Re: friend with a sick child.

February 4, 2008

I am certainly not an expert, just started enzymes and the GFCF diet with my 5

yr old, but my daughter had the same symptoms all her life, she is now 30, when

we removed all milk and casin,and soy she was fine. She had an episode a few

weeks ago after eating a piece of pizza, i guess it was the cheese. She basiclly

has to stay away from all dairy and process foods since they contain milk, casin

and soy.

--

Blessings

Jack, Cheryl and Kile Killman

When you get to where there is nothing left but God in your life, you then

realize he was all you ever really needed.

---- Boopercat@... wrote:

=============

Dear Listserve friends,

I have a friend with an 8 year old daughter who has a health problem. She

does not have autism but since it seems obviously digestive related, I thought

someone might have suggestions since we deal with digestive issues a lot.

Here are her daughters symptoms.

Since 1 year old she had tummy troubles requiring her to be on a specific

formula.

She always had occational stomach aches but it seems to have increased over

the years and lately it has gotten very bad.

Everytime she eats she has to go to the bathroom and says it hurts to go,

often crying. She is not constipated at all so it's not a " constipation " hurt.

Usually just eating makes her stomach hurts.

Everytimes she drinks milk she gets very ill.

Lately, everytime she gets one of her stomach aches she says her head also

hurts and now her LEGS hurt too.

Any idea? Thanks so much for taking the time to help this child.

Kristi in Alabama

**************

Biggest Grammy Award surprises of all time on

AOL Music.

(http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\

548)

February 4, 2008

It could just be a lactose intolerance. I know that can cause severe

stomach cramping and also diarrhea. Have they tried removing the

lactose from her diet? Other than that, I'd maybe get her some

information on the Specific Carbohydrate Diet. It is supposed to be

good for general gut issues like IBD and Crohn's and promote gut

healing from a variety of issues. Here is a link to the pecanbread

site.

http://www.pecanbread.com/new/home1.html

They do talk alot on the site about autism and related conditions,

but I know there are some people on their listserve that have

various other digestive conditions and not autism so there would

probably be someone there that could maybe help her decide if it

would be a good diet for her daughter.

pecanbread/

Sheresa

>

> Dear Listserve friends,

>

> I have a friend with an 8 year old daughter who has a health

problem. She

> does not have autism but since it seems obviously digestive

related, I thought

> someone might have suggestions since we deal with digestive issues

a lot.

> Here are her daughters symptoms.

>

> Since 1 year old she had tummy troubles requiring her to be on a

specific

> formula.

>

> She always had occational stomach aches but it seems to have

increased over

> the years and lately it has gotten very bad.

>

> Everytime she eats she has to go to the bathroom and says it hurts

to go,

> often crying. She is not constipated at all so it's not

a " constipation " hurt.

>

> Usually just eating makes her stomach hurts.

>

> Everytimes she drinks milk she gets very ill.

>

> Lately, everytime she gets one of her stomach aches she says her

head also

> hurts and now her LEGS hurt too.

>

> Any idea? Thanks so much for taking the time to help this child.

>

> Kristi in Alabama

>

> **************

> Biggest Grammy Award surprises of all time on

> AOL Music.

>

> (http://music.aol.com/grammys/pictures/never-won-a-grammy?

NCID=aolcmp00300000002548)

>

February 4, 2008

Have your friend ditch the milk in her kiddos diet.

I was ALWAYS congested and snotty nosed as a child. Once I became an

adult, it moved to my head and I had such horrible sinus problems ALL

THE TIME... so much so that I wanted to get that surgery where they

poke holes in your sinuses so they will drain constantly... When we

went milk free, all of a sudden, I was better. No more sinus,

snot, " eye boogers " , joint pains, etc.

Now, on ocassion, I sneak a little dairy here and there and regret it

every single time. It kills my stomach. It just bubbles and brews for

about an hour... then, it's bad news in the bathroom dept... then, at

night, I cannot sleep because my ears ring and pop and feel full... I

also notice that when people talk to me, I can't listen very well,

and am always telling them to repeat themselves...

My daughter was also a milk-intolerant baby. I couldn't eat milk

products while breastfeeding her or she would scream for hours. She

gets a rash on her mouth if she eats milk... she also will not sleep

without nightmares while eating milk... she tells me it hurts her

stomach. It constipates her BADLY... either that, or she will

explosive diarreah... it fluctuates. (For me, too.)

Anyway, milk is bad stuff... If she is complaining of feeling awful

after ingesting it, I would suggest she stops. Even taking enzymes

doesn't work fully for my daughter & I. It makes the symptoms less,

so if we want to partake here and there, we do... but, we always pay

for it...

I hope her daughter feels better.

Aubrey

February 4, 2008

Sounds alot like my older girl...over the past two years, she has

found two Big Things, that rather took care of her perpetual " belly

issues. "

One was honey - she started drinking it with milk a couple years ago

& voila, she now tolerates milk completely. (this, to me, sounds

alot like the " milk harboring stealthy bacteria not killed by

pasteurizing, but killing off the good guys who keep it from taking

over theory " & something in the honey addresses that. however, that

is just a guess, tho', on my part .... (local) honey has done

wonders for everyone else's belly issues also. I guinea pig'd

everyone in the house, after I realized the honey/milk thing was the

only new thing, AND her belly was soooo much better than ever before.

And, the other more recent one, was a switch to sourdough bread (my

homemade, no yeast, made my own starter & everything - who knew?

spent my summer playing with that one!!) ...anyway, attempts to get

her gf have failed miserably...and now, she is mostly gf (no

breads,cereals, etc tho!!) and loves the sourdough stuff. The rest

of us, well, we just don't like it sooo much...am still playing with

it, trying to get a less sour version for the rest of us

and, a smaller but still important thing for her...she drinks herb

teas. These also seem necessary/helpful to her continued " belly "

health...raspberry leaf, the nighty-night/calming teas, in

particular - no " real " teas, all herb varieties...

Lots of mainstream info out there - just throwing out our

more " anecdotal " answers.

fwiw

wishing you the best answers

elizabeth

>

> Dear Listserve friends,

>

> I have a friend with an 8 year old daughter who has a health

problem. She

> does not have autism but since it seems obviously digestive

related, I thought

> someone might have suggestions since we deal with digestive issues

a lot.

> Here are her daughters symptoms.

>

> Since 1 year old she had tummy troubles requiring her to be on a

specific

> formula.

>

> She always had occational stomach aches but it seems to have

increased over

> the years and lately it has gotten very bad.

>

> Everytime she eats she has to go to the bathroom and says it hurts

to go,

> often crying. She is not constipated at all so it's not

a " constipation " hurt.

>

> Usually just eating makes her stomach hurts.

>

> Everytimes she drinks milk she gets very ill.

>

> Lately, everytime she gets one of her stomach aches she says her

head also

> hurts and now her LEGS hurt too.

>

> Any idea? Thanks so much for taking the time to help this child.

>

> Kristi in Alabama

>

> **************

> Biggest Grammy Award surprises of all time on

> AOL Music.

>

> (http://music.aol.com/grammys/pictures/never-won-a-grammy?

NCID=aolcmp00300000002548)

>

February 4, 2008

Kristi,

The description sounds a lot like my son (Crohn's, not autistic).

Except my son has no evident problem with milk. From quite young, he

grumbled of tummy aches, joint aches, leg aches and head aches. He

considers food to be the enemy, because it made him hurt. He also

failed to thrive, wearing the same-sized clothes and shoes for years

at a time. He was malnourished, due to malabsorption. His first

symptoms showed up at 6 or 7 y/o. Supplementing with liquid Ca/Mg

helped the leg aches. Could be other minerals, also. He also doesn't

sleep well and never has. He was ultra thin and weak.

Could be simple allergies - milk intolerance or ? Could be Celiac,

Crohn's, or something else. Hopefully not serious. A hair test might

be a good idea. Any excessive antibiotics?

There are now blood tests for celiac and Crohn's. Docs tend to want

to scope before the blood tests. I think that's backwards. Celiac is

allergy, of course, but probably really a combination of hg-toxic and

GMO wheat. Crohn's is really a combination of infections, allergy,

and probably hg and aluminum + (same as ASD).

The same things work in Crohn's as work in autism. To me, it's the

same issues, regardless of diagnosis. But it's better to know what's

going on, so you know what you're dealing with. If it's Crohn's or

Celiac, etc., it's necessary to be aware of the acute problems that

can occur. I know of one child who was just chronically ill for about

two years with pain, diarrhea, weight loss, missed school, etc. to

find out after a long search, he had Celiac-- and it ran in the

family, and no one had told the mother.

My son ended up in emergency, because he was very sick, and didn't let

on, and I am a " let's wait and see " kind of person, and I was trying

to avoid conventional medicine. With severe bowel disease, there can

be blockages, narrowing of intestines, or fistulas (infections that

tunnel to other organs). These cause pain and require attention.

I'm not trying to scare anyone. You hope for the simplest solution.

But must be aware that it isn't always simple.

***

Eliz, You always have the best responses!!

Honey - what kind? Is it organic, local? Honey is the only real food

I know of that doesn't spoil. Anti-bacterial, anti-viral... It can

be kept years and years. It doesn't get mold or go bad, crystalizes,

yes. Your experience makes me wonder if honey gets rid of

mycobacterium that is in milk and connected to Crohn's disease...?

Sourdough bread... Yes again! You are so on! What kind of flour do

you use? Regular bread is made with S.Cerevisiae (baker's yeast).

Baker's yeast used to be natural and benign, but now is often

considered to be pathogenic. And store-bought bread has unhealthy

additives in it. There's research showing that even Celiacs can eat

natural wheat sourdough bread! Natural-leavened sourdough has

lactobacillis (I think). It's a friendly probiotic. In my research,

I found this to be the only healthy bread to eat.

People with Crohn's disease show antigens to both baker's yeast and

Candida. And, mycobacterium in milk is also suspected in Crohn's.

They also can't get rid of e-coli, (something scientific I can't

remember.)

This info is awesome! Thanks for your an-ec-docs!

Judy

February 5, 2008

>

> Eliz, You always have the best responses!!

Judy,

ummm, " aw,shucks " she says...I have my moments, never sure when they

are, thanks...and tend to think in ideas, vs details - can make

explaining Anything interesting...never mind the brain fog type of

stuff..minor arrgghh moment there

>

> Honey - what kind? Is it organic, local?

Organic? not labelled as such, don't think so - after more mainstream

honey seemed to help, I looked for " better " honey...and have found

two - one at the mainstream store & one from the farmers market

(personal favorite ...my thought was the local bees, making local

honey, would be better for us, than honey from elsewhere, we share

the same space and all that...

Your experience makes me wonder if honey gets rid of

> mycobacterium that is in milk and connected to Crohn's disease...?

aahhh, you have a detail!! - when pounding info 3-4 yrs ago, I found

many, many of My Best answers in the crohn's information, including

that bacteria thingee (mycobacterium...lol) ..that " made sense " to

me.

>

> Sourdough bread... Yes again! You are so on! What kind of flour do

> you use? Regular bread is made with S.Cerevisiae (baker's yeast).

The least processed I can find...using the natural yeast in the

wheat/air (there are conflicting, heated debates on this one

ummm, right now, it is the king arthur organic wh wheat - I have to

read the labels at the store each time *big sigh* ...Again, looked

for the best milk I could find at (mainstream) store, a local guy

again...and, honestly, that is what seems to make the

difference...surprisingly enough, sour cream containers seem very

helpful - have played with adding sr. cream, that was okay, but

starter went bad kinda quickly...might try again later.

oh...no bakers yeast - really trying to get the least processed as

possible, since that is what seems to be the Most helpful for my

migraine girl's myriad issues...use just the milk/flour, and did get

some starter that was " okay " from water/flour...

> Baker's yeast used to be natural and benign, but now is often

> considered to be pathogenic. And store-bought bread has unhealthy

> additives in it. There's research showing that even Celiacs can eat

> natural wheat sourdough bread! Natural-leavened sourdough has

> lactobacillis (I think). It's a friendly probiotic. In my

research,

> I found this to be the only healthy bread to eat.

chuckling...I actually found this type of info, while living in HPA

axis infoland - go figure...info link'g and following tangents...

>

> People with Crohn's disease show antigens to both baker's yeast and

> Candida. And, mycobacterium in milk is also suspected in Crohn's.

> They also can't get rid of e-coli, (something scientific I can't

> remember.)

>

> This info is awesome! Thanks for your an-ec-docs!

Too funny...just grateful that I continue to have my own " moments of

grace " yk? Big sigh, I Still spend too much time, in spurts, coping

with clarity/incoherency issues and such...does keep getting better

and better and better - love that...

And, wow, your son sounds soooo similar to me - think I have found

answers from your posts in the past, even ...and simlarities to my

kids, esp. the older girl. I was very much relating to your note to

Kristi...

I do VERY much agree that the things that address mercury toxicity,

and other toxicities, do work for the wide range of these types of

issues...at our house, anyway

wishing you the best answers

elizabeth

February 5, 2008

> I have a friend with an 8 year old daughter who has a health problem.

> She always had occational stomach aches but it seems to have

increased over

> the years and lately it has gotten very bad.

My #4 is also 8yo. She was ADHD, and right now still requires

supplements to avoid ADHD issues.

In the past, she has complained about stomach issues, which for her

are related to mitochondrial dysfunction. This child needs SOOOOOO

much carnitine it is unreal. If I miss a day of carnitine, eating

anything with fats, vitamin C, or B vitamins will cause problems.

> Everytime she eats she has to go to the bathroom and says it hurts

to go,

> often crying. She is not constipated at all so it's not a

" constipation " hurt.

My #4 alternates between constipation and diarrhea. It is getting

better, fortunately.

> Usually just eating makes her stomach hurts.

Does she eat anything relatively frequently?

> Everytimes she drinks milk she gets very ill.

For my #4, this would be because of the milk fat. When she wants

cereal for breakfast, she needs carnitine, CoQ10, and taurine,

otherwise the milk gives her a stomach ache. See if the child feels

better if she drinks fat-free milk.

> Lately, everytime she gets one of her stomach aches she says her

head also

> hurts and now her LEGS hurt too.

Yep, this is my #4. The leg thing was really odd to me at first, but

it was also addressed with the same supps.

Is this child overly skinny or, conversely, overly chubby?

Right now my #4 is taking mito supps, vitamin C, lysine, biotin,

magnesium, and B vitamins. These help her most of the time.

Dana

February 5, 2008

I second this,

My daughter (NT) was diag with Ulcerative Colitis, her symptoms

started out pretty much the same as your friends' daughter. As the

disease got a firmer grip she also started complaining of pains in

all her joints, extreme fatigue and a tightness in her chest

(sometimes accompanied with shortness of breath). Finally she

collapsed, lost loads of weight and was hospitalised.

Please have your friend go to her doctor.

Jane

>

> Kristi,

>

> The description sounds a lot like my son (Crohn's, not autistic).

> Except my son has no evident problem with milk. From quite young,

he

> grumbled of tummy aches, joint aches, leg aches and head aches. He

> considers food to be the enemy, because it made him hurt. He also

> failed to thrive, wearing the same-sized clothes and shoes for years

> at a time. He was malnourished, due to malabsorption. His first

> symptoms showed up at 6 or 7 y/o. Supplementing with liquid Ca/Mg

> helped the leg aches. Could be other minerals, also. He also

doesn't

> sleep well and never has. He was ultra thin and weak.

>

> Could be simple allergies - milk intolerance or ? Could be Celiac,

> Crohn's, or something else. Hopefully not serious. A hair test

might

> be a good idea. Any excessive antibiotics?

>

> There are now blood tests for celiac and Crohn's. Docs tend to want

> to scope before the blood tests. I think that's backwards. Celiac

is

> allergy, of course, but probably really a combination of hg-toxic

and

> GMO wheat. Crohn's is really a combination of infections, allergy,

> and probably hg and aluminum + (same as ASD).

>

> The same things work in Crohn's as work in autism. To me, it's the

> same issues, regardless of diagnosis. But it's better to know what's

> going on, so you know what you're dealing with. If it's Crohn's or

> Celiac, etc., it's necessary to be aware of the acute problems that

> can occur. I know of one child who was just chronically ill for

about

> two years with pain, diarrhea, weight loss, missed school, etc. to

> find out after a long search, he had Celiac-- and it ran in the

> family, and no one had told the mother.

>

> My son ended up in emergency, because he was very sick, and didn't

let

> on, and I am a " let's wait and see " kind of person, and I was trying

> to avoid conventional medicine. With severe bowel disease, there can

> be blockages, narrowing of intestines, or fistulas (infections that

> tunnel to other organs). These cause pain and require attention.

>

> I'm not trying to scare anyone. You hope for the simplest solution.

> But must be aware that it isn't always simple.

>

> ***

>

> Eliz, You always have the best responses!!

>

> Honey - what kind? Is it organic, local? Honey is the only real

food

> I know of that doesn't spoil. Anti-bacterial, anti-viral... It can

> be kept years and years. It doesn't get mold or go bad,

crystalizes,

> yes. Your experience makes me wonder if honey gets rid of

> mycobacterium that is in milk and connected to Crohn's disease...?

>

> Sourdough bread... Yes again! You are so on! What kind of flour do

> you use? Regular bread is made with S.Cerevisiae (baker's yeast).

> Baker's yeast used to be natural and benign, but now is often

> considered to be pathogenic. And store-bought bread has unhealthy

> additives in it. There's research showing that even Celiacs can eat

> natural wheat sourdough bread! Natural-leavened sourdough has

> lactobacillis (I think). It's a friendly probiotic. In my

research,

> I found this to be the only healthy bread to eat.

>

> People with Crohn's disease show antigens to both baker's yeast and

> Candida. And, mycobacterium in milk is also suspected in Crohn's.

> They also can't get rid of e-coli, (something scientific I can't

> remember.)

>

> This info is awesome! Thanks for your an-ec-docs!

>

> Judy

>

February 5, 2008

I would suggest you do the blood test for Celiac. I have Celiac and it

manifested first through lactose intolerance after my first child was born. I

discovered it after 7 years of having it when things got worse. I had to remove

verything from my diet and start like a baby with one food for several days to

identify initially what bothered me. Then teh blood test confirmed it.

I am glad I started right away SCD diet and now I am recovering

Varinia

judyl_nev <juude@...> wrote: