Re: Re: I really need some help. :) Anne :)

[Guest guest]

Hi Anne,

Thanks for your input. I really appreciate it. Well, the NP is actually a good

friend of Cutler. She said sometimes it's easier on the person to just

keep a low dose continusously..( spelling?) I think with this will not be

right.

I am so relieved that her sun sensitivity seems to be gone today..I hope it

stays away. She was outside swimming and laying out by the pool and no spots..I

hope it was a temp. thing.

She uses the compounded...oral.

I am thinking of going down to 10mg for awhile ( is 20..not little like

your son) I want to go really slow. She said one week on one week off..maybe I

should go even shorter then one week.??

I just want to do this right. I am sick of paying doctors all this money out of

pocket and I have to figure it out myself..arghhhhh...I am sure this is typical

though..so , I am not alone.

Thanks again..

Carol W.

anneecbrynn <anneecbrynn@...> wrote: Are

you using compounded oral? Or TD? In either case, you might

check to make sure there is nothing in there that might in any way

cause a problem.

Is your daughter on probiotics? Someone may have already asked you

that.

FWIW, my son is only 5, using 11 mgs DMSA and 15 mgs ALA per dose,

but if lately if I run him much past 4 days on round, he starts to

show stress signs. I think you should start a new round at low dose

making sure you are supplementing other stuff adequately (what liver

support do you have going? are you supplementing magnesium? etc.)

and after the first three days on, stop as soon as you start thinking

her system is too stressed out. That might set a decent baseline for

you going forward as far as rounds go. It is better first to know

she tolerates the chelator (i.e. be conservative on the first rounds,

continuing to use the 6 hr. intervals that you found worked for her)

and can be comfortable chelating, and then to see what your optimum

rounds might look like, I think. This is especially true since your

daughter already shows signs of adrenal stress, which can be

exacerbated by chelation.

I have never heard Andy recommend that anyone start with a 3 week

round, though I don't particpate on or read any adult boards, so

there might be a difference there. I somehow doubt it, though. I

can't imagine doing three weeks, though I do occasionally dream of it

when we are on day 3 and everything is peachy, I imagine all the

mercury flowing out, and I want out from under this stuff ASAP, but

then day four comes and we know it is time to stop....

Just my .02.

Anne

-- In , Carol wickstrom <surbilly@...>

wrote:

>

>

>

> I know..The NP said it's easier on some people to just

> stay on it instead of breaking...maybe I shouldn't

> listen to her. I get tired of feeling like I can't

> trust anyone..argh.

>

> The dmps was compounded ...I don't think it had

> glutathione.

>

> I know I was searching on the internet to see if I

> could find some answers..I found some sites where

> mothers where having troubles with sores in the mouth

> from the dmps.

>

> I am going to make sure I do it with breaks from now

> on. I am just wondering if I should try dmps again or

> do something else...I feel so responsible for my

> girls..and this just gets wearisome..

>

> I am hoping this side affect goes away soon.

>

> is on Vitamin C, vitamin B's, low dose cortisol,

> armour thyroid, vitamin D, zinc,

> molydenum...spelling!! and some others...She is on a

> low sulphur diet because the NP did the liver function

> panel...I am trying to do this right...

>

> Any suggestions?

> Thanks,

> Carol

> --- Shepard Salzer <_Shepard@...>

> wrote:

>

> >

> > AC protocol doesn't involve 3 weeks straight, it

> > includes breaks...What supps are you using? I

> > presume the DMPS has no glutathione in it?

> > S S

> >

> >

> >

> >

> >

> > Hello,<br>

> > <br>

> > My name is Carol. I have three daughters with

> > lyme,<br>

> > one extremely sick, the other two suffer more

> > with<br>

> > merury. I started chelating the 20 year old

> > three<br>

> > weeks ago using the C.P. I even flew my daughter up

> > to<br>

> > WA state to a nurse practioner that came highly<br>

> > recommended to me from Rosner. ( A lyme guy

> > who<br>

> > used her successfully)<br>

> > <br>

> > I studied the two books from Cutler so I

> > basically<br>

> > knew the protocol.<br>

> > <br>

> > She started on 20 dmps every 8 hours. On

> > this<br>

> > schedule she started getting her " hits " to her<br>

> > stomach. Anxiety is her main issue and other

> > things<br>

> > like social anxiety etc. So, she had her go every

> > 6<br>

> > hours. This solved that problem.<br>

> > <br>

> > After three weeks continuous she started breaking

> > out<br>

> > on her arms and chest ( areas exposed to the sun)

> > and<br>

> > then her lip got red and sore and the inside of

> > her<br>

> > mouth got sore. I called the NP and she said it

> > could<br>

> > be that the mercury moving around is upsetting

> > the<br>

> > mast cells...so it is causing allergy symptoms.<br>

> > <br>

> > Well, I decided I would start doing one week on

> > and<br>

> > one week off maybe lowering the dmps to 10mg.<br>

> > <br>

> > But, I am afraid this will happen again. Do some<br>

> > people just us ALA and no dmps or dmsa? IS this<br>

> > dangerous? <br>

> > <br>

> > wants to go of to school so bad..but,

> > these<br>

> > roller coaster seems to unpredictable and it's

> > making<br>

> > me nervous. Plus her fear of change makes it

> > near<br>

> > impossible to actually go.<br>

> > <br>

> > IS this worth it? Or is it best to leave it along?

> > I<br>

> > hate seeing her fear so many things though. I

> > really<br>

> > want to help her so she can have a better quality

> > of<br>

> > life. She has a horrible time with change . NO

> > one<br>

> > would ever know looking at her..she looks like

> > the<br>

> > picture of confidence when she has to. <br>

> > <br>

> > I am hoping someone can help me sort this out. Is

> > the<br>

> > risk worth it? She also has some lyme

> > co-infections.<br>

> > She has very , very low NK cells, low white

> > blood<br>

> > count and other indications of mercury...<br>

> > <br>

> > Thanks for any help..<br>

> > Carol W. mom to three lovely daughters just

> > wanting<br>

> > to be normal!!<br>

> >

> >

> > _______________________________________________

> > Join Excite! - http://www.excite.com

> > The most personalized portal on the Web!

> >

> >

> >

>

>

>

>

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