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Re: L-carnitine Causing Stimming?

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Sissy,

When we first gave my son (who has apraxia not autism) prescription L-

carnitine after his tests came back low, we started on the " minimum

recommended dose " and by day 2 I had TODDLER ON SPEED. He literally

was bouncing off the walls, also was much more willful than usual.

He didn't stim, but he never has. Anyway, we lowered the dose by

almost half and the behavior went away. I've gradually over several

months been able to raise back up some, but it is still 2/3's of the

minimum dose. We are scheduled to re-test next month so we'll see

how that is doing. Maybe he doesn't need such a high dose anymore??

>

> I took my son off all supplements 2 months ago and have been

gradually adding each one back in. I added his prescription L-

carnitine last week and he's been stimming a lot. Flipping cars over

and spinning the wheels for the first time in over a year. Could it

be the carnitine? Anyone else see a similar reaction to carnitine?

>

> Thanks

> Sissy

> -----

>

>

>

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Hi Sissy--

My son has tourette syndrome, so he " tics " rather than " stims " .

However, I'm reporting this info in case it is relevant! I gave him

Acetyl L-carnitine once and it caused a huge explosion of ticccing.

It took about a month to get it back down to normal after that single

dose. At the same time, though, it resulted in better, calmer

behavior. Later I found that plain L-carnitine contributed a lesser

level of the same benefits, but only slightly increased ticcing (or

maybe not at all--the really irritating feature of this is that you

can never tell what is causing it: L-carnitine, yeast, allergies,

stress, random variables you'll never know?). This shouldn't

discourage anyone from trying carnitine though, since my child

responds to most supplements by either ticcing or behaving horribly.

Lynn

>>

> >

> > I took my son off all supplements 2 months ago and have been

> gradually adding each one back in. I added his prescription L-

> carnitine last week and he's been stimming a lot. Flipping cars over

> and spinning the wheels for the first time in over a year. Could it

> be the carnitine? Anyone else see a similar reaction to carnitine?

> >

> > Thanks

> > Sissy

> > -----

> >

> >

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I googled carnitine when my daughter was having problems with it, and

according to the site, carnitine is composed of methionine and

lysine. My daughter cannot handle any extra methyl, so I think

that's the reason she had problems with it.

>

> I took my son off all supplements 2 months ago and have been

gradually adding each one back in. I added his prescription L-

carnitine last week and he's been stimming a lot. Flipping cars over

and spinning the wheels for the first time in over a year. Could it

be the carnitine? Anyone else see a similar reaction to carnitine?

>

> Thanks

> Sissy

> -----

>

>

>

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> I took my son off all supplements 2 months ago and have been

gradually adding each one back in. I added his prescription

L-carnitine last week and he's been stimming a lot. Flipping cars

over and spinning the wheels for the first time in over a year. Could

it be the carnitine? Anyone else see a similar reaction to carnitine?

Try increasing the yeast protocol. Carnitine aids in the absorption

of fats, vitamin C, and B vitamins, and can contribute to a yeast

overgrowth problem because of the vitamin C and B vitamins.

Dana

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> Dana,

> just saw our DAN! today. She thinks its yeast also and tonight my

son had a red yeast rash in his diaper area. We're upping the yeast

protocol (again). Were you able to get the yeast under control before

you chelated or did it remain an issue until you got the metals out?

Several protocols I did tended to increase yeast for a while, then

eliminate it. Chelation was one, so was anti-virals, so were a few others.

But chelation did eliminate all gut yeast. The others eliminated

brain yeast.

Try giving biotin. The body uses biotin [a B vitamin made by the good

bacteria in the gut] to control yeast.

Dana

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