Re: where do you go for help

[Guest guest]

I am hoping someone can help. I need to know what drs. are most experienced with aspergers Dx. I am having a lot of trouble getting help for my daughter. I was told that she had PDD then Aspergers then Brain Dysfunction and everything would be fine once she reaches 18 yrs of age because she is really just socially immature. The Dr. decided she couldn't have aspergers since she could talk and wanted to have friends. That children with Asperger do not want to have friends that they just don't care about stuff like that. That a child with Aspergers didn't text on cell phones or join chat rooms on the computer. I really need some help.

Thanks

[Guest guest]

how old is your daughter?

If you find a neuropsychologist that is very experienced

with AS I think it works out well because a neuropsc

will spend hours with your child. They take a very long detailed

history. For my daughter's at age 9 I came prepared with

tapes of conversation my daughter had with peers

where she was very locked into her special

interest and the peer was really trying to get her

engaged in other things. The neurops find many issues

and conducted many tests.

I think the people working at major autism centers may

get it right too. Look at the extensive information

available at a place like Yale Child Study Center.

I have learned a lot reading things from this group.

http://childstudycenter.yale.edu/autism/aspergers.html

Two neurologist did not think my daughter had AS, they thought

she had Obessive compulsive disorder. They can't tell

by looking at a child and just talking for one hour if there

are processing speed issues, there are so many tests that

can be done that neurologist don't often do (there

must be some that do some testing though).

So many therapist just saw oppositional defiant issues.

One pschiatrist though she had bipolar (a bipolar expert of course).

I really thik that a AS child's social skill issues

are evident at about the age of 9 or 10 and more

pronouced as they get older.

Tape for your own advocacy issues you see. Get on tape

your child talking about a special interest and

not able to move on to another topic with gentle prompting.

Pam

>

> I am hoping someone can help. I need to know what drs. are most experienced

with aspergers Dx. I am having a lot of trouble getting help for my daughter. I

was told that she had PDD then Aspergers then Brain Dysfunction and everything

would be fine once she reaches 18 yrs of age because she is really just

socially immature. The Dr. decided she couldn't have aspergers since she could

talk and wanted to have friends.  That children with Asperger do not want to

have friends that they just don't care about stuff like that. That a child with

Aspergers didn't text  on cell phones or join chat rooms on the computer. I

really need some help.

> Thanks

>

[Guest guest]

She is 13 and I have had questions since she was 3. Whenever we would go shopping she would walk behind me pretending to be a dog. It's only been in the last year that we could have the radio on while she was in the car, the vacumn still bothers her. The list could just go on and on. A lot of things have been resolved however there are still no kids calling on the phone or visiting the house, no party invites etc. She has found a friend on the internet that lives out of town. She doesn't seem too concerned about it. She draws a lot and writes stories. Public school grades ok, no study skills, some trouble with other kids not to much, no special ed she wouldn't meet requirements for that. I have a lot of trouble getting her hygene under control she has to be

reminded about shower, wash face / hands, brush hair seems to be unable to wash her own hair she trys but just can't do a very good job of it. Seems awkward using her hands.

From: Pamela <susanonderko@...> Sent: Sat, April 3, 2010 10:08:58 PMSubject: ( ) Re: where do you go for help

how old is your daughter? If you find a neuropsychologist that is very experiencedwith AS I think it works out well because a neuropscwill spend hours with your child. They take a very long detailedhistory. For my daughter's at age 9 I came prepared withtapes of conversation my daughter had with peerswhere she was very locked into her special interest and the peer was really trying to get herengaged in other things. The neurops find many issuesand conducted many tests. I think the people working at major autism centers mayget it right too. Look at the extensive informationavailable at a place like Yale Child Study Center.I have learned a lot reading things from this group.http://childstudyce nter.yale. edu/autism/ aspergers. htmlTwo neurologist did not think my daughter

had AS, they thoughtshe had Obessive compulsive disorder. They can't tellby looking at a child and just talking for one hour if there are processing speed issues, there are so many tests thatcan be done that neurologist don't often do (theremust be some that do some testing though). So many therapist just saw oppositional defiant issues.One pschiatrist though she had bipolar (a bipolar expert of course).I really thik that a AS child's social skill issues are evident at about the age of 9 or 10 and morepronouced as they get older.Tape for your own advocacy issues you see. Get on tapeyour child talking about a special interest andnot able to move on to another topic with gentle prompting.Pam >> I am hoping someone can help. I need to know what drs. are most experienced with aspergers Dx. I am having a lot of trouble getting help for my daughter. I was told that she had PDD then Aspergers then Brain Dysfunction and everything would be fine once she reaches 18 yrs of age because she is really just socially immature. The Dr. decided she couldn't have aspergers since she could talk and wanted to have friends. That children with Asperger do not want to have friends that they just don't care about stuff like that. That a child with Aspergers didn't text on cell phones or join chat rooms on the computer. I really need some help.> Thanks >

[Guest guest]

I think you need to find another doctor who is keeping up with the current

research, which shows that many Aspies feel things deeply, they just don't

express their feelings the same way as everyone else. AS in girls is different

than it is for boys. I've met plenty of Aspie girls through my son's school and

a lot of them LOVE to talk, talk, talk. My son prefers texting and computers to

conversation. I think it's because it eliminates all that non-verbal stuff that

is so confusing.

Where do you live? Maybe others in this group can help you find someone local. I

don't recommend that you wait until she's 18 to see if she grows out of it. The

earlier you can work with her, the better it will be for her as an adult.

[Guest guest]

That does sound like AS. It does not sound like she has

very many academic issues if she is able to keep up

with a very busy middle school curriculum. And it

doesn't sound like she has much anxiety or outburst

behaviors. So she probably has pretty good transitioning

mindset skills and executive function skills.

So that is great that your daughter doesn't have servere

behavior problems at home or school and that she

doesn't sound like her anxiety is very bad at all.

But her social impairment sounds severe. I agree with the

other response that you should find an AS expert that

can help get her DX with AS. Or if not and you can

afford it get her the social skill training she needs

during the summer at least. Don't have her home

alone.

Pam

> >

> > I am hoping someone can help. I need to know what drs. are most

experienced with aspergers Dx. I am having a lot of trouble getting help for my

daughter. I was told that she had PDD then Aspergers then Brain Dysfunction and

everything would be fine once she reaches 18 yrs of age because she is really

just socially immature. The Dr. decided she couldn't have aspergers since she

could talk and wanted to have friends.  That children with Asperger do not want

to have friends that they just don't care about stuff like that. That a child

with Aspergers didn't text  on cell phones or join chat rooms on the

computer. I really need some help.

> > Thanks

> >

>