A Newbie

March 30, 2001

Hi,

I have not personally had Multiple Myaloma but have some evidence that may

be of interest.

The first is a message that was sent to me a year or more ago.

Cliff

This originally came from a friend of mine.

Betsy is a friend of ours, in her 70s I suppose. She has multiple myeloma, a

very deadly kind of bone cancer, and is being treated by the same

oncologist I go to.

We saw Betsy a couple weeks ago. She's bright eyed and bushy tailed...her

old self. She mentioned that Dr. had recently told her she was his

" miracle patient " .

This spring I had heard about Betsy's situation. It was greatly different

from what it is today. She was extremely sick and unable to eat. She could

only lie in bed and was just wasting away. Her husband, Don, thought she was

dying. He may have been right. It had taken a long time for her doctors to

diagnose an obviously deteriorating health condition as multiple myeloma, so

that it was quite an advanced case before she was referred to Dr.-------,

as I understand it. I believe she had recently been started on chemotherapy

by -------- a little before I learned what was happening. But no matter how

good

his treatment might have been, if she couldn't eat she wasn't going to get

better.

I went down to --------- and bought a pint of Barlean's lignan rich flaxseed

oil, some low-fat cottage cheese, a pineapple and some honey, and took it

over to Don.

Don made Betsy a smoothie, using some of the pineapple to cover the taste of

the oil. A little later I learned that Betsy had called the smoothie

" delicious food " . She could eat it! Later still, I heard that Betsy likes

tuna fish in her flaxseed oil and cottage cheese smoothies, instead of the

pineapple. You can use anything in the smoothies to make them taste good to

you. In the meantime, Don had ordered some of the oil direct from Barlean's.

If you're a cancer patient it's sold to you at wholesale and costs about

half as much as at-------------or other health food stores, even with the

shipping cost.

It wasn't too much longer before Betsy was able to get up and be in a

wheelchair. Soon she was able to stand and get around a little with a

walker. A month or so ago she went in some cancer event that involved a

3-mile walk. She had intended only to do the first mile but ended up doing

the whole thing! She was back.

Betsy is an avid gardener and has one of the city plots. She had been able

to get the garden planted somehow, with help from Don, and it has been

delivering great quantities of produce all summer. Every now and then Don

brings some by for us. He thinks I saved Betsy's life.

Is Betsy's amazing response to the treatment of this devasting kind of bone

cancer because of the combined benefits of the flaxseed oil and

chemotherapy?

My friend----------

There is contraversy here. I see this as an example of the fact that

flaxseed oil will be of real benefit even though chemo is being used. I

personally do not know of many , if any,situations where the continuous use

of chemo has resulted in real recovery.

I do not know the complete details, but I understand that the chemo was

continued and eventually won and Betsy passed away.

Cliff

Let us understand what happens wih chemo. Chemo does kill most cancer

cells. It does not kill all of them; maybe up to 98%. That leaves some

that are immune to that chemo. It also kills the good cells, including the

immune system.

When the chemo runs its course and kills all the cancer cells it can, the

cancer continues to grow and the body cells keep on being killed. These are

the way it looks to me. They are not clinically tested, except that

eventually the chemo wins and people die.

March 31, 2001

Cliff,

Thanks for the info. It was MOST appreciated. I, too, have heard that

flax seed, ground up or the oil, is beneficial for many cancers. Hey,

it's natural, can't hurt me, huh?

Cliff Beckwith wrote:

>

> Hi,

>

> I have not personally had Multiple Myaloma but have some evidence that

> may

> be of interest.

>

> The first is a message that was sent to me a year or more ago.

>

> Cliff

>

> This originally came from a friend of mine.

>

> Betsy is a friend of ours, in her 70s I suppose. She has multiple

> myeloma, a

> very deadly kind of bone cancer, and is being treated by the same

> oncologist I go to.

>

> We saw Betsy a couple weeks ago. She's bright eyed and bushy

> tailed...her

> old self. She mentioned that Dr. had recently told her she was his

> " miracle patient " .

>

> This spring I had heard about Betsy's situation. It was greatly

> different

> from what it is today. She was extremely sick and unable to eat. She

> could

> only lie in bed and was just wasting away. Her husband, Don, thought

> she was

> dying. He may have been right. It had taken a long time for her

> doctors to

> diagnose an obviously deteriorating health condition as multiple

> myeloma, so

> that it was quite an advanced case before she was referred to

> Dr.-------,

> as I understand it. I believe she had recently been started on

> chemotherapy

> by -------- a little before I learned what was happening. But no

> matter how

> good

> his treatment might have been, if she couldn't eat she wasn't going to

> get

> better.

>

> I went down to --------- and bought a pint of Barlean's lignan rich

> flaxseed

> oil, some low-fat cottage cheese, a pineapple and some honey, and took

> it

> over to Don.

>

> Don made Betsy a smoothie, using some of the pineapple to cover the

> taste of

> the oil. A little later I learned that Betsy had called the smoothie

> " delicious food " . She could eat it! Later still, I heard that Betsy

> likes

> tuna fish in her flaxseed oil and cottage cheese smoothies, instead of

> the

> pineapple. You can use anything in the smoothies to make them taste

> good to

> you. In the meantime, Don had ordered some of the oil direct from

> Barlean's.

> If you're a cancer patient it's sold to you at wholesale and costs

> about

> half as much as at-------------or other health food stores, even with

> the

> shipping cost.

>

> It wasn't too much longer before Betsy was able to get up and be in a

> wheelchair. Soon she was able to stand and get around a little with a

> walker. A month or so ago she went in some cancer event that involved

> a

> 3-mile walk. She had intended only to do the first mile but ended up

> doing

> the whole thing! She was back.

>

> Betsy is an avid gardener and has one of the city plots. She had been

> able

> to get the garden planted somehow, with help from Don, and it has been

> delivering great quantities of produce all summer. Every now and then

> Don

> brings some by for us. He thinks I saved Betsy's life.

>

> Is Betsy's amazing response to the treatment of this devasting kind of

> bone

> cancer because of the combined benefits of the flaxseed oil and

> chemotherapy?

>

> My friend----------

>

> There is contraversy here. I see this as an example of the fact that

> flaxseed oil will be of real benefit even though chemo is being used.

> I

> personally do not know of many , if any,situations where the

> continuous use

> of chemo has resulted in real recovery.

>

> I do not know the complete details, but I understand that the chemo

> was

> continued and eventually won and Betsy passed away.

>

> Cliff

>

> Let us understand what happens wih chemo. Chemo does kill most cancer

> cells. It does not kill all of them; maybe up to 98%. That leaves

> some

> that are immune to that chemo. It also kills the good cells,

> including the

> immune system.

>

> When the chemo runs its course and kills all the cancer cells it can,

> the

> cancer continues to grow and the body cells keep on being killed.

> These are

> the way it looks to me. They are not clinically tested, except that

> eventually the chemo wins and people die.

>

June 16, 2002

Hi Dawna,

I am new also in the preband stage and doing a lot of research. I

live in Tacoma, Wa. and went to Dr. Fox's Informational meeting. I

am currently waiting to find out if my insurance will pay. In the

mean time i have been looking into mexico just in case. I found if

you go up to search archives and type in tijauna or just mexico it

will give you hours of posts giving you any info you probably could

think of needing. I read for an hour yesterday and got a real

education. hope that helps some.

take care, and good luck.

> Hello All,

>

> My name is Dawna. I have been lurking here for a week or two, and

> decided it was time to introduce myself and ask a few questions.

> I am still in the research phase of my weight loss journey. I am

soo

> ready for a change. I will most likey be a private pay patient, if

I

> decide to go with a band. My Insurance still considers LapBand

> experimental/investigational. I could get the Bypass and they might

> cover it, but I feel that route is not for me. I really like the

> thought that the band is reversable, if need be. I have looked

into

> the UWMC and have heard that they have up to a two year wait, and I

> believe that is for the bypass surgery. I have learned a lot about

> various doctors who perform lapband surgeries from you all, and I

> aprreciate your knowledge. You are a great group of people, and I

am

> soo glad to have found this group! )

>

> A few questions, how does one begin this process? It seems that a

> lot of you have had your surgeries done in Mexico. How did you

start

> the ball rolling, so to speak? How long did you have to wait

before

> you were able to have your surgeries? Have you heard of, or is

there

> any reasons a person would not be allowed to have this surgery?

>

> Sorry to ask so many questions, but I have been obsessed with

finding

> out as much as I can since hearing of this. I really think this is

> for me, but I am also a bit scared as well. Knowledge is the key!

>

> Thanks for any advise/information you can share!

> -Dawna

June 16, 2002

I started the actual process by calling Dr. Ortiz in Mexico. He gave me

details about his costs and pretty much let me pick a date when I would be

ready. I scheduled for about 3 weeks from that original phone call.

He has a website: www.obesitycontrolcenter.com which has his phone number

on it.

Elise

Dr. Ortiz, TJ

2/1/02

200/165/120

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June 16, 2002

i am going thru the process..private pay, dr fox, 240lbs, 51 yrs, 5 " 2

1/2 " .

at my statistics can anyone give me an idea if i will need/want a tummy

tuck? i figure i am 100lbs overweight, maybe a little more.

thanks!

Sandy Landry

Landco@...

Lynnwood, Wa.

September 21, 2005

In a message dated 9/21/2005 8:50:36 P.M. Pacific Daylight Time,

lil_nora77@... writes:

I'm trying to decide whether to go with behind the ear or the box

(it's about the size of the pager i hope)? I'm leaning toward the

box because the BTE looks humongous than the current hearing aid i'm

wearing now. With the box, i can hide the cord under my shirt. I

would like to hear from people why they choose BTE or the box? Does

the box interfere with your lifestyle? I'm also concerned about

clothing. If I wear an evening gown or a dress with no pockets, how

the heck am i going to clip the box to my dress? (I need input from

women out there).

hello Nora (if this is your name),, welcome to the board.

Did you look at the 3 BTE processors? I thought one of them is about the

same size as Oticon hearing aid.

I was dead set against body (box) processor for one obvious reason. I grew

up with body aid until I was 19 and I hated it. I have lost count how many

times my hearing aid fell off because the cord got in the way. I find that

the BTE processor is very comfortable to wear, in fact, I don't even notice it

when I am wearing it, something I would notice with BTE hearing aid. All in

all, it is the cord that I did not want to deal with.

This is only my opinion.

Lee

September 22, 2005

Lil,

I choose the BTE for the " freedom " it provides me. No cords, no hassles and it

is a very self contained business. I don't particularily like the cord business

getting in the way. It reminds too much of my early days back in the '60s using

the body worn HA. But that is just my preference. If the BWP works for you, go

for it!

Dale

lil_nora77 <lil_nora77@...> wrote:

Hi this is my first time here.

Since I was four, I have profound hearing loss in my left ear and it

is not aided. I had severe hearing loss on my right (70 DB loss) and

with the help of an hearing aid, I was able to understand speech

with lipreading. I could also hear on the phone too. But something

happened in mid june. It started with a running nose then somehow I

was diagnosed with bronchitis. I was so sick with bronchitis for

just over a month with persistent coughing. After two days of fever

(I took 4 tylenol to help keeping my temp down), I woke up hearing

everything sounded plugged up. I thought i had an ear infection so I

went to the doctor about it. He said no infection but gave me

antibiotics just in case. In one week it got even progressively

worse. Everything sounded so muffled then within a few days, i went

profoundly deaf. Then in 1 or 2 weeks my hearing came back a little.

But it hasn't come back any more since mid July. I just met the

audiologist with the cochlear implant program on tuesday. She said

I'm eligible for the CI and that she will schedule a balance test

and appt with the doctor. She gave me 3 companies to choose from,

advanced bionics (clarion), cochlear (nucleus) and med-el.

THis is a really tough decision. I read your advices to to join

each companies' website to get unbiased info from each group. I will

certainly do that. I hope y'all won't mind me asking questions on

here too.

THe audiologist at the hospital said all 3 companies are the same

and cost wise (for batteries) they are the same too. It's a matter

of preferences who I want to go with and what is my wearing option.