need advice please

Pamela,Thanks, I was confused because you sort of sounded like you had gotten to the point where you had already seen DrBendo and were deciding between him and your local guy....and also had a tentative date. In truth....sometimes members skip over telling us where they are and it can get a little confusing, so I was just trying to figure out if I had missed something.Back when I was in a quandary about revision I remember feeling like if I actually saw surgeons for opinions and they suggested I was a candidate for it, then I would have to go ahead right away....thus I put making those appointments for awhile. When I finally saw both DrRand and DrBoachie, arguably two surgeons with very good reputations on the east coast, both of them told be that although I was a candidate for surgery, it was not an emergency and I could take all the time I needed to set a date. In fact DrRand, who I saw first, suggested I was not "ready"...and in retrospect I was not mentally in the same place I was 10 months later when I had had a good second opinion and intervening epidural injections that really didnt work. By my second visit with him he didnt hesitate to suggest that I meet with the office scheduler for surgery. So....I guess I am just trying to save your worry that DrBendo is going to rush you into surgery. Very likely you will find that seeing him will just be another step along the way. You may not have to problem solve all the other things going on in your situation as it relates to being set up for surgery. And you'll have plenty of time while waiting for the snow to melt.Take Care, Cam

[Guest guest]

Pamela,

 

Sex after surgery is possible, in many cases better than before surgery, being minus pain. Fused spine, can make for some accomodations, but, with a partner that cares for you, and you him, sex is good.

 

As to timetable when you can get back to it, I believe it was around six weeks to three months. Your doc will go over it with you.

 

There is a book on Sex after back surgery, look it up on the internet.

 

Go to the site itself, go to MESSAGES, there will be a search box there, type in SEX, up will come up 223 past messages on the subject.

 

For me personally I'm fused very high and very low ( T1 to the sacrum), so yes, I'm kinda stiff torso wise, but even that, we have found a way, hubby and I to have that part of married life be fulfilling for both of us.

 

I suggest reading the past messages, lots of good conversations in the past on this.

 

Where theres a will theres a way.

 

Colorado Springs

On Mon, Feb 7, 2011 at 8:34 AM, Pamela Hanley <campbetty@...> wrote:

 

Cam, yes, the main reason I'm pushing myself to have surgery is my insurance ends in 11 months....and don't I still need insurance after the big event? For follow ups and bone stimulators? I wonder. As soon as I can I'm driving to see Dr Bendo in the NYC spine clinic where they take my insurance. I will also see if my insurance provides someone to help me for a month after, just drop in everyday to help me move?. One of my biggest fears is how rigid my body will be after total fusion. Is it freakish? Pardon my asking this but....do people still have sex after? Or is that considered a risk to the surgery healing?  I can hear everyone chuckling but what does this do to that part of your life after surgery? Once you get past 1-2 months? Again, not trying to be crude but I am so uncertain about how flexible...I am imagining the only thing that moves are arms and legs...with a ram-rod straight and unmoving torso. Can anyone provide insight in this area? Thanks again. Pamela 

From: cammaltby@...Date: Mon, 7 Feb 2011 13:12:10 +0000 Subject: [ ] Re: need advice please 

Pamela,Thanks, I was confused because you sort of sounded like you had gotten to the point where you had already seen DrBendo and were deciding between him and your local guy....and also had a tentative date. In truth....sometimes members skip over telling us where they are and it can get a little confusing, so I was just trying to figure out if I had missed something.

Back when I was in a quandary about revision I remember feeling like if I actually saw surgeons for opinions and they suggested I was a candidate for it, then I would have to go ahead right away....thus I put making those appointments for awhile. When I finally saw both DrRand and DrBoachie, arguably two surgeons with very good reputations on the east coast, both of them told be that although I was a candidate for surgery, it was not an emergency and I could take all the time I needed to set a date. In fact DrRand, who I saw first, suggested I was not " ready " ...and in retrospect I was not mentally in the same place I was 10 months later when I had had a good second opinion and intervening epidural injections that really didnt work. By my second visit with him he didnt hesitate to suggest that I meet with the office scheduler for surgery. So....I guess I am just trying to save your worry that DrBendo is going to rush you into surgery. Very likely you will find that seeing him will just be another step along the way. You may not have to problem solve all the other things going on in your situation as it relates to being set up for surgery. And you'll have plenty of time while waiting for the snow to melt.

Take Care, Cam

[Guest guest]

Hi Pamela,

I think has covered the sex part pretty well. To answer your question

about being freakishly stiff...that also is not true. Yes, of course, in the

early days you are going to feel a little different about how you move and do

things....but with time no one but you will know. I cant tell you how many

people I have met in the years after my surgery who havent a clue how much

fusion I have...and if it happens to come up in my coversation it doesnt really

seem to mean anything ....

There used to be a video of our first retreat, but the link has gone dead. If

still might set your mind at ease if you go to the photos section. There are a

number of regular candid shots of various members and I think you can see how

normal we all look. Be sure to check out Edie's scuba photos...shes the gal who

had surgery with DrBendo several years back. Also, if you want more inspiration,

go to Ellens scoliyogi website...you will see her doing some amazing yoga poses

....and she too is fused to the sacrum. A lot will depend on the skill of your

surgeon and your own initiative in the days, weeks and years following

surgery....but it is unlikely that most will detect the swing isnt really in

your hips anymore.

Take Care, Cam

[Guest guest]

Pamela,

 

As to being freakishly stiff, I can only say, no one really notices my limitations, which aren't many. I bend my knees to get most things off the ground, instead of a forward lean. I had an older lady compliment me on how I picked things up from the ground at the supermarket . She said I did it lady like, I just took her compliment without going into how I'm fused. I also get told a lot the I have very good posture, since slumping is impossible, I'm proud of that part that revision brought me, and I'm sure my Grandma McIntyre would be too, she used to always ride me about slumping when I was a child.

 

You have to remember that many of us while being fused to the sacrum, have various levels of fusion upward. So say you are only fused on the upper end to say T8, you will be less stiff, than say some one like me to T1. It's amazing to be in a room of fused gals like us, at the retreat, we all noticed we move and do things a lot in the same ways.

 

You have to remember to concentrate on what you can do, how you are upright, and have less pain or none, after revision, than on the accomodations you have to make for a fused spine. Truly, no one notices, and if they do, they will be amazed at what you CAN do given your body. I know I'm amazed, no one could have told me I'd be doing more with my Grandchild than I was able to do with my own kids when they were young, I garden, mow lawns, wash cars, paint rooms, swing dance once a week, walk and stand as much as I'd like. Life is better after the surgery for me than before. So some things you have to accomodate for a fused spine, but truly, it's an nusiance, but not a game stopper. I'm lucky everyday that surgeons figured out how to put us back together again, and I'm ever thankful to my surgeon and his skills, and to my own perserverance to find a way to make it all work.

 

I believe it's all in how you look at things. I tend not to dwell on losses, but accomplishments. Is it perfect, no, but is it better, yes, and for me thats good enough.

 

Colorado Springs

On Mon, Feb 7, 2011 at 12:28 PM, cammaltby <cammaltby@...> wrote:

 

Hi Pamela,I think has covered the sex part pretty well. To answer your question about being freakishly stiff...that also is not true. Yes, of course, in the early days you are going to feel a little different about how you move and do things....but with time no one but you will know. I cant tell you how many people I have met in the years after my surgery who havent a clue how much fusion I have...and if it happens to come up in my coversation it doesnt really seem to mean anything ....

There used to be a video of our first retreat, but the link has gone dead. If still might set your mind at ease if you go to the photos section. There are a number of regular candid shots of various members and I think you can see how normal we all look. Be sure to check out Edie's scuba photos...shes the gal who had surgery with DrBendo several years back. Also, if you want more inspiration, go to Ellens scoliyogi website...you will see her doing some amazing yoga poses ...and she too is fused to the sacrum. A lot will depend on the skill of your surgeon and your own initiative in the days, weeks and years following surgery....but it is unlikely that most will detect the swing isnt really in your hips anymore.

Take Care, Cam

[Guest guest]

Thank you , you are a wise woman and that is comforting for the scared little/big girl in me. Really, the only important thing is to get out of this pain, it hijacks my life. Pamela

From: susan.kirkaldie@...Date: Mon, 7 Feb 2011 13:01:56 -0700Subject: Re: [ ] Re: need advice please

Pamela,

As to being freakishly stiff, I can only say, no one really notices my limitations, which aren't many. I bend my knees to get most things off the ground, instead of a forward lean. I had an older lady compliment me on how I picked things up from the ground at the supermarket . She said I did it lady like, I just took her compliment without going into how I'm fused. I also get told a lot the I have very good posture, since slumping is impossible, I'm proud of that part that revision brought me, and I'm sure my Grandma McIntyre would be too, she used to always ride me about slumping when I was a child.

You have to remember that many of us while being fused to the sacrum, have various levels of fusion upward. So say you are only fused on the upper end to say T8, you will be less stiff, than say some one like me to T1. It's amazing to be in a room of fused gals like us, at the retreat, we all noticed we move and do things a lot in the same ways.

You have to remember to concentrate on what you can do, how you are upright, and have less pain or none, after revision, than on the accomodations you have to make for a fused spine. Truly, no one notices, and if they do, they will be amazed at what you CAN do given your body. I know I'm amazed, no one could have told me I'd be doing more with my Grandchild than I was able to do with my own kids when they were young, I garden, mow lawns, wash cars, paint rooms, swing dance once a week, walk and stand as much as I'd like. Life is better after the surgery for me than before. So some things you have to accomodate for a fused spine, but truly, it's an nusiance, but not a game stopper. I'm lucky everyday that surgeons figured out how to put us back together again, and I'm ever thankful to my surgeon and his skills, and to my own perserverance to find a way to make it all work.

I believe it's all in how you look at things. I tend not to dwell on losses, but accomplishments. Is it perfect, no, but is it better, yes, and for me thats good enough.

Colorado Springs

On Mon, Feb 7, 2011 at 12:28 PM, cammaltby <cammaltby@...> wrote:

Hi Pamela,I think has covered the sex part pretty well. To answer your question about being freakishly stiff...that also is not true. Yes, of course, in the early days you are going to feel a little different about how you move and do things....but with time no one but you will know. I cant tell you how many people I have met in the years after my surgery who havent a clue how much fusion I have...and if it happens to come up in my coversation it doesnt really seem to mean anything ....There used to be a video of our first retreat, but the link has gone dead. If still might set your mind at ease if you go to the photos section. There are a number of regular candid shots of various members and I think you can see how normal we all look. Be sure to check out Edie's scuba photos...shes the gal who had surgery with DrBendo several years back. Also, if you want more inspiration, go to Ellens scoliyogi website...you will see her doing some amazing yoga poses ...and she too is fused to the sacrum. A lot will depend on the skill of your surgeon and your own initiative in the days, weeks and years following surgery....but it is unlikely that most will detect the swing isnt really in your hips anymore.Take Care, Cam

[Guest guest]

Cam thanks for ellens link...I want to move like her. Pamela

From: cammaltby@...Date: Mon, 7 Feb 2011 19:28:38 +0000Subject: [ ] Re: need advice please

Hi Pamela,I think has covered the sex part pretty well. To answer your question about being freakishly stiff...that also is not true. Yes, of course, in the early days you are going to feel a little different about how you move and do things....but with time no one but you will know. I cant tell you how many people I have met in the years after my surgery who havent a clue how much fusion I have...and if it happens to come up in my coversation it doesnt really seem to mean anything ....There used to be a video of our first retreat, but the link has gone dead. If still might set your mind at ease if you go to the photos section. There are a number of regular candid shots of various members and I think you can see how normal we all look. Be sure to check out Edie's scuba photos...shes the gal who had surgery with DrBendo several years back. Also, if you want more inspiration, go to Ellens scoliyogi website...you will see her doing some amazing yoga poses ...and she too is fused to the sacrum. A lot will depend on the skill of your surgeon and your own initiative in the days, weeks and years following surgery....but it is unlikely that most will detect the swing isnt really in your hips anymore.Take Care, Cam

[Guest guest]

Pamela...

re:sex

I am 3 years post-revision. I have started menopause and my hormones are raging. I've gone from no libido to can't get enough! For the past month my hubby and I have had great sex!!! Now there are some positions we will never be able to get into but we can do most of them and I have still found a way to thrust...kinda of like doing a bridge. But it's been great!

As far as flexibility...I have done a little yoga. If I work at my stretching exercises I can bend over and touch my toes. Some people might never touch their toes and might have to do with how flexible you are before surgery. I am double-jointed and I think Kam is too. And, of course, Ellen is. But you have to continuously work at stretching. Your muscles will want to go right back into the pre-revision state because they have been there so many years. My hip flexors are still very tight because I haven't worked on them so I am most comfortable leaning a little forward when I stand. It is something I have to consciously work on to stay up straight.

Peggy

[ ] Re: need advice please

Pamela,Thanks, I was confused because you sort of sounded like you had gotten to the point where you had already seen DrBendo and were deciding between him and your local guy....and also had a tentative date. In truth....sometimes members skip over telling us where they are and it can get a little confusing, so I was just trying to figure out if I had missed something.Back when I was in a quandary about revision I remember feeling like if I actually saw surgeons for opinions and they suggested I was a candidate for it, then I would have to go ahead right away....thus I put making those appointments for awhile. When I finally saw both DrRand and DrBoachie, arguably two surgeons with very good reputations on the east coast, both of them told be that although I was a candidate for surgery, it was not an emergency and I could take all the time I needed to set a date. In fact DrRand, who I saw first, suggested I was not "ready"...and in retrospect I was not mentally in the same place I was 10 months later when I had had a good second opinion and intervening epidural injections that really didnt work. By my second visit with him he didnt hesitate to suggest that I meet with the office scheduler for surgery. So....I guess I am just trying to save your worry that DrBendo is going to rush you into surgery. Very likely you will find that seeing him will just be another step along the way. You may not have to problem solve all the other things going on in your situation as it relates to being set up for surgery. And you'll have plenty of time while waiting for the snow to melt.Take Care, Cam