/was: Re: Help for Evan --- please advise!

[Guest guest]

Thanks , for this email. You bring up some good points...

I was thinking about the SCD myself and it will be very difficult, I

know, but will read up on it and start once I have a week worth of

foods to serve and he is willing to eat some. I would probably have

to start introducing these new foods one a time and make sure he is

willing to eat them and then gradually expand.

I did see the diet file some time ago and will look it up again.

No, I have not doen IgG/IgG testing and I should have...it's just

that when we go to the lab they always take so much blood for other

tests (RBC, metabolic tests, etc.) that there is never enough blood

to to the IgG test. Also, going to the lab is quite a trauma for

all of us and takes some special prep., as you know, but it is time

we go again, hopefully by the end of this week. I will report back

on that. We have done NAET in the past and I sort of relied on

those tests and treatments, but we have not been able to go back due

to spending all our $$ on HBOT. It's just impossible to do

everything at a time!

I took him off the ooo last night and he slept like a champ. He did

not have any BMs today/or poop accidents so may be it was the ooo

bothering him? I will wait another few days to conclude either

way! He was more silly though in the afternoon, definitely acting

very " yeasty " , getting out of the carseat, taking his clothes off in

the parking lot....Oh boy, that was very interesting of a sight.

I have to find something to help the yeast before I go forward with

the rounds. I will probably ask for another systemic antifungal

from our doctor tomorrow, and possibly start him on Uva Ursi before

or after that,maybe a few weeks away from each other so that I know

what is doing what...

Btw, we do use digestive enzymes already, inc. no-fenol, and perhaps

I will try to sneak one no-fenol in before he eats --- see if that

helps any....

Ev is changing so much and I am just having a hard time

understanding what may be causing what, with HBOT in the game, too,

there is so little known about it that it is only guessing, really,

about its effects. Some things get better and others get worse. it

feels like things are shifting inside him and I just wish I

understood this a bit better so I could help him better...

Thanks for the ideas and support, !

> > >

> > > Hello...

> > >

> > > After a long time of not writing, here I am back with many

> > questions

> > > and more troubled than ever. Here's the problem, at least

> briefly:

> > >

> > > Evan is severely autistic, non-verbal. I have tried DMSA

> > chelation,

> > > first time about 3 years ago and initially the wrong

protocol.

> We

> > > discontinued because of general discomfort and falling ill

every

> > > time we chelated. Then about a year after that (about 2

years

> > ago)

> > > we did 4 or 5 rounds of AC protocol with TD-DMSA. Got lots

of

> > yeast

> > > but saw progress in speech, even if just on round, one or

two

> > times

> > > speaking 1-2 words. Nothing ever since. My son is also

apraxic,

> > very

> > > bright but simply can't talk or sign due to the motor

planning

> > > issues. The fine motor and sound production has only this

year

> > > started to improve somewhat, overcoming the motor planning

> issues

> > > slightly, but we still have a long way to go.

> > >

> > > Anyhow, I was saying that we started with a DAN in July 2006

and

> > so

> > > we had to wait for some tests to come back. RBC was very low

on

> > zinc

> > > and calcium showed super high, so we first replenished a bit

of

> > the

> > > zinc, worked on the gut with GFCF diet, nystatin, caprilyc,

some

> > > probiotics --- and we saw many gains in receptive language,

> > > sleeping, toilet training, in GI functioning, and after a

few

> good

> > > months like this we decided to go ahead a and chelate again

in

> > > January 2007. DAN doc. recommended TD DMPS due to mercury

> > toxicity

> > > (history of 12 amalgam fillings placed while pregant with

him).

> I

> > > followed the AC protocol with this product, too. Evan had

lots

> of

> > > yeast!!!!! no sleep and regression in toileting, receptive

> lang.,

> > > less following directions etc. It took us about 3 months to

get

> > > this under control, using diflucan and then we tried again

using

> > TD,

> > > later oral DMSA, AC protocol, first 12 mg per dose (he is 40

> lbs)

> > > and the next rounds we did 5 mg per dose. He was able to

> tolerate

> > > the rounds better with this low dose but the yeast was

pretty

> bad

> > > again, lots of accidents, not sleeping well, screaming,

> gigg;ing,

> > > host of sensory issues, etc. We must have done 4 rounds of

this

> > and

> > > had to switch to Ketoconazole for the nightime issues (we

also

> had

> > a

> > > round of antibiotic for an ear infection) and that helped,

but

> the

> > > toileting issues remained pretty bad until we started HBOT

and

> the

> > > first month was really wonderful - accidents stopped

totally,

> Evan

> > > started to be able to move his arms in the water (swimming)

and

> > > improvement in his fine motor skills was noted with better

eye

> > > contact and socially more responding as well. So after about

12

> > > dives (mHBOT) we decided to chelate along with HBOT, hoping

that

> > it

> > > will keep the yeast at bay better. What ahppened is that the

> > yeast

> > > continues to be a problem, we are back on diflucan and

nystatin,

> > and

> > > have been dealing with incontinence, both urinary and BM

> > (diarrhea)

> > > for about 1.5 months. We stopped chelation after 3 rounds

again

> > on

> > > the low dose oral DMSA. Our last round was 4 weeks ago and

Evan

> > is

> > > still battling yeast and the GI problems again. I know I can

> try

> > > different things for yeast but chelators just really seem to

> > worsen

> > > him so bad that I don't think I will ever be brave enough to

> give

> > > him anything at all.

> > >

> > > My main question is re. ALA - does this medication seem to

be

> > better

> > > for yeast or is this again individual for each kid? Do you

have

> > any

> > > advice for me? Again, my son is surely mercury toxic, due to

> > > history and he also met the counting rules. Any advice would

be

> > > greatly appreciated!

> > >

> > > Thanks!

> > >

> > >

> >

>

>

>

>

>

>