Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Sissy, When we first gave my son (who has apraxia not autism) prescription L- carnitine after his tests came back low, we started on the " minimum recommended dose " and by day 2 I had TODDLER ON SPEED. He literally was bouncing off the walls, also was much more willful than usual. He didn't stim, but he never has. Anyway, we lowered the dose by almost half and the behavior went away. I've gradually over several months been able to raise back up some, but it is still 2/3's of the minimum dose. We are scheduled to re-test next month so we'll see how that is doing. Maybe he doesn't need such a high dose anymore?? > > I took my son off all supplements 2 months ago and have been gradually adding each one back in. I added his prescription L- carnitine last week and he's been stimming a lot. Flipping cars over and spinning the wheels for the first time in over a year. Could it be the carnitine? Anyone else see a similar reaction to carnitine? > > Thanks > Sissy > ----- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2007 Report Share Posted October 24, 2007 Hi Sissy-- My son has tourette syndrome, so he " tics " rather than " stims " . However, I'm reporting this info in case it is relevant! I gave him Acetyl L-carnitine once and it caused a huge explosion of ticccing. It took about a month to get it back down to normal after that single dose. At the same time, though, it resulted in better, calmer behavior. Later I found that plain L-carnitine contributed a lesser level of the same benefits, but only slightly increased ticcing (or maybe not at all--the really irritating feature of this is that you can never tell what is causing it: L-carnitine, yeast, allergies, stress, random variables you'll never know?). This shouldn't discourage anyone from trying carnitine though, since my child responds to most supplements by either ticcing or behaving horribly. Lynn >> > > > > I took my son off all supplements 2 months ago and have been > gradually adding each one back in. I added his prescription L- > carnitine last week and he's been stimming a lot. Flipping cars over > and spinning the wheels for the first time in over a year. Could it > be the carnitine? Anyone else see a similar reaction to carnitine? > > > > Thanks > > Sissy > > ----- > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2007 Report Share Posted October 25, 2007 I googled carnitine when my daughter was having problems with it, and according to the site, carnitine is composed of methionine and lysine. My daughter cannot handle any extra methyl, so I think that's the reason she had problems with it. > > I took my son off all supplements 2 months ago and have been gradually adding each one back in. I added his prescription L- carnitine last week and he's been stimming a lot. Flipping cars over and spinning the wheels for the first time in over a year. Could it be the carnitine? Anyone else see a similar reaction to carnitine? > > Thanks > Sissy > ----- > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2007 Report Share Posted October 29, 2007 > I took my son off all supplements 2 months ago and have been gradually adding each one back in. I added his prescription L-carnitine last week and he's been stimming a lot. Flipping cars over and spinning the wheels for the first time in over a year. Could it be the carnitine? Anyone else see a similar reaction to carnitine? Try increasing the yeast protocol. Carnitine aids in the absorption of fats, vitamin C, and B vitamins, and can contribute to a yeast overgrowth problem because of the vitamin C and B vitamins. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2007 Report Share Posted October 31, 2007 > Dana, > just saw our DAN! today. She thinks its yeast also and tonight my son had a red yeast rash in his diaper area. We're upping the yeast protocol (again). Were you able to get the yeast under control before you chelated or did it remain an issue until you got the metals out? Several protocols I did tended to increase yeast for a while, then eliminate it. Chelation was one, so was anti-virals, so were a few others. But chelation did eliminate all gut yeast. The others eliminated brain yeast. Try giving biotin. The body uses biotin [a B vitamin made by the good bacteria in the gut] to control yeast. Dana Quote Link to comment Share on other sites More sharing options...
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