Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 I am the mother of recentlly diagnosed PDD NOS 2 1/2 year old twins. I am extremely overwelmed by all the information out there. My world had been in an uproar since we found out about them. I always thought they were delayed since they were twins. My life changed when I read McCarthy's book 'Louder than Words'. I felt like my perfect image of my babies was shattered. Here I thought they were always so well behaved, it never occurred to me that something was wrong. My husband was the one that said we need to get these kids evaluated by First Steps. The twins have been in First Steps since last December undergoing Developmental and Speech theraphy. It was not until July that they were tested. One twin is talking but doing a lot of repetive words. No 2 word combinations on her own. The other twin has just started trying to say some words. Both were diagnosed with having yeast on their butts. Trying to find information has been a struggle. Doctors do not have the answers. I am trying to get them into seeing a Developmental Ped. Insurance has been a nightmare. They do not cover the girls due to their diagnosis. Trying to get more theraphy thru First Steps has been a pain. They do not see the necessity. WHAT!! I have been searching the web and reading all the message boards from the McCarthy show on the Oprah site. I just found this site through a posting on the Oprah site. I started the girls on a Gtuen free diet and saw some changes in Sam. However over Thanksgiving she found regular pretzels at the house where we were staying. The next day she has a severe case of the runs. My husband noticed some deccreased eye contact. We are back on it but she has cheated a few times with no regression. She has 2 older sisters that have given her things she should not have. I have to wonder is it really helping. I started the girls on Threelac 5 days ago. They have this yeast thing on their butts since they were 1 and the old Ped. never said anything about yeast. Sam's butt is much better today. She tried feeding her younger brother his baby food with a spoon. She has never ackowledged his existence before. Today she said ball and wrapped her arms around me when I carried her to bed. She never does this. Has anyone seen these kind of changes after starting Threelac? I expected tp see diahrea afetr using this. I saw in one twin but not the more severe one. My twins used to eat anything and now they are so fuzzy that they would rather eat baby food then a hot dog. Forget an GF/CF food like Ian's chicken nuggets. What am I to do? The whole enzyme route is overwelming where so I start? what do I look for? Any help would be greatly appreciated. Quote Link to comment Share on other sites More sharing options...
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